Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Hi Jill My daughter is 4.9 yrs old and wears a Digifocus 2 in her right ear (which is moderately to severely hearing impaired) and a Phonak in her left ear (which is very profoundly deaf). She is doing very well basically using her right ear (We do not think her left ear is benefiting from the aid). So don't worry too much about the Digifocus only being in 1 ear - you can get great results just with one well amplified ear. The only difficulty for us is locating sound - but it hasn't proved a major problem . Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Hi Virginia!! Cassidy has always worn only one aid. We have tried on several occasions to get her to wear both(we purchased 2 aids in the beginning). She absolutely hates it!! She is in the 110 range at 500 in the right ear. We are not pushing it. I am very excited about the new aid and thank you for responding. I don't hear of many kids just wearing an aid in one ear. Thanks again. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 > Subject: New to the group > > Hi! .... > Regards, > Kerryn Hi Kerryn. My daugter is close in age - she's just shy of 19 months. Her mild/moderate loss was id'd at birth, and she got her aids at 3 months. Since her loss is so small she responds to alot w/o her has, which has led to some resistance from my family in believing she needs them. Welcome to the list! - mom to Ellie b. 8/12/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Dear , Thanks for your message. I'm glad to know we are not the only ones who have trouble convincing our families that needs to wear her HA's. All they can see is a baby who can obviously hear things around her and looks when they call her name etc. Despite me explaining and showing her audiograms to them, they just don't seem to get it that she needs to wear them if she is to hear all the sounds of speech she needs to for good speech development. My Mum comes over every Wednesday to help out, and she doesn't like it when I put in 's HA's. She says things like " Do we have to? " I don't like it either but is never going to get used to them if we keep leaving them out for the bulk of the day! I know what she means - you can't really relax while they are in as you are constantly checking they are still in or trying to keep her entertained and distracted to stop her pulling them out. I have said to Mum, don't stress if she pulls them out, just let me know and I'll put them in again. It's not like we have to go and buy new ones each time they are pulled out! It only takes a few seconds to put them in again. If she has trouble dealing with it one day a week, then she must appreciate how hard it is for me all day every day. Don't get me wrong, Mum is very supportive etc., but she is having trouble accepting the HA's and probably finding it difficult to see with them in. I hate them too but I know if she doesn't wear them, she will be the one suffering down the track. My mother-in-law has the same attitude. It is hard enough dealing with this without having other people trying to deny there is a problem. All we can do is wait until is old enough to speak and she can tell them herself that she can't hear properly without her aids. Keep in touch! Regards, Kerryn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 <<Thanks for your message. I'm glad to know we are not the only ones who have trouble convincing our families that needs to wear her HA's.>> My son's loss has been progressive and so, early on, it did not appear that he needed aids either. He was not even diagnosed until the age of 4 but that only happened because he had the receptive and expressive language skills of an 18-month-old. (And that was when his loss was mild to moderate.) Although our family has been supportive, as yours is, I don't think they really understood why it was so vital (in our view) for to wear his aids constantly, either. That is, not until I hooked the aids up to a stethoset and let them each listen to how much amplification needs to hear an average conversation. Suddenly, everyone was very on-board. If you have a stethoset, you might try this or buy one of the tapes that are available which mimic hearing loss in its various forms. Carol - mom to , 5.10, mod to severe/profound, EVAS, HA's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 > or buy one of the tapes that are available which mimic hearing loss in its various forms. Or you could sit her down at the computer and let her listen to some of the simulations of hearing loss. You'll find a list of sites that have them on this page: http://www.listen-up.org/haid/audio.htm#sim Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 In a message dated 3/9/2002 12:49:51 AM Eastern Standard Time, cbenecke@... writes: > That is, not until I hooked the aids up to a stethoset and let them each > listen to how much amplification needs to hear an average > conversation. Suddenly, everyone was very on-board. I've let people listen on the stethoset as well to get an idea of how much background noise is amplified. You'll find how loud appliances and running water, etc are amplified in some hearing aids. They can also get an idea of what it sounds like when many people are talking at once. One time I listened on the stethoset while we were in the mall. I must say I was very discouraged, and wondered how my son could possibly decipher anything in this environment. Fortunately, we have an FM system that helps in these noisy environments Kearns (mom to , 16 mo. Profound w/HA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 > This is a very good site; however, it continually breaks my heart when I listen to it! It's not easy, is it. Have you read 'Welcome to Holland' yet? If not, then please do. http://www.listen-up.org/edu/holland.htm It was the single thing that got me through accepting JD's hearing loss. It taught me that just because we're in a different place than we planned to be, there were still things to cherish about the place we were in. For example, ask a parent of a normal hearing child when the first time was their child said (or signed - but normal hearing kids probably wouldn't sign) 'I Love You'. Unless it was within the past year or so, they probably can't. JD is now 15, yet I can tell you when he did this, the room, setting, etc. I cherish so much more my son's accomplishments than I would had he not had a hearing loss. It has brought us so much closer than we would have been otherwise (my mother wasn't exactly the role-model for mothers). I don't ever remember my mother saying she was proud of anything I had done, she always found some fault with it (2 years ago was the first time I ever heard that from her). JD continually gives me opportunities for me to tell him how proud I am of him and his accomplishments. I guess the trick is to find something good about your son's hearing loss, and then when you think about the negatives, remind yourself of the positives. At least, that's what has worked for us. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Thanks Kay, I will get on this site after I'm done working the weekend. It's my weekend to work at the hospital! Debbie Re: Digest Number 1300 > This is a very good site; however, it continually breaks my heart when I listen to it! It's not easy, is it. Have you read 'Welcome to Holland' yet? If not, then please do. http://www.listen-up.org/edu/holland.htm It was the single thing that got me through accepting JD's hearing loss. It taught me that just because we're in a different place than we planned to be, there were still things to cherish about the place we were in. For example, ask a parent of a normal hearing child when the first time was their child said (or signed - but normal hearing kids probably wouldn't sign) 'I Love You'. Unless it was within the past year or so, they probably can't. JD is now 15, yet I can tell you when he did this, the room, setting, etc. I cherish so much more my son's accomplishments than I would had he not had a hearing loss. It has brought us so much closer than we would have been otherwise (my mother wasn't exactly the role-model for mothers). I don't ever remember my mother saying she was proud of anything I had done, she always found some fault with it (2 years ago was the first time I ever heard that from her). JD continually gives me opportunities for me to tell him how proud I am of him and his accomplishments. I guess the trick is to find something good about your son's hearing loss, and then when you think about the negatives, remind yourself of the positives. At least, that's what has worked for us. Hugs, Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 > Unless it was within the past year or so, they probably > can't This reminds me...I just had to share. On Friday, Teddy's school (a neighborhood preschool where he's the only hearing-impaired kid) had a " Teddy Bear Picnic " . Now, aside from the obvious fun he had...each kid got an " award " at the picnic. What was Teddy's picnic award? " Most Talkative Friend " I just laughed out loud at the irony. --kerri (Mom to Teddy, 4.5, severe-profound bilateral sensorinueral aided oral) Quote Link to comment Share on other sites More sharing options...
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