Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Hi All, The following are still for for sale. Everything else has been taken. Dorland's Plastic Surgery Word Book for MT's $25 AAMT Book of Style 2nd Edition $65 The Independent Medical Transcriptionist 3rd Ed. $20 Please e-mail me privately if you are interested. TIA Gai -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Dear , I was so happy to read your post--for a milion reasons!!! It sounds like you AND have a much better relationship now. True, you would like to see her doing more and having people expecting more of her, but that doesn't seem to be in the cards right now. What you both still have, though, is a friendship borne of time and love. She loves seeing you and it sounds like the time you share (are sharing this weekend) is perfect and what friends do: enjoy one another for who they both are. I am happy about that. And moving in with your boyfriend and having time to work that out!! How very nice for you and surely you know (or I hope you know) that you deserve this! Thanks for the update--so nice to hear from you. pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 great news!!!!!!!!!1111 > > Just thought that I would give an update on and I, as we > are hanging out together while her parents' go away for the weekend. > moved back with her parents in June, after not being able to > locate a new living situation for her. > I could no longer take care of her without having any support from > her family. 3 group home placements fell through this summer and she > remains home with her Mom during the day. Unfortunately, her Mom's > tumors are growing and she is starting chemo again. Being that so > many group home options have fallen through, has becaome > elgible for Intensive Tentant Support. This will allow her to have > her own apartment with someone of her abilty and having rotation > staffing that comes in, 24/7. > Most of all, has been so happy with the time she has spent > with her parents', though her Mom and I both know that it's because > she doesn't have to do anything and nothing is expected of her. > Darlene has been sick, therefore spends her days hanging out > in her pajamas and eating pudding. At this point, I wish I could do > more for her, but I have moved in with my boyfriend an hour away. > When does see me she is excited and hopful in me spending > the night. This weekend we will spend with friends, swimming and > playing in the hottub. > As for me, I did move in with my boyfriend and things are great. I > have been able to live a life for the first time. I had made the > decision of moving out before and I had gotton > together and he is very accepting of her. Once she did move out we > were able to actually go out and do things. I went parasailing this > summer and plan on snow boarding for the 1st time this winter. > > , friend and care giver to , CHARGE and just turned > 25!! > WA State > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org <http://www.chargesyndrome.org> or by calling > 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 ohhhhhhhhh hope he gets better soon dont go fift fundo if you have to ive had three we gave up and ddi jtube after three and then after 18 years and many more ops did gall bladder removal think dumping cyclical vomiting there are many options ellen > > Well it has been an eventful weekend at the Villarreal > house. On saturday morning when my husband took report > 's nurse mentioned the his O2 needs had gone > from 1 liter/min to 3. So I got up to moniter him and > he was having retractions and was very sedate. Soooo > he and I went to Primary Chidlrens E.R. They did chest > x-rays and they looked ok not much different but they > desided to admit him to stay. Well last night the > nurse discovered what he thought was formula coming > out of 's trach so we waited all day to get an > upper GI and they could not fit him in so we have to > wait untill morning to get it done. The pedi is > worried that 's nissin may have failed again. > If so he will be on the road for a fifth nissin very > soon, but I guess I won't know untill morning. I am so > worried about this kiddo. He started a new school this > year and is doing very well. He is a different kid > than last year at school. He is learning so much and > is loving school. He is not having the frowned upon > behaviors that he had last year when I was fighting to > get him in to this placement because he was bored > where he was. I just hope he does not miss too much > school. I am going to have to go talk to his teacher > in the morning. Sorry this is soooo long I guess I > needed to vent a little. I better go to bed tomorrow > is another day and I need my strength. > a mom to 8yr CHARGEr and Quintin 5yr > > > > __________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org <http://www.chargesyndrome.org> or by calling > 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Oh my!! I hope everything goes well and your little one is on the road to recovery (again!) soon. Take care. pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 a, Sorry to hear about your sons recent situation. 's nissen has failed her twice, as a result of a hiatal hernia both times. She is now J-tube fed. They are concerned the scar tissue will no longer hold, have they ever mentioned this to you before? It was a setback on getting her to eat orally, but she seems much happier with the J-tube. I hope everything goes well with the tests, and that everything can be resolved for you all quickly and starts to feeling better soon.. You are in my thoughts and prayers, n-mom to Zach 10, Jordan 6, -2 CHARGE, and Candace 1 Victor Villarreal wrote: Well it has been an eventful weekend at the Villarreal house. On saturday morning when my husband took report 's nurse mentioned the his O2 needs had gone from 1 liter/min to 3. So I got up to moniter him and he was having retractions and was very sedate. Soooo he and I went to Primary Chidlrens E.R. They did chest x-rays and they looked ok not much different but they desided to admit him to stay. Well last night the nurse discovered what he thought was formula coming out of 's trach so we waited all day to get an upper GI and they could not fit him in so we have to wait untill morning to get it done. The pedi is worried that 's nissin may have failed again. If so he will be on the road for a fifth nissin very soon, but I guess I won't know untill morning. I am so worried about this kiddo. He started a new school this year and is doing very well. He is a different kid than last year at school. He is learning so much and is loving school. He is not having the frowned upon behaviors that he had last year when I was fighting to get him in to this placement because he was bored where he was. I just hope he does not miss too much school. I am going to have to go talk to his teacher in the morning. Sorry this is soooo long I guess I needed to vent a little. I better go to bed tomorrow is another day and I need my strength. a mom to 8yr CHARGEr and Quintin 5yr __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada information and membership, please visit http://www.chargesyndrome.ca, or email info@.... 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 a, I am sorry to hear you are back at PCMC!! Who has been your surgeon up there doing the nissen?? In nursing school they were talking about a new procedure called a stretta out here that is done instead of nissens, but I don't know if it has 'gone west' yet. I didn't realize had had 4 done!! Hang in there-we'll keep you in our prayers!! ruth in PA (formerly of SLC) > >Reply-To: CHARGE >To: charge list <CHARGE > >Subject: update >Date: Sun, 18 Sep 2005 20:23:09 -0700 (PDT) > >Well it has been an eventful weekend at the Villarreal >house. On saturday morning when my husband took report >'s nurse mentioned the his O2 needs had gone >from 1 liter/min to 3. So I got up to moniter him and >he was having retractions and was very sedate. Soooo >he and I went to Primary Chidlrens E.R. They did chest >x-rays and they looked ok not much different but they >desided to admit him to stay. Well last night the >nurse discovered what he thought was formula coming >out of 's trach so we waited all day to get an >upper GI and they could not fit him in so we have to >wait untill morning to get it done. The pedi is >worried that 's nissin may have failed again. >If so he will be on the road for a fifth nissin very >soon, but I guess I won't know untill morning. I am so >worried about this kiddo. He started a new school this >year and is doing very well. He is a different kid >than last year at school. He is learning so much and >is loving school. He is not having the frowned upon >behaviors that he had last year when I was fighting to >get him in to this placement because he was bored >where he was. I just hope he does not miss too much >school. I am going to have to go talk to his teacher >in the morning. Sorry this is soooo long I guess I >needed to vent a little. I better go to bed tomorrow >is another day and I need my strength. >a mom to 8yr CHARGEr and Quintin 5yr > > > >__________________________________ >Yahoo! Mail - PC Magazine Editors' Choice 2005 >http://mail.yahoo.com > > > >Membership of this email support groups does not constitute membership in >the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. >For information about the CHARGE Syndrome >Foundation or to become a member (and get the newsletter), >please contact marion@... or visit >the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada >information and membership, please visit http://www.chargesyndrome.ca, or >email info@.... >8th International >CHARGE Syndrome Conference, July, 2007. Information will be available at >www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 a, Wow, is going through some tough stuff. I hope you get some answers soon to take care of whatever is going on. I'm so glad to hear that he is in a program he delights in. Hope he gets well soon to get back into the grove. Bonnie, mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 , I am so glad that your personal life is going well and that is getting the apartment with supervision. Being a friend to is probably better for her in the long run than you having to be the boss all the time and setting your own life aside indefinitely. You'll both enjoy each other much more. I do pray for her mother. Kim On 9/16/05 7:21 PM, " courtneyandheather " wrote: > Just thought that I would give an update on and I, as we > are hanging out together while her parents' go away for the weekend. > moved back with her parents in June, after not being able to > locate a new living situation for her. > I could no longer take care of her without having any support from > her family. 3 group home placements fell through this summer and she > remains home with her Mom during the day. Unfortunately, her Mom's > tumors are growing and she is starting chemo again. Being that so > many group home options have fallen through, has becaome > elgible for Intensive Tentant Support. This will allow her to have > her own apartment with someone of her abilty and having rotation > staffing that comes in, 24/7. > Most of all, has been so happy with the time she has spent > with her parents', though her Mom and I both know that it's because > she doesn't have to do anything and nothing is expected of her. > Darlene has been sick, therefore spends her days hanging out > in her pajamas and eating pudding. At this point, I wish I could do > more for her, but I have moved in with my boyfriend an hour away. > When does see me she is excited and hopful in me spending > the night. This weekend we will spend with friends, swimming and > playing in the hottub. > As for me, I did move in with my boyfriend and things are great. I > have been able to live a life for the first time. I had made the > decision of moving out before and I had gotton > together and he is very accepting of her. Once she did move out we > were able to actually go out and do things. I went parasailing this > summer and plan on snow boarding for the 1st time this winter. > > , friend and care giver to , CHARGE and just turned > 25!! > WA State > > > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I was having computer issues when you first posted so I didn't welcome you and send you my best wishes and prayers by email -- but I did send them silently! Congratulations on the birth of your beautiful twins! I'm sorry for the surgery delay but I hope it turns out to be a blessing in disguise. Michele W mom to Aubrie 7 yrs CHaRgE and 13 yrs erin32573@... wrote: Today J.D. was supposed to have his open heart surgery. We got a call at 6:30 this morning asking us to be there at 7:30 for surgery. When we got there they had to move it back to 12:30pm. Around 10am we were told that J.D. has an infection and that it needed to be tested and treated. They were unsure if he would be having any surgery today or whenever. He ended up having a staff-infection and they decided not to do the surgery. Right now it could be on Friday or more likely early next week. His kidney level is still improving and vitals are looking good. We will keep you posted , , Livie, J.D. www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 May J.D.'s infection clear up soon and surgery be re-scheduled. Glad that his kidneys are improving and VS are good. I will continue to pray. Kristy update Today J.D. was supposed to have his open heart surgery. We got a call at 6:30 this morning asking us to be there at 7:30 for surgery. When we got there they had to move it back to 12:30pm. Around 10am we were told that J.D. has an infection and that it needed to be tested and treated. They were unsure if he would be having any surgery today or whenever. He ended up having a staff-infection and they decided not to do the surgery. Right now it could be on Friday or more likely early next week. His kidney level is still improving and vitals are looking good. We will keep you posted , , Livie, J.D. www.chargesyndrome.org<http://www.chargesyndrome.org/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 To your entire family, Welcome. You will love it here. I guess it was a blessing the surgery was postponed. Here's to hoping things continue to improve easily. Please let us know how the surgery goes. My daughter Patty is now 21 and doing fine. But there are some things in life that remain with me so vividly. When other parents talk of PICU I remember it all. It seemed at that time that we were living in a tunnel. I hated waking up every day to find something new that went wrong. It felt as though we were in a war, and we were. That was years and years ago. The medical interventions have changed since then. What I learned then and continue on with is how to wake up and be happy for the day that we are blessed with. There are many little miracles that happened to or after we had Patty that we didn't see as miracles before. Postponing JD's surgery is your second. Your children's birth is the first. We all know that life seems hard when you are in the midst of it. But we all also know that through the hardness comes great beauty you would never have imagined if you hadn't been blessed with haveing a child who has CHARGE syndrome. Oh yea, the third miracle is being blessed with so many people here on this list to hold your hand and to understand. We'll keep you in our thoughts, always. Bonnie, mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 yes i am east of sharron lol we are thining of you all to hugs ellen and family > > Dear , , Livie, and JD > Just to let you know that there are even some of us half a world away > thinking of you and keeping you in our hearts. > Sharon from West Oz > > >Dear , , Livie, and JD-- > >I am sure that the delay for JD's surgery was very hard for all of > >you!! I am sorry to hear of that. The good news that you sent, > >however, is that his kidney levels are improving!!! Hopefully this > >trend will continue!! > > > >Take care and know another person from Boston is keeping you close!! > >pam > > > >ps. my God-daughter's name is Olivia and we call her Livie, too!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 smiles to bonnie and squashes her tightxxx > > To your entire family, > > Welcome. You will love it here. > > I guess it was a blessing the surgery was postponed. Here's to hoping > things > continue to improve easily. Please let us know how the surgery goes. > > My daughter Patty is now 21 and doing fine. But there are some things in > life that remain with me so vividly. When other parents talk of PICU I > remember > it all. It seemed at that time that we were living in a tunnel. I hated > waking up every day to find something new that went wrong. It felt as > though we > were in a war, and we were. That was years and years ago. The medical > interventions have changed since then. > > What I learned then and continue on with is how to wake up and be happy > for > the day that we are blessed with. There are many little miracles that > happened > to or after we had Patty that we didn't see as miracles before. Postponing > JD's surgery is your second. Your children's birth is the first. > > We all know that life seems hard when you are in the midst of it. But we > all > also know that through the hardness comes great beauty you would never > have > imagined if you hadn't been blessed with haveing a child who has CHARGE > syndrome. > > Oh yea, the third miracle is being blessed with so many people here on > this > list to hold your hand and to understand. > > We'll keep you in our thoughts, always. > > > > > Bonnie, mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 How lovely to have Olivia home! I am confident that you will get more comfortable with her care and things will settle down at home. Let's hope things also stabilize for JD so that he can have a successful surgery and get home with his sister. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 How lovely to have Olivia home! I am confident that you become more comfortable with her care in no time! I hope that JD becomes stable and healthy enough to have his surgery -- that it is successful -- and that he is home with his sister soon. Michele Westmaas mom to Aubrie 7 yrs CHaRgE and 13 yrs, wife to DJ Quote Link to comment Share on other sites More sharing options...
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