Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 I am sorry you are do dizzy it has to be just awful. You are in my thoughts.......... Hugs nne I am sick and tired of having MS and no one can seem to help me. I am so dizzy, everyone thinks I am drunk. I fall into doors, walls, people. At work they have a chair for me in case I feel like I am falling down. As soon as I sit down, everyone comes running. I finally told all my bosses that I have MS and have had it for 9 years officially, 11 years (oh my gosh!!!) unofficially. Told my boss that I can't afford the medications they have me on, (trillium doesn't help at all) and that I am considering stopping it. Doctors are in a wait and see mode after having tested my heart and my blood and the newest MRI, all showing nothing! I can't wait and see! I want to STOP being dizzy! If I can't stop spinning, I am going to stop this all myself! I can't take this anymore! http://flickr.com/photos/minkoala/ http://ca.geocities.com/games_identity2001/filmcanisterlights.html this does work http://www.mswebpals.org/amanda.htm Girl Guides gives me an award for having MS and still volunteering http://ca.groups.yahoo.com/group/CanadaMS -- Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancer http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments at www.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Hi ! My name is Judy and I am Bill's wife. The way you described yourself falling into things is exactly what happened to Bill when he was first diagnosed, so I know what you're talking about. Sounds like you're so frustrated and embarrassed and self-conscious about things at this point. That's why this group is so great....the people who submit to this group know where you're coming from. Alot of them have experienced the same things in some way or another. And you know what? They all continue to try to learn new and healthy ways to manage their symptoms. Just like you are wanting to. Just remember that taking control of a situation can take a lot of different forms and it sounds to me like right now you're struggling with the emotional aspects of things. Just be sure to focus on "healthy" control. Sometimes that means finding someone to talk to professionally. Do you have any mental health centers around where you live that you could check out? That would be a positive way of taking control of the MS. I know that a lot of folks tend to shy away from that kind of help, but I can tell you for a fact that it can and does make things better. I know because I provided group and individual therapy to folks who were feeling that their lives were out of control for 13 years. You have to not only address the physical symptoms, but the emotional ones as well. Sounded like it was pretty embarrassing to you when your coworkers would come running. But you have to take that negative thought and reframe it. Why do they come running? Because they care and want to make sure you are okay!!! Sounds to me like they think you're pretty special-with or without the MS. How wonderful to have such a great support group nearby. Sometimes the hardest thing is to accept the help or assistance from those around us. Take the help....I bet there are plenty of times when you offer your help to your coworkers, just maybe not due to physical circumstances or limitations. If it would help, maybe you could set up a plan of action with them of some way you will indicate or notify them if you truely need help when you're sitting down. Being on the caretaker end of things I know it's hard for me, because I want to help, but am not always sure of how to or even if that help is wanted. Communication is a powerful thing. Let me share just one more thing before I sign off. I know it's hard waiting to see what the next steps are. And I don't know if you are a believer in God or not, but I can only tell you what has helped me in those anxious moments when the "next step" seems so far away and unknown. Proverbs 3:5-6 says, "Trust in the Lord with all your heart and lean not unto your own understanding. In all your ways acknowledge Him and He will direct your path". I claim that passage alot when the future seems uncertain. It allows me to release those fears and anxieties so that I don't go crazy trying to control those things out of my control. From those verses I realize that there are time when I allow my thoughts to flow in a negative direction about situations rather than the direction that God is taking my life. It truely is in my weakness that His power and authority over my life is able to shine. And when I turn over control of my life to God I am much more able to enjoy the little things that come into my day...like a smile from my son, or walking through my office and hearing someone laughing, or only being 20 minutes late to home at night rather than 30....or maybe for you it would be being able to take comfort and encouragement from the variety of responses that you're going to receive this week. Let God take control. And if he leads you to seeking some professional help with your emotional struggles, just do it! Who knows what blessings He will bring your way from just sitting and sharing with someone. Plus, that person may be able to help you open some medical doors that you could not on your own. Well, I better sign off. Thank you for being so open with your feelings. And I thank God that I just happened to open up your email. Usually Bill would be the one doing that! Rest easy, and remember-God is in control!!!!!! Judy I am losing it! I am sick and tired of having MS and no one can seem to help me. I am so dizzy, everyone thinks I am drunk. I fall into doors, walls, people. At work they have a chair for me in case I feel like I am falling down. As soon as I sit down, everyone comes running. I finally told all my bosses that I have MS and have had it for 9 years officially, 11 years (oh my gosh!!!) unofficially. Told my boss that I can't afford the medications they have me on, (trillium doesn't help at all) and that I am considering stopping it. Doctors are in a wait and see mode after having tested my heart and my blood and the newest MRI, all showing nothing! I can't wait and see! I want to STOP being dizzy! If I can't stop spinning, I am going to stop this all myself! I can't take this anymore! http://flickr.com/photos/minkoala/ http://ca.geocities.com/games_identity2001/filmcanisterlights.html this does workhttp://www.mswebpals.org/amanda.htm Girl Guides gives me an award for having MS and still volunteeringhttp://ca.groups.yahoo.com/group/CanadaMS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 the real reason the come running is that I am the only one dedicated to doing my job and because of them not training anyone, I am the strongest person (mentally) there to do the job. On Friday they decided that they finally needed to train someone else on my shift, to help with the job. Unfortunately, God and I are not on talking terms. He took my brother when he was 20 and then gave me this disease, on top of my ear problems. Not to mention my nieces who has autism and I am frustrated at all the trials I am being put through. I was on copaxone for 8 years, now I am on rebif Trillium says they will be helping me but so far it is all up in the air. I told them a date to start but they say that it will only start the date the doctor filled out the form.It is just one excuse after another. I was doing good until the dizziness struck. Now it is affecting everything I do. I am giving up volunteering because I can't make the meetings or even enjoy them anymore. It is always one thing after another. I will keep you posted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 When is the doctor appointment you mentioned several days ago? Hang in there and hang on too I'm sorry you have so much vertigo. It's miserable and I really feel for you.hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. I am losing it! I am sick and tired of having MS and no one can seem to help me. I am so dizzy, everyone thinks I am drunk. I fall into doors, walls, people. At work they have a chair for me in case I feel like I am falling down. As soon as I sit down, everyone comes running. I finally told all my bosses that I have MS and have had it for 9 years officially, 11 years (oh my gosh!!!) unofficially. Told my boss that I can't afford the medications they have me on, (trillium doesn't help at all) and that I am considering stopping it. Doctors are in a wait and see mode after having tested my heart and my blood and the newest MRI, all showing nothing! I can't wait and see! I want to STOP being dizzy! If I can't stop spinning, I am going to stop this all myself! I can't take this anymore! http://flickr. com/photos/ minkoala/ http://ca.geocities .com/games_ identity2001/ filmcanisterligh ts.html this does work http://www.mswebpal s.org/amanda. htm Girl Guides gives me an award for having MS and still volunteering http://ca.groups. yahoo.com/ group/CanadaMS __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 ~ Hang in there. You don't know what I would give right now to not have MS. It is highly frustrating. And it is so easy to blame instead of acknowleding it for what it is. I know it's miserable. Sounds like you are going through some very heavy depression over this. I get that way too. Ask anyone in this group. I swear, even when I reread some of my posts I think I have something more than MS. I sound totally bi-polar! And the bad thoughts do cross my mind every now and then. Even now, I am going through a whole lot, but I'm trying to take one thing at a time. If you have anyone around you who cares about what you are going through, don't feel bad if you need to ask them for help. Anyone who loves you, would not want to see you in such bad shape. I'm lifting you. I hope you'll be able to get over this vertigo soon. Believe me...I feel you. T/C... Val --- Sharon wrote: > When is the doctor appointment you mentioned several > days ago? Hang in there and hang on too I'm > sorry you have so much vertigo. It's miserable and > I really feel for you. > > hugs)) > Sharon > > This email is a natural hand made product. The > slight variations in spelling and grammar enhance > its individual character and beauty and in no way > are to be considered flaws or defects. > > > > > > > I am losing it! > > > > > > > > > > > > > > > > > > > > > I am sick and tired of having MS and no one can seem > to help me. > > > I am so dizzy, everyone thinks I am drunk. > > > I fall into doors, walls, people. At work they have > a chair for me in case I feel like I am falling > down. As soon as I sit down, everyone comes running. > > > > I finally told all my bosses that I have MS and have > had it for 9 years officially, 11 years (oh my > gosh!!!) unofficially. Told my boss that I can't > afford the medications they have me on, (trillium > doesn't help at all) and that I am considering > stopping it. > > > Doctors are in a wait and see mode after having > tested my heart and my blood and the newest MRI, all > showing nothing! I can't wait and see! I want to > STOP being dizzy! > > > If I can't stop spinning, I am going to stop this > all myself! I can't take this anymore! > > > > > > > > http://flickr. com/photos/ minkoala/ > > > http://ca.geocities .com/games_ identity2001/ > filmcanisterligh ts.html this does work > > http://www.mswebpal s.org/amanda. htm Girl Guides > gives me an award for having MS and still > volunteering > > http://ca.groups. yahoo.com/ group/CanadaMS > > > > > > > > > > > > > > > > > > > > > <!-- > > #ygrp-mkp{ > border:1px solid > #d8d8d8;font-family:Arial;margin:14px > 0px;padding:0px 14px;} > #ygrp-mkp hr{ > border:1px solid #d8d8d8;} > #ygrp-mkp #hd{ > color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px > 0px;} > #ygrp-mkp #ads{ > margin-bottom:10px;} > #ygrp-mkp .ad{ > padding:0 0;} > #ygrp-mkp .ad a{ > color:#0000ff;text-decoration:none;} > --> > > > > <!-- > > #ygrp-sponsor #ygrp-lc{ > font-family:Arial;} > #ygrp-sponsor #ygrp-lc #hd{ > margin:10px > 0px;font-weight:bold;font-size:78%;line-height:122%;} > #ygrp-sponsor #ygrp-lc .ad{ > margin-bottom:10px;padding:0 0;} > --> > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, > helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, > helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px > 0;white-space:nowrap;color:#666;text-align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px > solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px > 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid > #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a{ > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > === message truncated === http://immacopsgirl.multiply.com/?view_page_as=anon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Oh, , I am so sorry. I hate this for you. HUGS, Challis I am losing it! I am sick and tired of having MS and no one can seem to help me. I am so dizzy, everyone thinks I am drunk. I fall into doors, walls, people. At work they have a chair for me in case I feel like I am falling down. As soon as I sit down, everyone comes running. I finally told all my bosses that I have MS and have had it for 9 years officially, 11 years (oh my gosh!!!) unofficially. Told my boss that I can't afford the medications they have me on, (trillium doesn't help at all) and that I am considering stopping it. Doctors are in a wait and see mode after having tested my heart and my blood and the newest MRI, all showing nothing! I can't wait and see! I want to STOP being dizzy! If I can't stop spinning, I am going to stop this all myself! I can't take this anymore! http://flickr. com/photos/ minkoala/ http://ca.geocities .com/games_ identity2001/ filmcanisterligh ts.html this does workhttp://www.mswebpal s.org/amanda. htm Girl Guides gives me an award for having MS and still volunteeringhttp://ca.groups. yahoo.com/ group/CanadaMS __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Dearest , Have you seen an Ear, Nose and Throat specialist to rule out a condition of the inner ear, called Labrynthitis, or inflammation of the labrynthine canals of the inner ear? This, if it were to be what is wrong (and anyone, with or without MS can get it) would be very amenable to treatment. I know; I have had this, and was nearly suicidal before it was very effectively treated with " 1) cortico-steroids; 2) antibiotics; 3) hosptialization for five days; I finished recovering at home. Do NOT give up. If you have an internist, consult with that physician, family practice doctor, but let a physician KNOW how you are feeling. Love to you, and hoping for the best! n, waaaaay out here in Oakland, California where we are surrounded by OIL! > I am sick and tired of having MS and no one can seem to help me. > I am so dizzy, everyone thinks I am drunk. > I fall into doors, walls, people. At work they have a chair for me in case I > feel like I am falling down. As soon as I sit down, everyone comes running. > > I finally told all my bosses that I have MS and have had it for 9 years > officially, 11 years (oh my gosh!!!) unofficially. Told my boss that I can't > afford the medications they have me on, (trillium doesn't help at all) and > that I am considering stopping it. > > Doctors are in a wait and see mode after having tested my heart and my blood > and the newest MRI, all showing nothing! I can't wait and see! I want to > STOP being dizzy! > > If I can't stop spinning, I am going to stop this all myself! I can't take > this anymore! > > > > http://flickr.com/photos/minkoala/ > http://ca.geocities.com/games_identity2001/filmcanisterlights.html this does > work > http://www.mswebpals.org/amanda.htm Girl Guides gives me an award for > having MS and still volunteering > http://ca.groups.yahoo.com/group/CanadaMS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 The people around me don't think this is serious. They think I can work through anything. They don't acknowledge that I have problems. I suffer in silence. I've been the family doc, the ETN doc and now again with the neuro. The neuro doesn't understand it so my specialist is sending me to a specialized clinic. I seem to get more support at work (because they want something from me) than I do at home sometimes. Oh well, 5:45 am High Ho High Ho off to work I go Quote Link to comment Share on other sites More sharing options...
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