our 4 y/o daughter and CMT 2

[Guest guest]

In a message dated 10/7/00 10:33:54 PM, billandmalynda@... writes:

<< Our daughter has been diagnosed with CMT 2 she is now going to be getting

AFOs. We are just wondering who else out there is going through this process

or has gone through it. >>

Hi Malynda?

Do you have family history of CMT?

Just curious.

All I know about AFOs and small children is that they usually adapt well if

they are properly fitted, and they love being able to get around better.

You'll need to check carefully for red spots to make certain the AFOs are

comfortable and properly fitted.

Kat

[Guest guest]

Our daughter has been diagnosed with CMT 2 she is now going to be

getting afo's. We are just wondering who else out there is going

through this process or has gone through it.

[Guest guest]

Bill and Malynda,

My daughter got her first pair of AFOs when she was 7.

I think the younger the kids are, the more easily they adapt. Life is still

a big adventure at this age and getting different kind of feet is just part

of the adventure. At least this was our experience.

I find more resisitance as they get older and begin to be self-conscious.

My daughter is now 10 and really doesn't want to wear them to school

anymore. We took the summer off from wearing them to see what would happen,

and now she is getting very tight in the heel cords again and turning her

feet in badly. I am hoping the doctors will agree with me to another round

of serial casting and a new pair of AFOs as opposed to surgery. We really

aren't ready for major surgery yet but our orthopedist seems to think that

is the next step. I hope not.

Good luck with your 4 yr old. Kids are resiliant at that age!

Ruth

>From: " Bill, Malynda, Noelle, Molly " Our daughter has been diagnosed with

>CMT 2 she is now going to be

>getting afo's. We are just wondering who else out there is going

>through this process or has gone through it.

>

>

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