Re: Digest Number 533

[Guest guest]

To Srika--

I am sorry I don't remember exaclty where I read the information on the TB

tests. Supposely it only goes underneath your skin and does not affest you

anyway. I heard that you can get TB from it. I am sure you could find

info on the net vaery easily.

[Guest guest]

Dear , Kathy, and Louis,

I haven't given up yet on the Sunday evening chats. I think I can get

access to an IBM-type until such time as eGroups provides for Macs. I want

to check one thing - , do you not have daylight savings time in Canada?

Indiana, as far as I know, is the only state which stays on EST all year. We

never change our clocks, which has occasionally made for some frustrating

situations when we forget who is on which time. So the chat is at 10 PM EST

(which would be 11 PM on the east coast)? I have a couple of friends with

IBM -type computers and has one in the library (which closes at 10 PM in

the summer).

has spent a total of 10 days in the last two weeks out of the

bathroom. The first day he came out two weeks ago he and a friend went to a

movie - his first in over a year and a half. Two days later the friend took

him to our local mall (which says might have been overdoing it a bit).

He has been in and out of the den, watching TV, and talking into my computer

(which then types the philosophy paper he is writing). So I would say that

things are looking up - although having him in the same areas as us is

difficult as he is still afraid of contaminating us and becomes very

controlling, supposedly in an attempt to keep us from becoming contaminated.

Thanks to all of you for your interest - and I'm looking forward to

next week's chat.

Jackie

[Guest guest]

Hi Jackie, I'm in Indiana too, the chat is at 9 p.m. I wrote 10 p.m. in an

earlier post by mistake. See you next Sunday!

Kathy R. in no-daylight-savings-time Indiana

[Guest guest]

HI Jackie:

What wonderful news about going out etc. What progress! He must be

very proud and you too. Another major leap towards success helped along by

the wonderful Drs. C. and J. and his determined parents.

Does respond to the use of humor in coping with his contamination

anxiety? Hope to see you on the chat next Sunday. Take care, aloha, Kathy

(H)

kathyh@...

P.S. We are on the same time all year round in Hawaii too (HST not EST

though :-)))

At 08:53 PM 05/30/2000 -0400, you wrote:

>Dear , Kathy, and Louis,

> I haven't given up yet on the Sunday evening chats. I think I can get

>access to an IBM-type until such time as eGroups provides for Macs. I want

>to check one thing - , do you not have daylight savings time in

Canada?

>Indiana, as far as I know, is the only state which stays on EST all year.

We

>never change our clocks, which has occasionally made for some frustrating

>situations when we forget who is on which time. So the chat is at 10 PM EST

>(which would be 11 PM on the east coast)? I have a couple of friends with

>IBM -type computers and has one in the library (which closes at 10 PM

in

>the summer).

> has spent a total of 10 days in the last two weeks out of the

>bathroom. The first day he came out two weeks ago he and a friend went to a

>movie - his first in over a year and a half. Two days later the friend took

>him to our local mall (which says might have been overdoing it a

bit).

>He has been in and out of the den, watching TV, and talking into my computer

>(which then types the philosophy paper he is writing). So I would say that

>things are looking up - although having him in the same areas as us is

>difficult as he is still afraid of contaminating us and becomes very

>controlling, supposedly in an attempt to keep us from becoming contaminated.

> Thanks to all of you for your interest - and I'm looking forward to

>next week's chat.

> Jackie

[Guest guest]

Jackie:

I guess we should have all said daylight savings time. The chat will be at 10

DST on the east coast. Indiana isn't the only state that doesn't change its

clocks. Hawaii also doesn't bother, though in their case it's because every day

is a beautiful day. Isn't that right Kathy H?

Jule

[Guest guest]

HI:

Sorry I have been instructed not to talk about the weather here <VBG>

We stay on regular Hawaiian Standard Time all year but I still have to

rememeber Spring forward and Fall back for contacting friends and family on

" the mainland " .

Ten pm on the east coast is six hours ahead of me in summer and five hours

ahead in winter. That means I am always wide awake at chat time :-))

Take care, aloha, Kathy (H)

kathyh@...

At 08:18 AM 05/31/2000 -0400, you wrote:

>

>

>Jackie:

>

>I guess we should have all said daylight savings time. The chat will be

at 10

>DST on the east coast. Indiana isn't the only state that doesn't change its

>clocks. Hawaii also doesn't bother, though in their case it's because

every day

>is a beautiful day. Isn't that right Kathy H?

>

>Jule

[Guest guest]

HI:

Sorry I have been instructed not to talk about the weather here <VBG>

We stay on regular Hawaiian Standard Time all year but I still have to

rememeber Spring forward and Fall back for contacting friends and family on

" the mainland " .

Ten pm on the east coast is six hours ahead of me in summer and five hours

ahead in winter. That means I am always wide awake at chat time :-))

Take care, aloha, Kathy (H)

kathyh@...

At 08:18 AM 05/31/2000 -0400, you wrote:

>

>

>Jackie:

>

>I guess we should have all said daylight savings time. The chat will be

at 10

>DST on the east coast. Indiana isn't the only state that doesn't change its

>clocks. Hawaii also doesn't bother, though in their case it's because

every day

>is a beautiful day. Isn't that right Kathy H?

>

>Jule

[Guest guest]

Hi everyone,

Carolyn, can you explain the eye lesion. I just had one removedfrom

under my left eye, very near the eyelid. The dx is Basal cell carcinoma.

My fam MD had already burned it off, but it came back. This time a

plastic Surgon removed it. I have stitches which will be removed Tues. I

also have an ulcer, but don't know outcome of that yet.

God Bless, Patsy

[Guest guest]

-----Original Message-----

From: patsy1128@... <patsy1128@...>

egroups <egroups>

Date: Saturday, October 07, 2000 9:25 PM

Subject: Re: [] Digest Number 533

>Hi everyone,

>Carolyn, can you explain the eye lesion. I just had one removedfrom

>under my left eye, very near the eyelid. The dx is Basal cell carcinoma.

>My fam MD had already burned it off, but it came back. This time a

>plastic Surgon removed it. I have stitches which will be removed Tues. I

>also have an ulcer, but don't know outcome of that yet.

>God Bless, Patsy

>

>>>>>>I have cysts on my eyes, they come and go, very annoying and even

worse when they drain. The eye Dr. said they are common, but until I had

them I knew of no one who had them or had heard of them! ~>Becky M.

[Guest guest]

> Hi everyone,

> Carolyn, can you explain the eye lesion.

Hi, Patsy. My lesion was actually in the back of the eye, and it was

kind of like a hole that just spontaneously appeared and fluid was

leaking out of it into the rest of the eye and affecting my vision. I

don't understand all the anatomy there, but apparently that fluid is

supposed to be in one part of the eye and not to leak into other

parts, if that makes sense. The lesion had to be repaired before it

got to the optic nerve or my vision would have been totally gone, and

the treatment of choice was laser surgery. That surgery (3

procedures) worked to stop the leaking, but left scar tissue on the

eyeball, so my vision is permanently distorted in that eye. Bummer!

My other (dominant) eye takes over, fortunately.

Good luck with your situation! And prayers!

Regards, Carolyn

[Guest guest]

Moria thank You for that infromation you sent me. Dr. Schulz also mentioned

that when he visits other countries He wouldn't eat or drink the food there

because of the toxins and pestecides and so forth. He said that if he

wouldn't eat or drink the food in other countries why would he use the herbs

from there? He said you should buy herbs that are grown in America. Did I

mention that Dr. Schulz visit a Manufacture and someone substituted

Encinacea for something else. When he asked what are you doing? The person

told him that they ran out of Encinacea and that his/her boss told them to

substitute it for something else. If that's true you don't know what your

getting unless you do it yourself. There is an old saying " if You want

something done right do it yourself " !!!! You mentioned that you grow your own

herbs. I was thinking about growing my own herbs. This spring I am going to

grow Encinacea and Gingo Biloba and untill then I will purcahse them from the

store. I can get fresh garlic at the store and dandeloin I can get from my

yard if any grows there or I can contain the dandeloin in a big garden box

outdoors ). Thanx Again Moria.

Claude

[Guest guest]

In a message dated 10/14/2000 9:59:40 AM Central Daylight Time,

dreamcountry@... writes:

<< I was told that Echinacea is from the " Purple Cone Flower " anyone know what

part?

Thanks,

Kim

I was thinking about growing my own herbs. This spring I am going to

> grow Encinacea and Gingo Biloba and untill then I will purcahse them from

the

> store. >>

_______________

You know I made a bunch of the tincture several yrs ago, ....not sure

I can remember all of it...I did follow Dr. Shulze instructions. I bought

the ground up herb and did the grain alcohol bit, then when that was done, I

harvested

some of my fresh plants...I used all but the root and put that in the

tincture I had made. Let that set per his instructions and then strained

that. It is

very potent....really deadens the tongue.

ej

[Guest guest]

Patty,

I thought it best to use the grain alcohol for roots? Anyway, I have several

books on how to but had used Shulze product, it was so potent and

expensive that I used his recipe and ordered the roots but like you say,

I did't want to bother my roots so did what he said in the recipe and used

the other

parts for the second go 'round to make it more potent.

My plants have a mind of their own. I made a bed especially for them and

the next yr they aren't there but in the yard. My largest and most beautiful

one is in the yard. I live in TX so they just don't do well here so I just

let them be and threaten anyone that looks like they would to mow them down.

ha

ej

_______________________

In a message dated 10/14/2000 12:20:31 PM Central Daylight Time,

faussettdp@... writes:

<< Actually, I should expound upon that. The directions I have for making a

decoction suggest 1-2 teaspoonfuls of the root in one cup of water and bring

it slowly to a boil, then simmer for 10-15 minues. It also recommends to

unearth the roots in the fall.

I have a small bed of Purple Cone Flower in my garden, and I know how hard

it is to give up the roots of the plant! But they are perennial, so it

shouldn't be a problem if you keep the bed growing.

My herbal book also suggests that the cone flower can be used, and that the

fresh extract is more effective than the dried root.

I will defer to others knowledge who have used the fresh extract.

Patty >>

[Guest guest]

I was told that Echinacea is from the " Purple Cone Flower " anyone know what

part?

Thanks,

Kim

I was thinking about growing my own herbs. This spring I am going to

> grow Encinacea and Gingo Biloba and untill then I will purcahse them from

the

> store.

[Guest guest]

> I was told that Echinacea is from the " Purple Cone Flower " anyone know

what

> part?

Usually the root.

Patty

[Guest guest]

> > I was told that Echinacea is from the " Purple Cone Flower " anyone know

> what

> > part?

> Usually the root.

Actually, I should expound upon that. The directions I have for making a

decoction suggest 1-2 teaspoonfuls of the root in one cup of water and bring

it slowly to a boil, then simmer for 10-15 minues. It also recommends to

unearth the roots in the fall.

I have a small bed of Purple Cone Flower in my garden, and I know how hard

it is to give up the roots of the plant! But they are perennial, so it

shouldn't be a problem if you keep the bed growing.

My herbal book also suggests that the cone flower can be used, and that the

fresh extract is more effective than the dried root.

I will defer to others knowledge who have used the fresh extract.

Patty

[Guest guest]

KIM BROWN wrote:

> I was told that Echinacea is from the " Purple Cone Flower " anyone know what

> part?

The root. See http://www.go-symmetry.com/echinacea.htm

That was the first thing on the list from a search with Lycos.

Aquarius

Btw, it works great for me, but seems like an antihistamine.

[Guest guest]

,

Thanks to Para's like you, our kids have a fighting chance in some of these

school districts. I too am a Para Educator (Instructional Assistant) with a

child with Autism. It is through this child I work with, that I figured out

what was wrong with my child with Down Syndrome. I kept on asking if Down

Syndrome was so much like Autism??? My child was so much more Autistic then

this little Autistic guy I work with.

I did not take him for an evaluation until my poor son was totally out

of control and his special day teacher of 2 months (in her class only 2

periods a day for academics) physically abused him for walking around her

classroom turning over empty chairs by carefully setting them on their

backs. The child was already having a tough time with a school change, new

teachers, new aide, very little communication that could not be understood,

etc. My child too was always fully included and did pretty well up to this

point, having the same aide from early on, etc.

This little guy that you speak of has the best chance with stability and the

consistancy of one aide that he has had. Our kids don't do well with change.

I sure wish someone would have suggested evaluating him or seen all the

signs of Autism that were always there. I'm so glad there are people like

you who care so much and go that extra mile to do what is right for our kids.

Thank you Thank you Thank you....

(mom to 13 DS/ASD)

[Guest guest]

Leah,

So sorry to hear your all pooped out. I would have broke down and just cried.

Hugs going out to you and hoping for a better week for you.

[Guest guest]

michelle,

i am not complaining., i would prefer her smear poop once a week adn

continue to do great in school.... rather than her not smear poop and do

crapty in school..lmao that is a sad way to think...poops okay as long as

school is good...heheh take care, leah

[Guest guest]

I am in Oak Brook which is east DuPage county.

Kathy Abbott

Digest Number 533

[Guest guest]

Haven't I seen ssomeplace that Rituxan is counter-indicated for CLL?

SLL-CLL-edu/

------------------------------------------------------------------------

[Guest guest]

Haven't I seen someplace that Rituxan is counter-indicated for CLL?

.............................................................................

...................................................................

Gee, Bill, it might be a little hard on my wallet but my body seems to

respond reasonably well to it. According to my TX history, it probably

shouldn't, but it does and I'll stay with it until something better - and

maybe cheaper - comes along.

A better answer might be that while CLL may not yet be formally approved for

CLL, lots of doctors prescribe it and Medicare pays for it w/o question.

Best,

Fred Hummel, 79, Arcata, CA;

CLL/SLL dx 1.98;

Fludara 2000;

Fludara, Rituxan, Novantrone, Decadron, 2002;

Rituxan, 2004;

Rituxan, Chlorambucil, Prednisone, 2005.

[Guest guest]

What does Medicare pay for? Your letter was not clear.

Carolyn, age 77, dx 9/04, w & w

--- Fred Hummel <fch@...> wrote:

>

> Haven't I seen someplace that Rituxan is

> counter-indicated for CLL?

>

.............................................................................

>

...................................................................

>

> Gee, Bill, it might be a little hard on my wallet

> but my body seems to

> respond reasonably well to it. According to my TX

> history, it probably

> shouldn't, but it does and I'll stay with it until

> something better - and

> maybe cheaper - comes along.

>

> A better answer might be that while CLL may not yet

> be formally approved for

> CLL, lots of doctors prescribe it and Medicare pays

> for it w/o question.

>

> Best,

> Fred Hummel, 79, Arcata, CA;

> CLL/SLL dx 1.98;

> Fludara 2000;

> Fludara, Rituxan, Novantrone, Decadron, 2002;

> Rituxan, 2004;

> Rituxan, Chlorambucil, Prednisone, 2005.

>

>

>

>

>

[Guest guest]

What does Medicare pay for? Your letter was not clear.

Hi Carolyn,

The short answer is that, so far, Medicare has paid for every therapy I've

had for this disease. In fact, I can't remember ever being bounced for any

health care service even when I thought some charges (from a dermatologist)

were outrageously high. Oh, there were some rejections for double-billing or

for inaccurate information provided with the claim but Medicare always came

through.

I could go on to make a political statement but being this is holiday time,

I'll show some mercy and save it for next year.

Wishing you the best,

Fred Hummel, 79, Arcata, CA;

CLL/SLL dx 1.98;

Fludara 2000;

Fludara, Rituxan, Novantrone, Decadron, 2002;

Rituxan, 2004;

Rituxan, Chlorambucil, Prednisone, 2005.