Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 - We've beem to every conference so far and intend to continue that way indefinitely. However, I haven't begun any work on funding for the trip so I may be very disappointed. I plan to work on it in Jan --and I hope that the whole family will go. Usually, it's me, Aubrie, , and my mom or a teen sitter for the kids. It is amazing to meet everyone. You will love it! Oh-- we are in IL. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Bill, my husband, will probably stay home w/ the boys, and I will probably fly in with Sara. I am really looking forward to it already! We are north of Atlanta in Woodstock- so if you drive you'll probably pass us! We're open for pitstops...... that goes for everyone passing through! -- In CHARGE , momonamission@k... wrote: > - > We've beem to every conference so far and intend to continue that way > indefinitely. However, I haven't begun any work on funding for the trip so > I may be very disappointed. I plan to work on it in Jan --and I hope that > the whole family will go. Usually, it's me, Aubrie, , and my mom or a > teen sitter for the kids. It is amazing to meet everyone. You will love > it! > > Oh-- we are in IL. > > Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 - I'm glad you will be able to go and bring . It is the best experience! And you'll definitely want her with you to show her off to everyone. We all love to meet other CHARGErs! There is childcare available at the conferences. It's staffed with volunteers and they do their best to meet each child's needs while in their care. They have fun activities etc. But I have always brought my mom or a teen sitter to take care of the kids. Then I can come and go as I please to sessions, visit with parents and professionals in the eve and night, etc. I'd hate it if I had to go to bed with my little one when there were still grownups awake and talking to be done! And at lunch and break times, I can relax or visit and not have to run and check on or feed the kids. At the last conference, it was 11 pm or so. The sitter and I were taking Aubrie up to go to bed and then I was heading back down to the lounge where parents and professionals were gathering. I was so dead tired. I get emotionally worn out and tired from information-overload. I was telling the sitter that I was heading back down as soon as they were settled. Aubrie fussed that she wanted to go to cuz, " There are people that haven't met me yet!! " It was so funny! It's fabulous that they have childcare at the conferences, but I like it even better when I bring my own. Just a thought for you if it's something you'd be comfortable with. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 reading all these messages makes me so cant wait to come lol, imm really going to stop procastinationg now and go pass this year, or else i cam going to ban myself from coming Re: W. > > - > I'm glad you will be able to go and bring . It is the best > experience! > And you'll definitely want her with you to show her off to everyone. We > all > love to meet other CHARGErs! There is childcare available at the > conferences. It's staffed with volunteers and they do their best to meet > each child's needs while in their care. They have fun activities etc. > > But I have always brought my mom or a teen sitter to take care of the > kids. > Then I can come and go as I please to sessions, visit with parents and > professionals in the eve and night, etc. I'd hate it if I had to go to > bed > with my little one when there were still grownups awake and talking to be > done! And at lunch and break times, I can relax or visit and not have to > run and check on or feed the kids. > > At the last conference, it was 11 pm or so. The sitter and I were taking > Aubrie up to go to bed and then I was heading back down to the lounge > where > parents and professionals were gathering. I was so dead tired. I get > emotionally worn out and tired from information-overload. I was telling > the > sitter that I was heading back down as soon as they were settled. Aubrie > fussed that she wanted to go to cuz, " There are people that haven't met me > yet!! " It was so funny! > > It's fabulous that they have childcare at the conferences, but I like it > even better when I bring my own. Just a thought for you if it's something > you'd be comfortable with. > > Michele W > Aubrie's mom > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
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