Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 You'll get through it. Just enjoy the cuddles. You'll remember these days when she is a grown up. I know that's no help when you're ready to pull your hair out. I don't remember what to do. I think you're probably " supposed " to let her cry and get over it, but that may be too hard with Sara. Does she vomit if you let her cry too long?? Maybe you will need to leave the room in order for her to let someone else calm her. I don't know -- good luck. Remember, this too shall pass. And in the meantime, you've got a cuddle-baby to cherish! Michele w Mark wrote: > > Here I go again... Sara will not let me put her down! She has to be > held, and only by mommmy all day!! She cries when anyone else tries > to touch her since we got home from the hospital- including daddy > and nana! She will be screaming like she's hurting, but then as > soon as I pick her up she'll stop and grin and reach up and yank my > glasses off my face (she does this to play with me). She is either > lying on her play mat crying, or snuggling in my arms. I know every > parent goes through periods like this.. if it were her brothers I'd > let them cry- but I baby her more.. any thoughts? This certainly > isnt life or death I know!! > Mark > > > > > > Membership of this email support groups does not constitute membership > in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you > may contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Hold her and snuggle she is only going to be a baby for a short time. I'm sure you have already mastered the skill of doing everything one handed. I know it's hard when they only want you both of my kids are that way when they are sick,but my CHARGEr is that way all the time. Think of all the muscle your building in your arms. Good Luck Kim.A From: Mark To: CHARGE@...: Mon, 20 Dec 2004 14:56:19 -0000Subject: crying babyHere I go again... Sara will not let me put her down! She has to be held, and only by mommmy all day!! She cries when anyone else tries to touch her since we got home from the hospital- including daddy and nana! She will be screaming like she's hurting, but then as soon as I pick her up she'll stop and grin and reach up and yank my glasses off my face (she does this to play with me). She is either lying on her play mat crying, or snuggling in my arms. I know every parent goes through periods like this.. if it were her brothers I'd let them cry- but I baby her more.. any thoughts? This certainly isnt life or death I know!! MarkMembership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation.For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our websitewww.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 I don't remember how old your Sara is or if she has blindness/deafness but I always use videos as a distraction (not a sign of a great parent huh!) Baby Einstein's are good for little ones. Maybe that would buy you some time. I've got two little ones (and a 7 year old) and I can sympathize with you! Good luck. I think hospitals are traumatic so maybe she just needs the extra security now. I hope it passes soon. I remind myself that everything can wait....but sometimes you have to go to the bathroom or feed the hungry mouths!!!! Lori Myers -------------- Original message -------------- > > > Here I go again... Sara will not let me put her down! She has to be > held, and only by mommmy all day!! She cries when anyone else tries > to touch her since we got home from the hospital- including daddy > and nana! She will be screaming like she's hurting, but then as > soon as I pick her up she'll stop and grin and reach up and yank my > glasses off my face (she does this to play with me). She is either > lying on her play mat crying, or snuggling in my arms. I know every > parent goes through periods like this.. if it were her brothers I'd > let them cry- but I baby her more.. any thoughts? This certainly > isnt life or death I know!! > Mark > > > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information > will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact > CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Its funny you said that because potty breaks and feeding her brothers are a few of the " other things " I'm trying to do!! LOL Santa was supposed to bring Baby Einstein movies- but maybe we'll break em open now! Mark > I don't remember how old your Sara is or if she has blindness/deafness but I always use videos as a distraction (not a sign of a great parent huh!) Baby Einstein's are good for little ones. Maybe that would buy you some time. I've got two little ones (and a 7 year old) and I can sympathize with you! Good luck. > > I think hospitals are traumatic so maybe she just needs the extra security now. I hope it passes soon. I remind myself that everything can wait....but sometimes you have to go to the bathroom or feed the hungry mouths!!!! > > Lori Myers > > -------------- Original message -------------- > > > > > > > Here I go again... Sara will not let me put her down! She has to be > > held, and only by mommmy all day!! She cries when anyone else tries > > to touch her since we got home from the hospital- including daddy > > and nana! She will be screaming like she's hurting, but then as > > soon as I pick her up she'll stop and grin and reach up and yank my > > glasses off my face (she does this to play with me). She is either > > lying on her play mat crying, or snuggling in my arms. I know every > > parent goes through periods like this.. if it were her brothers I'd > > let them cry- but I baby her more.. any thoughts? This certainly > > isnt life or death I know!! > > Mark > > > > > > > > > > > > > > Membership of this email support groups does not constitute membership in the > > CHARGE Syndrome Foundation. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > 7th International > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information > > will be available at our website > > www.chargesyndrome.org or by calling 1-. In Canada, you may contact > > CHARGE Syndrome Canada at 1- (families), visit > > www.chargesyndrome.ca, or email info@c... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 you know... i got told by Ethan's ECI person today that i need to let him 'get over it on his own' and i do understand why but OMG that's SO hard to do -- this is a kid who almost never wants lovie time and then when he cries i'm not sposed to baby him??? i was a little heartbroken... i know i'm sposed to treat him like the other kids but i dunno if i can let him cry -- even if it is just because another kid walked by too close :-( she did say i can cuddle him on the ground if he'll let me but just not to pick him up every time he cries, like sit down on the floor with him or whatever -- so i guess that's okay lol Anyway -- today was the first day that the ECI-person visited my classroom and it was pretty helpful all the way around she even clarified a few of my signs for me and she clued me in on how much inclusion she wants me aiming for -- which is a HUGE help in itself -- although it is hard for me to force him to sit with the group when he's is upset and fighting it because he doesn't understand... but i know it's what he kind of needs to learn right now cause he's supposed to be starting real school in September... still... i hate to see him cry... i guess i'll really have to pick my battles... Just more encouragement to find the cash for the Signing Times videos (i want them SO bad) because one of the 'group times' that he'll have to learn to tolerate is a 20-30 minute movie time :-( anyhow... just lettin you in on my day ooo and progress -- he seems to be responding to some signs better than ever -- today he was at the top of the little baby slide i have in my class and i went over and signed 'slide' to him and he smiled real big and slid right down and then started clapping his hands ... and when i showed him the paint and the cotton balls and signed 'paint' he followed me over to the art area with no other coersion!!! wow i get excited over little things now days lol ya'll probably don't even care about those things... but I for one was excited! Cole > > Its funny you said that because potty breaks and feeding her > brothers are a few of the " other things " I'm trying to do!! LOL > Santa was supposed to bring Baby Einstein movies- but maybe we'll > break em open now! > Mark > > > > > > I don't remember how old your Sara is or if she has > blindness/deafness but I always use videos as a distraction (not a > sign of a great parent huh!) Baby Einstein's are good for little > ones. Maybe that would buy you some time. I've got two little ones > (and a 7 year old) and I can sympathize with you! Good luck. > > > > I think hospitals are traumatic so maybe she just needs the extra > security now. I hope it passes soon. I remind myself that > everything can wait....but sometimes you have to go to the bathroom > or feed the hungry mouths!!!! > > > > Lori Myers > > > > -------------- Original message -------------- > > > > > > > > > > > Here I go again... Sara will not let me put her down! She has to > be > > > held, and only by mommmy all day!! She cries when anyone else > tries > > > to touch her since we got home from the hospital- including > daddy > > > and nana! She will be screaming like she's hurting, but then as > > > soon as I pick her up she'll stop and grin and reach up and yank > my > > > glasses off my face (she does this to play with me). She is > either > > > lying on her play mat crying, or snuggling in my arms. I know > every > > > parent goes through periods like this.. if it were her brothers > I'd > > > let them cry- but I baby her more.. any thoughts? This certainly > > > isnt life or death I know!! > > > Mark > > > > > > > > > > > > > > > > > > > > > Membership of this email support groups does not constitute > membership in the > > > CHARGE Syndrome Foundation. > > > For information about the CHARGE Syndrome > > > Foundation or to become a member (and get the newsletter) > > > please contact marion@c... or visit > > > the CHARGE Syndrome Foundation web page > > > at http://www.chargesyndrome.org > > > 7th International > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, > 2005. Information > > > will be available at our website > > > www.chargesyndrome.org or by calling 1-. In Canada, > you may contact > > > CHARGE Syndrome Canada at 1- (families), visit > > > www.chargesyndrome.ca, or email info@c... Thank you! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 " ya'll probably don't even care about those things... but I for one was excited! " Cole Oh yes we do care. Your post brought a BIG smile on my face, and I am at work and it's not even 9am! I am sure everyone on this list would confirm that we all celebrate the tiniest bits of progress. They may be tiny for children with no challenges but to our children and us, they are huge leaps, but we never stop expecting and hoping for more. Glad to hear Ethan is doing so well already. Flo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 YAY Sara!!! you propsitterupper you :-) is it strange for me to be excited about that when i've never met her??? i am afraid i am going against the ECI lady (is she called an intervener?) a little bit... i let him sit on my lap or the other teachers and i only make him stay for one story or song unless he wants to stay for longer -- today he stayed for two stories and one song!!! and he turns his head to rest his better ear on my chest when we sing and claps his hands!!! i figure one story or song is a good goal for now and maybe next week we'll try for two... one week at a time and maybe i'll have him attending for twenty minutes by september right? i'm also thrilled with my other student's progress with sign -- and their parents seem pretty happy with that too -- and honestly i feel pretty good about my sign as well considering it's one-handed and i'm out of practice!!! although i am really having trouble with Fingerspelling and some signs left-handed :-( i'll get it though -- i've got till March before the next surgery anyway that's enough for now Cole > > Oh we care about those things... infact today in OT Sara prop sat > for 3 min 45 sec!!!!! It was so exciting- She did it for the first > time before surgery for about 20 secs- so today was huge!! Cole > youre a rare breed that cares like you do- what a blessing you are > to Ethan and his family. > Mark mom to nine month old prop sitter Sara > > > > > > > > > > " ya'll probably don't even care about those things... but I for > one was > > excited! " > > Cole > > > > Oh yes we do care. Your post brought a BIG smile on my face, and > I am at > > work and it's not even 9am! I am sure everyone on this list would > confirm > > that we all celebrate the tiniest bits of progress. They may be > tiny for > > children with no challenges but to our children and us, they are > huge leaps, > > but we never stop expecting and hoping for more. Glad to hear > Ethan is > > doing so well already. > > > > Flo > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
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