Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Wow Flo, That is great news. I had a chuckled about her letting go to fix her glasses. I know it must have been frightening, but I can just see her doing that as Makenna would do the exact same thing. , mom to Makenna -- Bicycle Good news everyone. Today, we bought a BICYCLE. This is so HUGE. It is quite bizzare actually. I was going to take her to buy a big tricycle that family offered to fund (in view of balance etc). Just before we went out, thought I would take her out on Elly's bike (with stabilisers). Simon had already tried this but I was unconvinced about the outcome depite his assurance that she rode it really well. Well, me of little faith! She took off at the speed of a space shuttle and really enjoyed herself. I could see that she was working quite hard to keep herself upright, so thought it must benefit her upper body with its low muscle tone. I suddenly had a brainwave and phoned the physio before we went to the cycle shop. She was really thrilled by the news and instantly advised that if she is riding a bicycle with stabilisers OK, this is the best thing for her as we really want to give her normality and the very minimum support to enable her to strengthen her upper body. The outcome is that our girlie now has a shiny new black and red bicycle that she has no idea how to ride safely but whizzed off into the distance as soon as she was on it. She does really dopey things like let go of the handlebars to straighten her glasses etc, but boy, is she a happy giggley girl or what! Guess we have some tough work to do to help her ride safely and use the brakes etc so just as well it is the summer holidays. We were both so chuffed by this little progress though and can't wait to tell school who already marvel at her tricycle antics. Just thought it would be nice to share this feel-good experience (oh and Michele, this must mean that you too are doing the right thing by Aubrie). Flo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Flor- What a story! Aubrie still rides the lil' 18 " 2-wheeler with training wheels and thinks she's hot stuff. But the bigger one (more age-appropriate size) she can't handle. It does not seem to bother her that the other kids her age are riding the bigger bike without training wheels. However, she did seem bothered that the other kids are all in the big pool now. She told me the other day that she will have to get out of the baby pool next year. It's a problem because the " rule " is that you can only be in there if you're under 5. But she can't handle the big pool yet. It's up to her chin and she isn't comfortable yet. So-- perhaps next year. No one's telling her she must move on to the big pool, but she's noticed and her friends are all noticing. First that she's felt different. The sad look in her eyes was pathetic. I told her that she could stay in the little pool as long as she needs to. She's not like a typical big kid who splashing and bothering the little kids. She's just another little kid enjoying the shallow water. In fact, the little kids splash her! Michele W Aubrie's mom 7 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 WoW! Please do post a picture. Kim > Good news everyone. Today, we bought a BICYCLE. This is so HUGE. > It is quite bizzare actually. I was going to take her to buy a big tricycle > that family offered to fund (in view of balance etc). Just before we went > out, thought I would take her out on Elly's bike (with stabilisers). Simon > had already tried this but I was unconvinced about the outcome depite his > assurance that she rode it really well. Well, me of little faith! She took > off at the speed of a space shuttle and really enjoyed herself. I could see > that she was working quite hard to keep herself upright, so thought it must > benefit her upper body with its low muscle tone. I suddenly had a brainwave > and phoned the physio before we went to the cycle shop. She was really > thrilled by the news and instantly advised that if she is riding a bicycle > with stabilisers OK, this is the best thing for her as we really want to > give her normality and the very minimum support to enable her to strengthen > her upper body. > > The outcome is that our girlie now has a shiny new black and red bicycle > that she has no idea how to ride safely but whizzed off into the distance as > soon as she was on it. She does really dopey things like let go of the > handlebars to straighten her glasses etc, but boy, is she a happy giggley > girl or what! Guess we have some tough work to do to help her ride safely > and use the brakes etc so just as well it is the summer holidays. > > We were both so chuffed by this little progress though and can't wait to > tell school who already marvel at her tricycle antics. > > Just thought it would be nice to share this feel-good experience (oh and > Michele, this must mean that you too are doing the right thing by Aubrie). > > Flo > > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Flo, What great news and I'm so glad you shared it. This is one of those huge happy surprises that are just elating for all of us. Better get your running shoes on though cause I have a feeling you're going to need them. She is a little daredevil now and I am sure she's going to do great things on that bike that'll make you want to pull your hair out. Bet is going to want to ride her bike all day long! She has her own bike, how fabulous. Congratulations to ! Bonnie, Mom to a 22, Patty CHARGE 20, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Flo, that is GOOD NEWS! I am SO impressed - really. Andy's balance was so bad he could tip a tandem bicycle and the other rider. It is HUGE and great for - YOU GO GIRL! Sally On 8/10/05 12:41 AM, " CHARGE " <CHARGE > wrote: > Date: Wed, 10 Aug 2005 00:43:49 +0000 > > Subject: Bicycle > > Good news everyone. Today, we bought a BICYCLE. This is so HUGE. > It is quite bizzare actually Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 How cute, Flo! I can just picture on the bike now! You should take a picture and post on the CHARGE pic page--I'm sure everyone would love to see her! --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Ellen- I hope people aren't mean to Aubrie. But this year feels like it will be the year when her differences make a big difference. There are many kids who adore her and really care. They will still make an effort to be friendly. But her interests, her way of playing, etc are all different from what other kids are doing. When they were younger, it didn't seem like such a disparity. But as they are getting older and moving on, the differences are getting larger. It makes me sad, but perhaps it won't bother her as much. And maybe I'll be wrong. In a small town, there aren't many other kids with disabilities to befriend either. Michele W > ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Thats really good Flo, couldnt ride bucycles until i was about 10 without training wheels, and even now i hate ridng bikes unkless they are low and i can put my feet flat on the ground Bicycle > Good news everyone. Today, we bought a BICYCLE. This is so HUGE. > It is quite bizzare actually. I was going to take her to buy a big > tricycle > that family offered to fund (in view of balance etc). Just before we went > out, thought I would take her out on Elly's bike (with stabilisers). > Simon > had already tried this but I was unconvinced about the outcome depite his > assurance that she rode it really well. Well, me of little faith! She > took > off at the speed of a space shuttle and really enjoyed herself. I could > see > that she was working quite hard to keep herself upright, so thought it > must > benefit her upper body with its low muscle tone. I suddenly had a > brainwave > and phoned the physio before we went to the cycle shop. She was really > thrilled by the news and instantly advised that if she is riding a bicycle > with stabilisers OK, this is the best thing for her as we really want to > give her normality and the very minimum support to enable her to > strengthen > her upper body. > > The outcome is that our girlie now has a shiny new black and red bicycle > that she has no idea how to ride safely but whizzed off into the distance > as > soon as she was on it. She does really dopey things like let go of the > handlebars to straighten her glasses etc, but boy, is she a happy giggley > girl or what! Guess we have some tough work to do to help her ride safely > and use the brakes etc so just as well it is the summer holidays. > > We were both so chuffed by this little progress though and can't wait to > tell school who already marvel at her tricycle antics. > > Just thought it would be nice to share this feel-good experience (oh and > Michele, this must mean that you too are doing the right thing by Aubrie). > > Flo > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 I just bought Karlee an adult size bike. Same problem - feels comfortable if she can put her feet down easily to catch herself. I bought the bike in Madison, Wisc. (which I call the bike capital of the midwest - college town). Anyway they were experts. The bike is a Giant, the model is Suede. It has upright handle bars and a nice size seat. The tires are wider and the pedals are set slightly forward so that the seat can be set lower than on normal bikes. It is going to work well for Karlee. from IL (Karlee 17) Bicycle > > > > Good news everyone. Today, we bought a BICYCLE. This is so HUGE. > > It is quite bizzare actually. I was going to take her to buy a big > > tricycle > > that family offered to fund (in view of balance etc). Just before we went > > out, thought I would take her out on Elly's bike (with stabilisers). > > Simon > > had already tried this but I was unconvinced about the outcome depite his > > assurance that she rode it really well. Well, me of little faith! She > > took > > off at the speed of a space shuttle and really enjoyed herself. I could > > see > > that she was working quite hard to keep herself upright, so thought it > > must > > benefit her upper body with its low muscle tone. I suddenly had a > > brainwave > > and phoned the physio before we went to the cycle shop. She was really > > thrilled by the news and instantly advised that if she is riding a bicycle > > with stabilisers OK, this is the best thing for her as we really want to > > give her normality and the very minimum support to enable her to > > strengthen > > her upper body. > > > > The outcome is that our girlie now has a shiny new black and red bicycle > > that she has no idea how to ride safely but whizzed off into the distance > > as > > soon as she was on it. She does really dopey things like let go of the > > handlebars to straighten her glasses etc, but boy, is she a happy giggley > > girl or what! Guess we have some tough work to do to help her ride safely > > and use the brakes etc so just as well it is the summer holidays. > > > > We were both so chuffed by this little progress though and can't wait to > > tell school who already marvel at her tricycle antics. > > > > Just thought it would be nice to share this feel-good experience (oh and > > Michele, this must mean that you too are doing the right thing by Aubrie). > > > > Flo > > > > > > > > > > > > Membership of this email support groups does not constitute membership in > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > > information and membership, please visit http://www.chargesyndrome.ca, or > > email info@.... > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Good point to go to an actual bike shop for someone who can fit you with the right bike for your needs. I hope Karlee has great fun on her new bike! Michele W Aubrie's mom > Quote Link to comment Share on other sites More sharing options...
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