Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 You might try Repair Gold enzymes; 4 in the am (and pm. if you can afford it) on an empty stomach. My son is 20 and we have been doing this (among other things) for about 2 years and I think it has really helped him. A friend who has a bipolar son also is doing it for over a year now and her son is really doing better on it--got his license planning on going on a mission trip in Jamaica this summer. This is a big improvement for him.sallyTo: mb12 valtrex Sent: Mon, February 8, 2010 11:38:59 AMSubject: OLDER KIDS RECOVERY? Hi Isabella You have done some wonderful things for your son. Also, having a lack of doctors in Belgium – you should be very proud of what you have accomplished. If my son could explain things a little better, I think he would say the same thing as your son “that he’s one of the normal autistic people’. He has no interest in other kids with disabilities, especially girls – he sees himself as normal like the neurotypicals. Yet, he remains very autistic with talking to himself, constantly living in a fantasy world, OCD, etc. I do see him having a job someday but not without a lot of help from us or a job coach. He might be able to live alone but I worry that he will be lonely after a while due to his lack of social skills. I am also ready to approach the valtrex world. I think my son has viruses we are just not aware of. Unfortunately, there are no short-cuts. We have to customize treatment for our individual kids. I am also tired and I feel your frustration about doing all the research. Some days, I just want to give up. But I keep forging ahead b/c I feel that if I can help him function in this world, I can worry less when we are old. Hang in there and keep networking with parents, such as this list. I wish you all the best. Heidi J From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On Behalf Of ISabelle Pecher Sent: Monday, February 08, 2010 5:36 AM To: mb12 valtrex@ yahoogroups. com Subject: Re: Recovery/ Marcia Hinds Hi Marcia, I’ve with a lot of attention your son’s report about recovery, and while my child is autistic also and already nearly 16y old, I never see some huge improvements with all interventions I’ve tried… ( a lot..) Sure, he’s able to live like another, he’s not shouting in the supermarket, is not rolling on the ground, or crossing the road dangerously, he’s ‘normal’ apparently. He’s even able to take bus and train alone, can speak and handle nearly correct, is very polite and shows feelings. BUT, when he’s beginning to speak you directly see he’s disabled; always talking about restrained domains, speaking to himself, no imagination and can’t pick up a lot of things we discussed on the right way. He’s full of good intentions, wants to work and to learn but it’s like he’s doesn’t find the right way to reach it. And suffers about his condition, because he’s clever enough to know what he has and what it means. It seems we miss some key. He’s always say that there are 2 kinds of autistic people: ‘ handicapped autistic people’ and ‘ normal autistic people’ and that he belongs to this second group. He’s right but, I still suffer because I have the impression to pass near something. We tried a lot of things, and so I’m interested to have more details about your interventions , while I’m thinking I’ve to re-overview and re-evaluate new rounds of therapies like Valtrex, diflucan , etc… but I’m tired to read it again and again, to find the right protocol, what before what, how , when etc… All in English, and it’s not my mother tongue so it’s really a huge work and I feel no energy anymore to ‘attack’ this. Do you have some condensed files, sites where to find the essentials? Your personal findings? Somewhere I’m persuaded that there is some hope to improve his condition, but on the other side I’m lost because of my disappointment in my efforts. It’s now for sure 13 years I fight this autism-problem and I have the feeling that I did so much, but even no recovery… When he was young, help was more evident: ABA behavior therapy, learn to learn programs, learn to read, speak and write, but now?? Everything is more complex, more difficult to learn; social codes, relativity of conversations and links, imagination and anticipation, motivation, etc… It makes me angry that I fail to find adapted help so he can make friends, go to the sport camp, and occupy his time useful. Many thanks to read , and if possible, can you give me some hints? Unfortunately I’m from Belgium, where there are no ‘specific autism’ doctors others than prescribing traditional treatments like Ritalin or neuroleptics, My son is taking Ritalin 30mr, and it gives him th possibility to function better , but I’m not completely satisfied. Thanks for your input, Isabelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 I understand what you mean. Sometimes the big symptoms leave and the small ones still linger on. One of mine did not start recovery treatments until age 14 and was able to do regular school at age 15. I consider him to fit in. He drives and socializes, just still tends to be anxious, at age 18. He is still on treatments to keep symptoms away. Check out www.heidinotes.com to learn what I learned about autism recovery. You can also see a video of him there, as recovered. Love and prayers, Heidi N Hi Marcia, I´ve with a lot of attention your son´s report about recovery, and while my child is autistic also and already nearly 16y old, I never see some huge improvements with all interventions I´ve tried... ( a lot..) Sure, he´s able to live like another, he´s not shouting in the supermarket, is not rolling on the ground, or crossing the road dangerously, he´s `normal´ apparently. He´s even able to take bus and train alone, can speak and handle nearly correct, is very polite and shows feelings. BUT, when he´s beginning to speak you directly see he´s disabled; always talking about restrained domains, speaking to himself, no imagination and can´t pick up a lot of things we discussed on the right way. He´s full of good intentions, wants to work and to learn but it´s like he´s doesn´t find the right way to reach it. And suffers about his condition, because he´s clever enough to know what he has and what it means. It seems we miss some key. He´s always say that there are 2 kinds of autistic people: ` handicapped autistic people´ and ` normal autistic people´ and that he belongs to this second group. He´s right but, I still suffer because I have the impression to pass near something. We tried a lot of things, and so I´m interested to have more details about your interventions , while I´m thinking I´ve to re-overview and re-evaluate new rounds of therapies like Valtrex, diflucan , etc... but I´m tired to read it again and again, to find the right protocol, what before what, how , when etc... All in English, and it´s not my mother tongue so it´s really a huge work and I feel no energy anymore to `attack´ this. Do you have some condensed files, sites where to find the essentials? Your personal findings? Somewhere I´m persuaded that there is some hope to improve his condition, but on the other side I´m lost because of my disappointment in my efforts. It´s now for sure 13 years I fight this autism-problem and I have the feeling that I did so much, but even no recovery... When he was young, help was more evident: ABA behavior therapy, learn to learn programs, learn to read, speak and write, but now?? Everything is more complex, more difficult to learn; social codes, relativity of conversations and links, imagination and anticipation, motivation, etc... It makes me angry that I fail to find adapted help so he can make friends, go to the sport camp, and occupy his time useful. Many thanks to read , and if possible, can you give me some hints? Unfortunately I´m from Belgium, where there are no `specific autism´ doctors others than prescribing traditional treatments like Ritalin or neuroleptics, My son is taking Ritalin 30mr, and it gives him th possibility to function better , but I´m not completely satisfied. Thanks for your input, Isabelle Quote Link to comment Share on other sites More sharing options...
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