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plays Tee ball. Rich runs bases with her and stands next to her

in the field so she does not accidentally get hit by a ball. I did not

let her play soccer because the other kids would be from other towns

and would not treat as " gently " as her local peers...it was hard

to explain to her, but she understood. Or at least she seemed to be OK

with it. I cried a lot that day...It is especially hard because her

older sister is a very good athlete and plays both basketball and

softball on traveling teams. Thankfully, loves to travel with

us and watch the girls play.

Could you " shadow " Aubrie like Rich does for ? Our coaches

usually are on the field with the kids anyway. Sign up to coach her

team and be with her.

G

On Sunday, August 28, 2005, at 07:50 PM, Michele Westmaas wrote:

> Aubrie is signed up for soccer and ready to go -- got all the equipment

> and everything. Then DJ and I started talking and getting worried for

> her safety. She participates in soccer camp one week each summer.

> They do skill lessons and play games, but it's pretty " gentle " . She

> is

> usually so far from the action that it's not a big deal.

>

> But we are wondering if it's too risky to be in a " real " game. These

> are just other 7-8 year olds on a young kids league where they don't

> keep score etc. So it's fine unless a big kid runs her over or she

> gets

> hit in the head with a ball or ... I'm concerned mostly about head

> blows that could cause a problem for her good eye. Remember, she has

> fairly normal vision in one eye and minimal in the other so the safety

> of that eye is critical.

>

> Do other kids play soccer or other team sports? How do you ensure

> safety? We've thought about a helmet but that would open up a lot of

> teasing on the field to be wearing a helmet. Her safety is most

> important, but what do we do??

>

> We've talked to her about her concerns hoping she'd give it up easily,

> but she's really determined to play. How have you older " kids " felt

> when you haven't been able to do something that you've wanted to do??

>

> Michele W

> Aubrie's mom 7 yrs

>

>

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> Canada information and membership, please visit

> http://www.chargesyndrome.ca, or email info@....

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available

> at www.chargesyndrome.org or by calling 1-.

>

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Michele,

Here we have very important person soccer, they go on the field with a buddy

to help learn the game and it is much more gentle. Regular soccer teams can

be very physical, and competitive especially the older they get. Last year

we were all set to have Dylan play VIP soccer, but chickened out at the last

minute. He has also been invited to play Challenger Little League. We have

declined on that - as much as we are a baseball family - the risk to his

good eye is too great for me.

With Aubrie's size and stamina and vision, it seems keeping up would be hard

work. Can she play with kids who are more her size?

Kim

> Aubrie is signed up for soccer and ready to go -- got all the equipment

> and everything. Then DJ and I started talking and getting worried for

> her safety. She participates in soccer camp one week each summer.

> They do skill lessons and play games, but it's pretty " gentle " . She is

> usually so far from the action that it's not a big deal.

>

> But we are wondering if it's too risky to be in a " real " game. These

> are just other 7-8 year olds on a young kids league where they don't

> keep score etc. So it's fine unless a big kid runs her over or she gets

> hit in the head with a ball or ... I'm concerned mostly about head

> blows that could cause a problem for her good eye. Remember, she has

> fairly normal vision in one eye and minimal in the other so the safety

> of that eye is critical.

>

> Do other kids play soccer or other team sports? How do you ensure

> safety? We've thought about a helmet but that would open up a lot of

> teasing on the field to be wearing a helmet. Her safety is most

> important, but what do we do??

>

> We've talked to her about her concerns hoping she'd give it up easily,

> but she's really determined to play. How have you older " kids " felt

> when you haven't been able to do something that you've wanted to do??

>

> Michele W

> Aubrie's mom 7 yrs

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca, or

> email info@....

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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yeah ive played wheelchair soccer with school but thas different its sort of

adapted to us we have a balloon and we arent allowed to use oru hands just

heads or knees but you ahve to be in a wheelchair aubrie cold do this if you

have an organisation that does it in your area we do out here they provide

competions i went to one with respite once it was fun ellen

>

> Michele,

> Hopefully, Jeanie will see this; I know MacKenzie played soccer this

> summer and had a great time....

>

>

>

>

>

> Home: lisaweir@...

> Work: lisa.weir@...

> Phone:

> Web: http://ca.geocities.com/weirfamilyrogers

>

>

>

>

>

>

>

>

>

>

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-

participated in AYSO along with his brothers for two years - before

the age when it does become competitive. I am not familiar with how

Aubrie's gross motor skills are, but with how long it took to run,

process where the action was and redirect himself physically, he was usually

on the opposite end of the field from any action (and potential injury) the

whole game. I was so worried with his trach sticking out and his g-button

and everything else.....

So, it was a bitter to watch him chase his team around the field like a

loyal senior Labrador retriever. Safe, participating, trying his utmost

best and so far from the group.....

with love always-

yuka

soccer

>

> But we are wondering if it's too risky to be in a " real " game. These

> are just other 7-8 year olds on a young kids league where they don't

> keep score etc.

> Do other kids play soccer or other team sports? How do you ensure

> safety?

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p.s. :o)

participated in AYSO at the ages of 9 and 10. At that age the rest of

the team was fairly well skilled - and though there was a great difference

in size and skill - their increased skill kept safer (as he trailed

well out of harms way), and ten year olds are in general a very kind and

co-operative group..

was more the size of his youngest brother's team (who were four/five).

And that may have physically been a better spot - they worked more on basic

skills and such - would not have liked the setting as much, as the

discipline involved in motivating and keeping a group of five year olds

together is simply too " babyish " for - also their lack of physical

control and direction in a game would have put more in harms way....so

I never considered asking for inclusion there.

I had also not considered putting in with his middle brother's team,

who were seven years old at the time - which is a nice age for co-operation

and inclusion. At the time the AYSO only gave us the choice of an age

matched team or the team for the specially challenged - with which, at the

time, fit in less well.

Good luck!

Yuka

> soccer

>

>

> >

> > But we are wondering if it's too risky to be in a " real " game. These

> > are just other 7-8 year olds on a young kids league where they don't

> > keep score etc.

> > Do other kids play soccer or other team sports? How do you ensure

> > safety?

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, Kim, -

Thanks for your suggestions and thoughts about soccer. I don't know if

we can shadow her -- I'm not sure I could keep up :-) DJ was

thinking about helping -- I wonder if he'd feel comfortable doing that.

Problem is his work schedule is such that he can't be sure to be at

every practice.

I put in a call to the eye dr today. He's never put a restriction on

her activities but then he may just assume we're not doing certain

things. I don't know. We'll see what he says, I'll share with DJ what

you guys have said, and we'll go from there. We had thought we'd both

go to Tues practice (1st one) to watch for ourself and see how it feels.

This is hard.

Michele W

Aubrie's mom

>

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Ellen-

Unfortunately, we don't have enough kids in our area like her to create

our own league. We do have Special Olympics and I think she is now old

enough to participate in that. Your wheelchair soccer sounds very fun

-- and safe!

Michele W

ellen howe wrote:

> yeah ive played wheelchair soccer with school but thas different its

> sort of

> adapted to us we have a balloon and we arent allowed to use oru hands

> just

> heads or knees but you ahve to be in a wheelchair aubrie cold do this

> if you

> have an organisation that does it in your area we do out here they

> provide

> competions i went to one with respite once it was fun ellen

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I just talked with the eye dr's nurse and he is comfortable with Aubrie

playing soccer. So -- she'll be pleased. We'll still watch to be sure

we're comfortable, but at least we have dr's approval. If there were a

significant risk, he wouldn't let her do it.

Michele W

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Yuka-

That is exactly what I anticipate- that Aubrie will be far from the

action. And as said, the kids will be herding around the ball

with Aubrie far behind. I think it'll be ok but we'll watch and be

sure. She wants so badly to do good that I hope she doesn't end up

feeling inadequate.

Michele W

Yuka Persico wrote:

> -

> participated in AYSO along with his brothers for two years - before

> the age when it does become competitive. I am not familiar with how

> Aubrie's gross motor skills are, but with how long it took to run,

> process where the action was and redirect himself physically, he was

> usually

> on the opposite end of the field from any action (and potential

> injury) the

> whole game. I was so worried with his trach sticking out and his g-button

> and everything else.....

>

> So, it was a bitter to watch him chase his team around the field like a

> loyal senior Labrador retriever. Safe, participating, trying his utmost

> best and so far from the group.....

>

> with love always-

>

> yuka

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