RE: Rollens Response To M.I.N.D. Ca. Epi Study]

[Guest guest]

That figures - it took 3 years and $1 million dollars for them to tell us

what we already know. This is what makes me see red every time I read about

the MIND institute. Just think what one of our doctors could do with $1

million toward mercury chelation trials or studies.

[Guest guest]

They (MIND) seem to be doing a good job of building their case from the

ground up. They built a respected research facility connected w/ a major

University (UC ), hired credentialed researchers and scientists and

funded a study to prove an increase in the autism rate. It's taking a long

time (for those of us wanting the answers yesterday) but what a way to do

it. This is going to be good. If MIND comes up w/ a vaccine link their

reputation will back up the results of the study. The vaccine companies

ought to be taking notice right about now. Fasten you seatbelts.

Valeri

Re: [ ] Rollens Response To M.I.N.D. Ca. Epi Study]

Actually, the money to do this epidemiology study was a good investment.

Although WE might feel we knew this already, the rest of the scientific

community professed that they didn't. Now that the increase is

" official " , due to this study, there will be a lot more money poured

into environmental factors research. This also gives all of " us " -

parents and researchers alike - who are pushing very hard for

recognition of the vaccine/thimerosal connection, incredible ammunition

for arguing our case. I know on this list we are always asking for ammo

to show our doctors. This adds to the pile. Unfortunately,

epidemiological studies are very expensive. The CDC should have done

this 3 years ago, but of course they're not interested in the truth. So,

good for the MIND Institute, with a separate source of funding, to have

done this and for have stated the case so strongly and forcefully in

their press release.

nelsoneyes@... wrote:

>That figures - it took 3 years and $1 million dollars for them to tell us

>what we already know. This is what makes me see red every time I read about

>the MIND institute. Just think what one of our doctors could do with $1

>million toward mercury chelation trials or studies.

>

>

>

>

>

[Guest guest]

Actually, the money to do this epidemiology study was a good investment.

Although WE might feel we knew this already, the rest of the scientific

community professed that they didn't. Now that the increase is

" official " , due to this study, there will be a lot more money poured

into environmental factors research. This also gives all of " us " -

parents and researchers alike - who are pushing very hard for

recognition of the vaccine/thimerosal connection, incredible ammunition

for arguing our case. I know on this list we are always asking for ammo

to show our doctors. This adds to the pile. Unfortunately,

epidemiological studies are very expensive. The CDC should have done

this 3 years ago, but of course they're not interested in the truth. So,

good for the MIND Institute, with a separate source of funding, to have

done this and for have stated the case so strongly and forcefully in

their press release.

nelsoneyes@... wrote:

>That figures - it took 3 years and $1 million dollars for them to tell us

>what we already know. This is what makes me see red every time I read about

>the MIND institute. Just think what one of our doctors could do with $1

>million toward mercury chelation trials or studies.

>

>

>

>

>

[Guest guest]

Valeri - I wish I could agree with you. I think, however, it's far from

" fasten your seatbelts "

time. I think our kids will be middle-aged before MIND comes up with anything

that resembles treatment. They don't even pretend to be looking for a cure -

they are a place where academicians can make a name for themselves and where

researchers can get grant $$$$ and publish their volumes. OK, it's been about

5 years since they broke ground and now, millions of dollars later, they have

" officially " told us that there's an autism epidemic, So, now what? More

research, more grant $$$$, and in another 5 years we may see a study that

links environmental factors to autism. THEN, more studies and research will

be required, on and on, ad nauseum. This is the way that these centers work.

In my mind, this is not the way to tackle a life or death epidemic. Sorry

for being such a cynic - I would love to be proven wrong on this one. I know

people involved with this institute(I live only an hour away) and they agree

with me that the purpose of MIND is not to find a cure for autism, nor to

make the autism-vaccine link, nor to do much of anything anything but

research.

>

> They (MIND) seem to be doing a good job of building their case from the

> ground up. They built a respected research facility connected w/ a major

> University (UC ), hired credentialed researchers and scientists and

> funded a study to prove an increase in the autism rate. It's taking a long

> time (for those of us wanting the answers yesterday) but what a way to do

> it. This is going to be good. If MIND comes up w/ a vaccine link their

> reputation will back up the results of the study. The vaccine companies

> ought to be taking notice right about now. Fasten you seatbelts.

>

[Guest guest]

I'm not sure you understand the importance of what has been accomplished

here. Of course we as parents know the truth but the government, the CDC, the

medical establishment still strongly contends that autism is just getting

diagnosed more efficiently and they don't buy the possibility (or don't want

to buy it) that something is causing an increase. The MIND study was

government funded and it concluded that the large increase in autism cases

cannot be attributed to improved diagnosis or more cases moving into the

state. Now the government is going to have a hard time refuting the claim

that there actually is an autism epidemic and with any luck they are going to

be forced to spend money to find the cause. This is a HUGE step forward over

where we were before IF pressure is kept on the government to follow through.

Thus the large expenditure of money and time may prove to have been worth the

effort, at least for the future of this terrible disease. Since the study was

done carefully and scientifically, it is something that the scientific

community and the government will have to pay attention to. It may therefore

open some doors which have been closed up to now. Let's hope so.

Ken Sokolski

[Guest guest]

They seem to have fallen' into the category of " the cottage industry' that has

grown and feeding off the limited trough of moneys sorely needed to get to the

root cause of this epidemic. We need researcher in the trenches with us not

these blue-sky academics investigating the obvious. I had hopes when this center

was starting up but after this report I'm convinced they will speculate forever.

lots of smoke but no fire! S

nelsoneyes@... wrote:Valeri - I wish I could agree with you. I think,

however, it's far from

" fasten your seatbelts "

time. I think our kids will be middle-aged before MIND comes up with anything

that resembles treatment. They don't even pretend to be looking for a cure -

they are a place where academicians can make a name for themselves and where

researchers can get grant $$$$ and publish their volumes. OK, it's been about

5 years since they broke ground and now, millions of dollars later, they have

" officially " told us that there's an autism epidemic, So, now what? More

research, more grant $$$$, and in another 5 years we may see a study that

links environmental factors to autism. THEN, more studies and research will

be required, on and on, ad nauseum. This is the way that these centers work.

In my mind, this is not the way to tackle a life or death epidemic. Sorry

for being such a cynic - I would love to be proven wrong on this one. I know

people involved with this institute(I live only an hour away) and they agree

with me that the purpose of MIND is not to find a cure for autism, nor to

make the autism-vaccine link, nor to do much of anything anything but

research.

>

> They (MIND) seem to be doing a good job of building their case from the

> ground up. They built a respected research facility connected w/ a major

> University (UC ), hired credentialed researchers and scientists and

> funded a study to prove an increase in the autism rate. It's taking a long

> time (for those of us wanting the answers yesterday) but what a way to do

> it. This is going to be good. If MIND comes up w/ a vaccine link their

> reputation will back up the results of the study. The vaccine companies

> ought to be taking notice right about now. Fasten you seatbelts.

>

[Guest guest]

Hey I live about an hour away from MIND too, Walnut Creek. Where are you?

I didn't mean that they would find a cure, but that hopefully the next step

is proving the vaccine manufactures liable. In my fantasy the people who

knew there would be " collateral damage " and allowed the use of mercury

anyway would serve prison time. My but my fantasies have gotten tame.

Valeri, mom to:

Jenna (4 1/2 ASD)

(3 1/2 NT)

LeeLee (1 1/2 NT)

Re: [ ] Rollens Response To M.I.N.D. Ca. Epi Study]

Valeri - I wish I could agree with you. I think, however, it's far from

" fasten your seatbelts "

time. I think our kids will be middle-aged before MIND comes up with

anything

that resembles treatment. They don't even pretend to be looking for a cure -

they are a place where academicians can make a name for themselves and where

researchers can get grant $$$$ and publish their volumes. OK, it's been

about

5 years since they broke ground and now, millions of dollars later, they

have

" officially " told us that there's an autism epidemic, So, now what? More

research, more grant $$$$, and in another 5 years we may see a study that

links environmental factors to autism. THEN, more studies and research will

be required, on and on, ad nauseum. This is the way that these centers work.

In my mind, this is not the way to tackle a life or death epidemic. Sorry

for being such a cynic - I would love to be proven wrong on this one. I know

people involved with this institute(I live only an hour away) and they agree

with me that the purpose of MIND is not to find a cure for autism, nor to

make the autism-vaccine link, nor to do much of anything anything but

research.

>

> They (MIND) seem to be doing a good job of building their case from the

> ground up. They built a respected research facility connected w/ a major

> University (UC ), hired credentialed researchers and scientists and

> funded a study to prove an increase in the autism rate. It's taking a

long

> time (for those of us wanting the answers yesterday) but what a way to do

> it. This is going to be good. If MIND comes up w/ a vaccine link their

> reputation will back up the results of the study. The vaccine companies

> ought to be taking notice right about now. Fasten you seatbelts.

>

[Guest guest]

Valeri - I live in Napa, about an hour from you as well! I hope you're right

about the next step, but I have a sad feeling that this won't be the case.

But, we'll see and let's hope.

> Hey I live about an hour away from MIND too, Walnut Creek. Where are you?

> I didn't mean that they would find a cure, but that hopefully the next step

> is proving the vaccine manufactures liable. In my fantasy the people who

> knew there would be " collateral damage " and allowed the use of mercury

> anyway would serve prison time. My but my fantasies have gotten tame.

>

> Valeri, mom to:

> Jenna (4 1/2 ASD)

> (3 1/2 NT)

> LeeLee (1 1/2 NT)