Introduction

[Guest guest]

Hi Danyel,

Welcome to the list. My daughter (4 years old) was diagnosed

as profoundly deaf at 18 months of age. We began working with her with

sign almost immediately, and she has made some good progress. However,

we have the same problem in terms of eye contact. She doesn't seem to

pay attention to us for more than a few seconds, despite our efforts.

I've been told, and believe, that she gets more than it is apparent she

does. I've begun asking her to repeat what I've said, and often she's

correct in her response even though I swear she wasn't paying

attention. I have no experience in terms of autism, but you're not

alone in terms of trying to get your child to maintain eye contact.

Wish I could be more help, if I come up with anything that seems to

work, I'll let you know.

While looking up some information today, I happened across this site. I

noted that it has information/materials on PECS as well as other

learning materials for special needs kids. I didn't get much chance to

look it over, but hope it helps some.

http://www.difflearn.com/

- mommy to , pre-pro, born 8/27/97

" We must find our duties in what comes to us, not in

what might have been. " -- Eliot

danyel reed wrote:

>

> Hi! I'm Danyel, Tyler's mom. Tyler is three years old. He was diagnosed deaf

> at 11 months. He has also struggled through severe global developmental

> delays. In the last year were we told that he also is autistic.

8< snip 8<

> We are just now begining to try to teach Tyler sign language, but getting

> him to make eye contact for any length of time is almost impossible. He is

> starting to communicate a little though. Someone had e-mailed me about a

> program called PECS, but really didn't give much info. If anyone has any

> advice, or knows about PECS, or other forms of communication used with

> deaf/autistic children please let me know. any help on the eye contact thing

> would be great also!

> THANKS!

>

> Danyel/Tyler's mom

> dannireed@...

[Guest guest]

Danyel, I have to write quickly as I am at work but my child was actually

dx'd as deaf and autistic (or PDD) in 1996. I do not think anybody can say

that about her now! At any rate, I will write more later. YOure not alone.

>

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: introduction

>Date: Wed, 26 Sep 2001 15:33:09 -0500

>

>Hi Danyel,

>

>Welcome to the list. My daughter (4 years old) was diagnosed

>as profoundly deaf at 18 months of age. We began working with her with

>sign almost immediately, and she has made some good progress. However,

>we have the same problem in terms of eye contact. She doesn't seem to

>pay attention to us for more than a few seconds, despite our efforts.

>I've been told, and believe, that she gets more than it is apparent she

>does. I've begun asking her to repeat what I've said, and often she's

>correct in her response even though I swear she wasn't paying

>attention. I have no experience in terms of autism, but you're not

>alone in terms of trying to get your child to maintain eye contact.

>Wish I could be more help, if I come up with anything that seems to

>work, I'll let you know.

>

>While looking up some information today, I happened across this site. I

>noted that it has information/materials on PECS as well as other

>learning materials for special needs kids. I didn't get much chance to

>look it over, but hope it helps some.

>

>http://www.difflearn.com/

>

> - mommy to , pre-pro, born 8/27/97

>

> " We must find our duties in what comes to us, not in

> what might have been. " -- Eliot

>

>

>danyel reed wrote:

> >

> > Hi! I'm Danyel, Tyler's mom. Tyler is three years old. He was diagnosed

>deaf

> > at 11 months. He has also struggled through severe global developmental

> > delays. In the last year were we told that he also is autistic.

>8< snip 8<

>

> > We are just now begining to try to teach Tyler sign language, but

>getting

> > him to make eye contact for any length of time is almost impossible. He

>is

> > starting to communicate a little though. Someone had e-mailed me about a

> > program called PECS, but really didn't give much info. If anyone has any

> > advice, or knows about PECS, or other forms of communication used with

> > deaf/autistic children please let me know. any help on the eye contact

>thing

> > would be great also!

> > THANKS!

> >

> > Danyel/Tyler's mom

> > dannireed@...

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

> As I wrote above, the internet has been a wonderful resource

> for us already.

Oops, how embarassing. How about,

" As I wrote above and edited out because my intro was getting

too long... "

Or was that obvious already?

sorry,

Pat

[Guest guest]

Hi Pat,

Welcome to the Listen-up list! This is a fabulous group! I have learned so

much and received a tremendous amount of support over the past 3 years. I

am mom to three children, two that have progressive sensorineural hearing

loss. , age 7, was diagnosed at 3 1/2 years with a mild - moderate

loss and we first picked up a loss in our youngest son, , when he was

2. 's loss progressed over the past 4 years until he was

profoundly deaf and he just received a cochlear implant in May. 's

loss has also progressed to severe-profound and we are currently evaluating

him for a CI. , age 6, has no loss to date, although we test her

yearly.

There is much to learn, but this group and Kay's website (thank Kay!) have

been invaluable to me on my journey into the world of hearing loss and

deafness and I am certain you will find the same to be true for you.

Again, welcome and good luck with Eamon!

Kindest regards,

Trish Freeman

To: <Listen-Up >

Sent: Sunday, November 25, 2001 2:30 PM

Subject: Introduction

> Hi Everyone,

>

> My name is (Pat) Beard. I live in South Carolina with my

> husband and five children aged 13 to 4. Our youngest, Eamon, was

> recently diagnosed with mild to moderate sensorineural hearing loss

> which will require hearing aids, speech and hearing training. We

> knew he was having trouble learning the language, but it didn't even

> occur to us that his hearing might be the trouble. He seemed to hear

> us, just not understand us -- it was very frustrating. Of course it

> all makes sense now.

>

> Things are happening very quickly. Since his initial diagnosis

> (about four weeks ago), we've been quite busy with visits to the

> audiologist, ENT, hospital (for diagnostic tests ordered by the ENT),

> and the school. This wednesday is the IEP meeting. When they

> called me to schedule the IEP meeting, I didn't even know what an

> " IEP " was. So much to learn.

>

> We have a wonderful audiologist for him, he enjoys going to visit

> her. The ENT is also very friendly and right next door to the

> audiologist. The ENT says that my son's hearing loss is at 50%,

> and possibly progressive. His loss is mostly in the high pitched

> tones, but many of the sounds on the chart are in an area that his

> audiologist called a 'pocket of hearing' -- so perhaps that

> percentage of loss figure is too high.

>

> As I wrote above, the internet has been a wonderful resource for us

> already. Having been a member of several email groups in the past

> several years, from writing to recipes I had hoped there would be one

> out there for parents of children with hearing loss. That's what led

> me to this group, and I am glad to have found you.

>

> Thanks for reading and for letting me join your group,

>

> Pat

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

HI Pat,

I just wanted to write and let you know my thoughts are with you, Eamon

and your family during this time...I also live in South Carolina..Where

abouts are you? And I am the proud mother of five children, ages 20 to 7.

Our two youngest daughters are profoundly hearing impaired. If you ever need

to talk to someone who understands the joy of being a busy taxi driver

LOLOLOL, please feel free to e-mail me at AVHear2@...

,

Clarion 8/99

Holly Clarion 12/99

[Guest guest]

Hi !

Welcome to the group. I don't want to repeat myself from my previous message to

, but I am sure you will also get lots of support and help from the people

in this group. I am so glad is doing well with her implant. It sounds

like she has great family support and love.

Regards,

Kerryn

[Guest guest]

Hi everyone!

I just recently discovered your group and thought I'd join to get a

little insight on my future orthognathic surgery.

I'll be getting lower jaw surgery to correct an open bite in about 18

months or so (my orthodontist, periodontist and prosthodontist still

need to torture me a little longer before the surgery) My ortho

told me that lower jaw surgery should be a piece of cake since

there's no pain and I'm alrady use to not being able to eat normally,

having my mouth swollen, drooling and so on. But surgery is surgery.

I've had gum surgery, but it's nothing compared to actually having

jaw surgery (or so I've heard) After reading some of the posts here,

I'm realizing how lucky I am that they only need to move my lower jaw

a little forward. When I met the surgeon who'd be performing my

surgery, he told me it was a simple surgery and that nothing could go

wrong - apart from my lower jaw staying numb for the rest of my

life My ortho thinks he's one of the best orthognathic surgeons

around and that I really don't have anything to worry about. Am I

really worrying about nothing? None of my dentists seem to understand

why I'm even concerned in the first place because of other dental

procedures I've been through, but jaw surgery seems pretty major to

me.

Well, I wish all of you who've recently been through surgery a speedy

recovery and all the luck in the world to those of you who are having

surgery again or for the first time.

Love always,

Johanne

[Guest guest]

-Hello Johanne, welcome aboard! I am having lower jaw advancement

also (sometime in Oct). Cammie just recently had hers and there are

probably tons of others here to answer any questions we may have.

Athough, I don't think anyone would refer to it as " a piece of

cake " :)My surgeon acted the same way. I was fortunate in only having

to have my braces for 6 months. Of course, that is the game plan for

now. Things certainly have a way of changing around here! This group

is super supportive- so post away.

-- In orthognathicsurgerysupport@y..., " Johanne3 " <johanne3@y...>

wrote:

>

>

> Hi everyone!

>

> I just recently discovered your group and thought I'd join to get a

> little insight on my future orthognathic surgery.

>

> I'll be getting lower jaw surgery to correct an open bite in about

18

> months or so (my orthodontist, periodontist and prosthodontist

still

> need to torture me a little longer before the surgery)

[Guest guest]

Connie,

I am late in welcoming you to the group but i wanted to say hi. I'm ,

21 from the UK. Currently gaining weight rather than losing it but i'm

working on it!

Bitsy

-- Introduction

Hi All~~

Just joined this group hoping for some support and insight into losing weight.

[Guest guest]

Intros, first time or repeat are ALWAYS welcome here...

You've had a lot going on. I'd really like to see your numbers.. I'm thinking, with the fluctuation that you've seen (hyper then hypo) and the nodule that you're probably Hashi's. It's a shame he won't run antibodies.

This is gonna be trickly with your sickly heart. To get things in balance. I'm not really up on heart function, with the valves and such. Maybe you'll be able to educate us more about all of that...

I know I sound like a broken record a lot of the time but I think it's gonna be real important to find out what's going on with your thyroid and get that supported, supplemented, what ever it is that you need there, so that your body can concentrate on the other things. I have a suspicion that you know that too. Or you wouldn't be here.

It's scary to be awake during the night, when the world is all asleep and you feel so isolated and alone. Questions scampering about inside your head and not knowing where to go to figure things out. Can you tell that I've been there?

I can't help you much with your specific questions, focal photopenic is a term that I'm gonna have to research to understand. Any body else here up on this particular topic?

I'll hold my breath, with you, and wait for the numbers and what they may be indicating...

We here with ya, don't forget that, okay?

Topper ()

On Wed, 27 Apr 2005 09:52:16 -0000 "saeaden" writes:

A while ago we were all asked to tell a little about ourselves. my nane is sarah, its 4 am and I can't sleep. so, heres a little about me and my problems.I have diabetis, the big E (Emthysema)moderate, thank goodness. heart attact in oct.'99, stents put in. they failed in march 2000, had bypass. And there my troubles begin. havn't felt right since.kept complaining to the drs. about being sooo tired i could hardly move. had heart cath, a year ago... it was fine. also a year ago my goiter started to grow.had a fna done it said ,it was ok. the dr. tested my tsh 3 times in 1 week and it was different each time. don't remember the #'s. soo, this year in march had ultra sound on heart and out of 4 valves i have 3 leaking the mitral valve is severe.the surgeon wanted things cheched out before he operrated. went to family dr. and was talking to him .mentioned my thyroid . that i thought it had grew again and didn't he think it should be tested again?(had NOT) been tested this whole year!!He just took the TSH and it said I was hyper-at0.331 went for ultra-sound then had another fna on a 2. something NEW nodule. it was ok.last week went for and uptake test and this is what it said; a large focal photopenic defect is identified involving interpolar region of right lobe of thyroid gland extending into lower pole. 6 hour uptake is app.3.1%and 24 uptake is app. 5.7%normal ranges are app. 5-15% and 10-30% respectively. NOW! heres one i dont understand! focal photopenic defect involving right of thyroid gland. the findins are most likely on the basis of non-functioning adenoma in view of patients biopsy of 3-17-05. the word ADENOMA scares me!! any way the test says i]m hypo-Lordy=Lordy!! went monday and gave more blood . asked what he was testing and it was all T's . I asked about the FREE's and the anti bodies.SEE, I learned something on this site already!! hehegot home from drs. office. nurse called about 45 mins. later and had to go back to give more blood. he ran all the tests i asked for except the anti-bodies. should hear tomarrow or now today, will post them then. sorry this is so long. i got pretty windy up here at 4 am all by myself.thank you for having this site its helping a lot.Saeah Eadensr68@...