Re: Chelation Timing Query Dec 2002

[Guest guest]

Thank you for this fascinating information, Jaquelyn.

It does appear that there is no current consensus among the original

participants in the consensus working group. I am curious why other

physicians think they should follow a protocol that most of the

original developers are don't use.

Andy . . . . . . . . . . . . . . . . . . . . . . .

> In attempting to complete the 2nd Edition of Children with Starving

Brains, I recently e-mailed as many of the original DAN! participants

in the February 2001 Chelation Consensus meeting as I could find

addresses for (15) and received 10 replies (thank you so much!). I

asked these (mostly) clinicians to comment on their present feeling

about timing of administration of chelation agents, as there is

conflict/confusion in the community about the every four versus the

every eight hour schedules. The essence of many of the replies have

been posted under the Articles Section of my website,

www.Autism-RxGuideBook.net, and briefly summarized below:

>

> Summary: 2, always prefers the 8 hr schedule.

> 1, always prefers the 4 hr schedule

> 1, uses 4 hrs and 8 hr schedules equally (as I do)

> 1, uses 4 hr in daytime, 8hrs for night

> 1, usually the 8 hr schedule, but varies according to child

> 1, educates parents, let them decide, change if not working

> 1, primarily uses IV DMPS now

> 1, prefers oral DMPS every 8 hrs (with informed consent)

> 1, prefers " natural " anti-oxidative stress therapy to chelation

> (glutathione, ALA, selenium, melatonin, vit C etc)

>

>

> [Non-text portions of this message have b

[Guest guest]

> I think it's simply that when you first start you don't know what

else to

> do, and the more experience you get, the more you have the courage

to get

> flexible and find what works the best - I believe intuition and

experience

> play a large role here.

Yes, which does make it kind of interesting that the DAN! committee

consited almost entirely of physicians with no relevant experience,

and didn't contain people like me who had the actual experience

necessary, though of course I have experience at *PROMOTING OPTIMAL

HEALTH* and not at *TREATING DISEASE* as physicians have if they do

essentially the same thing, since they have a license to use whatever

words they want to describe what they are doing.

Also do please note that experience not illuminated by thoughtful

reflection and analysis is worthless, otherwise all the pediatricians

who are still shooting kids full of thimerosal would have stopped it

long since. Everyone gets experience from living. Some have the

sense to learn from it. A very few have the sense to learn from the

hard experiences of others without having to repeat those personally.

Andy . . .. . . . .

[Guest guest]

Dr. McCandless, Could you elaborate on the comment regarding the one dr. who

does oral DMPS every eight hours (with informed consent)? That reference is

a little scary for me, a DMPS user. Thanks.