Re: to moms (and dads) with PSC kids/adolescents

[Guest guest]

Dear Deb;

On the PSC roller-coaster there are certainly some " downs " , but there

are also some thrilling " ups " where our PSCers accomplish remarkable

things. I wanted to share one of my " ups " that occurred yesterday

when our son, , won the top Moot Court Orator award at Wabash

College:

http://www.wabash.edu/news/displaystory.cfm?news_ID=1992

Best regards,

(father of (19); PSC 07/03; UC 08/03)

> Jodi, Thanks for the encouraging words. Hard to imagine all the

hardships your family has faced. I can't wait to tell my son about

; wishing and you the very best for a healthy and happy

future! DN

>

[Guest guest]

-,

We haven't met online yet but I just wanted to congratulate your son

and family on his marvelous accomplishment. I also want to thank you

for taking the time to share your considerable knowlege on psc etc...

with all of us. My 17 year old son is still not 100%

diagnosed withe psc yet but it's definitely leaning in this

direction. You must have a strong science background as your depth

and breadth on this subject is incredible. I have lots of questions

for you but I'm going to leave them to my husband since I know for

certain that he'll do a whole lot better with the technical aspects.

Congratulations again and cherish the moment.

Joan-- In , " "

<rhodesdavid@i...> wrote:

>

> Dear Deb;

>

> On the PSC roller-coaster there are certainly some " downs " , but

there

> are also some thrilling " ups " where our PSCers accomplish

remarkable

> things. I wanted to share one of my " ups " that occurred yesterday

> when our son, , won the top Moot Court Orator award at Wabash

> College:

>

> http://www.wabash.edu/news/displaystory.cfm?news_ID=1992

>

> Best regards,

> (father of (19); PSC 07/03; UC 08/03)

>

>

>

> > Jodi, Thanks for the encouraging words. Hard to imagine all the

> hardships your family has faced. I can't wait to tell my son about

> ; wishing and you the very best for a healthy and happy

> future! DN

> >

[Guest guest]

,

Congratulations to all of you! I think we all needed an " up " moment

this week...

Deb in VA

AIH 1997, PSC 1998, UC 1999, Listed Ltx 2001, MELD 18

> I wanted to share one of my " ups " that occurred yesterday

> when our son, , won the top Moot Court Orator award at Wabash

> College:

>

> http://www.wabash.edu/news/displaystory.cfm?news_ID=1992

>

> Best regards,

> (father of (19); PSC 07/03; UC 08/03)

>

>

[Guest guest]

Dave, congratulations to ! How wonderful to have good news.

My best to you

Lee

>

>

> Dear Deb;

>

> On the PSC roller-coaster there are certainly some " downs " , but there

> are also some thrilling " ups " where our PSCers accomplish remarkable

> things. I wanted to share one of my " ups " that occurred yesterday

> when our son, , won the top Moot Court Orator award at Wabash

> College:

>

> http://www.wabash.edu/news/displaystory.cfm?news_ID=1992

>

> Best regards,

> (father of (19); PSC 07/03; UC 08/03)

>

[Guest guest]

Dear Barb, Deb, Dee, Leona, Joan and Lee;

Thanks so much for your congratulations for . He is really

thrilled about it. Of course he gets his oratory skills from his

mom, Judy, and not from me! I used to be a nervous wreck giving

speeches/talks at his age! Both Judy and I are cherishing this

moment.

Joan, I'm pleased to meet you. I look forward to hearing from you

(or your husband) in the future, and getting to know more about

.

If you have any questions please feel free to post them or write to

me privately if you prefer.

Best regards,

Dave R.

(father of (19); PSC 07/03; UC 08/03)