Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Hey you guys, I wish Andy was 5 so I could learn from all your good advice!!! Really cool, post, Bonnie! Sally(mom to Andy, 23) P.S. Michele, Andy doesn't do cursive either - just his signature like Patty....despite YEARS of PT On 8/10/05 1:40 PM, " CHARGE " <CHARGE > wrote: > Michele, > > The biggest tip I could give you is go with your heart and what you think is > best for Aubrie. You know her, her feelings, her personality, her heart and > you'll be just fine. So will she. > > Patty found the differences early too. We have continually had to work to > keep and build her self esteem and boy oh boy is she self confidant. Then > again > she continues to try find where she fits. It's a life long learning though > so that's fine too. > > We did do a few things with the girls. At supper we would ask them to tell > us what the worse part of the day was and what the best part of the day was.. > We had to do the same and start off. If they couldn't think of a bad part > that > was OK but they had to have a good one. And it had to be different than the > day before. Often Patty could list tons of good things and only a few bad. > When she got to be around 10 or 12 she started to stop sharing so much. I was > often tired at night so we sometimes had " girl " time. That meant she would > come into my room (while I was reading or watching TV, ugh) and would climb on > in and chat. We made the rule that anything that she said there had to be > kept > secret and that she could share anything with no judgment being made about > it. Sometimes it was Krissy too but most often that was where Patty shared.. > We > also would turn the lights off. I told her that was to keep it secret but > really it was so she couldn't read my facial expressions! Some of the things > she > said broke my heart, but the fact that she learned to trust and let go was > great. After a while she would get me in the middle of the day and want to go > in my room for " girl time. " Eventually she trusted and said what she felt > anywhere. She still trusts me to this day and will even call now and then. I > am > honored. > > Raising children is hard for everyone but I do think raising girls nowadays > is harder. Girls can be so vicious. > > When she shared we would often turn it around to find laughter in things. I > also shared with her experiences of others girls I knew, or even some > experiences I had when I was her age to show she isn't all that different. I > also > showed how everyone has something and that it is the people who let the > limitations rule them that were the most regretful. Failure is only failure > if you > don't try. If you try and failed, that's still success and something to be > very > proud of. I also shared continually and still have to point out now and then > that the most disabling things about people are those who think they are > better than others. That's where we also tried to teach her forgiveness. We > are > all different, but we are all the same. Some people have hard hearts and > that's a huge disability! I think Aubrie understands that already. > > Always point out the good things she does, point out the good and unique > about her. Praise all her accomplishments no matter if they are large or > small. > Continue to have her act in ways that are loving and respectful. And teach > her how to stand up for herself and not be afraid of challenges. It's not > easy, > but it's great! Look at Patty, have you ever seen anyone so selfconfidant? > Look at the adult CHARGErs. Life isn't easy but they are ...?...strong! They > all have laughter. Remember to laugh yourself. > > Remember she will also learn by your model. So don't worry about a thing. > She'll be just fine. > > By the way, Patty doesn't write in cursive. The only thing she needs to > write in cursive is her signature. She has a computer now! > > Michele, when all else fails, let it go and just keep loveing the living bits > out of Miss Aubrie. She'll be just fine! > > I guess what I am saying is just do what you already do Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 this list serve would be a great school wouldnt it a school for charge familys lol what do you think > > Hey you guys, I wish Andy was 5 so I could learn from all your good > advice!!! Really cool, post, Bonnie! > > Sally(mom to Andy, 23) > > P.S. Michele, Andy doesn't do cursive either - just his signature like > Patty....despite YEARS of PT > > > On 8/10/05 1:40 PM, " CHARGE " <CHARGE > > wrote: > > > Michele, > > > > The biggest tip I could give you is go with your heart and what you > think is > > best for Aubrie. You know her, her feelings, her personality, her heart > and > > you'll be just fine. So will she. > > > > Patty found the differences early too. We have continually had to work > to > > keep and build her self esteem and boy oh boy is she self confidant. > Then > > again > > she continues to try find where she fits. It's a life long learning > though > > so that's fine too. > > > > We did do a few things with the girls. At supper we would ask them to > tell > > us what the worse part of the day was and what the best part of the day > was.. > > We had to do the same and start off. If they couldn't think of a bad > part > > that > > was OK but they had to have a good one. And it had to be different than > the > > day before. Often Patty could list tons of good things and only a few > bad. > > When she got to be around 10 or 12 she started to stop sharing so much. > I was > > often tired at night so we sometimes had " girl " time. That meant she > would > > come into my room (while I was reading or watching TV, ugh) and would > climb on > > in and chat. We made the rule that anything that she said there had to > be > > kept > > secret and that she could share anything with no judgment being made > about > > it. Sometimes it was Krissy too but most often that was where Patty > shared.. > > We > > also would turn the lights off. I told her that was to keep it secret > but > > really it was so she couldn't read my facial expressions! Some of the > things > > she > > said broke my heart, but the fact that she learned to trust and let go > was > > great. After a while she would get me in the middle of the day and want > to go > > in my room for " girl time. " Eventually she trusted and said what she > felt > > anywhere. She still trusts me to this day and will even call now and > then. I > > am > > honored. > > > > Raising children is hard for everyone but I do think raising girls > nowadays > > is harder. Girls can be so vicious. > > > > When she shared we would often turn it around to find laughter in > things. I > > also shared with her experiences of others girls I knew, or even some > > experiences I had when I was her age to show she isn't all that > different. I > > also > > showed how everyone has something and that it is the people who let the > > limitations rule them that were the most regretful. Failure is only > failure > > if you > > don't try. If you try and failed, that's still success and something to > be > > very > > proud of. I also shared continually and still have to point out now and > then > > that the most disabling things about people are those who think they are > > better than others. That's where we also tried to teach her forgiveness. > We > > are > > all different, but we are all the same. Some people have hard hearts and > > that's a huge disability! I think Aubrie understands that already. > > > > Always point out the good things she does, point out the good and unique > > about her. Praise all her accomplishments no matter if they are large or > > small. > > Continue to have her act in ways that are loving and respectful. And > teach > > her how to stand up for herself and not be afraid of challenges. It's > not > > easy, > > but it's great! Look at Patty, have you ever seen anyone so > selfconfidant? > > Look at the adult CHARGErs. Life isn't easy but they are ...?...strong! > They > > all have laughter. Remember to laugh yourself. > > > > Remember she will also learn by your model. So don't worry about a > thing. > > She'll be just fine. > > > > By the way, Patty doesn't write in cursive. The only thing she needs to > > write in cursive is her signature. She has a computer now! > > > > Michele, when all else fails, let it go and just keep loveing the living > bits > > out of Miss Aubrie. She'll be just fine! > > > > I guess what I am saying is just do what you already do > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org <http://www.chargesyndrome.org> or by calling > 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 the older parents that have had more expderience like kim lisa marrln bonnie can be the teachers and all the newer ones like katie and all them can be the students what do you think of my idea ellen > > this list serve would be a great school wouldnt it a school for charge > familys lol what do you think > > > > > > Hey you guys, I wish Andy was 5 so I could learn from all your good > > advice!!! Really cool, post, Bonnie! > > > > Sally(mom to Andy, 23) > > > > P.S. Michele, Andy doesn't do cursive either - just his signature like > > Patty....despite YEARS of PT > > > > > > On 8/10/05 1:40 PM, " CHARGE " <CHARGE > > > wrote: > > > > > Michele, > > > > > > The biggest tip I could give you is go with your heart and what you > > think is > > > best for Aubrie. You know her, her feelings, her personality, her > > heart and > > > you'll be just fine. So will she. > > > > > > Patty found the differences early too. We have continually had to work > > to > > > keep and build her self esteem and boy oh boy is she self confidant. > > Then > > > again > > > she continues to try find where she fits. It's a life long learning > > though > > > so that's fine too. > > > > > > We did do a few things with the girls. At supper we would ask them to > > tell > > > us what the worse part of the day was and what the best part of the > > day was.. > > > We had to do the same and start off. If they couldn't think of a bad > > part > > > that > > > was OK but they had to have a good one. And it had to be different > > than the > > > day before. Often Patty could list tons of good things and only a few > > bad. > > > When she got to be around 10 or 12 she started to stop sharing so > > much. I was > > > often tired at night so we sometimes had " girl " time. That meant she > > would > > > come into my room (while I was reading or watching TV, ugh) and would > > climb on > > > in and chat. We made the rule that anything that she said there had to > > be > > > kept > > > secret and that she could share anything with no judgment being made > > about > > > it. Sometimes it was Krissy too but most often that was where Patty > > shared.. > > > We > > > also would turn the lights off. I told her that was to keep it secret > > but > > > really it was so she couldn't read my facial expressions! Some of the > > things > > > she > > > said broke my heart, but the fact that she learned to trust and let go > > was > > > great. After a while she would get me in the middle of the day and > > want to go > > > in my room for " girl time. " Eventually she trusted and said what she > > felt > > > anywhere. She still trusts me to this day and will even call now and > > then. I > > > am > > > honored. > > > > > > Raising children is hard for everyone but I do think raising girls > > nowadays > > > is harder. Girls can be so vicious. > > > > > > When she shared we would often turn it around to find laughter in > > things. I > > > also shared with her experiences of others girls I knew, or even some > > > experiences I had when I was her age to show she isn't all that > > different. I > > > also > > > showed how everyone has something and that it is the people who let > > the > > > limitations rule them that were the most regretful. Failure is only > > failure > > > if you > > > don't try. If you try and failed, that's still success and something > > to be > > > very > > > proud of. I also shared continually and still have to point out now > > and then > > > that the most disabling things about people are those who think they > > are > > > better than others. That's where we also tried to teach her > > forgiveness. We > > > are > > > all different, but we are all the same. Some people have hard hearts > > and > > > that's a huge disability! I think Aubrie understands that already. > > > > > > Always point out the good things she does, point out the good and > > unique > > > about her. Praise all her accomplishments no matter if they are large > > or > > > small. > > > Continue to have her act in ways that are loving and respectful. And > > teach > > > her how to stand up for herself and not be afraid of challenges. It's > > not > > > easy, > > > but it's great! Look at Patty, have you ever seen anyone so > > selfconfidant? > > > Look at the adult CHARGErs. Life isn't easy but they are > > ...?...strong! They > > > all have laughter. Remember to laugh yourself. > > > > > > Remember she will also learn by your model. So don't worry about a > > thing. > > > She'll be just fine. > > > > > > By the way, Patty doesn't write in cursive. The only thing she needs > > to > > > write in cursive is her signature. She has a computer now! > > > > > > Michele, when all else fails, let it go and just keep loveing the > > living bits > > > out of Miss Aubrie. She'll be just fine! > > > > > > I guess what I am saying is just do what you already do > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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