Re: Re: valtrex dosing

[Guest guest]

Cold sores are a symtom of having a herpes virus. My son tanked after his chicken pox vaccine. He did not get cold sores though until e started the valtrex. Once we started valtrex he has had cold sores come and go. He also has a chicken pox looking rash on his inner thighs and buttocks. He got a rasj all around his mouth with cold sores on each corner and sores inside his bottom lip. You may need the valtrex to bring it out.

Subject: Re: Re: valtrex dosingTo: mb12 valtrex Date: Monday, May 17, 2010, 9:30 PM

Could you explain more about special symptoms. We are getting our son tested next monday and I think the dr. is going to look at us like we are crazy, oh well, I have gotten use to it has been a cause for autism and would like to see if it helps.

JJ

From: Caryn_Reid <caryn_reidyahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 5:48:59 PMSubject: Re: valtrex dosing

Lyme is a big causative.> > > Based on the half-life of Valtrex and the results we see in this group, > I strongly advocate> for three times a day. I personally like starting at 250mg. My son > was approx 32 to 38> lbs for the duration on Valtrex.> > If I had a choice of doing 500mg twice a day (1000mg total) or 250 > three times a day (750> mg total), I would choose 250mg three

times a day. We just see better > results from it.> > I feel bad when I see people dosing twice a day, because they are doing > all this work, but> then lessening their chances of recovery (IMO).> > This dosage is, IMO. a good starting dosage. More consistent blood > levels is, IMO, more> important than the dosage itself.> > Just my opinion and observation.> > - Stan> ------------ --------- --------- --------- --------- --------- -> Publish your photos in seconds for FREE> Try IM ToolPack at www.imtoolpack. com>

[Guest guest]

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione... definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OTo: mb12 valtrex Sent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

Cheryl,My son is 5, but he's only 37lbs. Should he be taking 250mg or 500mg? I thought most kids under 50 lbs. (regardless of age, should stay at 250mg. -- I just assumed this...) We've been using 250mg. However, our DAN did prescribe 500mg, but I was dosing based on weight. Please advise. Thanks!To:

mb12 valtrex Sent: Wed, May 19, 2010 10:25:02 AMSubject: Re: Re: valtrex dosing

Yes but for a 4.5 yr old, 500 mg 3x a day is probably better.

Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~

so 250 mg three times per day?how bad is yeast with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrancegmail>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing

Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I know of a lot of big name, well respected DANs that aren't doing it right.

Cheryl~http://www/. gryffins- tail.blogspot. com~@midian42~

Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers.

>

> We are getting ready to try valtrex on our 4.5 year old son with asd.

>

> our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low.

>

> i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN) for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day.

>

> our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two.

>

> IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING...

>

>

> ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6?

>

> MATT O

>

[Guest guest]

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?From: matt orourke

To: mb12 valtrex Sent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

Hi .By day two, I knew it was working. It has been really great for us.Sent from my iPhone

Hi ,I also use Neubrander - when did you start seeing results form valtrex? I really thought my son would respond well also because he has herpes 1 virus but it has been forty days and I do not see much improvement.Thanks,From: To: mb12 valtrex Sent: Wed, May 19, 2010 10:51:01 AMSubject: Re: Re: valtrex dosing

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?From: matt orourke

<matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom:

<yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to

speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

,

My son is almost recovered, but I can't seem to get him "over the finish line". I'm curious about the LDN. Was your son a viral kid or did you work on multiple issues? My sons last symptoms are language processing and he is not quite there with maintaining social interactions. (Probably because of the processing)No one would guess he is diagnosed PDD, but the delay is still there. We have done Virogen with success and OLE. I'm wondering if I need something a little stronger to get him over the hump? Please share your story.

Kerri

To: mb12 valtrex Sent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.

We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a state of recovery. We've never chelated. And we do not see an immunologist.

Yes, the SCD legal, compounded Ibupro. is a script.

Best,

From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing

I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT O

From: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing

Matt:

We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love

So the dosing schedule looked like this (for the first week):

1. 8am: 250mg valtrex, diflucan 90mg. and other supps,

2. noon: 250mg valtrex,

3. 3pm, activated charcoal,

4. 5:30pm, 250mg valtrex and other supps,

5. 8:30pm, probiotic,

6. 11pm, LDN

after the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.

I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of water w/ 10 drops of milk thistle.

I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...

The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.

check liver enzymes (we do this monthly..)

Good Luck!

Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..

From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing

so 250 mg three times per day?how bad is yeast with valtrex?any other things we need to address when doing this?MATT O

From: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing

Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I know of a lot of big name, well respected DANs that aren't doing it right.

Cheryl

~http://www. gryffins- tail.blogspot. com

~@midian42~

Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers.>> We are getting ready to try valtrex on our 4.5 year old son with asd.> > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low.> > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN) for his near 60 lb. son. our guy is

just shy of 40 lbs, and the dose we got was 125 mg twice a day.> > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two.> > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING...> > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6?> > MATT O>

[Guest guest]

He used to refuse to accept patients that have chelated but now does. Unless he's changed his mind again sometime after we left. I don't think he has, though.

Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism.org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

klebsiella and strep don't die off from oxygen like alot of other bacteria, and guess which two bacteria strains went from 1 and 2 to 4+ after hbot?anyone who does hbot with no real antifungal in place is crazy.MATT OTo: mb12 valtrex Sent: Fri, May 21, 2010 2:53:17 PMSubject: Re: Re: valtrex dosing

But doesn't the yeast and bacterium hate the oxygen? Wouldn't it kill them because they are anaerobic? Sent via BlackBerry by AT & TFrom: matt orourke <matthew_t_orourke@ yahoo.com>

Date: Fri, 21 May 2010 11:49:46 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>Subject: Re: Re: valtrex dosing

i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation( timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrander

too.MATT OFrom: TRACEE ZEVAN <yahoo (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing

Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote:

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

so how was he for your child?we only did andy c. ala oral chelation, no iv... the gentlest way i can think of. it did npt do a whole lot for our son.he likes valtrex, immunovir, ivig, things like that right?MATT OTo: mb12 valtrex Sent: Fri, May 21, 2010 3:07:07

PMSubject: Re: Re: valtrex dosing

He used to refuse to accept patients that have chelated but now does. Unless he's changed his mind again sometime after we left. I don't think he has, though.

Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

We just saw Dr G yesterday. He does think that chelation and HBOT hurt the brain more than it can help it, but there was never an indication that he would not want to take us as patient. On the contrary, he's all about helping our children no matter what you have done in the past.

Karla

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.>> Lynn> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.> > so you are doing the NIDS i guess. > > you should check out this

site - stopcallingitautism .org> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. > > MATT O> >

[Guest guest]

The only part that worked for my son was the antivirals/antifungals. Everything else wasn't so hot and he needed so much more than what Dr. G had to offer. Our whole story has been told here many times. I've been on this list for 4 yrs now so it's all pretty well archived! :)Dr. G does not do IVIG. He will only do IMIG which I will tell you is quite painful and done every 3 weeks. "Things like that" is way too broad a statement to apply to Dr. G. NNY autism clinic is *not* affiliated with Dr. G. They are two separate entities with little communication with each other. And differing philosophies on diet.

Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~

so how was he for your child?we only did andy c. ala oral chelation, no iv... the gentlest way i can think of. it did npt do a whole lot for our son.he likes valtrex, immunovir, ivig, things like that right?MATT OFrom: Cheryl L. <cheryl.lowrancegmail>To: mb12 valtrex Sent: Fri, May 21, 2010 3:07:07

PMSubject: Re: Re: valtrex dosing

He used to refuse to accept patients that have chelated but now does. Unless he's changed his mind again sometime after we left. I don't think he has, though.

Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

That sounds exactly like my son.

JJ

To: mb12 valtrex Sent: Fri, May 21, 2010 11:30:04 AMSubject: Re: Re: valtrex dosing

diet - did gfcf, then scd, now we are back to a quasi scd with some gfcf allowances.therapy - aba 20 hours a week at home, plus the ot, pt, si. gets extra speech every other week up in south brunswick, nj. he is learning the gotalk 9, doing facilitated speech.enzymes - we did dpp-iv way back, got some good stuff from it for a time and then it seemed to fade. we are thinking about doing a new enzyme, maybe something from houston.probiotics - alternates betwwen klaire labs and custom probiotic.clo - yes, and a gazillion other supps including vitamin e, liverlife, biotin, dr, n's powder, uva ursi, vitamin c, the list goes on.epsom salt baths - yes.behaviors - he is a very nice and affectionate child. he does not tantrum much, is not bad with transitions, and he loves going to the playground, the store, rough play, or car rides. he generally sleeps through the night.he is apraxic, ie has alot of trouble making words (we understand him but it is pretty tough for anyone else), and is just plain stiff as a board motorically speaking. he is a little ocd but not too over the top, but he does not play with toys appropriately, is not interested in other children (a little interested in his little broher), and is kind of spacey. stimming is there, lots of twirling toys, galloping, not all day but intermittently.he is a bit of a sensory seeker, is hypoactive (very hard to get him dizzy), lethargic alot of the time

with bouts of hyperactivity, very itchy in the am and the pm as of late (this never happened prior, trying to figure out if he is developing eczema, seasonal allergies, or if it's yeast). so the short of this is cognitive and focus (add), and communication. there are other things,but these are the biggies. MATT O

From: TRACEE ZEVAN <yahoo (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Wed, May 19, 2010 6:46:24 PMSubject: Re: Re: valtrex dosing

How's his diet?

Are you doing any traditional therapies?

What are his behaviors/issues that cause concern?

Is he on an enzyme? Which one? Does he take probiotics? Which one? CLO? Which one?

Have you tried giving Epsom Salt baths to detox?

As long as you have an azole on board, for yeast, then yeast, w/ Valtrex, should be a non issue. Dr. N. (for some odd reason), likes to prescribe Nystatin w/Valtrex. I had to fight him on this one. And he eventually let us use Diflucan. I basically would not give my son Valtrex unless on a strong antifungal like Diflucan, or Nizoral.

Liver function has been fine (knock wood.) We test every four weeks. And I make sure my son drinks LOTS of water, takes milk thistle, and eats liver detoxifying foods.

Sorry for all the questions.. I'm just trying to get a sense of what's going on...so that we can help you.

Sent from my iPhone

On May 19, 2010, at 6:10 PM, matt orourke <matthew_t_orourke@ yahoo.com> wrote:

we have been at this for two years and no we are not far along, which has been frustrating. we were off to a great start with mb-12, but everything since then has more or less been a bust. hbot, antifungal, diets and supps, iv secretin, tomatis, oral chelation... i feel like charlie brown with lucy and that damn football with this stuff.how tough is valtrex AND antifungals imultaneously on the liver?MATT O

From: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wed, May 19, 2010 10:51:01 AMSubject: Re: Re: valtrex dosing

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)

We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?

From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT O

From: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.

We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a state of recovery. We've never chelated. And we do not see an immunologist.

Yes, the SCD legal, compounded Ibupro. is a script.

Best,

From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing

I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT O

From: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing

Matt:

We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love

So the dosing schedule looked like this (for the first week):

1. 8am: 250mg valtrex, diflucan 90mg. and other supps,

2. noon: 250mg valtrex,

3. 3pm, activated charcoal,

4. 5:30pm, 250mg valtrex and other supps,

5. 8:30pm, probiotic,

6. 11pm, LDN

after the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.

I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of water w/ 10 drops of milk thistle.

I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...

The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.

check liver enzymes (we do this monthly..)

Good Luck!

Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..

From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing

so 250 mg three times per day?how bad is yeast with valtrex?any other things we need to address when doing this?MATT O

From: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing

Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I know of a lot of big name, well respected DANs that aren't doing it right.

Cheryl

~http://www. gryffins- tail.blogspot. com

~@midian42~

Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers.>> We are getting ready to try valtrex on our 4.5 year old son with asd.> > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low.> > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN) for his near 60 lb.

son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day.> > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two.> > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING...> > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6?> > MATT O>

[Guest guest]

From what I understand not all are anaerobic.

JJ

To: mb12 valtrex Sent: Fri, May 21, 2010 1:53:17 PMSubject: Re: Re: valtrex dosing

But doesn't the yeast and bacterium hate the oxygen? Wouldn't it kill them because they are anaerobic? Sent via BlackBerry by AT & T

From: matt orourke <matthew_t_orourke@ yahoo.com>

Date: Fri, 21 May 2010 11:49:46 -0700 (PDT)

To: <mb12 valtrex@ yahoogroups. com>

Subject: Re: Re: valtrex dosing

i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation( timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrander too.MATT O

From: TRACEE ZEVAN <yahoo (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing

Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhone

On May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote:

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.>> Lynn> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.> > so you are doing the NIDS i guess. > > you should check out this site - stopcallingitautism .org> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. > > MATT O> >