Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Thank u so much for posting that. U don't even know what it means to me to read in your story what I hope to be saying about my son one day. Congrats to u and your son. On Mon Feb 1st, 2010 8:14 AM EST and Marcia Hinds wrote: >You asked me to share my son's recovery story. My son, , was diagnosed >with autism when he was only four years old. At the time the psychiatrist >who was the " leading authority " said my son would never be okay and would >probably end up in a group home. Today does all the things the >professionals said would never happen. He is your typical college student >who drinks an occasional beer, goes on dates, stays out too late with >friends and sleeps through eight o'clock classes. I couldn't be more proud. > > > studies Mechanical Engineering at a university on a merit scholarship. >He has an incredible GPA, is a member of Sigma Chi Fraternity, and was >president of the Jewish Student Association. But more importantly, is >a good person, has great values, and is happy. He even has a ton of friends >(who would have seen that one coming). > >If anyone would have told me this was possible when he was little, I never >would have believed them. This was the child who wanted to spend his days >doing nothing other than plugging in a portable radio into every outlet in >the house over and over again. This was the kid who really didn't have true >friends until the end of high school and the beginning of college. > >We started with Dr Baker who started the DAN protocol. However, we soon >realized all of 's issues weren't being addressed and there were too >many supplements. So we moved onto Dr. Goldberg of Tarzana, >California. > > >When my son entered kindergarten at almost six years old, he was in the >third percentile for speech. By that time we had been seeing Dr. Goldberg >for about a year. He needed a full-time aide in his classroom to help him >in school. By the third grade, my son tested in the 85th percentile for >speech and by fifth grade no longer received any services or assistance >at school. Although he did okay academically, he was still way behind >socially. This was not an easy fix and there is no magic pill. Recovery >took years and years of work medically, behaviorally and educationally. > >Unfortunately, it is still not common knowledge among most doctors that >autism, ADD, ADHD are the result of an immune system that isn't working >properly. 's doctor knows that autism is not a " psychiatric and >developmental disorder " without any hope for recovery, but rather an immune >problem that is treatable medically. My son, , and all the others Dr. >Goldberg has helped are living proof that he is correct. > >Dr. Goldberg even coined his own term for this condition. He calls it >NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way >I understand it some children with autism have immune systems that work >overtime and produce too many disease fighters for too long; while at other >times their systems do not produce enough. This results in some children >having chronic infections and viruses in their systems. Some kids are >constantly catching everything while some with overactive immune systems >don't appear sick at all, but they are. > >My son's long road to recovery was the hardest thing I have ever lived >through. During the process, I sometimes questioned if my family's >sacrifices and efforts were actually accomplishing anything. We survived >the autism diagnosis; but it wasn't easy and there were many times I thought >we weren't going to make it. It took years to correct 's deficits in >speech and social skills. > >In the beginning, most of what I did was not because I truly believed my >child could get better, but rather to alleviate the guilt I knew I would >have if I ever had to put him in a group home. I wanted to be able to tell >myself that I did everything possible to help him. This is a complex and >difficult disease to control, but it is treatable. Recovery is possible for >most children whose immune systems are not too damaged. I hope this helps >others have the same kind of success my son has had. >Marcia Hinds > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Wow. Incredible. This truly gives me hope, as I often feel like we're just treading water, not really moving forward. It's hard not to feel this sense of bottomless despair at those times. I hardly ever read recovery stories, because, frankly, it really, really hurts, and I end up feeling more envious than hopeful--which is terrible, I know, but I'm glad I read your story. I pray that will also be my son one day. Thank you for sharing. Thank u so much for posting that. U don't even know what it means to me to read in your story what I hope to be saying about my son one day. Congrats to u and your son. On Mon Feb 1st, 2010 8:14 AM EST and Marcia Hinds wrote: >You asked me to share my son's recovery story. My son, , was diagnosed >with autism when he was only four years old. At the time the psychiatrist >who was the "leading authority" said my son would never be okay and would >probably end up in a group home. Today does all the things the >professionals said would never happen. He is your typical college student >who drinks an occasional beer, goes on dates, stays out too late with >friends and sleeps through eight o'clock classes. I couldn't be more proud. > > > studies Mechanical Engineering at a university on a merit scholarship. >He has an incredible GPA, is a member of Sigma Chi Fraternity, and was >president of the Jewish Student Association. But more importantly, is >a good person, has great values, and is happy. He even has a ton of friends >(who would have seen that one coming). > >If anyone would have told me this was possible when he was little, I never >would have believed them. This was the child who wanted to spend his days >doing nothing other than plugging in a portable radio into every outlet in >the house over and over again. This was the kid who really didn't have true >friends until the end of high school and the beginning of college. > >We started with Dr Baker who started the DAN protocol. However, we soon >realized all of 's issues weren't being addressed and there were too >many supplements. So we moved onto Dr. Goldberg of Tarzana, >California. > > >When my son entered kindergarten at almost six years old, he was in the >third percentile for speech. By that time we had been seeing Dr. Goldberg >for about a year. He needed a full-time aide in his classroom to help him >in school. By the third grade, my son tested in the 85th percentile for >speech and by fifth grade no longer received any services or assistance >at school. Although he did okay academically, he was still way behind >socially. This was not an easy fix and there is no magic pill. Recovery >took years and years of work medically, behaviorally and educationally. > >Unfortunately, it is still not common knowledge among most doctors that >autism, ADD, ADHD are the result of an immune system that isn't working >properly. 's doctor knows that autism is not a "psychiatric and >developmental disorder" without any hope for recovery, but rather an immune >problem that is treatable medically. My son, , and all the others Dr. >Goldberg has helped are living proof that he is correct. > >Dr. Goldberg even coined his own term for this condition. He calls it >NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way >I understand it some children with autism have immune systems that work >overtime and produce too many disease fighters for too long; while at other >times their systems do not produce enough. This results in some children >having chronic infections and viruses in their systems. Some kids are >constantly catching everything while some with overactive immune systems >don't appear sick at all, but they are. > >My son's long road to recovery was the hardest thing I have ever lived >through. During the process, I sometimes questioned if my family's >sacrifices and efforts were actually accomplishing anything. We survived >the autism diagnosis; but it wasn't easy and there were many times I thought >we weren't going to make it. It took years to correct 's deficits in >speech and social skills. > >In the beginning, most of what I did was not because I truly believed my >child could get better, but rather to alleviate the guilt I knew I would >have if I ever had to put him in a group home. I wanted to be able to tell >myself that I did everything possible to help him. This is a complex and >difficult disease to control, but it is treatable. Recovery is possible for >most children whose immune systems are not too damaged. I hope this helps >others have the same kind of success my son has had. >Marcia Hinds > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Marcia, Thank you for your recovery story! Did you son have any toxicity issues? Did you chelate? Did he have hormonal issues such as precocious puberty? Do you also believe the cause was the vaccinations? How did Dr. Goldberg test for immune issues? My son has been tested for immune issues but tests turned out negative. He hardly ever gets a cold. Thank you. AK Subject: RecoveryTo: "'nnmom76'" , mb12 valtrex Date: Monday, February 1, 2010, 8:14 AM You asked me to share my son's recovery story. My son, , was diagnosedwith autism when he was only four years old. At the time the psychiatristwho was the "leading authority" said my son would never be okay and wouldprobably end up in a group home. Today does all the things theprofessionals said would never happen. He is your typical college studentwho drinks an occasional beer, goes on dates, stays out too late withfriends and sleeps through eight o'clock classes. I couldn't be more proud. studies Mechanical Engineering at a university on a merit scholarship.He has an incredible GPA, is a member of Sigma Chi Fraternity, and waspresident of the Jewish Student Association. But more importantly, isa good person, has great values, and is happy. He even has a ton of friends(who would have seen that one coming). If anyone would have told me this was possible when he was little, I neverwould have believed them. This was the child who wanted to spend his daysdoing nothing other than plugging in a portable radio into every outlet inthe house over and over again. This was the kid who really didn't have truefriends until the end of high school and the beginning of college.We started with Dr Baker who started the DAN protocol. However, we soonrealized all of 's issues weren't being addressed and there were toomany supplements. So we moved onto Dr. Goldberg of Tarzana,California.When my son entered kindergarten at almost six years old, he was in thethird percentile for speech. By that time we had been seeing Dr. Goldbergfor about a year. He needed a full-time aide in his classroom to help himin school. By the third grade, my son tested in the 85th percentile forspeech and by fifth grade no longer received any services or assistanceat school. Although he did okay academically, he was still way behindsocially. This was not an easy fix and there is no magic pill. Recoverytook years and years of work medically, behaviorally and educationally. Unfortunately, it is still not common knowledge among most doctors thatautism, ADD, ADHD are the result of an immune system that isn't workingproperly. 's doctor knows that autism is not a "psychiatric anddevelopmental disorder" without any hope for recovery, but rather an immuneproblem that is treatable medically. My son, , and all the others Dr.Goldberg has helped are living proof that he is correct.Dr. Goldberg even coined his own term for this condition. He calls itNIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the wayI understand it some children with autism have immune systems that workovertime and produce too many disease fighters for too long; while at othertimes their systems do not produce enough. This results in some childrenhaving chronic infections and viruses in their systems. Some kids areconstantly catching everything while some with overactive immune systemsdon't appear sick at all, but they are. My son's long road to recovery was the hardest thing I have ever livedthrough. During the process, I sometimes questioned if my family'ssacrifices and efforts were actually accomplishing anything. We survivedthe autism diagnosis; but it wasn't easy and there were many times I thoughtwe weren't going to make it. It took years to correct 's deficits inspeech and social skills. In the beginning, most of what I did was not because I truly believed mychild could get better, but rather to alleviate the guilt I knew I wouldhave if I ever had to put him in a group home. I wanted to be able to tellmyself that I did everything possible to help him. This is a complex anddifficult disease to control, but it is treatable. Recovery is possible formost children whose immune systems are not too damaged. I hope this helpsothers have the same kind of success my son has had. Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Marcia, Thank you so much for your story.... It gives me hope for my son... especially difficult days where I question if I'm doing the right thing, will this all make him better. It gets extremly overwhelming at times. But I just keep telling myself I can't give up on him and never will. Thank you agian > > > > Subject: Recovery > To: " 'nnmom76' " , mb12 valtrex > Date: Monday, February 1, 2010, 8:14 AM > > >  > > > > You asked me to share my son's recovery story. My son, , was diagnosed > with autism when he was only four years old. At the time the psychiatrist > who was the " leading authority " said my son would never be okay and would > probably end up in a group home. Today does all the things the > professionals said would never happen. He is your typical college student > who drinks an occasional beer, goes on dates, stays out too late with > friends and sleeps through eight o'clock classes. I couldn't be more proud. > > studies Mechanical Engineering at a university on a merit scholarship. > He has an incredible GPA, is a member of Sigma Chi Fraternity, and was > president of the Jewish Student Association. But more importantly, is > a good person, has great values, and is happy. He even has a ton of friends > (who would have seen that one coming). > > If anyone would have told me this was possible when he was little, I never > would have believed them. This was the child who wanted to spend his days > doing nothing other than plugging in a portable radio into every outlet in > the house over and over again. This was the kid who really didn't have true > friends until the end of high school and the beginning of college. > > We started with Dr Baker who started the DAN protocol. However, we soon > realized all of 's issues weren't being addressed and there were too > many supplements. So we moved onto Dr. Goldberg of Tarzana, > California. > > When my son entered kindergarten at almost six years old, he was in the > third percentile for speech. By that time we had been seeing Dr. Goldberg > for about a year. He needed a full-time aide in his classroom to help him > in school. By the third grade, my son tested in the 85th percentile for > speech and by fifth grade no longer received any services or assistance > at school. Although he did okay academically, he was still way behind > socially. This was not an easy fix and there is no magic pill. Recovery > took years and years of work medically, behaviorally and educationally. > > Unfortunately, it is still not common knowledge among most doctors that > autism, ADD, ADHD are the result of an immune system that isn't working > properly. 's doctor knows that autism is not a " psychiatric and > developmental disorder " without any hope for recovery, but rather an immune > problem that is treatable medically. My son, , and all the others Dr. > Goldberg has helped are living proof that he is correct. > > Dr. Goldberg even coined his own term for this condition. He calls it > NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way > I understand it some children with autism have immune systems that work > overtime and produce too many disease fighters for too long; while at other > times their systems do not produce enough. This results in some children > having chronic infections and viruses in their systems. Some kids are > constantly catching everything while some with overactive immune systems > don't appear sick at all, but they are. > > My son's long road to recovery was the hardest thing I have ever lived > through. During the process, I sometimes questioned if my family's > sacrifices and efforts were actually accomplishing anything. We survived > the autism diagnosis; but it wasn't easy and there were many times I thought > we weren't going to make it. It took years to correct 's deficits in > speech and social skills. > > In the beginning, most of what I did was not because I truly believed my > child could get better, but rather to alleviate the guilt I knew I would > have if I ever had to put him in a group home. I wanted to be able to tell > myself that I did everything possible to help him. This is a complex and > difficult disease to control, but it is treatable. Recovery is possible for > most children whose immune systems are not too damaged. I hope this helps > others have the same kind of success my son has had. > Marcia Hinds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Hi Marcia, Thank you so much for sharing your story. It gives us all hope which is very difficult to keep during the most stressful times. I know those of us who read it and who are going through this now, wish that our kids will too turn out to be like your son. I sincerely hope and pray that happens for all of us. Again, thank you for sharing. - Angay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Hi Marcia, Thank you so much for sharing your story. It gives us all hope which is very difficult to keep during the most stressful times. I know those of us who read it and who are going through this now, wish that our kids will too turn out to be like your son. I sincerely hope and pray that happens for all of us. Again, thank you for sharing. - Angay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Hi Marcia, Thank you so much for sharing your story. It gives us all hope which is very difficult to keep during the most stressful times. I know those of us who read it and who are going through this now, wish that our kids will too turn out to be like your son. I sincerely hope and pray that happens for all of us. Again, thank you for sharing. - Angay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 THANK YOU SO MUCH FOR YOUR POST! This came at the perfect time for me to read. I sincerely appreciate this group and so many other families who share their stories and keep our hearts alive with hope. It can get so dark - I sincerely appreciate you all. Ellie > > You asked me to share my son's recovery story. My son, , was diagnosed > with autism when he was only four years old. At the time the psychiatrist > who was the " leading authority " said my son would never be okay and would > probably end up in a group home. Today does all the things the > professionals said would never happen. He is your typical college student > who drinks an occasional beer, goes on dates, stays out too late with > friends and sleeps through eight o'clock classes. I couldn't be more proud. > > > studies Mechanical Engineering at a university on a merit scholarship. > He has an incredible GPA, is a member of Sigma Chi Fraternity, and was > president of the Jewish Student Association. But more importantly, is > a good person, has great values, and is happy. He even has a ton of friends > (who would have seen that one coming). > > If anyone would have told me this was possible when he was little, I never > would have believed them. This was the child who wanted to spend his days > doing nothing other than plugging in a portable radio into every outlet in > the house over and over again. This was the kid who really didn't have true > friends until the end of high school and the beginning of college. > > We started with Dr Baker who started the DAN protocol. However, we soon > realized all of 's issues weren't being addressed and there were too > many supplements. So we moved onto Dr. Goldberg of Tarzana, > California. > > > When my son entered kindergarten at almost six years old, he was in the > third percentile for speech. By that time we had been seeing Dr. Goldberg > for about a year. He needed a full-time aide in his classroom to help him > in school. By the third grade, my son tested in the 85th percentile for > speech and by fifth grade no longer received any services or assistance > at school. Although he did okay academically, he was still way behind > socially. This was not an easy fix and there is no magic pill. Recovery > took years and years of work medically, behaviorally and educationally. > > Unfortunately, it is still not common knowledge among most doctors that > autism, ADD, ADHD are the result of an immune system that isn't working > properly. 's doctor knows that autism is not a " psychiatric and > developmental disorder " without any hope for recovery, but rather an immune > problem that is treatable medically. My son, , and all the others Dr. > Goldberg has helped are living proof that he is correct. > > Dr. Goldberg even coined his own term for this condition. He calls it > NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way > I understand it some children with autism have immune systems that work > overtime and produce too many disease fighters for too long; while at other > times their systems do not produce enough. This results in some children > having chronic infections and viruses in their systems. Some kids are > constantly catching everything while some with overactive immune systems > don't appear sick at all, but they are. > > My son's long road to recovery was the hardest thing I have ever lived > through. During the process, I sometimes questioned if my family's > sacrifices and efforts were actually accomplishing anything. We survived > the autism diagnosis; but it wasn't easy and there were many times I thought > we weren't going to make it. It took years to correct 's deficits in > speech and social skills. > > In the beginning, most of what I did was not because I truly believed my > child could get better, but rather to alleviate the guilt I knew I would > have if I ever had to put him in a group home. I wanted to be able to tell > myself that I did everything possible to help him. This is a complex and > difficult disease to control, but it is treatable. Recovery is possible for > most children whose immune systems are not too damaged. I hope this helps > others have the same kind of success my son has had. > Marcia Hinds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Marcia, Hoping you can answer my questions below. Thank you. AK Subject: RecoveryTo: "'nnmom76'" , mb12 valtrex Date: Monday, February 1, 2010, 8:14 AM You asked me to share my son's recovery story. My son, , was diagnosedwith autism when he was only four years old. At the time the psychiatristwho was the "leading authority" said my son would never be okay and wouldprobably end up in a group home. Today does all the things theprofessionals said would never happen. He is your typical college studentwho drinks an occasional beer, goes on dates, stays out too late withfriends and sleeps through eight o'clock classes. I couldn't be more proud. studies Mechanical Engineering at a university on a merit scholarship.He has an incredible GPA, is a member of Sigma Chi Fraternity, and waspresident of the Jewish Student Association. But more importantly, isa good person, has great values, and is happy. He even has a ton of friends(who would have seen that one coming). If anyone would have told me this was possible when he was little, I neverwould have believed them. This was the child who wanted to spend his daysdoing nothing other than plugging in a portable radio into every outlet inthe house over and over again. This was the kid who really didn't have truefriends until the end of high school and the beginning of college.We started with Dr Baker who started the DAN protocol. However, we soonrealized all of 's issues weren't being addressed and there were toomany supplements. So we moved onto Dr. Goldberg of Tarzana,California.When my son entered kindergarten at almost six years old, he was in thethird percentile for speech. By that time we had been seeing Dr. Goldbergfor about a year. He needed a full-time aide in his classroom to help himin school. By the third grade, my son tested in the 85th percentile forspeech and by fifth grade no longer received any services or assistanceat school. Although he did okay academically, he was still way behindsocially. This was not an easy fix and there is no magic pill. Recoverytook years and years of work medically, behaviorally and educationally. Unfortunately, it is still not common knowledge among most doctors thatautism, ADD, ADHD are the result of an immune system that isn't workingproperly. 's doctor knows that autism is not a "psychiatric anddevelopmental disorder" without any hope for recovery, but rather an immuneproblem that is treatable medically. My son, , and all the others Dr.Goldberg has helped are living proof that he is correct.Dr. Goldberg even coined his own term for this condition. He calls itNIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the wayI understand it some children with autism have immune systems that workovertime and produce too many disease fighters for too long; while at othertimes their systems do not produce enough. This results in some childrenhaving chronic infections and viruses in their systems. Some kids areconstantly catching everything while some with overactive immune systemsdon't appear sick at all, but they are. My son's long road to recovery was the hardest thing I have ever livedthrough. During the process, I sometimes questioned if my family'ssacrifices and efforts were actually accomplishing anything. We survivedthe autism diagnosis; but it wasn't easy and there were many times I thoughtwe weren't going to make it. It took years to correct 's deficits inspeech and social skills. In the beginning, most of what I did was not because I truly believed mychild could get better, but rather to alleviate the guilt I knew I wouldhave if I ever had to put him in a group home. I wanted to be able to tellmyself that I did everything possible to help him. This is a complex anddifficult disease to control, but it is treatable. Recovery is possible formost children whose immune systems are not too damaged. I hope this helpsothers have the same kind of success my son has had. Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Yea!!! Thank you so much ! I am so happy for you! It does give hope. okay, Now we want some concrete input!! What types of things did you do. What type of treatments or interventions did you see the most benefit out of. Do you think he outgrew it? or was it his immune system being supported? or did he find out how to compensate for any deficits -just like any person does if they are deaf or when the brain rewires itself after injury? Please give some more info as to the things you did. did you chelate, use ABA therapy, etc... I am jazzed after reading your story! Thanks again so much. SHannone > > Hi Marcia, > > Thank you so much for sharing your story. It gives us all hope which is very difficult to keep during the most stressful times. I know those of us who read it and who are going through this now, wish that our kids will too turn out to be like your son. I sincerely hope and pray that happens for all of us. Again, thank you for sharing. > > - Angay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria). My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of " autism " yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life. On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea... The other thing to remember is that even when our kids reach recovery, they are still not " typical " in that they can handle the impact of the many toxins in our environment. They are still " fragile " and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...). Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches " managed recovery " (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none. Wow, I wrote a book, but that's my 2 cents! > > > Hi everyone, I'm fairly new to the group and don't really post much > > because I just started my 5 yo son on biomeds a few weeks ago. Haven't > > reached the hard stuff yet. However, I'd like to know what exactly > > does " recovery " mean to us. In terms of our kids and all these meds > > they take to get there. Does that mean that they keep on taking most, > > all or some of these meds for life? Or just until they need them, do > > they have to be tested every 6 months to check their levels? Will > > they regress after some of the meds are stopped? I've watched Stan's > > videos with his son and many others on the web in tears to think that > > my son could possibly talk one day. I'm shooting for recovery, but I > > can't expect it because I'm afraid that I won't get there. If anyone > > can take a few minutes to paint me a picture (even if it's not pretty) > > I'd appreciate it. Thanks everyone. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria). My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of " autism " yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life. On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea... The other thing to remember is that even when our kids reach recovery, they are still not " typical " in that they can handle the impact of the many toxins in our environment. They are still " fragile " and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...). Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches " managed recovery " (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none. Wow, I wrote a book, but that's my 2 cents! > > > Hi everyone, I'm fairly new to the group and don't really post much > > because I just started my 5 yo son on biomeds a few weeks ago. Haven't > > reached the hard stuff yet. However, I'd like to know what exactly > > does " recovery " mean to us. In terms of our kids and all these meds > > they take to get there. Does that mean that they keep on taking most, > > all or some of these meds for life? Or just until they need them, do > > they have to be tested every 6 months to check their levels? Will > > they regress after some of the meds are stopped? I've watched Stan's > > videos with his son and many others on the web in tears to think that > > my son could possibly talk one day. I'm shooting for recovery, but I > > can't expect it because I'm afraid that I won't get there. If anyone > > can take a few minutes to paint me a picture (even if it's not pretty) > > I'd appreciate it. Thanks everyone. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria). My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of " autism " yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life. On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea... The other thing to remember is that even when our kids reach recovery, they are still not " typical " in that they can handle the impact of the many toxins in our environment. They are still " fragile " and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...). Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches " managed recovery " (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none. Wow, I wrote a book, but that's my 2 cents! > > > Hi everyone, I'm fairly new to the group and don't really post much > > because I just started my 5 yo son on biomeds a few weeks ago. Haven't > > reached the hard stuff yet. However, I'd like to know what exactly > > does " recovery " mean to us. In terms of our kids and all these meds > > they take to get there. Does that mean that they keep on taking most, > > all or some of these meds for life? Or just until they need them, do > > they have to be tested every 6 months to check their levels? Will > > they regress after some of the meds are stopped? I've watched Stan's > > videos with his son and many others on the web in tears to think that > > my son could possibly talk one day. I'm shooting for recovery, but I > > can't expect it because I'm afraid that I won't get there. If anyone > > can take a few minutes to paint me a picture (even if it's not pretty) > > I'd appreciate it. Thanks everyone. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 is there a reason that your dr isn't treating PANDAS AND yeast, we do antibiotics WITH fluconizol daily! LDN helps as well Re: Recovery I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria). My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of "autism" yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life.On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea...The other thing to remember is that even when our kids reach recovery, they are still not "typical" in that they can handle the impact of the many toxins in our environment. They are still "fragile" and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...).Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches "managed recovery" (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none.Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much> > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does "recovery" mean to us. In terms of our kids and all these meds> > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will> > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I> > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone.> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Very well put. Thank you! Â I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria). My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of " autism " yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life. On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea... The other thing to remember is that even when our kids reach recovery, they are still not " typical " in that they can handle the impact of the many toxins in our environment. They are still " fragile " and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...). Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches " managed recovery " (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none. Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much > > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does " recovery " mean to us. In terms of our kids and all these meds > > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will > > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I > > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone. > >> >> >> -- Robin Broylesrabroyles@...H - C - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Thak you. Knowing that it is possible means everything to us who aren't there yet. You sound like such a proud mama, and you have every right in the world to be =D To: mb12 valtrex Sent: Mon, February 1, 2010 7:21:00 AMSubject: Re: Recovery Thank u so much for posting that. U don't even know what it means to me to read in your story what I hope to be saying about my son one day. Congrats to u and your son. On Mon Feb 1st, 2010 8:14 AM EST and Marcia Hinds wrote:>You asked me to share my son's recovery story. My son, , was diagnosed>with autism when he was only four years old. At the time the psychiatrist>who was the "leading authority" said my son would never be okay and would>probably end up in a group home. Today does all the things the>professionals said would never happen. He is your typical college student>who drinks an occasional beer, goes on dates, stays out too late with>friends and sleeps through eight o'clock classes. I couldn't be more proud.>>> studies Mechanical Engineering at a university on a merit scholarship.>He has an incredible GPA, is a member of Sigma Chi Fraternity, and was>president of the Jewish Student Association. But more importantly, is>a good person, has great values, and is happy. He even has a ton of friends>(who would have seen that one coming). >>If anyone would have told me this was possible when he was little, I never>would have believed them. This was the child who wanted to spend his days>doing nothing other than plugging in a portable radio into every outlet in>the house over and over again. This was the kid who really didn't have true>friends until the end of high school and the beginning of college.>>We started with Dr Baker who started the DAN protocol. However, we soon>realized all of 's issues weren't being addressed and there were too>many supplements. So we moved onto Dr. Goldberg of Tarzana,>California.>>>When my son entered kindergarten at almost six years old, he was in the>third percentile for speech. By that time we had been seeing Dr. Goldberg>for about a year. He needed a full-time aide in his classroom to help him>in school. By the third grade, my son tested in the 85th percentile for>speech and by fifth grade no longer received any services or assistance>at school. Although he did okay academically, he was still way behind>socially. This was not an easy fix and there is no magic pill. Recovery>took years and years of work medically, behaviorally and educationally. >>Unfortunately, it is still not common knowledge among most doctors that>autism, ADD, ADHD are the result of an immune system that isn't working>properly. 's doctor knows that autism is not a "psychiatric and>developmental disorder" without any hope for recovery, but rather an immune>problem that is treatable medically. My son, , and all the others Dr.>Goldberg has helped are living proof that he is correct.>>Dr. Goldberg even coined his own term for this condition. He calls it>NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way>I understand it some children with autism have immune systems that work>overtime and produce too many disease fighters for too long; while at other>times their systems do not produce enough. This results in some children>having chronic infections and viruses in their systems. Some kids are>constantly catching everything while some with overactive immune systems>don't appear sick at all, but they are. >>My son's long road to recovery was the hardest thing I have ever lived>through. During the process, I sometimes questioned if my family's>sacrifices and efforts were actually accomplishing anything. We survived>the autism diagnosis; but it wasn't easy and there were many times I thought>we weren't going to make it. It took years to correct 's deficits in>speech and social skills. >>In the beginning, most of what I did was not because I truly believed my>child could get better, but rather to alleviate the guilt I knew I would>have if I ever had to put him in a group home. I wanted to be able to tell>myself that I did everything possible to help him. This is a complex and>difficult disease to control, but it is treatable. Recovery is possible for>most children whose immune systems are not too damaged. I hope this helps>others have the same kind of success my son has had. >Marcia Hinds>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Could you write down some of the medical treatments that were very helpful to your son? What tests did you do? I was going to a DAN but I felt like he was milking it for money and he hasn't helped my son after 2 years of going. I found a local doctor that was willing to read Dr. Jepson's book. She told me that she is will to do tests on my son and correct any problems we find with the tests. She is new to this so I will need to be requesting the tests, but I think her reason to take my son on as a patient is more pure (simply to help him not to make money). Thanks for any suggestions.  Thak you. Knowing that it is possible means everything to us who aren't there yet. You sound like such a proud mama, and you have every right in the world to be =D To: mb12 valtrex Sent: Mon, February 1, 2010 7:21:00 AMSubject: Re: Recovery Thank u so much for posting that. U don't even know what it means to me to read in your story what I hope to be saying about my son one day. Congrats to u and your son. On Mon Feb 1st, 2010 8:14 AM EST and Marcia Hinds wrote: >You asked me to share my son's recovery story. My son, , was diagnosed>with autism when he was only four years old. At the time the psychiatrist>who was the " leading authority " said my son would never be okay and would >probably end up in a group home. Today does all the things the>professionals said would never happen. He is your typical college student>who drinks an occasional beer, goes on dates, stays out too late with >friends and sleeps through eight o'clock classes. I couldn't be more proud.>>> studies Mechanical Engineering at a university on a merit scholarship.>He has an incredible GPA, is a member of Sigma Chi Fraternity, and was >president of the Jewish Student Association. But more importantly, is>a good person, has great values, and is happy. He even has a ton of friends>(who would have seen that one coming). >>If anyone would have told me this was possible when he was little, I never >would have believed them. This was the child who wanted to spend his days>doing nothing other than plugging in a portable radio into every outlet in>the house over and over again. This was the kid who really didn't have true >friends until the end of high school and the beginning of college.>>We started with Dr Baker who started the DAN protocol. However, we soon>realized all of 's issues weren't being addressed and there were too >many supplements. So we moved onto Dr. Goldberg of Tarzana,>California.>>>When my son entered kindergarten at almost six years old, he was in the>third percentile for speech. By that time we had been seeing Dr. Goldberg >for about a year. He needed a full-time aide in his classroom to help him>in school. By the third grade, my son tested in the 85th percentile for>speech and by fifth grade no longer received any services or assistance >at school. Although he did okay academically, he was still way behind>socially. This was not an easy fix and there is no magic pill. Recovery>took years and years of work medically, behaviorally and educationally. >>Unfortunately, it is still not common knowledge among most doctors that>autism, ADD, ADHD are the result of an immune system that isn't working>properly. 's doctor knows that autism is not a " psychiatric and >developmental disorder " without any hope for recovery, but rather an immune>problem that is treatable medically. My son, , and all the others Dr.>Goldberg has helped are living proof that he is correct. >>Dr. Goldberg even coined his own term for this condition. He calls it>NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way>I understand it some children with autism have immune systems that work >overtime and produce too many disease fighters for too long; while at other>times their systems do not produce enough. This results in some children>having chronic infections and viruses in their systems. Some kids are >constantly catching everything while some with overactive immune systems>don't appear sick at all, but they are. >>My son's long road to recovery was the hardest thing I have ever lived >through. During the process, I sometimes questioned if my family's>sacrifices and efforts were actually accomplishing anything. We survived>the autism diagnosis; but it wasn't easy and there were many times I thought >we weren't going to make it. It took years to correct 's deficits in>speech and social skills. >>In the beginning, most of what I did was not because I truly believed my>child could get better, but rather to alleviate the guilt I knew I would >have if I ever had to put him in a group home. I wanted to be able to tell>myself that I did everything possible to help him. This is a complex and>difficult disease to control, but it is treatable. Recovery is possible for >most children whose immune systems are not too damaged. I hope this helps>others have the same kind of success my son has had. >Marcia Hinds>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 You will never recover until you know what is wrong.Tests are the only way to prove this.You need the porphyrins to know if you need to chelate. You need the COMT test to know if the chelation should be shortterm or ongoing.You need the MTHFR tests and megaloblastic anemia panel to know if you need the MB12 or Leucovor,to go ahead blindly and do this stuff without having these tests is stupid,and how parents get into trouble. Any DAN! that doesn't do these tests right off the bat isn't worth going to. To: mb12 valtrex Sent: Tue, February 2, 2010 9:44:05 AMSubject: Re: Recovery Could you write down some of the medical treatments that were very helpful to your son? What tests did you do? I was going to a DAN but I felt like he was milking it for money and he hasn't helped my son after 2 years of going. I found a local doctor that was willing to read Dr. Jepson's book. She told me that she is will to do tests on my son and correct any problems we find with the tests. She is new to this so I will need to be requesting the tests, but I think her reason to take my son on as a patient is more pure (simply to help him not to make money). Thanks for any suggestions. On Tue, Feb 2, 2010 at 9:13 AM, Kristi Castillero <castillero33@ yahoo.com> wrote: Thak you. Knowing that it is possible means everything to us who aren't there yet. You sound like such a proud mama, and you have every right in the world to be =D From: First Namemeghan Tarantino <meghantarantino@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, February 1, 2010 7:21:00 AMSubject: Re: Recovery Thank u so much for posting that. U don't even know what it means to me to read in your story what I hope to be saying about my son one day. Congrats to u and your son. On Mon Feb 1st, 2010 8:14 AM EST and Marcia Hinds wrote:>You asked me to share my son's recovery story. My son, , was diagnosed>with autism when he was only four years old. At the time the psychiatrist>who was the "leading authority" said my son would never be okay and would>probably end up in a group home. Today does all the things the>professionals said would never happen. He is your typical college student>who drinks an occasional beer, goes on dates, stays out too late with>friends and sleeps through eight o'clock classes. I couldn't be more proud.>>> studies Mechanical Engineering at a university on a merit scholarship.>He has an incredible GPA, is a member of Sigma Chi Fraternity, and was>president of the Jewish Student Association. But more importantly, is>a good person, has great values, and is happy. He even has a ton of friends>(who would have seen that one coming). >>If anyone would have told me this was possible when he was little, I never>would have believed them. This was the child who wanted to spend his days>doing nothing other than plugging in a portable radio into every outlet in>the house over and over again. This was the kid who really didn't have true>friends until the end of high school and the beginning of college.>>We started with Dr Baker who started the DAN protocol. However, we soon>realized all of 's issues weren't being addressed and there were too>many supplements. So we moved onto Dr. Goldberg of Tarzana,>California.>>>When my son entered kindergarten at almost six years old, he was in the>third percentile for speech. By that time we had been seeing Dr. Goldberg>for about a year. He needed a full-time aide in his classroom to help him>in school. By the third grade, my son tested in the 85th percentile for>speech and by fifth grade no longer received any services or assistance>at school. Although he did okay academically, he was still way behind>socially. This was not an easy fix and there is no magic pill. Recovery>took years and years of work medically, behaviorally and educationally. >>Unfortunately, it is still not common knowledge among most doctors that>autism, ADD, ADHD are the result of an immune system that isn't working>properly. 's doctor knows that autism is not a "psychiatric and>developmental disorder" without any hope for recovery, but rather an immune>problem that is treatable medically. My son, , and all the others Dr.>Goldberg has helped are living proof that he is correct.>>Dr. Goldberg even coined his own term for this condition. He calls it>NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way>I understand it some children with autism have immune systems that work>overtime and produce too many disease fighters for too long; while at other>times their systems do not produce enough. This results in some children>having chronic infections and viruses in their systems. Some kids are>constantly catching everything while some with overactive immune systems>don't appear sick at all, but they are. >>My son's long road to recovery was the hardest thing I have ever lived>through. During the process, I sometimes questioned if my family's>sacrifices and efforts were actually accomplishing anything. We survived>the autism diagnosis; but it wasn't easy and there were many times I thought>we weren't going to make it. It took years to correct 's deficits in>speech and social skills. >>In the beginning, most of what I did was not because I truly believed my>child could get better, but rather to alleviate the guilt I knew I would>have if I ever had to put him in a group home. I wanted to be able to tell>myself that I did everything possible to help him. This is a complex and>difficult disease to control, but it is treatable. Recovery is possible for>most children whose immune systems are not too damaged. I hope this helps>others have the same kind of success my son has had. >Marcia Hinds>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Recovering from autism,does not meat the COMT and MTHFR mutations go away.These are problems that need to be treated for life. To: mb12 valtrex Sent: Mon, February 1, 2010 9:49:58 PMSubject: Re: Re: Recovery Very well put. Thank you! On Mon, Feb 1, 2010 at 11:08 PM, stephanieweeks@ ymail.com <stephanieweeks@ ymail.com> wrote: I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria) . My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of "autism" yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/ bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life.On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea...The other thing to remember is that even when our kids reach recovery, they are still not "typical" in that they can handle the impact of the many toxins in our environment. They are still "fragile" and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...).Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches "managed recovery" (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none.Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much> > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does "recovery" mean to us. In terms of our kids and all these meds> > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will> > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I> > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone.> >> >> >> -- Robin Broylesrabroylesgmail (DOT) comH - C - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 ,I am very interested in learning more about these mutations. Could you point me in the right direction? Are there any books or literature you would recommend? Also, which labs test for this? LabCorp or specialty labs.Thanks,CamTo: mb12 valtrex From: thorenstd124@...Date: Tue, 2 Feb 2010 12:00:23 -0800Subject: Re: Re: Recovery Recovering from autism,does not meat the COMT and MTHFR mutations go away.These are problems that need to be treated for life. From: Robin Broyles <rabroylesgmail>To: mb12 valtrex Sent: Mon, February 1, 2010 9:49:58 PMSubject: Re: Re: Recovery Very well put. Thank you! On Mon, Feb 1, 2010 at 11:08 PM, stephanieweeks@ ymail.com <stephanieweeks@ ymail.com> wrote: I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria) . My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of "autism" yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/ bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life.On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea...The other thing to remember is that even when our kids reach recovery, they are still not "typical" in that they can handle the impact of the many toxins in our environment. They are still "fragile" and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...).Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches "managed recovery" (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none.Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much> > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does "recovery" mean to us. In terms of our kids and all these meds> > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will> > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I> > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone.> >> >> >> -- Robin Broylesrabroylesgmail (DOT) comH - C - Hotmail: Powerful Free email with security by Microsoft. Get it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 That was my DAN he had this one size fits all approach. I was okay with giving CLO and multi vit. like that, but he wanted to do all this IV stuff and I wanted proof that my son needed it.  Will a general doctor (not DAN trained) know how to get ahold of those tests you mentioned below? If not how do get her to order them?  You will never recover until you know what is wrong.Tests are the only way to prove this.You need the porphyrins to know if you need to chelate. You need the COMT test to know if the chelation should be shortterm or ongoing.You need the MTHFR tests and megaloblastic anemia panel to know if you need the MB12 or Leucovor,to go ahead blindly and do this stuff without having these tests is stupid,and how parents get into trouble. Any DAN! that doesn't do these tests right off the bat isn't worth going to.  To: mb12 valtrex Sent: Tue, February 2, 2010 9:44:05 AMSubject: Re: Recovery  Could you write down some of the medical treatments that were very helpful to your son? What tests did you do? I was going to a DAN but I felt like he was milking it for money and he hasn't helped my son after 2 years of going. I found a local doctor that was willing to read Dr. Jepson's book. She told me that she is will to do tests on my son and correct any problems we find with the tests. She is new to this so I will need to be requesting the tests, but I think her reason to take my son on as a patient is more pure (simply to help him not to make money). Thanks for any suggestions. On Tue, Feb 2, 2010 at 9:13 AM, Kristi Castillero <castillero33@ yahoo.com> wrote:  Thak you. Knowing that it is possible means everything to us who aren't there yet. You sound like such a proud mama, and you have every right in the world to be =D From: First Namemeghan Tarantino <meghantarantino@ yahoo.com>To: mb12 valtrex@ yahoogroups. com Sent: Mon, February 1, 2010 7:21:00 AMSubject: Re: Recovery Thank u so much for posting that. U don't even know what it means to me to read in your story what I hope to be saying about my son one day. Congrats to u and your son. On Mon Feb 1st, 2010 8:14 AM EST and Marcia Hinds wrote: >You asked me to share my son's recovery story. My son, , was diagnosed>with autism when he was only four years old. At the time the psychiatrist>who was the " leading authority " said my son would never be okay and would >probably end up in a group home. Today does all the things the>professionals said would never happen. He is your typical college student>who drinks an occasional beer, goes on dates, stays out too late with >friends and sleeps through eight o'clock classes. I couldn't be more proud.>>> studies Mechanical Engineering at a university on a merit scholarship.>He has an incredible GPA, is a member of Sigma Chi Fraternity, and was >president of the Jewish Student Association. But more importantly, is>a good person, has great values, and is happy. He even has a ton of friends>(who would have seen that one coming). >>If anyone would have told me this was possible when he was little, I never >would have believed them. This was the child who wanted to spend his days>doing nothing other than plugging in a portable radio into every outlet in>the house over and over again. This was the kid who really didn't have true >friends until the end of high school and the beginning of college.>>We started with Dr Baker who started the DAN protocol. However, we soon>realized all of 's issues weren't being addressed and there were too >many supplements. So we moved onto Dr. Goldberg of Tarzana,>California.>>>When my son entered kindergarten at almost six years old, he was in the>third percentile for speech. By that time we had been seeing Dr. Goldberg >for about a year. He needed a full-time aide in his classroom to help him>in school. By the third grade, my son tested in the 85th percentile for>speech and by fifth grade no longer received any services or assistance >at school. Although he did okay academically, he was still way behind>socially. This was not an easy fix and there is no magic pill. Recovery>took years and years of work medically, behaviorally and educationally. >>Unfortunately, it is still not common knowledge among most doctors that>autism, ADD, ADHD are the result of an immune system that isn't working>properly. 's doctor knows that autism is not a " psychiatric and >developmental disorder " without any hope for recovery, but rather an immune>problem that is treatable medically. My son, , and all the others Dr.>Goldberg has helped are living proof that he is correct. >>Dr. Goldberg even coined his own term for this condition. He calls it>NIDS--Neuroimmune Dysfunction Syndrome. It is very complicated, but the way>I understand it some children with autism have immune systems that work >overtime and produce too many disease fighters for too long; while at other>times their systems do not produce enough. This results in some children>having chronic infections and viruses in their systems. Some kids are >constantly catching everything while some with overactive immune systems>don't appear sick at all, but they are. >>My son's long road to recovery was the hardest thing I have ever lived >through. During the process, I sometimes questioned if my family's>sacrifices and efforts were actually accomplishing anything. We survived>the autism diagnosis; but it wasn't easy and there were many times I thought >we weren't going to make it. It took years to correct 's deficits in>speech and social skills. >>In the beginning, most of what I did was not because I truly believed my>child could get better, but rather to alleviate the guilt I knew I would >have if I ever had to put him in a group home. I wanted to be able to tell>myself that I did everything possible to help him. This is a complex and>difficult disease to control, but it is treatable. Recovery is possible for >most children whose immune systems are not too damaged. I hope this helps>others have the same kind of success my son has had. >Marcia Hinds>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 ,I am very interested in learning more about these mutations. Could you point me in the right direction? Are there any books or literature you would recommend? Also, which labs test for this? LabCorp or specialty labs.Thanks,CamTo: mb12 valtrex From: thorenstd124@...Date: Tue, 2 Feb 2010 12:00:23 -0800Subject: Re: Re: Recovery Recovering from autism,does not meat the COMT and MTHFR mutations go away.These are problems that need to be treated for life. From: Robin Broyles <rabroylesgmail>To: mb12 valtrex Sent: Mon, February 1, 2010 9:49:58 PMSubject: Re: Re: Recovery Very well put. Thank you! On Mon, Feb 1, 2010 at 11:08 PM, stephanieweeks@ ymail.com <stephanieweeks@ ymail.com> wrote: I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria) . My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of "autism" yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/ bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life.On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea...The other thing to remember is that even when our kids reach recovery, they are still not "typical" in that they can handle the impact of the many toxins in our environment. They are still "fragile" and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...).Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches "managed recovery" (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none.Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much> > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does "recovery" mean to us. In terms of our kids and all these meds> > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will> > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I> > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone.> >> >> >> -- Robin Broylesrabroylesgmail (DOT) comH - C - Hotmail: Free, trusted and rich email service. Get it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Yes LabCorp was where I had mine done.Your DAN! should be able to order them. To: mb12 valtrex Sent: Tue, February 2, 2010 2:37:00 PMSubject: RE: Re: Recovery , I am very interested in learning more about these mutations. Could you point me in the right direction? Are there any books or literature you would recommend? Also, which labs test for this? LabCorp or specialty labs. Thanks, Cam To: mb12 valtrex@ yahoogroups. comFrom: thorenstd124@ yahoo.comDate: Tue, 2 Feb 2010 12:00:23 -0800Subject: Re: Re: Recovery Recovering from autism,does not meat the COMT and MTHFR mutations go away.These are problems that need to be treated for life. From: Robin Broyles <rabroylesgmail (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, February 1, 2010 9:49:58 PMSubject: Re: Re: Recovery Very well put. Thank you! On Mon, Feb 1, 2010 at 11:08 PM, stephanieweeks@ ymail.com <stephanieweeks@ ymail.com> wrote: I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria) . My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of "autism" yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/ bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life.On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea...The other thing to remember is that even when our kids reach recovery, they are still not "typical" in that they can handle the impact of the many toxins in our environment. They are still "fragile" and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...).Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches "managed recovery" (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none.Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much> > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does "recovery" mean to us. In terms of our kids and all these meds> > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will> > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I> > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone.> >> >> >> -- Robin Broylesrabroylesgmail (DOT) comH - C - Hotmail: Free, trusted and rich email service. Get it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 I am not going to a DAN. We only have two DANs in the area one won't take insurance and the other I was unhappy with. I have a very open minded general doctor that read Jepson's book and is willing to test and treat I just need to assist her in naming and finding the correct tests.  Yes LabCorp was where I had mine done.Your DAN! should be able to order them.   To: mb12 valtrex Sent: Tue, February 2, 2010 2:37:00 PMSubject: RE: Re: Recovery , I am very interested in learning more about these mutations.  Could you point me in the right direction?  Are there any books or literature you would recommend?  Also, which labs test for this?  LabCorp or specialty labs. Thanks, Cam To: mb12 valtrex@ yahoogroups. comFrom: thorenstd124@ yahoo.comDate: Tue, 2 Feb 2010 12:00:23 -0800Subject: Re: Re: Recovery Recovering from autism,does not meat the COMT and MTHFR mutations go away.These are problems that need to be treated for life.   From: Robin Broyles <rabroylesgmail (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, February 1, 2010 9:49:58 PM Subject: Re: Re: Recovery Very well put. Thank you! On Mon, Feb 1, 2010 at 11:08 PM, stephanieweeks@ ymail.com <stephanieweeks@ ymail.com> wrote:  I think recovery also depends on specifically what issues led to the development of autism to begin with. For example, my son (who was never diagnosed, but we believe was on the mild end of the spectrum) had many biomedical issues, but I believe the ones that debilitated him the most were PANDAS (OCD and tics brought on by strep infections) and PITAND syndrome (similar to PANDAS, but the child is also affected by other viruses/bacteria) . My son has reached recovery in many areas (stuttering, social interactions, auditory processing disorder) but not yet in the area of PANDAS. I often ask myself, will he ever be recovered? But then I think, well in terms of " autism " yes I believe that he is fully recovered b/c his language impairment and his social interactions have basically normalized. So, I can't complain, but we have a tremendous problem going back and forth between strep and yeast (shen we treat the strep with antibiotics we get yeast, when we treat the yeast we get bacteria, etc...). Sometimes these issues are rather debilitating for our family, but I am not giving up on what I consider to be full recovery - being able to manage, to the best of our ability, the strep/yeast/ bacteria issues so that MOST of our days are functional and so that my son can live a MOSTLY normal life. On the other hand, my 2 year old also showed very early signs of autistic-like regression starting at the age of 4 months. By the time he was 12 months I began the DAN protocol and I feel that he recovered from autism in a couple month's time. He has some speech delay left, but he does not have the struggles that my 5 year old has with the ups and downs of regressions. Now, if I took him off all his supps/diet, what would he look like? I have no idea... The other thing to remember is that even when our kids reach recovery, they are still not " typical " in that they can handle the impact of the many toxins in our environment. They are still " fragile " and require very close care in terms of managing their over-all environment (example, careful consideration should be given when they need a tetanus shot, etc...). Also want to mention that Jerry Kartzinel (wrote the book Healing and Preventing Autism with McCarthy) says that recovery can mean fully recovered without the need for any meds/supps, or it can mean that a child reaches " managed recovery " (needs to be managed with multiple meds/supps) but will suffer regressions from time to time, even to the point that he is in a mainstream classroom part of the time and a special needs classroom part of the time. I suppose any improvement is better than none. Wow, I wrote a book, but that's my 2 cents!> > > Hi everyone, I'm fairly new to the group and don't really post much > > because I just started my 5 yo son on biomeds a few weeks ago. Haven't> > reached the hard stuff yet. However, I'd like to know what exactly> > does " recovery " mean to us. In terms of our kids and all these meds > > they take to get there. Does that mean that they keep on taking most,> > all or some of these meds for life? Or just until they need them, do> > they have to be tested every 6 months to check their levels? Will > > they regress after some of the meds are stopped? I've watched Stan's> > videos with his son and many others on the web in tears to think that> > my son could possibly talk one day. I'm shooting for recovery, but I > > can't expect it because I'm afraid that I won't get there. If anyone> > can take a few minutes to paint me a picture (even if it's not pretty)> > I'd appreciate it. Thanks everyone. > >> >> >> -- Robin Broylesrabroylesgmail (DOT) comH - C - Hotmail: Free, trusted and rich email service. Get it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Cristel, I have been following your posts on PANDAS over the past 6 months and they have been helpful. The reason we are not treating PANDAS right now with antibiotics is that my son can no longer tolerate them! He got really screwed up in Dec. after very high dose zithromax (and this was after 5 months of antibiotics) and we still haven't gotten him back. Still don't quite know what happened but I have a few theories. One is that he reached a toxicity level for zithromax. The other is that his gut was so screwed up that we hardly recognized him anymore. We had an OAT test done since then and he is high for yeast markers and also hippuric acid (bacteria). If you remember, back in Dec. the DAN put my son on Cipro for the bacteria (this was shortly after the zithro) and it just seemed to make matters worse. We are now concentrating on increasing his probiotics slowly to 250 bill cfu's per day and I also added Biocidin yesterday to address the many issues that he has going on (yeast, bacteria, strep, maybe viruses). I am hoping that Biocidin will help to get him back on track and then we can go from there and figure out what to do next... I know you have used OLE and I may try that eventually (I have it on hand)... I also keep hearing about LDN and may want to pursue that as well. Thanks, > > > > > Hi everyone, I'm fairly new to the group and don't really post much > > > because I just started my 5 yo son on biomeds a few weeks ago. Haven't > > > reached the hard stuff yet. However, I'd like to know what exactly > > > does " recovery " mean to us. In terms of our kids and all these meds > > > they take to get there. Does that mean that they keep on taking most, > > > all or some of these meds for life? Or just until they need them, do > > > they have to be tested every 6 months to check their levels? Will > > > they regress after some of the meds are stopped? I've watched Stan's > > > videos with his son and many others on the web in tears to think that > > > my son could possibly talk one day. I'm shooting for recovery, but I > > > can't expect it because I'm afraid that I won't get there. If anyone > > > can take a few minutes to paint me a picture (even if it's not pretty) > > > I'd appreciate it. Thanks everyone. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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