Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Belinda, It was great meeting you as well. I will never forget our bar side chat, Friday night. Or your wonderful speech as well. The pictures of you and Makenna turned out well. If you would like I could send them to you. Let me know. So glad you made it home safely. Jay and I thought of you often on our way home, trying to negotiate different airports ourselves - I can't imagine traveling half way around the world. You are a very brave lady. Glad to hear you found your hearing aids. Bet that didn't make the trip any easier. , mom to Makenna -- Re: Back home katie, it was great meeting you and makenna, makenna is sooooo cute Back home > Hello Everyone, > > I am excited to be home after a very long and exciting 8 days. > Makenna was so excited to sleep in her own bed last night. It is > the best sleep she has gotten in the week we have been gone. > Yesterday on our many plane rides we kept telling her we are going > home and she kept signing home, sleep. She is soo funny. I guess > her own bed is very important to her. > > I really enjoyed my first conference experience. I can't thank Meg > enough for reassuring us on our CHARGE diagnosis with Makenna. It > was wonderful to meet people I have talked to on the list and to > encourage new parents to join the list. > > My most enjoyable part of the conference was to meet the adult > CHARGErs. Each and everyone of you gave me hope and courage for the > future and for Makenna's future. You are our inspiration! You > should all be proud of yourselves for the mature, self confident, > wonderful people you have become. > > My only regret was not getting to meet everyone. I missed Kim L, > W., , to name just a few. Maybe next time. > Welcome home to everyone! > > , mom to Makenna (4) > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at www.chargesyndrome.org or by calling > 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Belinda, It was great meeting you as well. I will never forget our bar side chat, Friday night. Or your wonderful speech as well. The pictures of you and Makenna turned out well. If you would like I could send them to you. Let me know. So glad you made it home safely. Jay and I thought of you often on our way home, trying to negotiate different airports ourselves - I can't imagine traveling half way around the world. You are a very brave lady. Glad to hear you found your hearing aids. Bet that didn't make the trip any easier. , mom to Makenna -- Re: Back home katie, it was great meeting you and makenna, makenna is sooooo cute Back home > Hello Everyone, > > I am excited to be home after a very long and exciting 8 days. > Makenna was so excited to sleep in her own bed last night. It is > the best sleep she has gotten in the week we have been gone. > Yesterday on our many plane rides we kept telling her we are going > home and she kept signing home, sleep. She is soo funny. I guess > her own bed is very important to her. > > I really enjoyed my first conference experience. I can't thank Meg > enough for reassuring us on our CHARGE diagnosis with Makenna. It > was wonderful to meet people I have talked to on the list and to > encourage new parents to join the list. > > My most enjoyable part of the conference was to meet the adult > CHARGErs. Each and everyone of you gave me hope and courage for the > future and for Makenna's future. You are our inspiration! You > should all be proud of yourselves for the mature, self confident, > wonderful people you have become. > > My only regret was not getting to meet everyone. I missed Kim L, > W., , to name just a few. Maybe next time. > Welcome home to everyone! > > , mom to Makenna (4) > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at www.chargesyndrome.org or by calling > 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Oh yah, and talking down at the beach till nearly 2am Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 lol making mde wizxh i could be there more and more im hitch hiking in bels bag > > Oh yah, and talking down at the beach till nearly 2am > > > Chantelle > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at www.chargesyndrome.org<http://www.chargesyndrome.org>or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Yeah Chantelle. Great minds think alike. I said exactly the same thing. I would certainly attend. Flo > >I just had another idea earlier today. Why not have a sibling panal. >Kinda like what we charger's had but for the siblings to talk about >themselves a little and for them to have a Q & A period. > >Chantelle > > Quote Link to comment Share on other sites More sharing options...
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