RE: today's doctor appointment (continued)

[Guest guest]

Hi Chantelle,

I don't know if you remember us, but we talked in the hall waiting

for the elevator a few times and I snapped a good picture of you and

Makenna at the dance. Anyway, Makenna has asthma also. She uses an

inhaler everyday two times per day. She is also on allergy meds.

Her asthma is the worst during spring and fall but rainy days effect

her too.

I saw that you wanted some honey from the US. Can't you get honey

in Canada? I can always send you some if you really want it. Let

me know.

, Makenna's momma

> well i had the appointment. I failed the test only after 3 tests.

I

> have moderate asthma and i will most likely need inhailers.

>

> Chantelle

[Guest guest]

I can get honey in canada but its the clover honey, its not orange

blossom honey.

Chantelle

[Guest guest]

I can get honey in canada but its the clover honey, its not orange

blossom honey.

Chantelle

[Guest guest]

About the asthma,

its not a real bummer but in a way its good, all the more reason for

dissability services to accept my application.

this is what i stand at now

CHARGE (deafblind, delayed endocryn, scoliosis, osterioarthritis,

Diabittes, Multiple personality dissorder

Seizures, sesonal allergies, abdominal migrains, inflamitory bowel

dissorder and Asthma

hmmm like to see dissability deny me this time, lol! its so sad, i

might just laugh.

Chantelle

[Guest guest]

we also use the aerochamber plus, erika does not know when to take the

breaths either, so we keep it on 10-15 secs and do 2-3 puffs 1mn apart.

when she is really bad we still do nebulizers, it helps losen the secretions

and makes it easier for her to cough them up

cathie

[Guest guest]

I totally forgot about those! At the time we started using the Aerochamber

with an inhaler, was only using neb treatments and it was awkward to

lug the equipment to camp. We got an Aerochamber when she started going to

camp a lot and we couldn't always rely on having electricity! But then the

inhaler she was using was discontinued, and the pulmo switched her to the

Advair. Thanks for the reminder!

Friends in CHARGE,

Marilyn Ogan

Mom of Ken (16 yrs., Asperger Syndrome)

Mom of (13 yrs., CHARGE+, JRA)

Wife of Rick (I'm still workin' on the railroad!)

oganm@...

Fishers, IN

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

katie

Sent: Saturday, July 30, 2005 8:39 AM

To: CHARGE

Subject: RE: today's doctor appointment (continued)

Our pulminologist put Makenna on an inhaler when she turned four. He felt

she gets more medicine this way. I guess with nebulized meds they only get

a small amount of the med. Anyway she has this device that has a mask on

one

end attached to a tube about 4 inches long or less on the end of the tube

the

inhaler fits into an opening. Makenna holds the mask to her face we push

the

inhaler and she holds it to her mouth for a count of 15. That way she doesn

t have

to worry about breathing at the right time. IT is called an AeroChamber

Plus. May be

something you want to discuss with the doctor.

, mom to Makenna

_____

[Guest guest]

Asthma, hmm. At least you know,..as there is so much mystery often in

the medical aspects of CHARGE. Probably living in the Hamilton area

doesn't help?? We have had so many air advisory warnings so far this

summer in southern Ontario. Maybe that's what happened when we were

walking to HSC that time? My son's asthma is triggered by his severe

allergy to dairy. (Cats were fine)

Ann gloyn, Canada

> well i had the appointment. I failed the test only after 3 tests. I

> have moderate asthma and i will most likely need inhailers.

>

> Chantelle

[Guest guest]

Ann, what happend when we were walking to HSC was my legs cramped up,

i think that was more related to me not taking calcium/magnisium.

since ive been taking it i havnt had the cramping problem.

when i forget for say a couple weeks the cramps get really bad again.

Interesting hypothosis though.

Chantelle

[Guest guest]

with Hayley i find when she has lots of secretions I put in 2-3mls of

saline in neubuliser for about 10 minutes and this seems to help her with

breaking it down cough up.

mum to hayley 16mths old

we also use the aerochamber plus, erika does not know when to take the

> breaths either, so we keep it on 10-15 secs and do 2-3 puffs 1mn apart.

> when she is really bad we still do nebulizers, it helps losen the

> secretions

> and makes it easier for her to cough them up

> cathie

>

>

>

[Guest guest]

Chantelle,

Sorry to hear about your new diagnosis but it isn't that hard to deal with.

Patty was diagnosed with asthma a few years ago. Hers are due to allergies,

and are worse with lack of exercise. The more fit she is the better she is. If

she has a sinus or ear infection it usually drips down her throat and the

thick stuff can't move. She has to keep herself fit to keep things moving.

When

she exercises she also breathes in deeply through her nose and exhales out

her mouth. That makes her lungs stronger.

Patty takes albuterol with the areochamber. Doing it without the chamber

makes it really hard. Sometimes she needs it three to four times a day and

sometimes she can go weeks without it. It all depends on her environment and

health. When she's bad she takes pulmicort too. But she doesn't like that one.

We have asthma in our family so I would imagine it isn't a CHARGE thing.

Kris has it too as do I. The girls have tried to use it to get out of

dusting or vacuuming! Never worked though since I don't like those jobs either.

Bonnie, Mom to a 22, Patty CHARGE 20, and wife to