Re: dr's & meds

[Guest guest]

All i can offer is that one time I got really angry with a doctor who kept me

waiting way past my appt time. he made alot of money off me and my insurance

performing an mri. anyway, i just really raised hell with him about making me

wait and i never had a problem getting a RX from him ever. They sense your fear

and insecurites. I hate it but you have to become indignant with them.

I have also had several years of experience fighting doctors and school

districts advocating for my daughter who is affected by autism. Talk about doing

stuff that you don't want to do. Anyway, if you want to email me off list and

tell me what state you are in, I may can help  and/or offer suggestions with

the school stuff for your child. I have experience with Section 504, ARDs under

IDEA.

Felicia

Subject: Re: dr's & meds

To: WTOAdultChildren1

Date: Saturday, April 24, 2010, 4:59 PM

 

Hi Dolly,

Thanks for your thoughts and caring; it helps me to have this group to not feel

alone with all this. My whole problem with the medication thing is that it is a

workers compensation thing. That is what the separate doctors don't get, how it

has to go through three separate channels sometimes. For me to call my dr for

medication and not the specialist.. .well that is another *approval* and the

insurance adjuster told me to go through the specialist. I am sick of it. I

honestly don't know how people who cannot read properly or don't understand

things get through stuff like this. I think they fall through the cracks.

But thank you, I will keep trudging; I hope someday that I will feel as though I

am flying (or at least walking easily!). I won't give up, I am usually pretty

persistent but sometimes ....you know how it goes.

~patricia

Re: gaslighting

Wow, ~

That's a lot said there...

I'm sorry you're experiencing this and having trouble with the doctors. What

about a patient advocate? Or, perhaps you can write a letter of explanation to

your primary doctor letting him/her know who you've seen, their procedures,

assessments, etc. Then you can identify your pain on number scale and identify

how that has or has not changed over the time of your recovery?!?! ?!

It probably doesn't help that you're going through emotional pain in conjunction

with the physical aspet and you're not able to get out and be active, like you'd

prefer. That causes its own ball of wax.

Whatever happened to a primary care physician being responsible for advocating

for their patient? Nowadays the PCP is the least paid and most over-worked in

the profession. They have to send you to specialists because they're not

licensed to do the special procedures of other doctors... Sad

You've got to be the one expressing your needs to all of your doctors. And there

are a number of times you have to be adamant and persistent in your

communication.

Keep trudging, !

I'll be praying for your pain to decrease and the medical professionals to get

their act together.

You're not alone. Keep talking about this and asking for help. Please don't shut

down and/or give up on what you need.

Hugs,

Dolly

>

> I'm sorry you're not feeling well, I know how pain can make one

> depressed... I have severe arthritis in my knees, and pain in the backs of

> my thigh muscles...meds only help to a point :-( I'm sorry your drs dont

> seem to be able ( or want to) help you...thats rough !!

>

>

> Jackie

>

>

>

> Hi ,

> Thank you for your compassion about my pain/injury. I had a fall at work on

> my left butt and then I work in this sort of left facing way, bending and

> lifting. It has loosened my S-I joint which is not supposed to move. First

> I went to my doctor, he sent me to the chiropractor and I went there for

> weeks, then to a specialist (first back to the doctor). That specialist

> prescribed P/T for twelve visits. I had a trip planned in between that, and

> when I got back I went to four visits and then they said: oh that is all you

> are covered for. Went back to specialist she gives me a shot (no x-ray) and

> says come back. But she also says: well what do you want me to do? She

> won't give me a no-working note. Why? And why ask me what do I want her to

> do? Meanwhile dealing with workers comp insurance, getting approvals etc.

>

> I go away and shot doesn't work come back and dr says; I don't know what to

> do for you. We can do an MRI because your x-rays are fine. Am *I* the

> doctor? Have I studied for years this stuff? Am *I* the only one who has

> unrelenting pain because of work? She tells me I should find another job.

> I said: what? Am I supposed to leave a job where I have a claim (I would

> lose my claim if I leave, there is a protocol); limp away? To what?

> Another job that aggravates my sacrum but can get no workers comp or

> insurance or time off with pay?

> How out of touch can these people be?

>

> I went back to my dr and he sends me (for some reason as the last resort??)

> to a spine specialist. This guy explains to me exactly what is wrong and

> why I need an injection with an x-ray. I am so grateful to finally

> understand what is wrong with me, why the brace I had before did not work,

> etc. Finally relieved to have a plan. So I call his reception to give

> information for insurance approval and asked for pain medication because the

> night before I was dying in pain. And I am alone here, no one to massage my

> legs and butt area where it hurts so bad. Ibuprofen doesn't work. I make

> the mistake of saying alcohol helps it.

>

> So I am taking a nap and the phone goes off and I answer because of all

> these insurance and dr calls i have out. The new dr says: I don't

> understand why you are asking me for painkillers, like, why now? You have

> had this injury since june of 09. You've seen me one time and you are

> asking me now? (his concern of course is that I am using him to get

> narcotics and then going t my reg dr saying my script ran out and can i get

> more).

>

> Well he does not know me at all! And I was like a deer in headlights. I

> asked myself: why now? And I couldn't articulate that I felt like I was

> finally with the right doctor who could help me get a hold on this really

> painful condition. That I normally tolerate pain and endure a lot of pain

> (probably sounds familiar to a lot of people here). How could I tell him

> that I am having a hard time managing EVERYthing in my life because I am

> going through intense complicated grief at the same time and this pain is

> wearing me down?

>

> All while he is having this weird accusing tone? When he was so nice in the

> office. He says: don't take ibuprofen it could cause bleeding in the

> stomach. And alcohol is bad too. I will call your dr and ask him. He

> calls back later and leaves a message saying: your doctor said no.

> You should talk to him. I call my dr's nurse and she says: he says you

> should talk to your actual primary dr. (Who is usually not easy to get into

> see because he started another practice doing laser). WTF!! Talk about

> triggering issues of pain not being taken care of!

>

> My pain, as a child, was never never addressed. I had some accidents and

> was never held and shushhed. My father (the non emotional one) always took

> me to the dr or hospital for stitches. Our dentist did not use novacaine on

> us. I have a huge avoidance to dental work now. Even though I need it.

> Even if just a cleaning.

> And now, here I am suffering and they are acting like I am a druggie. My

> sister died from that!

>

> My reaction is to go into victim, sad mode. Poor me. But I have people

> encouraging me to get mad and demand help (these are guys). But I will say

> something when I get my shot; I have this fear that he won't help me now.

> It has added to my stress in life in a way I did not need at all.

>

> Sorry this is long; i probably am repeating myself. But I just can't

> believe it! (Although when I went to the gynecologist and told her that I

> feel during PMS i am almost suicidal, which is not normal; normally I am

> just bitchy, she looked at me blankly. She said: I can put you on the pill

> but only for three years (til 50); and I don't do well with the pill at all,

> it makes me depressed. She mentioned antidepressants (drs must be glad to

> be able to go to that and send you away) and pretty much left the room)

>

> I really can understand now what my sister went through with her doctor

> situation; the judgments they had, the unwillingness to understand her life

> and how to really help her. Ironically, I have barely done drugs in my

> life. I drink now at night, because it is the only thing that helps my

> sadness and pain, the ONLY thing. I have one, maybe two drinks. That is

> it. I live alone, have incredible grief, have a child who needs help in

> school but is being

> refused (illegally in my opinion) and I have bad pain in the area of my body

> that keeps me from doing what usually helps me which is hiking and dancing.

> (Dr told me the only thing I could do is tread water...pay ten dollars a

> shot to go in a pool somewhere... where I don't know to tread water)

>

> I want to get into Public Health because I want to help people in a way that

> actually helps. But maybe I should educate doctors ...I wonder if that is

> an aspect of public health that I could get hired for....

> Now there is an idea!

> If you read this long, thank you

> ~patricia

>

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