Re: High TSH levels scaring me!! HELP! New Member!

[Guest guest]

Hi,

Welcome and there are several that have gone through what you are

going through so just hang in there till they come aboard. You are

not alone and there will be lots of things that you will learn here

and things that you will teach just from your own experience. I

wish I could be of more help but that is not something that I have

had but there are lots of postings that you could go back and read

that might put your mind at ease, until someone is available.

Dawn

>

> Hello, all. I am new to this group and desperate to seek others

that

> have shared my experience. I was diagnosed with Hashimoto's 15

years

> age and have been on synthroid ever since. This year my neck grew

to

> the size of a softball and in October my doctor finally decided to

do

> a thyroidectomy. I thought that would solve all of my problems...

> little did I know.

>

> At my follow-up visit, my TSH level was 70 and my T4 was low. So,

my

> doctor increased my synthroid dosage. OK. Yesterday I went for my

> next round and found out my TSH was 136... ONE HUNDRED AND THIRTY

> SIX. I am going crazy, I feel so heavy and I just want to lay down

> and all my doctor can say is let's increase your dosage. OK

increaing

> my dosage made my level almost double in six weeks. I am at a loss

> and do not know what to do. I really need some advice, support,

> something!!!! Thanks for listening when my doc won't.

[Guest guest]

Hi,

Welcome and there are several that have gone through what you are

going through so just hang in there till they come aboard. You are

not alone and there will be lots of things that you will learn here

and things that you will teach just from your own experience. I

wish I could be of more help but that is not something that I have

had but there are lots of postings that you could go back and read

that might put your mind at ease, until someone is available.

Dawn

>

> Hello, all. I am new to this group and desperate to seek others

that

> have shared my experience. I was diagnosed with Hashimoto's 15

years

> age and have been on synthroid ever since. This year my neck grew

to

> the size of a softball and in October my doctor finally decided to

do

> a thyroidectomy. I thought that would solve all of my problems...

> little did I know.

>

> At my follow-up visit, my TSH level was 70 and my T4 was low. So,

my

> doctor increased my synthroid dosage. OK. Yesterday I went for my

> next round and found out my TSH was 136... ONE HUNDRED AND THIRTY

> SIX. I am going crazy, I feel so heavy and I just want to lay down

> and all my doctor can say is let's increase your dosage. OK

increaing

> my dosage made my level almost double in six weeks. I am at a loss

> and do not know what to do. I really need some advice, support,

> something!!!! Thanks for listening when my doc won't.

[Guest guest]

l,

I am also new to the group and know exactly what you are

experiencing. I had half of my thyroid removed in 1995 and the

other half removed in March of this year due to large tumors that

were pre-cancerous. I am also having problems with my TSH levels

being high. My last blood work was 11.4 and he wants it to be

between .02 and .05. My synthroid dosage has been increased every

six weeks since the middle of March. I am now takin .175 mcg. Like

you, I thought that when they removed the nasty little thing my

problems would be solved. Little did I know. In addition to not

being able to get the synthroid levels right, I am having problems

with calcium asorbtion due to my parathyroid being damaged due to

the largeness of the tumor that was removed. I spent two weeks in

the hospital on a calcium drip following the surgery and am now

taking massive doses of calcium and another medication to make my

body asorb the calcium. While I am at the same point you are in

searching for answers, I can certainly lend an ear if you need to

vent your frustrations. I know what you are going through.

Jeannie

-- In The_Thyroid_Support_Group , " daniellemauldin30 "

<daniellemauldin30@y...> wrote:

>

> Hello, all. I am new to this group and desperate to seek others

that

> have shared my experience. I was diagnosed with Hashimoto's 15

years

> age and have been on synthroid ever since. This year my neck grew

to

> the size of a softball and in October my doctor finally decided to

do

> a thyroidectomy. I thought that would solve all of my problems...

> little did I know.

>

> At my follow-up visit, my TSH level was 70 and my T4 was low. So,

my

> doctor increased my synthroid dosage. OK. Yesterday I went for my

> next round and found out my TSH was 136... ONE HUNDRED AND THIRTY

> SIX. I am going crazy, I feel so heavy and I just want to lay down

> and all my doctor can say is let's increase your dosage. OK

increaing

> my dosage made my level almost double in six weeks. I am at a loss

> and do not know what to do. I really need some advice, support,

> something!!!! Thanks for listening when my doc won't.

[Guest guest]

Hi, le, Welcome....

What dosage(s) were you on between being diagnosed and the thyroidectomy?

Now... since the thyroidectomy, what dosage were you on and what are you on now?

Has the doc been testing your free T4 and Free T3 levels?

Even though your TSH is atrocious right now I'm curious if the doc knows how to properly check thyroid levels AND if he knows how to dose.

How are you taking the Synthroid? On an empty stomach or full?

Are you taking anything to help with your T4 to T3 conversion? You're on a T4 only med so that is very important.

Are you avoiding foods that bind with thyroid hormone, making it unusable by your body? The most common is soy products (which are in a LOT of the things that we buy..._

When are you due for your next labs?

Plenty of folks here to help you figure out what is going on..... so get ready to be answering tons of questions......

*smile*

Topper ()*15 years post RAI, no thyroid function - on Natural thyroid since July '02)

On Wed, 22 Dec 2004 21:31:15 -0000 "daniellemauldin30" writes:

Hello, all. I am new to this group and desperate to seek others that have shared my experience. I was diagnosed with Hashimoto's 15 years age and have been on synthroid ever since. This year my neck grew to the size of a softball and in October my doctor finally decided to do a thyroidectomy. I thought that would solve all of my problems... little did I know.At my follow-up visit, my TSH level was 70 and my T4 was low. So, my doctor increased my synthroid dosage. OK. Yesterday I went for my next round and found out my TSH was 136... ONE HUNDRED AND THIRTY SIX. I am going crazy, I feel so heavy and I just want to lay down and all my doctor can say is let's increase your dosage. OK increaing my dosage made my level almost double in six weeks. I am at a loss and do not know what to do. I really need some advice, support, something!!!! Thanks for listening when my doc won't.

[Guest guest]

Hi, le, Welcome....

What dosage(s) were you on between being diagnosed and the thyroidectomy?

Now... since the thyroidectomy, what dosage were you on and what are you on now?

Has the doc been testing your free T4 and Free T3 levels?

Even though your TSH is atrocious right now I'm curious if the doc knows how to properly check thyroid levels AND if he knows how to dose.

How are you taking the Synthroid? On an empty stomach or full?

Are you taking anything to help with your T4 to T3 conversion? You're on a T4 only med so that is very important.

Are you avoiding foods that bind with thyroid hormone, making it unusable by your body? The most common is soy products (which are in a LOT of the things that we buy..._

When are you due for your next labs?

Plenty of folks here to help you figure out what is going on..... so get ready to be answering tons of questions......

*smile*

Topper ()*15 years post RAI, no thyroid function - on Natural thyroid since July '02)

On Wed, 22 Dec 2004 21:31:15 -0000 "daniellemauldin30" writes:

Hello, all. I am new to this group and desperate to seek others that have shared my experience. I was diagnosed with Hashimoto's 15 years age and have been on synthroid ever since. This year my neck grew to the size of a softball and in October my doctor finally decided to do a thyroidectomy. I thought that would solve all of my problems... little did I know.At my follow-up visit, my TSH level was 70 and my T4 was low. So, my doctor increased my synthroid dosage. OK. Yesterday I went for my next round and found out my TSH was 136... ONE HUNDRED AND THIRTY SIX. I am going crazy, I feel so heavy and I just want to lay down and all my doctor can say is let's increase your dosage. OK increaing my dosage made my level almost double in six weeks. I am at a loss and do not know what to do. I really need some advice, support, something!!!! Thanks for listening when my doc won't.