Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 Oh I'm so glad the cast is off! Congratulate Aubrie for me. Kay cast off > > Aubrie had her spica cast removed yesterday! What a day! The aid went > with us for instructions in the exercises. She has muscle strengthening > and range of motion exercises for 2 weeks, then we go back to stand for > the first time, get a walker, and further instructions. > > She has a wedge/pillow that straps onto her legs to keep them in the > comfortable position of the cast and to keep them protected during sleep > and whenever she wants it during the day. She can sit on the potty and > in her desk chair, if placed there, for as long as she feels > comfortable. She had a bath last night. She gets to wear clothes now. > She's so thrilled! > > I was surprised at how weak her legs and torso are, but also at how fast > she is gaining strength. Every hour there is improvement. And what a > wonderful thing to sleep through the night without having to wake every > 3 hours to change her diaper and reposition her. But, of course, my > bladder is still on schedule and woke me at 1 and 4 to go potty -- gee > thanks. > > Big weekend here with school open house tonight (she's been looking > forward to it for over a week) and our local Fall Festival all weekend. > Grandma is coming down to see her newly released legs and bringing my > aunt with her. I'm sure we'll have lots of fun but little rest. > > Michele W > Aubrie's mom 6 yrs > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
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