To Donna re ny

[Guest guest]

Fisher wrote:

>

The Doctor said he will be deaf so prepare him for this. He has

Autoimmune Inner Ear Disease. He just lost all hearing in his right ear

today.

Donna, I'm very sorry to hear that ny lost more hearing. It's

something we all dread happening to our children. Is the autoimmune

inner ear disease very rare? Would hearing aids or a cochlear implant

provide at least some benefit regarding his ability to hear?

Best wishes to your little son, you must all be so upset about it.

Cristina

Mum to Dominic, 21 months old, profound HL (connexin 26)

[Guest guest]

> ,

> " He is such a

> handsome child. I am most scared about his face being paralyzed. > . I

have excepted

> ny's deafness. I am proud of it. ny is another story. "

>

> My daughter is beautiful, I don't understand what that has to do

> with an implant.

*****I am most scared about his face being paralyzed*****

Anyway, it's good that you have accepted his deafness,

> but if he hasn't, it might be time to think about alternatives, ie., the

> CI.

**ny is not a candidate. His hearing fluctuates so much. Sometimes he

has hearing and sometimes he doesn't.**

The fact that he wasn't born deaf means he knows what he is

missing.

Think of how less of a struggle it would be for him if his hearing were

> the same all the time.

**Thats why I say it would be easier if he were born deaf**

I am very proud of my daughter, not because she

> is deaf, because she is .

***I am so so proud of ny for being Deaf and for handling all he has to

go through right now. He is the strongest child I've ever met.****

If I could take away all that my daughter

> had to go through, I would.

***you and a lot of other parents. Including me****

>

> Whatever you choose, ny has a great mom who is going to do the best

> for him, always.

> ****thank you so much. I try very hard******