RE: Another question for you -regarding a moderate loss

[Guest guest]

>My younger son has a similar loss and recognizes speech, even whispered,

>without his aids in, though it depends on the situation.

>

Thank you so much for your response . In the early stages of her

learning to listen, I was so scare they were wrong, but since then I have

overcome that fear, and have a better understanding now. She has never

responded to a whisper before, and it was just that it happened three different

times this week and then my mind starts going. Especially in the one situation

it was very noisy when one of her cousins whispered something to someone else

and she heard it and responded. I was shocked, and then when it happened last

night. I thought am I going crazy or what.

> my gut told me the aids she has weren't right.

>One of the many lessons I've learned is to always follow your gut!

And that is one thing I can thank each and everyone of you for. That something

that I have learned to go with because of all of you, and that is step up and do

what is best for her.

>other days? I know someone whose child has a fluctuating hearing loss

>that is better when there is high pressure in the area (talking about

>weather pressure here), and worsens then there is low pressure.

I can't answer that for sure, but I can sure now look at that now, thanks to

you. It does seem like someday she is constantly pulling them out and other

days she leaves them alone. So that is a very good possibility.

>With whispering to test hearing, you've got to be extremely careful

>to ensure that the child isn't responding to the air pressure coming

>out of your mouth.

I would of never done this at all, if it wasn't for the above situation that

happened

with one of her cousins, this week. I always, speak to her in a louder voice

than normal and at a little bit slower speed. I would say, with my position

that it was not air pressure, but I guess it could of been. It just freaked me

out and I don't even know why I did it, it was just one of those things, I did

sontainelosuy

>>volume on her hearing aids to see if she responds to them better - if

>there is a volume dial?

Wow do I feel stupid, No I have never turned the volume down, and I guess I

should of tried that and thought of that. Her volume is set on 2, and a couple

different times her audie tried to increase it, but we got to much feedback so

it was always set back to 2. I believe without looking at them the volume goes

up to four. It was originally set on 1 1/2 then she increased it to two and

that is where it has said for the longest time. I will try turning them down a

bit to see if she does leave them in better.

To Kay,Orla, Barb, , etc. etc. etc. and all the other's on this

list with so much wisdom, I hope and pray that I will learn as much as you have

on this journey. I doubt myself so much when things happen, but know I have to

stick with my gut and that is what I am doing, or should I say trying to do.

>And it may just very well be that, as someone else mentioned, your

>daughter is better able to interpret what she hears now.

I never gave this a thought either. le is a great listener and has a lot

of language.

>I think it's also important for you to get an audiogram on your

>daughter that you feel is reliable - and then you can perhaps have

>some answers.

>Kay

This is probably one of the most important things. I do believe le has a

hearing loss and do believe she needs to be aided all the time. That is what I

strive for everyday. I even had it written into her IEP as a goal, at her

transition meeting. That we need help in educating her what she needs to do

when getting hearing tested, and that we have to educate her with this process,

since I don't have the equipment in my home to do it.

But I don't feel that it's all a cooperation problem either. I feel that the

many audie we have tried around here, don't take the time to get the information

that is needed they just give up, due to she doesn't understand what is expected

of her. Hopefully since we had 2 hours a month written in her IEP for the

educationally audiologist and the help I am receiving from her team to be able

to get one that we are all comfortable with, it will come soon. At least I

hope. Also if we need more than 2 hours a month, I get it from the school they

don't hold us to that. At least I am fortunate to have a wonderful team working

for her. In the mean time we are exploring different options, once again, and

going somewhere else in September, even though her current audie is getting us

the digital aids, because I feel if it wasn't for her Teacher calling the audie

and discussing my feelings and her feeling on why we should try digital aids to

try and improve her speech, she wouldn't of done it for me alone. I even told

my audie that my gut was telling me it's the aids that her speech is the way it

is, and that I have nothing to back it up, but I just felt that , and her

response was she does not.

What I am looking for is someone that has le's best listening and hearing

abilities in hand, not someone that is just doing what they have to do. I have

talked to my husband many, many times about flying her somewhere to get the

information we need, it's just financially we can't afford that, but if the next

audie we go to isn't right either, that is what I am going to do regardless. I

feel that I have tried endlessly to get this to happen and each time it doesn't

work, and honestly it's wearing me down. If I didn't have this list, I don't

know what I would do. I felt so silly asking that question last night, but knew

I could and did. Thank you all so very much with all your input over these last

couple months. I have even gone to such lengths as to checking out how long it

would take me to go to school to be an audie, so that maybe I can can get some

closure on this. But I don't think le can wait 6 years for me to get my

degree and take care of all her needs at the same time. In the mean time I will

just keep reading and learning. You are all so fortunate to be able to have

audiologist that you can confined in and trust. Thanks again.

Take Care,

Colleen

Mom to 7 year old (hearing,asthma, and allergies,)

Mom to le 2 1/2 year old, (moderately-severe hearing loss, etc)

[Guest guest]

> When you go in for testing, have your daughter take the doll. When the

audiologist wants

> your daughter to do something, let her do it to the doll first. That way,

your daughter

> will have an opportunity to see exactly what the audiologist plans to do,

and what her

> expected behavior is.

>

Great idea that I have to vouch for -- My 2-year son has been plagued by

ear infections but he screams and cries when the ped tries to look in his

ears. Until one day when we took the beloved teddy bear along... Ped looked

in the bear's ears, looked down the bear's " throat " , etc.. Afterwards, my

son was completely still when it was his turn and now, whenever we go in to

the doc, my son insists Bear gets his check-up first. Since we are likely

looking at getting tubes this fall, Bear is going to be a lifesaver!

Pam