Re: Re: saw an Immunologist

[Guest guest]

Congrats!! I went to 2 in network immunologists who put on a face and an attitude as soon as I said PANDAS and IVIG. I got nowhere. I wish we had found a good one!

Great news!!!

Kerrie

> We recently had to break down and see a mainstream immunologist for our son.> He has CVID, Hypothyroidism, PANDAS, and a Seizure Disorder. He has been> receiving IVIG for his immune deficiency and it helps him tremendously. Our> insurance would only cover it if it was written by someone "in- network."> So we saw a Pediatric Immunologist and we were pleasantly surprised. He> drew vaccine titers plus an IgG level and got IVIG covered quickly for us.> He did not make an issue of vaccines at all. He told us at the first visit> that he would do everything he could get to us our IVIG. He was actually> respectful to us. I just wanted to share our experience with this in case> anyone else out there can learn from it. Up until then I had avoided> mainstream doctors like the plague because we had such horrible experiences> with them in the past.