Re: Hi i'm new and in the uk, just wondering about comp stool test results

[Guest guest]

Because of his loss of language I'd look into Landau Kleffner Syndrome

>

>

> Hi i'v been reading your posts for about 6 months now and i love this group. I

had a comprehensive stool analysis test and OATS test done at the great plains

lab in Dec and i just wondered if anybody could tell me if a lactoferrin marker

level of 12 is something to REALLY worry about in the stool test as it did

mention inflammatory bowel disease in its explanatory paragraph when it said it

was high. The medical professionals here in the uk do not use this as a measure

for IBD and do not seem to be in any rush to complete the tests that they do

use. My son is 5 and was diagnosed with autism when he was 3. He used to have

single words and he used to point to things when asked to in a book like where

is the table, chair etc he also used to make the appropriate noises that a said

animal would make when asked e.g what noise does a duck make and he would quack

or hiss for a snake yet now 2 years on he does none of the above and has lost

all language plus he now has a turn in his left eye. He didn't walk until he was

2 and he has always had an awkward wide clumsy gait. He stims, gets aggressive

(in the last year only) is very oppositional and defiant, has hyptonia but is

also very loving gives great eye contact loves hugs and seems to embrace change

rather than be worried by it. The most worrying thing is that he has no fear of

strangers or roads and seems clueless with no understanding of any rules AT ALL.

>

>

>

> Needless to say we follow him around all the time making sure he doesn't hurt

himself or anyone else,(like his baby sister). He has had costipation for about

3 years and is gfcf for the last 7 months + numerous supplements. Sorry for long

post but any help would be apppreciated.

>

>

>

> I have read Children with starving brains (Mcandless), Changingthe course of

autism (Jepson) Healing and preventing autism (Jerry Kartzinel and

Mcarthy) and i am in the middle of reading Bock: Healing the new childhood

epidemics.

>

>

>

> Thanks in anticipation .

>

> Plus i am a big Fan of G. Keep up the good work u have gave me so many

good ideas. :0)

>

>

>

> _________________________________________________________________

> http://clk.atdmt.com/UKM/go/195013117/direct/01/

>

[Guest guest]

Because of his loss of language I'd look into Landau Kleffner Syndrome

>

>

> Hi i'v been reading your posts for about 6 months now and i love this group. I

had a comprehensive stool analysis test and OATS test done at the great plains

lab in Dec and i just wondered if anybody could tell me if a lactoferrin marker

level of 12 is something to REALLY worry about in the stool test as it did

mention inflammatory bowel disease in its explanatory paragraph when it said it

was high. The medical professionals here in the uk do not use this as a measure

for IBD and do not seem to be in any rush to complete the tests that they do

use. My son is 5 and was diagnosed with autism when he was 3. He used to have

single words and he used to point to things when asked to in a book like where

is the table, chair etc he also used to make the appropriate noises that a said

animal would make when asked e.g what noise does a duck make and he would quack

or hiss for a snake yet now 2 years on he does none of the above and has lost

all language plus he now has a turn in his left eye. He didn't walk until he was

2 and he has always had an awkward wide clumsy gait. He stims, gets aggressive

(in the last year only) is very oppositional and defiant, has hyptonia but is

also very loving gives great eye contact loves hugs and seems to embrace change

rather than be worried by it. The most worrying thing is that he has no fear of

strangers or roads and seems clueless with no understanding of any rules AT ALL.

>

>

>

> Needless to say we follow him around all the time making sure he doesn't hurt

himself or anyone else,(like his baby sister). He has had costipation for about

3 years and is gfcf for the last 7 months + numerous supplements. Sorry for long

post but any help would be apppreciated.

>

>

>

> I have read Children with starving brains (Mcandless), Changingthe course of

autism (Jepson) Healing and preventing autism (Jerry Kartzinel and

Mcarthy) and i am in the middle of reading Bock: Healing the new childhood

epidemics.

>

>

>

> Thanks in anticipation .

>

> Plus i am a big Fan of G. Keep up the good work u have gave me so many

good ideas. :0)

>

>

>

> _________________________________________________________________

> http://clk.atdmt.com/UKM/go/195013117/direct/01/

>

[Guest guest]

Hi guys, thanks for your replies so far. I have thought about pandas and i have a peadiatrician appt a week on mon so i will ask them to test for that. has had an EEG and it was normal, i just looked up LKS but i don't think this is it as he can understand some things we say like give me 5 and give me a hug or kiss and do u want a bath. He goes to a school for the severely disabled, he has never had an MRI but i would like him to have one. I just can't understand why he was further developed at age 3 than he is now?

To: mb12 valtrex From: nicolewallaceouaf@...Date: Thu, 13 May 2010 03:37:22 +0000Subject: Re: Hi i'm new and in the uk, just wondering about comp stool test results

Because of his loss of language I'd look into Landau Kleffner Syndrome>> > Hi i'v been reading your posts for about 6 months now and i love this group. I had a comprehensive stool analysis test and OATS test done at the great plains lab in Dec and i just wondered if anybody could tell me if a lactoferrin marker level of 12 is something to REALLY worry about in the stool test as it did mention inflammatory bowel disease in its explanatory paragraph when it said it was high. The medical professionals here in the uk do not use this as a measure for IBD and do not seem to be in any rush to complete the tests that they do use. My son is 5 and was diagnosed with autism when he was 3. He used to have single words and he used to point to things when asked to in a book like where is the table, chair etc he also used to make the appropriate noises that a said animal would make when asked e.g what noise does a duck make and he would quack or hiss for a snake yet now 2 years on he does none of the above and has lost all language plus he now has a turn in his left eye. He didn't walk until he was 2 and he has always had an awkward wide clumsy gait. He stims, gets aggressive (in the last year only) is very oppositional and defiant, has hyptonia but is also very loving gives great eye contact loves hugs and seems to embrace change rather than be worried by it. The most worrying thing is that he has no fear of strangers or roads and seems clueless with no understanding of any rules AT ALL. > > > > Needless to say we follow him around all the time making sure he doesn't hurt himself or anyone else,(like his baby sister). He has had costipation for about 3 years and is gfcf for the last 7 months + numerous supplements. Sorry for long post but any help would be apppreciated.> > > > I have read Children with starving brains (Mcandless), Changingthe course of autism (Jepson) Healing and preventing autism (Jerry Kartzinel and Mcarthy) and i am in the middle of reading Bock: Healing the new childhood epidemics. > > > > Thanks in anticipation . > > Plus i am a big Fan of G. Keep up the good work u have gave me so many good ideas. :0)> > > > __________________________________________________________> http://clk.atdmt.com/UKM/go/195013117/direct/01/>

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[Guest guest]

Hi guys, thanks for your replies so far. I have thought about pandas and i have a peadiatrician appt a week on mon so i will ask them to test for that. has had an EEG and it was normal, i just looked up LKS but i don't think this is it as he can understand some things we say like give me 5 and give me a hug or kiss and do u want a bath. He goes to a school for the severely disabled, he has never had an MRI but i would like him to have one. I just can't understand why he was further developed at age 3 than he is now?

To: mb12 valtrex From: nicolewallaceouaf@...Date: Thu, 13 May 2010 03:37:22 +0000Subject: Re: Hi i'm new and in the uk, just wondering about comp stool test results

Because of his loss of language I'd look into Landau Kleffner Syndrome>> > Hi i'v been reading your posts for about 6 months now and i love this group. I had a comprehensive stool analysis test and OATS test done at the great plains lab in Dec and i just wondered if anybody could tell me if a lactoferrin marker level of 12 is something to REALLY worry about in the stool test as it did mention inflammatory bowel disease in its explanatory paragraph when it said it was high. The medical professionals here in the uk do not use this as a measure for IBD and do not seem to be in any rush to complete the tests that they do use. My son is 5 and was diagnosed with autism when he was 3. He used to have single words and he used to point to things when asked to in a book like where is the table, chair etc he also used to make the appropriate noises that a said animal would make when asked e.g what noise does a duck make and he would quack or hiss for a snake yet now 2 years on he does none of the above and has lost all language plus he now has a turn in his left eye. He didn't walk until he was 2 and he has always had an awkward wide clumsy gait. He stims, gets aggressive (in the last year only) is very oppositional and defiant, has hyptonia but is also very loving gives great eye contact loves hugs and seems to embrace change rather than be worried by it. The most worrying thing is that he has no fear of strangers or roads and seems clueless with no understanding of any rules AT ALL. > > > > Needless to say we follow him around all the time making sure he doesn't hurt himself or anyone else,(like his baby sister). He has had costipation for about 3 years and is gfcf for the last 7 months + numerous supplements. Sorry for long post but any help would be apppreciated.> > > > I have read Children with starving brains (Mcandless), Changingthe course of autism (Jepson) Healing and preventing autism (Jerry Kartzinel and Mcarthy) and i am in the middle of reading Bock: Healing the new childhood epidemics. > > > > Thanks in anticipation . > > Plus i am a big Fan of G. Keep up the good work u have gave me so many good ideas. :0)> > > > __________________________________________________________> http://clk.atdmt.com/UKM/go/195013117/direct/01/>

Get a new e-mail account with Hotmail – Free. Sign-up now.

[Guest guest]

Your post also made me think of pandas. If you get his strep titers checked,

jsut be aware that some kid's titers do not rise, but that does not mean that he

does not have pandas. One of my boys gets a rise, the other does not, but they

are both clear cut pandas kids. You can get another test called the Cunningham

test, or CamKinase, which could indicate pandas, or you could just do a trial of

antibiotics or herbs and see how he responds.

> >

> >

> > Hi i'v been reading your posts for about 6 months now and i love this group.

I had a comprehensive stool analysis test and OATS test done at the great plains

lab in Dec and i just wondered if anybody could tell me if a lactoferrin marker

level of 12 is something to REALLY worry about in the stool test as it did

mention inflammatory bowel disease in its explanatory paragraph when it said it

was high. The medical professionals here in the uk do not use this as a measure

for IBD and do not seem to be in any rush to complete the tests that they do

use. My son is 5 and was diagnosed with autism when he was 3. He used to have

single words and he used to point to things when asked to in a book like where

is the table, chair etc he also used to make the appropriate noises that a said

animal would make when asked e.g what noise does a duck make and he would quack

or hiss for a snake yet now 2 years on he does none of the above and has lost

all language plus he now has a turn in his left eye. He didn't walk until he was

2 and he has always had an awkward wide clumsy gait. He stims, gets aggressive

(in the last year only) is very oppositional and defiant, has hyptonia but is

also very loving gives great eye contact loves hugs and seems to embrace change

rather than be worried by it. The most worrying thing is that he has no fear of

strangers or roads and seems clueless with no understanding of any rules AT ALL.

> >

> >

> >

> > Needless to say we follow him around all the time making sure he doesn't

hurt himself or anyone else,(like his baby sister). He has had costipation for

about 3 years and is gfcf for the last 7 months + numerous supplements. Sorry

for long post but any help would be apppreciated.

> >

> >

> >

> > I have read Children with starving brains (Mcandless), Changingthe course of

autism (Jepson) Healing and preventing autism (Jerry Kartzinel and

Mcarthy) and i am in the middle of reading Bock: Healing the new childhood

epidemics.

> >

> >

> >

> > Thanks in anticipation .

> >

> > Plus i am a big Fan of G. Keep up the good work u have gave me so many

good ideas. :0)

> >

> >

> >

> > __________________________________________________________

> > http://clk.atdmt.com/UKM/go/195013117/direct/01/

> >

>

>

>

>

>

> _________________________________________________________________

> http://clk.atdmt.com/UKM/go/195013117/direct/01/

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