New to the group and any advice or information would be appreciated

[Guest guest]

Just to give some background first, my son is 18 months old. I would say from

about 7 months something just told me something just wasn't right. And I

listend to the doctors since he was my first child and all we heard from our

family is give him time he is still a baby. It seemed everytime he received a

vacaine a little something was lost, he would get sick a couple of weeks later.

Of course I realized all of this now looking back. It started getting really bad

around 9 months. Still I listened to the doctor about vaccines and I would say

at 12 months we lost him. We could tell in his eyes that he just wasn't there

anymore. There was no eye contact at all at this point, running back and fourth,

did not play with toys correctly. He always liked car wheels.... and I knew

that wasn't right or typical (well not as much as he enjoyed it) but we listened

to so many people tell us there kids done it and give him time to grow up. I

fought with my husband and our families for months and right after his first

birthday we called Early Intervention and got it started. Well when he was

evaluated they mentioned things to us that opened my eyes to more things I

didn't notice and I noticed quite a few things by that point.

AT 11 months he received an IGe test because he had a bad reaction to yogurt.

When that came back he had loads of food allergies (milk, eggs, dairy, corn and

SOY) I remember the doctor telling me that the soy could be a negative positive

(cause he has been on soy formula since day 2 of his life) so they reccomended

an allergist. So of course we listened and went to see an allergist about the

food allergies and he also has allergies to some trees and dogs. Well basically

they told us use benedryl and gave us an epipen. And to keep him away from

dairy and eggs. We asked about the soy and I remember this doctor telling us

" There is no way he has an allergy to soy if he is not spitting it up " . And of

course looking back I realize he was a little fussy but not much I guess to open

my eyes. And I also mentioned to them that he's never had a reaction to eggs

(gave it to him once before all of this) or corn. I told him he was still on

stage 3 foods and most of the ingredents were corn, milk, eggs etc. They said

well if it's cooked into the product it's no problem and its a low number on the

report anyway!!!!! again if he didn't throw up he can tolerate it. We both

walked out of there annoyed and pissed off. I didn't understand any of this.

Well I kept him away from all those ingredents cause in my mind these people

were IDIOTS.

I went to a GF/CF class offered by a nutritionist at our pediatrics office, and

I decided to put him on the gluten free diet cause you know what WHY NOT... he's

already on a casien free diet. We seen imporvement within 2 weeks. I meet with

her personally after the class about my son and she took him off soy formula and

put him on Rice Milk... seen an improvment within a week. He has been in EI for

about 3 1/2 months now. He is currently on probiotics (5 months)(which our

coordinator for EI told us about) flaxseed oil with omega 3 (2 1/2 months)(which

my husbands chiroprator told us about who is also a nutritionist) notice a

pattern that NO DOCTORS told us about these supplements!!!

and more recently on Vitaspectrum for about a month now (from his DAN Doctor)

who is one of the doctors in our pediatritions office and I regreat never seeing

him from day one. He recently just opened up a center in October. He was on

Syndion vitamins at first but come to find out one of the ingredents has corn in

it. I did send the company an email basically telling them it is unexceptable

that they do not have it on there label or there website. I must say they were

very gracious because it was put on there within a week. Just want anyone out

there taking syndion to know corn syrup is an ingredent if you have an

intolerance/allergy to corn.

There has been great improvement with everything so far... between therapies,

vitamins, and supplements. We are just starting biomedical treatment for him.

This week we are taking blood for an ION test for him. And I have to say my

thanks go out to Stan Kurtz, his video of Ethans recovery really gave me hope

and how I got started looking into biomedical treatment. Before finding that

video I really wasn't sure what to do after therapies. There is no speech yet

with my son but he has made more vocalization in the past month then he ever

did. I'm a little nervous that speech will never come but I'm still trying to

be hopeful with that. He has eye contact now were before he had negative zero.

he answers to his name now when he didn't at all , you can tell in his face when

you talk to him now he is listening and he is taking it all in and

understanding. I can get in his face without him freaking out. He notices now

when someone walks in the room, he is getting better with other children. He

still cries with his therapist sometimes because he does not want to do the

work. He still is a little self directed (but nothing compared to what it was)

but he also has a very stubborn side to his personality which I think it's a

combination on not wanting to do everything you ask him. he still runs back and

fourth. he is starting to mimic somethings (very few) but never did before. So

there are tiny improvments but they are improvments.

I've been trying to do as much research as I can and I beleive that the

biomedical treatment is going to help him along with everything else. I was

wondering though if anyone had a child this young or know of a child this young

that had biomedical treatment. Any information is greatly appreciated. Thank

you --Pam