Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Dylan's campus is huge, and he walks all around it from one place to another in our AZ heat many times a day, plus all the thinking energy - he definitely has fewer Dylan parties when school is in session, unless we get to an overload point and then it is just as bad as the days he is bored silly. It is not possible for us to tire him out the way school does. Kim > We, too, used the half door strategy when was little; as a matter of > fact, her old nursery is now our computer room and now has no door! > However, the strategy worked great for a long time. > Now, even though we have a central alarm system, 's door also has > a simple alarm from Radio Shack (Perkins has one on her door, too). > This simply alerts others in the house when decides to roam. I truly > think of it as a life saver. > Serotonin level meds: started on Zoloft, tried something I no longer > remember (it was a horror), and is now on Paxil. Her overall mood, etc. > has greatly improved. We still see OCD. > My family actually approves strongly of the Melatonin. Remember, these > are docs who are not treating CHARGE folks or others with disabilities. > When the Perkins psychiatrist added Trazedone to help her sleep, my > brother's reply was that he didn't know why he hadn't thought of that... > The problems come and go. tossed her meds tonight, so I know > that I'll be up again shortly. That said, apparently at P., she doesn't have > the severe sleep problems on a regular basis. I suspect they tire her out > to a degree we cannot. I think I needed to ramble. Martha > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Dylan's campus is huge, and he walks all around it from one place to another in our AZ heat many times a day, plus all the thinking energy - he definitely has fewer Dylan parties when school is in session, unless we get to an overload point and then it is just as bad as the days he is bored silly. It is not possible for us to tire him out the way school does. Kim > We, too, used the half door strategy when was little; as a matter of > fact, her old nursery is now our computer room and now has no door! > However, the strategy worked great for a long time. > Now, even though we have a central alarm system, 's door also has > a simple alarm from Radio Shack (Perkins has one on her door, too). > This simply alerts others in the house when decides to roam. I truly > think of it as a life saver. > Serotonin level meds: started on Zoloft, tried something I no longer > remember (it was a horror), and is now on Paxil. Her overall mood, etc. > has greatly improved. We still see OCD. > My family actually approves strongly of the Melatonin. Remember, these > are docs who are not treating CHARGE folks or others with disabilities. > When the Perkins psychiatrist added Trazedone to help her sleep, my > brother's reply was that he didn't know why he hadn't thought of that... > The problems come and go. tossed her meds tonight, so I know > that I'll be up again shortly. That said, apparently at P., she doesn't have > the severe sleep problems on a regular basis. I suspect they tire her out > to a degree we cannot. I think I needed to ramble. Martha > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
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