Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 I would also conciter strep (the soars in the mouth) with PANDAS From: t.lynn28@... Sent: Tuesday, December 14, 2010 10:13 PM To: mb12 valtrex Subject: A case for hhv 6 Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer-Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 I would also conciter strep (the soars in the mouth) with PANDAS From: t.lynn28@... Sent: Tuesday, December 14, 2010 10:13 PM To: mb12 valtrex Subject: A case for hhv 6 Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer-Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 You should test *all* of the herpes viruses HHV1-6 (HHV1 & 2, EBV, CMV, Varicella and Roseola). Also, consider the high dose vitamin A protocol or TF-RMM for MMR.Good info can be found on HHV-6foundation.org . Also look in pubmed as that's a great resource for finding info on EBV, CMV and HHV6. These three are the ones that cause the most problems. My son has HHV6 and EBV. Yuck. Varicella and HHV1 & 2 seem to be a problem for some (especially if you've had the varicella vax) but the most damaging tend to be EBV, CMV and HHV6. If you add "autism" to your search in pubmed (EBV autism) you'll get fewer results but you *will* get results. And you can also try other variations: EBV/CMV/HHV-6 seizures, chronic HHV-6, add autoimmune to it, etc. - you get the idea. Lots of stuff will come up. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer -Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Also, you should probably check the DAN site (www.autism.com) as I'm sure they have lots of info on herpes related issues. I haven't dug around on that site in a very long time but it's a good place to look. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer -Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Also, you should probably check the DAN site (www.autism.com) as I'm sure they have lots of info on herpes related issues. I haven't dug around on that site in a very long time but it's a good place to look. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer -Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Also, you should probably check the DAN site (www.autism.com) as I'm sure they have lots of info on herpes related issues. I haven't dug around on that site in a very long time but it's a good place to look. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer -Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Holy list of publications at autism.com! Thanks!To: mb12 valtrex Sent: Tue, December 14, 2010 11:06:03 PMSubject: Re: A case for hhv 6 Also, you should probably check the DAN site (www.autism.com) as I'm sure they have lots of info on herpes related issues. I haven't dug around on that site in a very long time but it's a good place to look. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer -Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Holy list of publications at autism.com! Thanks!To: mb12 valtrex Sent: Tue, December 14, 2010 11:06:03 PMSubject: Re: A case for hhv 6 Also, you should probably check the DAN site (www.autism.com) as I'm sure they have lots of info on herpes related issues. I haven't dug around on that site in a very long time but it's a good place to look. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Ok, my clever little sleuths, I need your help. My sister has been biomedically treating my asd nephew for 2 years now and while he's made some really nice gains, she feels in her heart that she's missing something. Because her and her son both get cold sores (her on the inside of her mouth ...they are different than canker sores) and the way he does not sweat (thyroid has been checked as it is a prevelent problem in our family) , chelation hasn't been effective and as a baby, he had a convulsive reaction to mmr (that's when he lost his language and began to slip away), I suggested that she may want to ask her dan to test for hhv6. Aside from the symptoms (which I feel ought to be enough, she needs some good evidence to give to her dan when she asks. I'm looking around for some good publications. In the mean time, if anyone has anything good in their files, could you pass it along this way? Thanks so much for any little bit you may be able to offer -Tammy Quote Link to comment Share on other sites More sharing options...
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