Re: Valtrex

[Guest guest]

What do you mean he is doing biofilm? Is he perscribing EDTA now with anti-fungals? If so I am amazed!!!!! I brought him back the simanar notes from the DAN confrence and asked for his help on getting Luke on that treatment.

To: mb12 valtrex Sent: Sat, May 8, 2010 1:19:50 PMSubject: Re: Valtrex

 he is doing biofilm, what all are you wanting him to do that he is not doing other then valtrex that you don't have need for with out titers showing you have issues there?

he is even up on some yasko stuff and has an HBOT in his office

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Dr. BAptist is located off of Metcalf and 83rd, which is in Kansas. Is there someone on the Missouri side?

J

To: mb12 valtrex Sent: Sat, May 8, 2010 1:58:56 PMSubject: Re: Valtrex

he I believe in on the missiouri side of kansas if we are talking about the same person

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Dr. BAptist is located off of Metcalf and 83rd, which is in Kansas. Is there someone on the Missouri side?

J

To: mb12 valtrex Sent: Sat, May 8, 2010 1:58:56 PMSubject: Re: Valtrex

he I believe in on the missiouri side of kansas if we are talking about the same person

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Wow!!!! I am in tears of amazement for you. Did you notice any other symptoms before VAltrex? Luke's immune system is so messed up. He is allergic to everything, and it takes him twice as long to get over a cold or flu then it does anybody else in the family. His receptive language is amazing yet still isn't talking. He will be 4 years next week. He has days where I am amazed at how well he can follow directions, or we can ask him to do something that we have never asked him to do before and he gets it the first time. He will have a good week at a time and then bam, 3 weeks of retraining him to throw something away in the trash. I work so hard to pull out these skills and then they are taken away again. His aggression is getting

worse. Pinching and biting, all the time; when he's laughing, crying, frustrated, mellow. He has been pooping in his pants again, it has been 6 months since we saw that last and in the last week he has done it twice. Thanks for the info, his ped said he would work with us and now that you have given us an idea of treatment and someone clued us in on what kind of titter testing we should be able to get started. How long will your son be on Valtrex?

J

To: mb12 valtrex Sent: Sat, May 8, 2010 2:20:03 PMSubject: Re: Valtrex

~ I am not a dr. but mom to mom~ ok? our DAN! started my 4 yr. old out on Valtrex at 500 mg. per day and he said if no improvement by day 14 to up to 1000 mg. (this is the proto i believe,1,000, but because my son is so young he wanted to start at 500 mg) Anyway, i have a different kid now....we also are GF/CF/Sf of course, MB12 and culterelle, etc...multi vitamin.....on day 12 or so of this Valtrex my son was walking and talking in circles (rain man stuff) i was so terrified and came close to calling our DAN! but he was "specific" about if nothing occurs by 14 days..I've NEVER doubted our DAN! he has been one for 14 yrs with son on spectrum as well....so i waited and day 14 my son was looking at me and asking questions like a typical kid....i had an emotional breakdown of joy that day and have been on Valtrex everyday since. We've missed days here and there...but strict for 2 months.We had not done any sort of testing

before hand just the occasional OAT~ I've not ever chelated (yet) either so??? I'm learning still but this is our Valtrex story.....it works well for us.....along with MB12 every 3 days.Traci~Jack & Scarlett's mom

To: mb12 valtrex Sent: Sat, May 8, 2010 8:09:28 AMSubject: Re: Valtrex

Oops,should have finished reading... LOL :-)

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Wow!!!! I am in tears of amazement for you. Did you notice any other symptoms before VAltrex? Luke's immune system is so messed up. He is allergic to everything, and it takes him twice as long to get over a cold or flu then it does anybody else in the family. His receptive language is amazing yet still isn't talking. He will be 4 years next week. He has days where I am amazed at how well he can follow directions, or we can ask him to do something that we have never asked him to do before and he gets it the first time. He will have a good week at a time and then bam, 3 weeks of retraining him to throw something away in the trash. I work so hard to pull out these skills and then they are taken away again. His aggression is getting

worse. Pinching and biting, all the time; when he's laughing, crying, frustrated, mellow. He has been pooping in his pants again, it has been 6 months since we saw that last and in the last week he has done it twice. Thanks for the info, his ped said he would work with us and now that you have given us an idea of treatment and someone clued us in on what kind of titter testing we should be able to get started. How long will your son be on Valtrex?

J

To: mb12 valtrex Sent: Sat, May 8, 2010 2:20:03 PMSubject: Re: Valtrex

~ I am not a dr. but mom to mom~ ok? our DAN! started my 4 yr. old out on Valtrex at 500 mg. per day and he said if no improvement by day 14 to up to 1000 mg. (this is the proto i believe,1,000, but because my son is so young he wanted to start at 500 mg) Anyway, i have a different kid now....we also are GF/CF/Sf of course, MB12 and culterelle, etc...multi vitamin.....on day 12 or so of this Valtrex my son was walking and talking in circles (rain man stuff) i was so terrified and came close to calling our DAN! but he was "specific" about if nothing occurs by 14 days..I've NEVER doubted our DAN! he has been one for 14 yrs with son on spectrum as well....so i waited and day 14 my son was looking at me and asking questions like a typical kid....i had an emotional breakdown of joy that day and have been on Valtrex everyday since. We've missed days here and there...but strict for 2 months.We had not done any sort of testing

before hand just the occasional OAT~ I've not ever chelated (yet) either so??? I'm learning still but this is our Valtrex story.....it works well for us.....along with MB12 every 3 days.Traci~Jack & Scarlett's mom

To: mb12 valtrex Sent: Sat, May 8, 2010 8:09:28 AMSubject: Re: Valtrex

Oops,should have finished reading... LOL :-)

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Wow!!!! I am in tears of amazement for you. Did you notice any other symptoms before VAltrex? Luke's immune system is so messed up. He is allergic to everything, and it takes him twice as long to get over a cold or flu then it does anybody else in the family. His receptive language is amazing yet still isn't talking. He will be 4 years next week. He has days where I am amazed at how well he can follow directions, or we can ask him to do something that we have never asked him to do before and he gets it the first time. He will have a good week at a time and then bam, 3 weeks of retraining him to throw something away in the trash. I work so hard to pull out these skills and then they are taken away again. His aggression is getting

worse. Pinching and biting, all the time; when he's laughing, crying, frustrated, mellow. He has been pooping in his pants again, it has been 6 months since we saw that last and in the last week he has done it twice. Thanks for the info, his ped said he would work with us and now that you have given us an idea of treatment and someone clued us in on what kind of titter testing we should be able to get started. How long will your son be on Valtrex?

J

To: mb12 valtrex Sent: Sat, May 8, 2010 2:20:03 PMSubject: Re: Valtrex

~ I am not a dr. but mom to mom~ ok? our DAN! started my 4 yr. old out on Valtrex at 500 mg. per day and he said if no improvement by day 14 to up to 1000 mg. (this is the proto i believe,1,000, but because my son is so young he wanted to start at 500 mg) Anyway, i have a different kid now....we also are GF/CF/Sf of course, MB12 and culterelle, etc...multi vitamin.....on day 12 or so of this Valtrex my son was walking and talking in circles (rain man stuff) i was so terrified and came close to calling our DAN! but he was "specific" about if nothing occurs by 14 days..I've NEVER doubted our DAN! he has been one for 14 yrs with son on spectrum as well....so i waited and day 14 my son was looking at me and asking questions like a typical kid....i had an emotional breakdown of joy that day and have been on Valtrex everyday since. We've missed days here and there...but strict for 2 months.We had not done any sort of testing

before hand just the occasional OAT~ I've not ever chelated (yet) either so??? I'm learning still but this is our Valtrex story.....it works well for us.....along with MB12 every 3 days.Traci~Jack & Scarlett's mom

To: mb12 valtrex Sent: Sat, May 8, 2010 8:09:28 AMSubject: Re: Valtrex

Oops,should have finished reading... LOL :-)

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I can't believe that we found a Ped that will actually listen to us and work with us but we did and he is very open minded; you might want to try him, his name is Dr. Moylan his is with Ped. Assoc. .

To: mb12 valtrex Sent: Sat, May 8, 2010 6:21:44 PMSubject: Re: Valtrex

i had the very same experience with doc baptist, im looking for a new DAN doc in our area too! if you find one let me know.

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I can't believe that we found a Ped that will actually listen to us and work with us but we did and he is very open minded; you might want to try him, his name is Dr. Moylan his is with Ped. Assoc. .

To: mb12 valtrex Sent: Sat, May 8, 2010 6:21:44 PMSubject: Re: Valtrex

i had the very same experience with doc baptist, im looking for a new DAN doc in our area too! if you find one let me know.

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I can't believe that we found a Ped that will actually listen to us and work with us but we did and he is very open minded; you might want to try him, his name is Dr. Moylan his is with Ped. Assoc. .

To: mb12 valtrex Sent: Sat, May 8, 2010 6:21:44 PMSubject: Re: Valtrex

i had the very same experience with doc baptist, im looking for a new DAN doc in our area too! if you find one let me know.

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about

switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic...... when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

To: jennifer smiglewski Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

To: Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

To: jjs7a7chem@...Sent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

This is exactly what our DAN! told us last October! Hanging in there,TTo: mb12 valtrex Sent: Sun, May 9, 2010 8:17:59 AMSubject: Re: Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

This is exactly what our DAN! told us last October! Hanging in there,TTo: mb12 valtrex Sent: Sun, May 9, 2010 8:17:59 AMSubject: Re: Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

Who is your DAN! where is he located?

J

To: mb12 valtrex Sent: Sun, May 9, 2010 11:02:32 AMSubject: Re: Re: Valtrex

This is exactly what our DAN! told us last October! Hanging in there,T

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Sun, May 9, 2010 8:17:59 AMSubject: Re: Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

Who is your DAN! where is he located?

J

To: mb12 valtrex Sent: Sun, May 9, 2010 11:02:32 AMSubject: Re: Re: Valtrex

This is exactly what our DAN! told us last October! Hanging in there,T

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Sun, May 9, 2010 8:17:59 AMSubject: Re: Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

Thanks for the info. So interesting about the tie to HIV. When I read McCarthy's book, she talked about this--that autism is really like a "vaccine acquired immunodeficiency". So interesting and scary, isn't it? I saw your question about why Valtrex works with Diflucan. From what I've read, viral die-off causes yeast to increase. Wasn't really the case with us, but our doctor did call our son's bacterial infections in the gut "opportunistic infections". We are using OSR as our "chelator" along with the Valtrex. Our son can't really tolerate Diflucan--causes extreme nausea and vomiting. Please update me if you read anything more about the treatment options for the retrovirus. I'd be willing to bet

that it's part of our issues. I'm so scared that the "cure" will be too late for us--our son will be 11 soon. Sometimes it's hard to stick with it when we don't see amazing results like Stan and others have seen. Dr. McCandless says that 20% of our kids have a really good response to Valtrex. MegTo: mb12 valtrex Sent: Sun, May 9, 2010 10:17:59 AMSubject: Re:

Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

Thanks for the info. So interesting about the tie to HIV. When I read McCarthy's book, she talked about this--that autism is really like a "vaccine acquired immunodeficiency". So interesting and scary, isn't it? I saw your question about why Valtrex works with Diflucan. From what I've read, viral die-off causes yeast to increase. Wasn't really the case with us, but our doctor did call our son's bacterial infections in the gut "opportunistic infections". We are using OSR as our "chelator" along with the Valtrex. Our son can't really tolerate Diflucan--causes extreme nausea and vomiting. Please update me if you read anything more about the treatment options for the retrovirus. I'd be willing to bet

that it's part of our issues. I'm so scared that the "cure" will be too late for us--our son will be 11 soon. Sometimes it's hard to stick with it when we don't see amazing results like Stan and others have seen. Dr. McCandless says that 20% of our kids have a really good response to Valtrex. MegTo: mb12 valtrex Sent: Sun, May 9, 2010 10:17:59 AMSubject: Re:

Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]



you WILL see yeast stop coming out as it is gone, so it may be that you have wiped it out. if you treat yeast over and over with NOT having yeast you will create bacteria issues. so know that you may be seeing bacteria issues now and NOT yeast. what do stools look like now?

are you sure yeast is STILL an issue? when was the last time you did stool and oats testing? hate to break it to you but testing and retesting is the game till your child is healed, it's not a 1 year journey!!! we have been doing this 7 years. I promise dr baptist is a smart and on top of it guy. he is your advocate but he may simpley feel that yeast isn't your big issue right now as well.....

lte me know what stools are like now and perhaps we can all help more. also what suppliments you are on

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]



you WILL see yeast stop coming out as it is gone, so it may be that you have wiped it out. if you treat yeast over and over with NOT having yeast you will create bacteria issues. so know that you may be seeing bacteria issues now and NOT yeast. what do stools look like now?

are you sure yeast is STILL an issue? when was the last time you did stool and oats testing? hate to break it to you but testing and retesting is the game till your child is healed, it's not a 1 year journey!!! we have been doing this 7 years. I promise dr baptist is a smart and on top of it guy. he is your advocate but he may simpley feel that yeast isn't your big issue right now as well.....

lte me know what stools are like now and perhaps we can all help more. also what suppliments you are on

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Dr. Dean Ward Elko, NV~ chiropractor not and MD but we have MD on board with DAN! protocol...they both go slow.To: mb12 valtrex Sent: Sun, May 9, 2010 9:40:50 AMSubject: Re: Re: Valtrex

Who is your DAN! where is he located?

J

From: Traci Vowell <tracivowell@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Sun, May 9, 2010 11:02:32 AMSubject: Re: Re: Valtrex

This is exactly what our DAN! told us last October! Hanging in there,T

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Sun, May 9, 2010 8:17:59 AMSubject: Re: Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]

Dr. Dean Ward Elko, NV~ chiropractor not and MD but we have MD on board with DAN! protocol...they both go slow.To: mb12 valtrex Sent: Sun, May 9, 2010 9:40:50 AMSubject: Re: Re: Valtrex

Who is your DAN! where is he located?

J

From: Traci Vowell <tracivowell@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Sun, May 9, 2010 11:02:32 AMSubject: Re: Re: Valtrex

This is exactly what our DAN! told us last October! Hanging in there,T

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Sun, May 9, 2010 8:17:59 AMSubject: Re: Valtrex

Jeffery and others,

XMRV is a fairly new discovery, since November of last year. There are currently no treatment options, however there are many drug trials that have just started in the past months. This virus is going to be more like HIV(AIDS); where viral load has to be controlled. There are 2 drugs that they know will work on this retrovirus, however finding a doctor that knows about anti-retrovirus treatment I can't even begin to know. Dr. Mikoviz(spelling bad) said that this is why the vaccines are related to autism. 70-80% of the autism community has said that their child became autistic after a vaccine. People that have HIV are not suppose to get vaccines because it super stimulates the immune system as they are suppose to but when you do and if you have a retrovirus this turns the virus on and viral load increases. When you have a retrovirus you will get oppertunistic infections (like AIDS) b/c your immune system

is focused on the retrovirus. Testing is available however the cheapest test is in the neighborhood of $350.00. They have goals schedule, the CDC is actually working with Whittmore (which is a miracel in its self) to find a way to make testing cheaper. They are tring to set it up as getting tested for HIV. Canada and Australia have already banned people with cronic fatigue not to donate blood. The focus of the research is not focused on Autism but on cronic fatigue, however all of these dianosises have the same symtoms. This I believe most of us will find is the puzzle piece that ties them all together. The best we can do right now is to make sure we stay on top of the oppertunistic infections and make sure we supplement the immune system. When you look up symptoms of HIV you will find leaky gut, yeast overgrowth, herpes viruses, and the list goes on. There is also another article out there

that childern born HIV positive and arn't put on anti-retrovirals by the age of 2 the viral load increases so much that the child becomes autistic.... .. when givin anti-retrovials and viral load decrease, they recover. When I first read this I was in tears becuase it ties all of our childens problems together. They are working on this as fast as possible and a center in Nevada will be opening up this year with Whittmore if you have the resourses get your child help there. Combination treatments work wonders for all sorts of illnesses. The most aggressive cancer treatments are a combination of treatments, that is why I believe we see much improvement when we treat our kids with MB12, diflucan and VAltrex at the same time, nothing can hide behind the other. At least that is what I have been reading that this treatment is working great. Hang in there, I believe we will see the cure soon.

J

From: <jeffreycampbell58@ yahoo.com>To: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>Sent: Sun, May 9, 2010 8:29:50 AMSubject: Re: Valtrex

,

Thanks for the info. I will definitely read more. I just looked for a few minutes on their web site, and it sure looks like it could be a possibility for my son. Oh, I read your other posts on topic--definitely look into LDN--helps lots of kids with allergies to everything like yours and mine--to kind of "correct" this immune system damage. Oh, my dad and grandpa both have had prostate cancer, so that rang a bell too.

I think the Valtrex has helped some, but it's hard to say. Matt's been on it since last summer. We are going to retest the titers pretty soon. My son is one that doesn't seem to respond to much at all, but tests show these things should help, so we're hanging in there. Do you know how they treat the XMRV? My DAN said that Valtrex treats all viruses except measles--wondering if it would help with the XMRV, too. THanks so much!!

Meg

From: jennifer smiglewski <jjs7a7chemyahoo (DOT) com>To: <jeffreycampbell58@ yahoo.com>Sent: Sat, May 8, 2010 10:44:51 PMSubject: Re: Valtrex

Wow thanks for sharing. Did the valtrex help much? I am not sure if you have heard of XMRV, I encourage you to research this retrovirus. What I have been noticing is that with these neurological disorders and cancer the best approach is combination treatments. You can also look up Whittmore Lab. it is amazing what they do know about this retrovirus. They have already gotten human drug trials on the way for treatment. It won't be long before they will have a treatment for this virus. There is u-tube clips of the scientist that discoverd this retrovirus in 100% of cronic fatigue patients, and they also mentioned that about 80% of the autistic childern tested. Only 4% of the healthy pop. tested had XMRV. They also know that this retrovirus is the cause for very aggressive prostate cancer.

Good luck. Please keep in touch.

From: <jeffreycampbell58@ yahoo.com>To: jjs7a7chemyahoo (DOT) comSent: Sat, May 8, 2010 7:12:48 PMSubject: Valtrex,I'm too bashful to respond to the group, but thought you'd be interested in our story! Especially with the way that woman defended Dr. Baptist!!We also went to Dr. Baptist a few years ago. At the time, I didn't even know what Valtrex was, but I told him my son had shingles many many times and I was sure it was related. He just shrugged his shoulders and went on about the food allergy tests and diet, etc. We gave up on him--we were travelling quite a distance, and the diet he prescribed absolutely wore us out after a few months, and we didn't see improvement.We have

found a new DAN--we live in St. Louis and travel to Springfield IL to see Dr. Georgia . I found out about Valtrex before we saw her. I mentioned it to her and she immediately wrote out a script, even before the viral titers came back. The titers confirmed that our son had significant herpes/CMV issues. I think I've read that Dr. McCAndless and Stan Kurtz also recommend that every child with autism try Valtrex for a while to see if helpful, EVEN if the viral titers don't show herpes issues. I can't help you with finding anyone in the KC area unfortunately, but consider Dr. DAvis if you strike out. I know she does phone consults for out of town clients. But, just a warning, she does want us to either see her monthly, or visit her office monthly. I'm not sure if she does that with every client or not. I'm still ok with this because I think he still has lots of needs--viral, bacterial,

metals, etc.Oh, the other big treatments my son is on are OSR and LDN. Dr. Baptist never mentioned these to us, but I'm really hopeful that it will help my son. We're making slow progress here, but it's better than none!!!Good luck! Just had to share!!!Meg

[Guest guest]



biofilm is one of those treatments you have others things you want to do first like getting some gut healing done, working on yeast and bacteria to get out what you can to get to the biofilms, getting suppliements stocked up in the body, working on viral issues after all those things are taken care of then moveing on to mop up the biofilms you couldn't get.

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]



biofilm is one of those treatments you have others things you want to do first like getting some gut healing done, working on yeast and bacteria to get out what you can to get to the biofilms, getting suppliements stocked up in the body, working on viral issues after all those things are taken care of then moveing on to mop up the biofilms you couldn't get.

Re: Valtrex

Hey ,I am not much help but I know Christel sees Dr. Baptist and raves about him. He's on the Kansas side of "Kansas City." I don't know who you see, but just throwing that out there in case you are looking for a change.

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I would ask your ped for a herpies panel, and I would pull some other titers as well like measels (rubeola) mumps, rubella, ASO, Dnatanse B,. and others may have other sujestions. a regular ped can also run a CBC and thyroid panel and if you haven't done one an immune panel with some of the immune issues you are tlaking about. you want a IGG subclass, and IGG, IGA, and IGE total levels as well

Re: Valtrex

Oops,should have finished reading... LOL :-)

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I would ask your ped for a herpies panel, and I would pull some other titers as well like measels (rubeola) mumps, rubella, ASO, Dnatanse B,. and others may have other sujestions. a regular ped can also run a CBC and thyroid panel and if you haven't done one an immune panel with some of the immune issues you are tlaking about. you want a IGG subclass, and IGG, IGA, and IGE total levels as well

Re: Valtrex

Oops,should have finished reading... LOL :-)

On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote:

I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question:

Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin.

By the way happy mothers day everone!!!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

J~ do you do any ABA? Along with GF/CF/Sf, supp's...etc...all the others we've used in the last 2-3 yrs...we had to also implicate therapy, speech, sensory, ABA (Lovaas)..it is a long road with lot's of up and Downs~ it was only until recently we've seen good changes introducing Valtrex. I got my son on the diet at 20 months and haven't rested a day since......It is HARD work...everyday ALL DAY. Never stop reading, learning, getting into support group (TACA if you have one close by), get a TACA mentor..etc.My son is not recovered yet...we still have work....maybe always? We have a great DAN! who is cautious~ I go with my gut~ we've been lucky. I do not know all about biomed...it's hard to learn...i just listen to my DAN! and keep "fine tuning" (test, test, test) I try...I am not great with

advise but my BFF is pretty cool...ask Greenberg if you see her on here. Get lot's of advise and go with gut. P.S. My son bites too....when he's trying to get his twin to leave him alone.TTo: mb12 valtrex Sent: Sun, May 9, 2010 4:17:59 PMSubject: Re: Valtrex I would ask your ped for a herpies panel, and I would pull some other titers as well like measels (rubeola) mumps, rubella, ASO, Dnatanse B,. and others may have other sujestions. a regular ped can also run a CBC and thyroid panel and if you haven't done one an immune panel with some of the immune issues you are tlaking about. you want a IGG subclass, and IGG, IGA, and IGE total levels as well Re: Valtrex Oops,should have finished reading... LOL :-) On Sat, May 8, 2010 at 11:05 AM, jennifer smiglewski <jjs7a7chemyahoo (DOT) com> wrote: I am in Kansas City and was wondering if anyone has done the valtrex treatment with their child? I haven't been too impressed with the DAN doctor in our area. He doesn't listen to what we have to say; doesn't really try to problem solve. Everyone gets the same course of treatment. We actually found a wonderful Ped. who is willing to do bio-medical treatments, however the dr and I do not know where to begin. The things that I notice about my son is that his fingernail are horrible looking, which we got him on all the supplements the DAN dr recommended and we saw great improvement. When we went to treat his clostrdia and yeast the dr put our son on herbals and nystatin. The nystatin worked for about 2 months where we saw lots of yeast coming out and then it just stopped and his behavior got horrible. We continued on the nystatin for 5 weeks more and we saw no more yeast. We talked with the dr about switching to Diflucan, he wanted us to stay on the nystatin, so we tried it again and our baby was miserable again for the 2 weeks we put him back on it. Talked with the dr again and he still would not switch. The most frustrating thing in the world is when a dr doesn't listen to you. After that we lost faith in him. He wasn't willing to try new

things. I asked about Valtrex, and he said that that was way down the road. We decided to go a different route and find a dr that would listen to us and not ignore the systems that we see in Luke. By the way Luke has been on gf/cf and a version of the sc diet for over a year. Finally to the question: Has anyone tried a Valtrex treatment with their son? Could you get me started on the right course, so I can get the testing done by Luke's Ped? Is there titter testing involved? What should we titter test for? What kind of dosing should we be looking at? How long do is the general treatment plan? What should signs should I be looking for in Luke? We are going to do combination treatment and also put him on Diflucan. I really believe that combination treatment is the best course b/c all the infections relay upon one another to survive if you do one at a time you arn't really taking it out from all directions. I think that is why Nystatin stopped working the infections changed his body and I believe they played a role in making him become allergic to the Nystatin plus the yeast becaome tolerent of its toxin, nystatin. By the way happy mothers day everone!!!!! -- Toni------Mind like a steel trap...Rusty and illegal in 37 states.