Dan! conference- Allithiamine

[Guest guest]

Hi,

I'm looking for some information from the Dan! conference. I am

interested in what Jane El Dahr had to say about Allithiamine. We

are being urged to use this with our son and I wanted as much

information about this as I can get. I did see that Dr. McCandless

mentioned it in a recent post, however I don't remember reading

about it in her book. Any information would be helpful. Also,

information about B12 shots- (can't remember the medical name for

them) supposed ot help with hyperactivity and stim behaviors.Again,

any information will be appreciated.

Thanks in advance,

[Guest guest]

Max,

Dr. Lonsdale put my 105 lb child on 8 - 50mg Oral caps of TTFD per day. No

skunky smell noticed and we are going on the 9th month.

Michele

[Guest guest]

Dr. El Dahr did not attend the San Diego DAN! conference, but Drs.

Kartzinel and Bradsreet reported using Allithiamine (TTFD) with good

results. It apparently does not promote bad gut bugs or yeast. It

can be given orally, transdermally, or by suppository. I believe Dr.

Bradstreet said any of these would work. Apparently transdermal or

suppository use will lead to a 'skunky' smell; oral may do so also

but less frequently. Dr. Bradstreet did mention that Dr. El Dahr has

also used it. So her patients may want to ask her about her

experiences with it (and report here?).

Dr. McCandless has reported that she has not seen as good results

with oral as with transdermal use. Also, I believe Dr. Kartzinel

mentioned a dose of 50mg twice a day, but someone on this list

mentioned that Dr. Lonsdale (who published a study of Allithimine use

with a dose of 50mg twice a day) has actually used 4 to 6 50mg per

day. I think this is on the 'bleeding edge'; so there is no

consensus yet... It certainly looks like something to keep an eye on,

though.

B12 shots were also mentioned briefly, but I think they only really

came up during questions from the audience, and I wasn't quite as

tuned in at that point.

Max in VA

> Hi,

> I'm looking for some information from the Dan! conference. I am

> interested in what Jane El Dahr had to say about Allithiamine. We

> are being urged to use this with our son and I wanted as much

> information about this as I can get. I did see that Dr. McCandless

> mentioned it in a recent post, however I don't remember reading

> about it in her book. Any information would be helpful. Also,

> information about B12 shots- (can't remember the medical name for

> them) supposed ot help with hyperactivity and stim behaviors.Again,

> any information will be appreciated.

>

> Thanks in advance,

>

[Guest guest]

Max,

My daughter is doing great!! But, I am using all " guns " in addition

to allithiamine (TTFD) to get at metals, yeast and virus (ALA, tons of

supplements, enzymes, probiotics, antiyeast and antivirals). My child,

older, never dx'd autistic (regressed late elementary age after vacs & MMR

booster) was ADHD, CAPD, BiPolar, Pragmatic LD, Sensory problems, language

delays & social skill deficits seems to have lost the diagnosis of all except

perhaps some ADD and learning problems. She is keeping up beautifully with a

little redirection in her mainstream classes. Socially, a normal teen now

with friends! She has just seemed to have woken up in the last few months.

Things that she never seemed to be able to comprehend she is asking about and

understanding. Last night she asked me how credit cards worked. Recently

she went into a video store and rented a movie herself, pharmacy and picked

up her perscription herself. These are things she could not have done a few

months ago. Her communication skills are now great! She talks on the phone

like any other teen for hours! (before she would run through the house

yelling " what, what " if she had to talk on the phone). She has not had any

signs of OCD or anxiety in months .. AND she is now going to sleep and

actually sleeping through the night. Right after beginning the TTFD she

began writing down her dreams each morning as soon as she woke up. She told

me that she never had dreams before.

I honestly don't know what to contribute the advances too but think

the TTFD has some role in all this along WITH ALA & the rest. Dr. Lonsdale

was aware she was on ALA and told me to continue it when he put her on TTFD.

His book (Why I Left Orthodox Medicine) regarding his use of allithiamine is

very interesting. He talks about using it in children several years ago who

displayed spikes (common in these kids) and it stabilized them. His book

also mentions hyperactivity/SIDS, Reyes and other connections.

Again, I really don't know what part the TTFD is playing in recovering

my child, but I am continuing it! We do see another DAN (closer) in addition

to Dr. Lonsdale who takes care of the rest and between them AND the

information I have gotten off this list (Andy), chelatingkids2,

and Dana's information my child is improving in leaps and

bounds. I read it all, study it, run it by our main DAN and then make the

decision. I don't think there is any one magic bullet. It is all the

treatments combined and lots of work & time.

Someone mentioned that the capsules stunk so shouldn't be opened.

Since I have to give my daugher soooo many each day including all the rest, I

do open the 8 and combine them into larger capsules to make 4. They have a

sulpher odor but I don't think it is terrible.

Michele

[Guest guest]

9th month? So tell us how this is working out for you. Are you

seeing any benefit? Have you checked for any metals coming out, e.g.

urine toxic elements test? Are you chelating with anything else,

e.g. DMSA and/or ALA? Any gut bugs? Anything else you've learned

about Allithimine you can share with us?

Sorry for all the questions, but it sounds like you're probably one

of our most experienced veterans with Allithiamine at this point.

TIA for any info,

Max in VA

> Max,

> Dr. Lonsdale put my 105 lb child on 8 - 50mg Oral caps of TTFD per

day. No

> skunky smell noticed and we are going on the 9th month.

> Michele

>

>

>

[Guest guest]

I am in the US. I get it from the Doctor who prescribed it and did the

study.

Michele

[Guest guest]

This is wonderful. I'm very happy for your daughter. Next thing, she will ask

for your credit card, and then you're really going to be in trouble! When you

mention your daughter's age, how old is " older " ? Would you mind sharing which

kind of antiviral you are using? Thanks,

Sharon

Re: [ ] Re: Dan! conference- Allithiamine

Max,

My daughter is doing great!! But, I am using all " guns " in addition

to allithiamine (TTFD) to get at metals, yeast and virus (ALA, tons of

supplements, enzymes, probiotics, antiyeast and antivirals). My child,

older, never dx'd autistic (regressed late elementary age after vacs & MMR

booster) was ADHD, CAPD, BiPolar, Pragmatic LD, Sensory problems, language

delays & social skill deficits seems to have lost the diagnosis of all except

perhaps some ADD and learning problems. She is keeping up beautifully with a

little redirection in her mainstream classes. Socially, a normal teen now

with friends! She has just seemed to have woken up in the last few months.

Things that she never seemed to be able to comprehend she is asking about and

understanding. Last night she asked me how credit cards worked. Recently

she went into a video store and rented a movie herself, pharmacy and picked

up her perscription herself. These are things she could not have done a few

months ago. Her communication skills are now great! She talks on the phone

like any other teen for hours! (before she would run through the house

yelling " what, what " if she had to talk on the phone). She has not had any

signs of OCD or anxiety in months .. AND she is now going to sleep and

actually sleeping through the night. Right after beginning the TTFD she

began writing down her dreams each morning as soon as she woke up. She told

me that she never had dreams before.

I honestly don't know what to contribute the advances too but think

the TTFD has some role in all this along WITH ALA & the rest. Dr. Lonsdale

was aware she was on ALA and told me to continue it when he put her on TTFD.

His book (Why I Left Orthodox Medicine) regarding his use of allithiamine is

very interesting. He talks about using it in children several years ago who

displayed spikes (common in these kids) and it stabilized them. His book

also mentions hyperactivity/SIDS, Reyes and other connections.

Again, I really don't know what part the TTFD is playing in recovering

my child, but I am continuing it! We do see another DAN (closer) in addition

to Dr. Lonsdale who takes care of the rest and between them AND the

information I have gotten off this list (Andy), chelatingkids2,

and Dana's information my child is improving in leaps and

bounds. I read it all, study it, run it by our main DAN and then make the

decision. I don't think there is any one magic bullet. It is all the

treatments combined and lots of work & time.

Someone mentioned that the capsules stunk so shouldn't be opened.

Since I have to give my daugher soooo many each day including all the rest, I

do open the 8 and combine them into larger capsules to make 4. They have a

sulpher odor but I don't think it is terrible.

Michele

[Guest guest]

What an encouraging post!

Thanks,

Max

> Max,

>

> My daughter is doing great!! But, I am using all " guns " in

addition

> to allithiamine (TTFD) to get at metals, yeast and virus (ALA, tons

of

> supplements, enzymes, probiotics, antiyeast and antivirals). My

child,

> older, never dx'd autistic (regressed late elementary age after

vacs & MMR

> booster) was ADHD, CAPD, BiPolar, Pragmatic LD, Sensory problems,

language

> delays & social skill deficits seems to have lost the diagnosis of

all except

> perhaps some ADD and learning problems. She is keeping up

beautifully with a

> little redirection in her mainstream classes. Socially, a normal

teen now

> with friends! She has just seemed to have woken up in the last

few months.

> Things that she never seemed to be able to comprehend she is asking

about and

> understanding. Last night she asked me how credit cards worked.

Recently

> she went into a video store and rented a movie herself, pharmacy

and picked

> up her perscription herself. These are things she could not have

done a few

> months ago. Her communication skills are now great! She talks on

the phone

> like any other teen for hours! (before she would run through the

house

> yelling " what, what " if she had to talk on the phone). She has not

had any

> signs of OCD or anxiety in months .. AND she is now going to sleep

and

> actually sleeping through the night. Right after beginning the

TTFD she

> began writing down her dreams each morning as soon as she woke up.

She told

> me that she never had dreams before.

> I honestly don't know what to contribute the advances too

but think

> the TTFD has some role in all this along WITH ALA & the rest. Dr.

Lonsdale

> was aware she was on ALA and told me to continue it when he put her

on TTFD.

> His book (Why I Left Orthodox Medicine) regarding his use of

allithiamine is

> very interesting. He talks about using it in children several

years ago who

> displayed spikes (common in these kids) and it stabilized them.

His book

> also mentions hyperactivity/SIDS, Reyes and other connections.

> Again, I really don't know what part the TTFD is playing in

recovering

> my child, but I am continuing it! We do see another DAN (closer)

in addition

> to Dr. Lonsdale who takes care of the rest and between them AND the

> information I have gotten off this list (Andy), chelatingkids2,

> and Dana's information my child is improving in

leaps and

> bounds. I read it all, study it, run it by our main DAN and then

make the

> decision. I don't think there is any one magic bullet. It is all

the

> treatments combined and lots of work & time.

> Someone mentioned that the capsules stunk so shouldn't be

opened.

> Since I have to give my daugher soooo many each day including all

the rest, I

> do open the 8 and combine them into larger capsules to make 4.

They have a

> sulpher odor but I don't think it is terrible.

> Michele

>

>

>

[Guest guest]

I just read the report on TTFD and I thought that it said it wasn't

available in the US. How do you get this in the US or did i just

assume you were from the US and you are not.

Patti

> Max,

>

> My daughter is doing great!! But, I am using all " guns " in

addition

> to allithiamine (TTFD) to get at metals, yeast and virus (ALA,

tons of

> supplements, enzymes, probiotics, antiyeast and antivirals).

[Guest guest]

<< his is wonderful. I'm very happy for your daughter. Next thing, she will

ask for your credit card, and then you're really going to be in trouble! When

you mention your daughter's age, how old is " older " ? Would you mind sharing

which kind of antiviral you are using? Thanks,

Sharon >>

My daughter is 16. Antivirals: olive leaf extract, elderberry extract,

monolaurin, vitamine A so far. Monolaurin constantly. Elderberry extract 2

months then 2 week break then restart. Olive leaf extract constantly.

[Guest guest]

Michele,

Your daughter sounds a lot like my 8 year old daughter. She never had

typical autistic characteristics and never met the requirements for ADD or

ADHD, but her tests revealed many of the autism markers and her hair test

indicated mercury (ANDY CONFIRMED IT). It would be great to hear more about

the child who is on the far right of the Autistic Spectrum. My daughter is

gifted intellectually, so we have her in a small, private school for gifted

kids. It is for normal but gifted kids. She is not exactly as social as the

girls her age, but she is good sometimes. She has trouble with focus at

times, but she is so smart that she makes up for it. Is this similar to your

child?

Tell us more about Allithiamine. Who should try it?

Thanks,

[Guest guest]

In a message dated 11/4/2002 4:18:05 PM Eastern Standard Time,

AndyCutler@... writes:

> http://emersonecologics.com/ProductInformation.asp?BrowseBy=ALLIT

Andy,

What I get from the doctors office is 250 count at 45.00. Would be

interested in a large quantity at a discounted price as this one would be

much more. Any idea, or is the larger size only available to doctors?

Michele

[Guest guest]

> << his is wonderful. I'm very happy for your daughter. Next thing,

she will

> ask for your credit card, and then you're really going to be in

trouble! When

> you mention your daughter's age, how old is " older " ? Would you mind

sharing

> which kind of antiviral you are using? Thanks,

> Sharon >>

>

> My daughter is 16. Antivirals: olive leaf extract, elderberry

extract,

> monolaurin, vitamine A so far.

Do recall that vitamin A should be limited to 10,000 IU a day in women

who can become pregnant unless there is utter certainty it will not

happen. Parents seldom have adequate certainty of this for it to be

wise not to limit the dose. . .. . . .

>Monolaurin constantly. Elderberry extract 2

> months then 2 week break then restart. Olive leaf extract

con

[Guest guest]

>>gifted intellectually, so we have her in a small, private school for gifted

kids.  It is for normal but gifted kids.  She is not exactly as social as the

girls her age, but she is good sometimes.  She has trouble with focus at

times, but she is so smart that she makes up for it.  Is this similar to your

child?

>>Tell us more about Allithiamine.  Who should try it?

Hi ,

My daughter is gifted in some ways also. She plays electric guitar and

violin beautifully. When she was younger I was told she could hear the

difference in an 8th note. I know nothing about music but this seemed to

impress her music teachers. She can play by reading or by ear. I have

always noticed she seemed to be extremely bright in a lot of visual areas

too. I believe some call these splinter skills. I have read about how this

is one area of the brain that mercury doesn't affect or perhaps by some weird

way enhances. Maybe Andy could comment on that.

As far as who should try allithiamine, I am sorry but I am not qualified to

answer that one as my daughter was put on this by a doctor after studying her

test records and history. I would assume it would not hurt, but everyone may

react differently. I really don't know.

Michele

[Guest guest]

> I am in the US. I get it from the Doctor who prescribed it and did

the

> study.

> Michele

Check

http://emersonecologics.com/ProductInformation.asp?BrowseBy=ALLIT

and you will find it is available OTC.

An interested mother tracked this down and told me where to find it.

Andy . . .. . . . . . .. . .

[Guest guest]

> > http://emersonecologics.com/ProductInformation.asp?BrowseBy=ALLIT

>

> What I get from the doctors office is 250 count at 45.00. Would be

> interested in a large quantity at a discounted price as this one

would be

> much more. Any idea, or is the larger size only available to

doctors?

I don't know. Search around. Also, what is the dosage the doc gives

you compared to the hotlink above? . . .. . . . . . .

> Miche