Re: Re: note from Jim's wife

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{{{{{{{{Jim'sWife}}}}}}}} It does sound like you need a better doctor. Someone who will listen to you, talk with you, understand and respect you. Do you have many options for other doctors where you are? HUGS, Challis Jim wrote: Jim's Wife here:We are also trying to have a family, so the whole slew of drugs had been off the table. Fortunately for me, I had never had a symptom this bad

before. Unfortunately, I'm being hit w/ what I'm calling "log leg" and "log arm" and random wandering patches of numbness all together at the worst possible time. I was given a shot of something by my sub PCP on Wednesday. Unfortunately, it just made me feel sick Thursday.I spent all yesterday morning in bed (ok, if I don't walk around on log leg, I don't notice it) looking up stuff on our health plan. I've got a list of people we are calling -- the big neuro clinic, and a list of new PCPs (closer to me, someone not scared of MS) to call as well. Right now it sounds like about all I can do. I know my current PCP doesn't "do those MS drugs." *sigh*. If I can't walk or pick up stuff, I will go into the ER for the hospital my Neuro works for. I'm glad that this group exists. I've spent a lot of nights in tears lately not knowing what I am supposed to do about anything. It's become abundantly

clear that a doctor who cuts off my questions and then says if I don't get on drugs I could wake up one morning paralyzed, so better get pregnant fast is NOT the doctor for me... and it doesn't sound like the doctor most of you have. -Jim's Wife Hi Jim and Jim's wife,I am really sorry about the problems with your doctors!If I have understood it correctly, the only thing that can be done in the ER about new symptoms ( i.e. a new relapse) in RRMS, is to treat it with steroids. But as you are already on steroids (prednisone), I don't know if they would think it meaningful to give more/other

steroids. According to the MS-Society, not all relapses merit the use of steroids (they say 10-20% of all relapses), but it's all very much depending on how disabling you feel that the symptoms are, and that can and do vary from person to person, so it's only you who can, in the end make that decision (you can read more about the use of steroids in treating MS here: http://www.mssociet y.org.uk/about_ms/relapses/steroids_and_man.html )I might add that one symptom that I think should be taken to the ER, or to your neuro (when you have one), regardless, is if you can't pee, because that has possible damaging effects on your kidneys. If I may ask, is there a reason you are not on any of the disease modifying drugs (Copaxone, Rebif, Avonex, Betaseron)?love/Reb – like in your case, my wife, , is the one with MS, but I am the one doing

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