Bls: Re: in despair, at a loss

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Dear ,

Thank you very much for your kind advice, I will look up more information but I dont think his mercury level is too high. I've made the decision to go with the Nystatin as my Dan said that he's used it and seen results and I shouldnt be too worried. I cannot substitute with coconut as its class IV allergy food for my son, but i will try the almond again once his cough clears up which seems like never. He's very clingy and depressed now, today is the first day of full supplementation and I had to forcefeed him, so he was teary in school and his playgroup teacher mentioned that he had been sad for the past couple of days. On hind sight maybe the break from probiotics for 1 week + was the thing that him crumbling down, now I'm careful to keep stock for extra. Cos it's so difficult, I have to cross countries to get his supplements for him and then I'm working from Mon-Fri. But I'll definitely hang on there, for his sake. We'll start the full

supplementation for 1 week first and then add in the Nystatin once the supplement regime is well taken in.

Thank you once again for taking the time to give me your precious suggestion, your words will definitely help me through difficult times, knowing that I'm definitely not alone.

Rgrds,

Fanny

Dari: mbrookh Kepada: mb12 valtrex Terkirim: Sel, 23 November, 2010 03:11:33Judul: Re: in despair, at a loss

Nina,Have you looked at the information on http://health.groups.yahoo.com/group/Autism-Mercury/ As long as you have a Hair Elements Test[from Doctor's Data, I hope] you can use the Cutler way to count out those results to determine if mercury may be an issue. If so, low and slow chelation may be of great benefit. There's lots of info in the files of that group and help on line. Nystatin has been the only thing that we could prescription wise for gut and it does do something positive for my daughter. I've increased biotin too and have had good results controlng yeast. Soy free was very important for us. Both gluten and casein provoke seizures for my daughter and soy makes her VERY irritable and close to seizure mode. We've gone years without using a 'milk' substitute at meals. For cooking, we use coconut milk and brew our own yogurt from this. Probiotics

without a strep strain was also important here. Combination vitamin/mineral products were not tolerated here - lots of reasons. Allergy to yeast made the usual choline bitartrate unusable as it caused wild behavior as did folic and folinic acid[she needed the 5 methyl folate] etc The couple of times we tried an amino acid complex based on testing results were disasterous so we've never reintroduced that. Just a few thoughts. Don't think of it as trying to be your child's doc. Your love and courage will sustain you in this. You are your little one's life line and you will manage, I know. >> Help someone, I'm really at a loss at what to do for my son, considering my location, the Dan in Singapore that I manage to contact is on

leave indefinitely which make it so difficult for discussion. Everytime I see Ethan's videos, i will have tears running down, cos looking at the before videos, its like my son. I wonder when that miracle will happen for my son. I wish I live in America or Europe where I will have access to so many expert advice and help. Knowing that there are so many alternatives available to try but having to stall and wait just because everything is so incoveniently out of easy access. I wish I can go into this without any expert advice but I know that I cannot be my own doctor. It is really exasperating and I am dying inside with the passing of each day, that I just let the days pass by 1 day at a time doing nothing for my son, whom looking at Ethan, I know have the same chance of recovering fully from his mild autism. We have went for the OAT, hair metal element test, the stool yeast culture. And the Dan clinic have suggested these supplements:> - Doctor's

Formula, Formula 1 (vitamins, minerals and amino acids)> - Similase> - Probiotics> - L-glutamine> - 5HTP> - CoQ10> and after his stool yeast test, the Dan advise on Nystatin for 1 mth. in Stan's article I've read about how Nystatin is not as effective as Nizoral or Diflucan and so I asked if we can instead change the Nystatin for Nizoral or Diflucan. And I've received a reply that they have used Nystatin so far and it had worked. so I just pasted Stan's website and asked them to please consider.> I'm just at a loss here so if anyone can just please point me in the right direction, cos I'm so alone here, we dont have lots of expert in this field where I am here(indonesia). and I'm really doing all these reading for information all alone, found the dan on my own. > What we have done so far is only to go on the GFCF diet, but we're not completely SF yet cos when I was going to change the soymilk to

almond, he went down with cough (which is a common sickness with him which happens on a very regular basis) and maybe that was at the time when I ran out of the probiotics. and we've started on the formula 1, so when the probiotics ran out, he started to cough and increased hyperactivity and it seems that he's back to the old autistic state.> Oh my God, I'm really ranting here, sorry but i really have no one to talk to, not my parents not my husband, they just couldnt be bothered with the details, they just wanna sit back and see the results. I have to find the way out, please someone, can someone push me in the right direction.> > Thank you> Fanny>