Therapy advice needed PLEASE! I need some help...

[Guest guest]

how does your son do in school? Is he in a preschool yet?

I am asking because I am just worried that if he is that non-compliant with a therapist , he might act the same way in school.

What are TSS services? Is that a form of ABA or DTT? If so, then you just dont have good therapist (sorry to say). They should be able to change his behavior, attendance, attention to task, etc if they know what they are doing.

Are you state funded? If so, just talk into getting a different agency.

For us , it took about 2 weeks of screaming and not wanting to do anything whatsoever but after that we have only seen progress from his program (it has been now almost 2 years).

I do DTT, OT, Speech, biomedical and homeopathy and all of that seems to be helping his overall treatment.

He is now 4 and in a typical preschool with an aide.

I recovered mine without any behavioral therapy. Two had speech services, but only because one is now 18, so there was not biomed when he was little and the other got speech services, which weren't working, before I adopted her. I would focus more on biomed, and do behavioral therapies only if convenient or if biomed wasn't working enough.Love and prayers,Heidi NOk, I know this board is mainly about biomedical treatments, etc which I am currently doing many with my 3 yr old son diagnosed with PDD nos with positive results. However, I do know that behavioral therapy is also important for recovery as well and I have a big dilemma.Here's the problem, we live in a rather economicaly depressed area of PA and there are no good agencies or programs that actually help the any children who go to them. My son has had TSS services for a year and a half now (he is almost 4) and he is still not tolerating therapy, making any progress with the TSS and screams and is defiant the entire time.Now to give some background, he is high functioning, and though he never stops babbling he is non-verbal and has virtually no functional communication. His stimmming and other behavior issues have been relatively under control through our own interventions and biomedical treatments. The OT from early intervention before he turned 3 was the only therapist to ever get through to him and she did aggressive hand over hand for a year, suffering through the kicks and screams, and head banging. He does repond to family when we try to teach him things, but never to the TSS. He is so upset when she is here that he wll not cooperate or even listen to me or her the whole time.We have had several agencies, several BSC's and 4 TSS so far and no one has had any answers for me as to what we should be doing. Should we be as aggressive as his former OT? They just look at me and ask me what I want to do. I just want to scream that if I knew what to do for him I wouldn't have you people in my home all week making us all miserable with no results!! Every suggestion has to do with me basicall figuring out what will work on my own. Which I am trying to do.But, if I have to do this on my own, what the hell do I need these people for? This is how I am feeling, my mother in law and husband also feel the same way.I really want to just stop his therapy. He has started outpatient speech that we have to travel for to get a decent therapist. I am afraid I would be cutting off resources or something. I don't know. I just need someone who has gone through something like this or has any knowledge or advice because no "professional" in my area has any answers for me at all.Should I just stop the TSS?Thank you so much for any advice!!

[Guest guest]

how does your son do in school? Is he in a preschool yet?

I am asking because I am just worried that if he is that non-compliant with a therapist , he might act the same way in school.

What are TSS services? Is that a form of ABA or DTT? If so, then you just dont have good therapist (sorry to say). They should be able to change his behavior, attendance, attention to task, etc if they know what they are doing.

Are you state funded? If so, just talk into getting a different agency.

For us , it took about 2 weeks of screaming and not wanting to do anything whatsoever but after that we have only seen progress from his program (it has been now almost 2 years).

I do DTT, OT, Speech, biomedical and homeopathy and all of that seems to be helping his overall treatment.

He is now 4 and in a typical preschool with an aide.

I recovered mine without any behavioral therapy. Two had speech services, but only because one is now 18, so there was not biomed when he was little and the other got speech services, which weren't working, before I adopted her. I would focus more on biomed, and do behavioral therapies only if convenient or if biomed wasn't working enough.Love and prayers,Heidi NOk, I know this board is mainly about biomedical treatments, etc which I am currently doing many with my 3 yr old son diagnosed with PDD nos with positive results. However, I do know that behavioral therapy is also important for recovery as well and I have a big dilemma.Here's the problem, we live in a rather economicaly depressed area of PA and there are no good agencies or programs that actually help the any children who go to them. My son has had TSS services for a year and a half now (he is almost 4) and he is still not tolerating therapy, making any progress with the TSS and screams and is defiant the entire time.Now to give some background, he is high functioning, and though he never stops babbling he is non-verbal and has virtually no functional communication. His stimmming and other behavior issues have been relatively under control through our own interventions and biomedical treatments. The OT from early intervention before he turned 3 was the only therapist to ever get through to him and she did aggressive hand over hand for a year, suffering through the kicks and screams, and head banging. He does repond to family when we try to teach him things, but never to the TSS. He is so upset when she is here that he wll not cooperate or even listen to me or her the whole time.We have had several agencies, several BSC's and 4 TSS so far and no one has had any answers for me as to what we should be doing. Should we be as aggressive as his former OT? They just look at me and ask me what I want to do. I just want to scream that if I knew what to do for him I wouldn't have you people in my home all week making us all miserable with no results!! Every suggestion has to do with me basicall figuring out what will work on my own. Which I am trying to do.But, if I have to do this on my own, what the hell do I need these people for? This is how I am feeling, my mother in law and husband also feel the same way.I really want to just stop his therapy. He has started outpatient speech that we have to travel for to get a decent therapist. I am afraid I would be cutting off resources or something. I don't know. I just need someone who has gone through something like this or has any knowledge or advice because no "professional" in my area has any answers for me at all.Should I just stop the TSS?Thank you so much for any advice!!

[Guest guest]

Ok, I know this board is mainly about biomedical treatments, etc which I am

currently doing many with my 3 yr old son diagnosed with PDD nos with positive

results. However, I do know that behavioral therapy is also important for

recovery as well and I have a big dilemma.

Here's the problem, we live in a rather economicaly depressed area of PA and

there are no good agencies or programs that actually help the any children who

go to them. My son has had TSS services for a year and a half now (he is almost

4) and he is still not tolerating therapy, making any progress with the TSS and

screams and is defiant the entire time.

Now to give some background, he is high functioning, and though he never stops

babbling he is non-verbal and has virtually no functional communication. His

stimmming and other behavior issues have been relatively under control through

our own interventions and biomedical treatments. The OT from early intervention

before he turned 3 was the only therapist to ever get through to him and she did

aggressive hand over hand for a year, suffering through the kicks and screams,

and head banging. He does repond to family when we try to teach him things, but

never to the TSS. He is so upset when she is here that he wll not cooperate or

even listen to me or her the whole time.

We have had several agencies, several BSC's and 4 TSS so far and no one has had

any answers for me as to what we should be doing. Should we be as aggressive as

his former OT? They just look at me and ask me what I want to do. I just want to

scream that if I knew what to do for him I wouldn't have you people in my home

all week making us all miserable with no results!! Every suggestion has to do

with me basicall figuring out what will work on my own. Which I am trying to do.

But, if I have to do this on my own, what the hell do I need these people for?

This is how I am feeling, my mother in law and husband also feel the same way.

I really want to just stop his therapy. He has started outpatient speech that we

have to travel for to get a decent therapist. I am afraid I would be cutting off

resources or something. I don't know. I just need someone who has gone through

something like this or has any knowledge or advice because no " professional " in

my area has any answers for me at all.

Should I just stop the TSS?

Thank you so much for any advice!!

[Guest guest]

IS the behavior mainly due to therapy or possibly he is experiencing some pain

in his body and is frustrated not to be able to communicate. There is center in

PA:

http://www.keystonensc.com/

One of their staff is trained in D.A.N. protocol. I think they also take

insurance. As you address his medical needs then he may exhibit less behaviors.

Since he is high functioning and nonverbal, I can see why he would be

frustrated. He can't make his needs known. See if you get the speech therapist

to help you develop a functional communication whether through pecs, sign, a

communication device.

Do you have a case manager in PA for your son? I don't know how the state

works. If you do, ask case manager to help you with resources and to give you

some direction.

Marie

>

> Ok, I know this board is mainly about biomedical treatments, etc which I am

currently doing many with my 3 yr old son diagnosed with PDD nos with positive

results. However, I do know that behavioral therapy is also important for

recovery as well and I have a big dilemma.

>

> Here's the problem, we live in a rather economicaly depressed area of PA and

there are no good agencies or programs that actually help the any children who

go to them. My son has had TSS services for a year and a half now (he is almost

4) and he is still not tolerating therapy, making any progress with the TSS and

screams and is defiant the entire time.

>

> Now to give some background, he is high functioning, and though he never stops

babbling he is non-verbal and has virtually no functional communication. His

stimmming and other behavior issues have been relatively under control through

our own interventions and biomedical treatments. The OT from early intervention

before he turned 3 was the only therapist to ever get through to him and she did

aggressive hand over hand for a year, suffering through the kicks and screams,

and head banging. He does repond to family when we try to teach him things, but

never to the TSS. He is so upset when she is here that he wll not cooperate or

even listen to me or her the whole time.

>

> We have had several agencies, several BSC's and 4 TSS so far and no one has

had any answers for me as to what we should be doing. Should we be as aggressive

as his former OT? They just look at me and ask me what I want to do. I just want

to scream that if I knew what to do for him I wouldn't have you people in my

home all week making us all miserable with no results!! Every suggestion has to

do with me basicall figuring out what will work on my own. Which I am trying to

do.

>

> But, if I have to do this on my own, what the hell do I need these people for?

This is how I am feeling, my mother in law and husband also feel the same way.

>

> I really want to just stop his therapy. He has started outpatient speech that

we have to travel for to get a decent therapist. I am afraid I would be cutting

off resources or something. I don't know. I just need someone who has gone

through something like this or has any knowledge or advice because no

" professional " in my area has any answers for me at all.

>

> Should I just stop the TSS?

>

>

> Thank you so much for any advice!!

>

[Guest guest]

IS the behavior mainly due to therapy or possibly he is experiencing some pain

in his body and is frustrated not to be able to communicate. There is center in

PA:

http://www.keystonensc.com/

One of their staff is trained in D.A.N. protocol. I think they also take

insurance. As you address his medical needs then he may exhibit less behaviors.

Since he is high functioning and nonverbal, I can see why he would be

frustrated. He can't make his needs known. See if you get the speech therapist

to help you develop a functional communication whether through pecs, sign, a

communication device.

Do you have a case manager in PA for your son? I don't know how the state

works. If you do, ask case manager to help you with resources and to give you

some direction.

Marie

>

> Ok, I know this board is mainly about biomedical treatments, etc which I am

currently doing many with my 3 yr old son diagnosed with PDD nos with positive

results. However, I do know that behavioral therapy is also important for

recovery as well and I have a big dilemma.

>

> Here's the problem, we live in a rather economicaly depressed area of PA and

there are no good agencies or programs that actually help the any children who

go to them. My son has had TSS services for a year and a half now (he is almost

4) and he is still not tolerating therapy, making any progress with the TSS and

screams and is defiant the entire time.

>

> Now to give some background, he is high functioning, and though he never stops

babbling he is non-verbal and has virtually no functional communication. His

stimmming and other behavior issues have been relatively under control through

our own interventions and biomedical treatments. The OT from early intervention

before he turned 3 was the only therapist to ever get through to him and she did

aggressive hand over hand for a year, suffering through the kicks and screams,

and head banging. He does repond to family when we try to teach him things, but

never to the TSS. He is so upset when she is here that he wll not cooperate or

even listen to me or her the whole time.

>

> We have had several agencies, several BSC's and 4 TSS so far and no one has

had any answers for me as to what we should be doing. Should we be as aggressive

as his former OT? They just look at me and ask me what I want to do. I just want

to scream that if I knew what to do for him I wouldn't have you people in my

home all week making us all miserable with no results!! Every suggestion has to

do with me basicall figuring out what will work on my own. Which I am trying to

do.

>

> But, if I have to do this on my own, what the hell do I need these people for?

This is how I am feeling, my mother in law and husband also feel the same way.

>

> I really want to just stop his therapy. He has started outpatient speech that

we have to travel for to get a decent therapist. I am afraid I would be cutting

off resources or something. I don't know. I just need someone who has gone

through something like this or has any knowledge or advice because no

" professional " in my area has any answers for me at all.

>

> Should I just stop the TSS?

>

>

> Thank you so much for any advice!!

>

[Guest guest]

I recovered mine without any behavioral therapy. Two had speech

services, but only because one is now 18, so there was not biomed when

he was little and the other got speech services, which weren't working,

before I adopted her. I would focus more on biomed, and do behavioral

therapies only if convenient or if biomed wasn't working enough.

Love and prayers,

Heidi N

Ok, I know this board is mainly about biomedical treatments, etc which I

am currently doing many with my 3 yr old son diagnosed with PDD nos with

positive results. However, I do know that behavioral therapy is also

important for recovery as well and I have a big dilemma.

Here's the problem, we live in a rather economicaly depressed area of PA

and there are no good agencies or programs that actually help the any

children who go to them. My son has had TSS services for a year and a

half now (he is almost 4) and he is still not tolerating therapy, making

any progress with the TSS and screams and is defiant the entire time.

Now to give some background, he is high functioning, and though he never

stops babbling he is non-verbal and has virtually no functional

communication. His stimmming and other behavior issues have been

relatively under control through our own interventions and biomedical

treatments. The OT from early intervention before he turned 3 was the

only therapist to ever get through to him and she did aggressive hand

over hand for a year, suffering through the kicks and screams, and head

banging. He does repond to family when we try to teach him things, but

never to the TSS. He is so upset when she is here that he wll not

cooperate or even listen to me or her the whole time.

We have had several agencies, several BSC's and 4 TSS so far and no one

has had any answers for me as to what we should be doing. Should we be

as aggressive as his former OT? They just look at me and ask me what I

want to do. I just want to scream that if I knew what to do for him I

wouldn't have you people in my home all week making us all miserable

with no results!! Every suggestion has to do with me basicall figuring

out what will work on my own. Which I am trying to do.

But, if I have to do this on my own, what the hell do I need these

people for? This is how I am feeling, my mother in law and husband also

feel the same way.

I really want to just stop his therapy. He has started outpatient speech

that we have to travel for to get a decent therapist. I am afraid I

would be cutting off resources or something. I don't know. I just need

someone who has gone through something like this or has any knowledge or

advice because no " professional " in my area has any answers for me at all.

Should I just stop the TSS?

Thank you so much for any advice!!

[Guest guest]

I recovered mine without any behavioral therapy. Two had speech

services, but only because one is now 18, so there was not biomed when

he was little and the other got speech services, which weren't working,

before I adopted her. I would focus more on biomed, and do behavioral

therapies only if convenient or if biomed wasn't working enough.

Love and prayers,

Heidi N

Ok, I know this board is mainly about biomedical treatments, etc which I

am currently doing many with my 3 yr old son diagnosed with PDD nos with

positive results. However, I do know that behavioral therapy is also

important for recovery as well and I have a big dilemma.

Here's the problem, we live in a rather economicaly depressed area of PA

and there are no good agencies or programs that actually help the any

children who go to them. My son has had TSS services for a year and a

half now (he is almost 4) and he is still not tolerating therapy, making

any progress with the TSS and screams and is defiant the entire time.

Now to give some background, he is high functioning, and though he never

stops babbling he is non-verbal and has virtually no functional

communication. His stimmming and other behavior issues have been

relatively under control through our own interventions and biomedical

treatments. The OT from early intervention before he turned 3 was the

only therapist to ever get through to him and she did aggressive hand

over hand for a year, suffering through the kicks and screams, and head

banging. He does repond to family when we try to teach him things, but

never to the TSS. He is so upset when she is here that he wll not

cooperate or even listen to me or her the whole time.

We have had several agencies, several BSC's and 4 TSS so far and no one

has had any answers for me as to what we should be doing. Should we be

as aggressive as his former OT? They just look at me and ask me what I

want to do. I just want to scream that if I knew what to do for him I

wouldn't have you people in my home all week making us all miserable

with no results!! Every suggestion has to do with me basicall figuring

out what will work on my own. Which I am trying to do.

But, if I have to do this on my own, what the hell do I need these

people for? This is how I am feeling, my mother in law and husband also

feel the same way.

I really want to just stop his therapy. He has started outpatient speech

that we have to travel for to get a decent therapist. I am afraid I

would be cutting off resources or something. I don't know. I just need

someone who has gone through something like this or has any knowledge or

advice because no " professional " in my area has any answers for me at all.

Should I just stop the TSS?

Thank you so much for any advice!!

[Guest guest]

I recovered mine without any behavioral therapy. Two had speech

services, but only because one is now 18, so there was not biomed when

he was little and the other got speech services, which weren't working,

before I adopted her. I would focus more on biomed, and do behavioral

therapies only if convenient or if biomed wasn't working enough.

Love and prayers,

Heidi N

Ok, I know this board is mainly about biomedical treatments, etc which I

am currently doing many with my 3 yr old son diagnosed with PDD nos with

positive results. However, I do know that behavioral therapy is also

important for recovery as well and I have a big dilemma.

Here's the problem, we live in a rather economicaly depressed area of PA

and there are no good agencies or programs that actually help the any

children who go to them. My son has had TSS services for a year and a

half now (he is almost 4) and he is still not tolerating therapy, making

any progress with the TSS and screams and is defiant the entire time.

Now to give some background, he is high functioning, and though he never

stops babbling he is non-verbal and has virtually no functional

communication. His stimmming and other behavior issues have been

relatively under control through our own interventions and biomedical

treatments. The OT from early intervention before he turned 3 was the

only therapist to ever get through to him and she did aggressive hand

over hand for a year, suffering through the kicks and screams, and head

banging. He does repond to family when we try to teach him things, but

never to the TSS. He is so upset when she is here that he wll not

cooperate or even listen to me or her the whole time.

We have had several agencies, several BSC's and 4 TSS so far and no one

has had any answers for me as to what we should be doing. Should we be

as aggressive as his former OT? They just look at me and ask me what I

want to do. I just want to scream that if I knew what to do for him I

wouldn't have you people in my home all week making us all miserable

with no results!! Every suggestion has to do with me basicall figuring

out what will work on my own. Which I am trying to do.

But, if I have to do this on my own, what the hell do I need these

people for? This is how I am feeling, my mother in law and husband also

feel the same way.

I really want to just stop his therapy. He has started outpatient speech

that we have to travel for to get a decent therapist. I am afraid I

would be cutting off resources or something. I don't know. I just need

someone who has gone through something like this or has any knowledge or

advice because no " professional " in my area has any answers for me at all.

Should I just stop the TSS?

Thank you so much for any advice!!

[Guest guest]

I don't know...we recovered our son w/ biomed AND 40 hours of therapy a week (17 hours of ABA, plus 13 hours of speech, 3 hours of OT, etc., yes, that's in ONE week...) I'm not a fan of TSS. It was offered, and I refused it. It took 3 months, but they (eventually), gave us ABA, instead... (which is academically based, TSS is not..)To: mb12 valtrex Sent: Wed, May 5, 2010 1:35:11 PMSubject: Re: Re:Therapy advice needed PLEASE! I need some help...

how does your son do in school? Is he in a preschool yet?

I am asking because I am just worried that if he is that non-compliant with a therapist , he might act the same way in school.

What are TSS services? Is that a form of ABA or DTT? If so, then you just dont have good therapist (sorry to say). They should be able to change his behavior, attendance, attention to task, etc if they know what they are doing.

Are you state funded? If so, just talk into getting a different agency.

For us , it took about 2 weeks of screaming and not wanting to do anything whatsoever but after that we have only seen progress from his program (it has been now almost 2 years).

I do DTT, OT, Speech, biomedical and homeopathy and all of that seems to be helping his overall treatment.

He is now 4 and in a typical preschool with an aide.

In a message dated 5/5/2010 10:00:30 A.M. Pacific Daylight Time, allrpossible@ gmail.com writes:

I recovered mine without any behavioral therapy. Two had speech services, but only because one is now 18, so there was not biomed when he was little and the other got speech services, which weren't working, before I adopted her. I would focus more on biomed, and do behavioral therapies only if convenient or if biomed wasn't working enough.Love and prayers,Heidi NOk, I know this board is mainly about biomedical treatments, etc which I am currently doing many with my 3 yr old son diagnosed with PDD nos with positive results. However, I do know that behavioral therapy is also important for recovery as well and I have a big dilemma.Here's the problem, we live in a rather economicaly depressed area of PA and there are no good agencies or programs that actually help the any children who go to them. My son has had TSS services for a year and a half now (he is almost 4) and he is still not tolerating therapy, making any progress with the TSS and screams and is defiant the entire time.Now to give some background, he is high functioning, and though he never stops babbling he is non-verbal and has virtually no functional communication. His stimmming and other behavior issues have been relatively under control through our own interventions and biomedical treatments. The OT from early intervention before he turned 3 was the only therapist to ever get through to him and she did aggressive hand over hand for a year, suffering through the kicks and screams, and head banging. He does repond to family when we try to teach him things, but never to the TSS. He is so upset when she is here that he wll not cooperate or even listen to me or her the whole time.We have had several agencies, several BSC's and 4 TSS so far and no one has had any answers for me as to what we should be doing. Should we be as aggressive as his former OT? They just look at me and ask me what I want to do. I just want to scream that if I knew what to do for him I wouldn't have you people in my home all week making us all miserable with no results!! Every suggestion has to do with me basicall figuring out what will work on my own. Which I am trying to do.But, if I have to do this on my own, what the hell do I need these people for? This is how I am feeling, my mother in law and husband also feel the same way.I really want to just stop his therapy. He has started outpatient speech that we have to travel for to get a decent therapist. I am afraid I would be cutting off resources or something. I don't know. I just need someone who has gone through something like this or has any knowledge or advice because no "professional" in my area has any answers for me at all.Should I just stop the TSS?Thank you so much for any advice!!

[Guest guest]

I don't know...we recovered our son w/ biomed AND 40 hours of therapy a week (17 hours of ABA, plus 13 hours of speech, 3 hours of OT, etc., yes, that's in ONE week...) I'm not a fan of TSS. It was offered, and I refused it. It took 3 months, but they (eventually), gave us ABA, instead... (which is academically based, TSS is not..)To: mb12 valtrex Sent: Wed, May 5, 2010 1:35:11 PMSubject: Re: Re:Therapy advice needed PLEASE! I need some help...

how does your son do in school? Is he in a preschool yet?

I am asking because I am just worried that if he is that non-compliant with a therapist , he might act the same way in school.

What are TSS services? Is that a form of ABA or DTT? If so, then you just dont have good therapist (sorry to say). They should be able to change his behavior, attendance, attention to task, etc if they know what they are doing.

Are you state funded? If so, just talk into getting a different agency.

For us , it took about 2 weeks of screaming and not wanting to do anything whatsoever but after that we have only seen progress from his program (it has been now almost 2 years).

I do DTT, OT, Speech, biomedical and homeopathy and all of that seems to be helping his overall treatment.

He is now 4 and in a typical preschool with an aide.

In a message dated 5/5/2010 10:00:30 A.M. Pacific Daylight Time, allrpossible@ gmail.com writes:

I recovered mine without any behavioral therapy. Two had speech services, but only because one is now 18, so there was not biomed when he was little and the other got speech services, which weren't working, before I adopted her. I would focus more on biomed, and do behavioral therapies only if convenient or if biomed wasn't working enough.Love and prayers,Heidi NOk, I know this board is mainly about biomedical treatments, etc which I am currently doing many with my 3 yr old son diagnosed with PDD nos with positive results. However, I do know that behavioral therapy is also important for recovery as well and I have a big dilemma.Here's the problem, we live in a rather economicaly depressed area of PA and there are no good agencies or programs that actually help the any children who go to them. My son has had TSS services for a year and a half now (he is almost 4) and he is still not tolerating therapy, making any progress with the TSS and screams and is defiant the entire time.Now to give some background, he is high functioning, and though he never stops babbling he is non-verbal and has virtually no functional communication. His stimmming and other behavior issues have been relatively under control through our own interventions and biomedical treatments. The OT from early intervention before he turned 3 was the only therapist to ever get through to him and she did aggressive hand over hand for a year, suffering through the kicks and screams, and head banging. He does repond to family when we try to teach him things, but never to the TSS. He is so upset when she is here that he wll not cooperate or even listen to me or her the whole time.We have had several agencies, several BSC's and 4 TSS so far and no one has had any answers for me as to what we should be doing. Should we be as aggressive as his former OT? They just look at me and ask me what I want to do. I just want to scream that if I knew what to do for him I wouldn't have you people in my home all week making us all miserable with no results!! Every suggestion has to do with me basicall figuring out what will work on my own. Which I am trying to do.But, if I have to do this on my own, what the hell do I need these people for? This is how I am feeling, my mother in law and husband also feel the same way.I really want to just stop his therapy. He has started outpatient speech that we have to travel for to get a decent therapist. I am afraid I would be cutting off resources or something. I don't know. I just need someone who has gone through something like this or has any knowledge or advice because no "professional" in my area has any answers for me at all.Should I just stop the TSS?Thank you so much for any advice!!