Update

[Guest guest]

Jody:

Can you ask how long it typically takes from referal to getting into

Shriners' Chicago? I'm just curious if it goes on a basis of urgent need,

or just as applications arrive. We go to our family doctor tomorrow to

actually discuss the MRI, see about blood work, etc. and we will take the

application we printed form the internet. Without looking at it right now,

I think I remember there being a section to be filled out by the referring

doctor. I intend to have that accomplished before I'll leave the office

tomorrow!

Maybe we can hook up if we get to come up there.

Friends in CHARGE,

Marilyn Ogan

Mom of Ken (14 yrs., ADD) and (11 yrs., CHARGE+)

Wife of Rick

oganm@...

oganr@...

RE: Re: update

Marilyn - We live in the Chicagoland area. One of Ethan's nurses works at

Shriner's here in Chicago. If you need any help or have questions, let me

know.

Jody

Rick Ogan wrote:

Michele:

We have a possibility of 2 Shriners willing to sponsor .

[Guest guest]

Jody:

Can you ask how long it typically takes from referal to getting into

Shriners' Chicago? I'm just curious if it goes on a basis of urgent need,

or just as applications arrive. We go to our family doctor tomorrow to

actually discuss the MRI, see about blood work, etc. and we will take the

application we printed form the internet. Without looking at it right now,

I think I remember there being a section to be filled out by the referring

doctor. I intend to have that accomplished before I'll leave the office

tomorrow!

Maybe we can hook up if we get to come up there.

Friends in CHARGE,

Marilyn Ogan

Mom of Ken (14 yrs., ADD) and (11 yrs., CHARGE+)

Wife of Rick

oganm@...

oganr@...

RE: Re: update

Marilyn - We live in the Chicagoland area. One of Ethan's nurses works at

Shriner's here in Chicago. If you need any help or have questions, let me

know.

Jody

Rick Ogan wrote:

Michele:

We have a possibility of 2 Shriners willing to sponsor .

[Guest guest]

Jody:

Can you ask how long it typically takes from referal to getting into

Shriners' Chicago? I'm just curious if it goes on a basis of urgent need,

or just as applications arrive. We go to our family doctor tomorrow to

actually discuss the MRI, see about blood work, etc. and we will take the

application we printed form the internet. Without looking at it right now,

I think I remember there being a section to be filled out by the referring

doctor. I intend to have that accomplished before I'll leave the office

tomorrow!

Maybe we can hook up if we get to come up there.

Friends in CHARGE,

Marilyn Ogan

Mom of Ken (14 yrs., ADD) and (11 yrs., CHARGE+)

Wife of Rick

oganm@...

oganr@...

RE: Re: update

Marilyn - We live in the Chicagoland area. One of Ethan's nurses works at

Shriner's here in Chicago. If you need any help or have questions, let me

know.

Jody

Rick Ogan wrote:

Michele:

We have a possibility of 2 Shriners willing to sponsor .

[Guest guest]

Happy Belated Birthday Peggy!!!!!

~*Trista*~

CFIDS/FM ~ Educate yourself.My disabling chronic illness is more real, than your imaginary medical expertise!

Update

So, my birthday came and went without much hooplah which is okay with me. I don't feel any older and the day isn't the same since Osama Bin Laden became a filthy word in our country.I got 2 parakeets as a gift from my hubby, daughter, and son. They are blue and white and very vocal. It's hard keeping the cats away from them. Well, really just one cat, Charlie. The other cat, Cocoa, is pretty much used to them. She figures if they're in the house then they belong here and she leaves them alone. She doesn't even go after the squirrels that come up on the porch when she's laying out there!!! I had named them Hope and Faith for 9/11 but discovered that they are both males, so that won't work. I am now deciding between Pride and something(haven't come up with anything to go with it yet) or Bada & Bing (for the Italian in me!!!) I'd like to stick with the 9/11 theme, so if anyone has any suggestions to go with Pride I'd love to hear them.I've been feeling a little off for the past few days. I've had a migraine and been feeling sick to my stomach. My legs have been achy and I've been dizzy and have the tremors in my hands back. The weather hasn't been that great so I'm wondering if it's just that, the change of seasons?I started P/T on Monday and we're taking it slow. Did I already post about this? My mind is not working too well either. I was supposed to go today but my head is still hurting. Just wanted to catch up quick before I headed back to bed. Had to get Zack off to school anyways and get a few b-day cards out. A nephew and twin nieces!!! September is a big b-day month around here. Tomorrow is my 2nd appt. for the cognitive testing. Should be interesting feeling the way I do!! may here today about going to the city. If he does he will have to report by Monday. I hope steps up. She hasn't been very helpful so far so I'm not getting my hopes up too high. She did tell me last night that if I get approved for disability befoer she turns 18 that she will be eleigible for financial aid. She turns 18 in January. Not much time. Or is it before she graduates? Oh, I don't remember!!! GGGGRRRR, so frustrating!!!Well, I'm going back to bed!!! Maybe my memory will come back to me when I get back up, LOL!!!Hugs,Peggy

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.485 / Virus Database: 269.13.15/1003 - Release Date: 9/12/2007 10:56 AM

[Guest guest]

Happy Belated Birthday Peggy!!!!!

~*Trista*~

CFIDS/FM ~ Educate yourself.My disabling chronic illness is more real, than your imaginary medical expertise!

Update

So, my birthday came and went without much hooplah which is okay with me. I don't feel any older and the day isn't the same since Osama Bin Laden became a filthy word in our country.I got 2 parakeets as a gift from my hubby, daughter, and son. They are blue and white and very vocal. It's hard keeping the cats away from them. Well, really just one cat, Charlie. The other cat, Cocoa, is pretty much used to them. She figures if they're in the house then they belong here and she leaves them alone. She doesn't even go after the squirrels that come up on the porch when she's laying out there!!! I had named them Hope and Faith for 9/11 but discovered that they are both males, so that won't work. I am now deciding between Pride and something(haven't come up with anything to go with it yet) or Bada & Bing (for the Italian in me!!!) I'd like to stick with the 9/11 theme, so if anyone has any suggestions to go with Pride I'd love to hear them.I've been feeling a little off for the past few days. I've had a migraine and been feeling sick to my stomach. My legs have been achy and I've been dizzy and have the tremors in my hands back. The weather hasn't been that great so I'm wondering if it's just that, the change of seasons?I started P/T on Monday and we're taking it slow. Did I already post about this? My mind is not working too well either. I was supposed to go today but my head is still hurting. Just wanted to catch up quick before I headed back to bed. Had to get Zack off to school anyways and get a few b-day cards out. A nephew and twin nieces!!! September is a big b-day month around here. Tomorrow is my 2nd appt. for the cognitive testing. Should be interesting feeling the way I do!! may here today about going to the city. If he does he will have to report by Monday. I hope steps up. She hasn't been very helpful so far so I'm not getting my hopes up too high. She did tell me last night that if I get approved for disability befoer she turns 18 that she will be eleigible for financial aid. She turns 18 in January. Not much time. Or is it before she graduates? Oh, I don't remember!!! GGGGRRRR, so frustrating!!!Well, I'm going back to bed!!! Maybe my memory will come back to me when I get back up, LOL!!!Hugs,Peggy

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.485 / Virus Database: 269.13.15/1003 - Release Date: 9/12/2007 10:56 AM

[Guest guest]

Hi I had double vision 2 summers ago and my neurologist surprised me and had me take some steroids for my eye condition I also have type 1 diabetes. He won't let me take steroids for and of my other troubles I have with my MS. He also told me the side effects would be bad for me. Is your wife there able to help you?

I have been very lucky that I have never had any fatigue with my MS.

Hang in there.

Bill

update

Hi all,

I've had the worst week or weeks I have ever had since my TM days.

I have had severe back and leg pain, my left eye is really giving me more pain then ever before, even to the point of wanting to wanting to cry. I am having angina pain almost every hour to the point of taking 2 or 3 nitro pills before it subsides. I can't concentrate, I can't breath. I want to sleep and sleep some more, but the pain keeps me up. I take a loritab and it dulls the pain for an hour or so. That's when I try to sleep.

Sometimes, I think it is not worth the effort to fight this anymore.

I went to the VA and the doctor said I need to be hospitalized so they can treat me with steroids under supervision. I went to my Neuro and he said take more pain pills. I can't take steroids at home because of diabetes and the side effects they cause. MY cardiologist did an EKG and said the same thing, blockage in my smaller veins nothing he can do. He won't put me in the hospital, same as the neuro. I have a call into the nuero again and try to plead my case.

I am sorry for venting and feeling sorry for myself.

IF YOU DON'T STAND BEHIND OUR TROOPS,PLEASE, FEEL FREE...TO STAND IN FRONT OF THEM

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Oh ! I'm so sorry to hear all of this. I'm behind in my reading so I hope by now things have gotten better. I don't understand why your neuro won't hospitalize you. What about the VA doc? loveSharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. update

Hi all,

I've had the worst week or weeks I have ever had since my TM days.

I have had severe back and leg pain, my left eye is really giving me more pain then ever before, even to the point of wanting to wanting to cry. I am having angina pain almost every hour to the point of taking 2 or 3 nitro pills before it subsides. I can't concentrate, I can't breath. I want to sleep and sleep some more, but the pain keeps me up. I take a loritab and it dulls the pain for an hour or so. That's when I try to sleep.

Sometimes, I think it is not worth the effort to fight this anymore.

I went to the VA and the doctor said I need to be hospitalized so they can treat me with steroids under supervision. I went to my Neuro and he said take more pain pills. I can't take steroids at home because of diabetes and the side effects they cause. MY cardiologist did an EKG and said the same thing, blockage in my smaller veins nothing he can do. He won't put me in the hospital, same as the neuro. I have a call into the nuero again and try to plead my case.

I am sorry for venting and feeling sorry for myself.

IF YOU DON'T STAND BEHIND OUR TROOPS,PLEASE, FEEL FREE...TO STAND IN FRONT OF THEM See what's new at AOL.com and Make AOL Your Homepage.

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

Oh ! I'm so sorry to hear all of this. I'm behind in my reading so I hope by now things have gotten better. I don't understand why your neuro won't hospitalize you. What about the VA doc? loveSharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. update

Hi all,

I've had the worst week or weeks I have ever had since my TM days.

I have had severe back and leg pain, my left eye is really giving me more pain then ever before, even to the point of wanting to wanting to cry. I am having angina pain almost every hour to the point of taking 2 or 3 nitro pills before it subsides. I can't concentrate, I can't breath. I want to sleep and sleep some more, but the pain keeps me up. I take a loritab and it dulls the pain for an hour or so. That's when I try to sleep.

Sometimes, I think it is not worth the effort to fight this anymore.

I went to the VA and the doctor said I need to be hospitalized so they can treat me with steroids under supervision. I went to my Neuro and he said take more pain pills. I can't take steroids at home because of diabetes and the side effects they cause. MY cardiologist did an EKG and said the same thing, blockage in my smaller veins nothing he can do. He won't put me in the hospital, same as the neuro. I have a call into the nuero again and try to plead my case.

I am sorry for venting and feeling sorry for myself.

IF YOU DON'T STAND BEHIND OUR TROOPS,PLEASE, FEEL FREE...TO STAND IN FRONT OF THEM See what's new at AOL.com and Make AOL Your Homepage.

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

Hi all,

I'm getting into the Halloween spirit!!! I'm trying so hard to not get my decorations out quite yet, even though some people around here have had theirs out since last month!!! I'm always the first in the neighborhood to put them up. I know I will need some help this year so I will have to wait for to be home this weekend to assist me, lol!

I am hoping it's nice on Sunday so we can get some done. Saturday I am going to a craft show in Syracuse with my sisters and possible my niece who lives out there. I may even pick up a few new things to decorate with!!

Well, after 3 days without my Copaxone, I called the drs. office again yesterday afternoon and of course had to leave a message. The nurse had called on Monday to tell me to go to my GP about my blood pressure which I did yesterday but she said she would call me back about the injections. She called back alright at 10 of 5!! We weren't home so instead of leaving a message, she said she would try to call before she left the office for the night. Who was she kidding? Not me.

You'd think I would have been one of the first calls yesterday morning? Nope. I had to call. Didn't hear from her until after 3 ocklock. I was sleeping so she told my husband it was ok for me to resume my shots. She couldn't just say that on the answering maching the night before? Whatever. I'm getting a little annoyed, can you tell? Still no mention of an appt.

My blood pressure has been steadily going down since my weight has been dropping. I have lost 35 lbs since Jan. of 2006! When I got on the scale yesterday I just about died! I had dropped another 13 lbs since the beginning of July! The nurse said it's been a slow steady loss so that is good and usually means that I won't gain it back. I hope that's true. She made my month!!

I am now off my blood pressure meds and need to go back the end of the month for another check and in the meantime have to go for the dreaded bloodwork for thyroid, sugar, cbc, you know the whole workup. I pray and ask you to as well that my sugar comes back ok as my Dad has diabetes and I had gestational diabetes with both pregnancies and don't think right now I could deal with that on top of everything else.

I took my shot last night while was home with me and let me tell you was I nervous, lol!!! It took me forever to pull the trigger! Just a little anxiety there. Hopefully I can put that one bad experience out of my mind and move on.

Well, I'm off to try to get some sleep, didn't get much last night, went back downstate adn I don't do well on his first night back and Zack was having a hard time as well. He's starting with the I'm scared business again and I want to sleep in your bed. I can't go through that again, he's been doing so well with that. They keep showing a skeleton face on Nickelodeon and when he sees it, it scares him. He had to sleep with two lights on last night, but he has a cow if I try to turn the channel of the tv!!!

Hope everyone is feeling well today.

Hugs,

Peggy