Re: Bombardment of questions

January 4, 2011

Use a strep-free probiotic to avoid strep being a problem later, also must be

GFCF. (we have used Custom Probiotic, Baby Biotic, Klaire's Detox)

Avoid HFCS regardless if you use other forms of corn. Some believe it may raise

mercury levels.

IGE is current allergy or infection and IGG is immune response to past

infection. I would be concerned of even IGG HHV6 and possibly treat with

antivirals, but not while starting diet, etc.

IGG to mold means past exposure. If you have not moved, consider that it is in

your house or your child's school. You can read about mold in Ritchie

Shoemaker's book, " Mold Warriors. "

Low vitamin D may mean chronic infection.

Caryn

>

> Ok....here we go....

> met with the dan today to go over test results:

>

> With the exception of low vitamin d, all vites and minerals seem to be in good

order.

>

> Negative for strep.

>

> Metabolic profile: everything looks great.

>

> Neurotransmitter metabolites:right smack dab in the middle of ref. range.

beautiful.

>

> Mitochondrial function: fine

>

> DHPPA (anyone have a clue???): slightly elevated. (recommended 5-mthf)

>

> Test shows antibodies to exposure to hhv-6. Doc said that indicates past

exposure but not necessarily currently active (or something to that affect)

>

> Test also shows borderline low thyroid function. (significant family history -

both sides). Because he doesn't present with symptoms, we've agreed to keep an

eye on it for now and tackle other things first.

>

> Very low in good flora. (He did a round of antibiotics a few months ago so

that might make sense) Yeast turned up negative(thank God) and bad flora has not

taken over. So we'll get back on the probiotics and start sach b.

>

> He did test positive for gluten and casein sensitivities (surprise surprise)

--thank God I've spent some serious time learning all about the diet or I'd be

completely overwhelmed.

>

> We talked about so much today that I'm having a hard time keeping everything

straight....

>

> Is IgG the immediate response to foods? and IgE shows later responses? Why

would Aspergillus niger show up Negative on the IgE but show up as a 2 on the

IgG? Isn't aspergillus black mold and wouldn't everybody have a sensitivity to

it???? I quickly read something that said it's used in some medicines.

what??? (All other molds turned out fine)

>

> He showed a 2 for oregano. That probably means no OoO? Or are those two

completely different??

>

> Corn was fine...does that mean I don't have to be so paranoid about high

fructose corn syrup all the damn time?

>

> The doctor told me these were actually the best test results he's ever seen

for a kid on the spectrum. which is awesome. However, I chose not to do the

metals testing because it freaks me out. I don't want to be shaking anything up

and stirring things around when all is well. Now I'm wondering if this could be

the culprit and if it's a stone I need to turn.

>

> Also, because we are going gluten/dairy free....I'm almost positive I've read

that I need to be careful choosing a probiotic. What strains do I need to

avoid? And because strep tested negative, is it ok to have strep strains in the

probiotic?

>

> Feel free to throw any thoughts, opinions, experiences or ideas out there.

I'm game for anything.

>

> Thanks...so sorry looooooooooong post

>

> -Tammy

>

> P.S. I love love love my dan.... Maybe another time we can talk about the

husband's pissy-ass attitude towards him after months of doing nothing to learn

ANYthing about this stuff. rrrrr!!!

>

January 4, 2011

Use a strep-free probiotic to avoid strep being a problem later, also must be

GFCF. (we have used Custom Probiotic, Baby Biotic, Klaire's Detox)

Avoid HFCS regardless if you use other forms of corn. Some believe it may raise

mercury levels.

IGE is current allergy or infection and IGG is immune response to past

infection. I would be concerned of even IGG HHV6 and possibly treat with

antivirals, but not while starting diet, etc.

IGG to mold means past exposure. If you have not moved, consider that it is in

your house or your child's school. You can read about mold in Ritchie

Shoemaker's book, " Mold Warriors. "

Low vitamin D may mean chronic infection.

Caryn

>

> Ok....here we go....

> met with the dan today to go over test results:

>

> With the exception of low vitamin d, all vites and minerals seem to be in good

order.

>

> Negative for strep.

>

> Metabolic profile: everything looks great.

>

> Neurotransmitter metabolites:right smack dab in the middle of ref. range.

beautiful.

>

> Mitochondrial function: fine

>

> DHPPA (anyone have a clue???): slightly elevated. (recommended 5-mthf)

>

> Test shows antibodies to exposure to hhv-6. Doc said that indicates past

exposure but not necessarily currently active (or something to that affect)

>

> Test also shows borderline low thyroid function. (significant family history -

both sides). Because he doesn't present with symptoms, we've agreed to keep an

eye on it for now and tackle other things first.

>

> Very low in good flora. (He did a round of antibiotics a few months ago so

that might make sense) Yeast turned up negative(thank God) and bad flora has not

taken over. So we'll get back on the probiotics and start sach b.

>

> He did test positive for gluten and casein sensitivities (surprise surprise)

--thank God I've spent some serious time learning all about the diet or I'd be

completely overwhelmed.

>

> We talked about so much today that I'm having a hard time keeping everything

straight....

>

> Is IgG the immediate response to foods? and IgE shows later responses? Why

would Aspergillus niger show up Negative on the IgE but show up as a 2 on the

IgG? Isn't aspergillus black mold and wouldn't everybody have a sensitivity to

it???? I quickly read something that said it's used in some medicines.

what??? (All other molds turned out fine)

>

> He showed a 2 for oregano. That probably means no OoO? Or are those two

completely different??

>

> Corn was fine...does that mean I don't have to be so paranoid about high

fructose corn syrup all the damn time?

>

> The doctor told me these were actually the best test results he's ever seen

for a kid on the spectrum. which is awesome. However, I chose not to do the

metals testing because it freaks me out. I don't want to be shaking anything up

and stirring things around when all is well. Now I'm wondering if this could be

the culprit and if it's a stone I need to turn.

>

> Also, because we are going gluten/dairy free....I'm almost positive I've read

that I need to be careful choosing a probiotic. What strains do I need to

avoid? And because strep tested negative, is it ok to have strep strains in the

probiotic?

>

> Feel free to throw any thoughts, opinions, experiences or ideas out there.

I'm game for anything.

>

> Thanks...so sorry looooooooooong post

>

> -Tammy

>

> P.S. I love love love my dan.... Maybe another time we can talk about the

husband's pissy-ass attitude towards him after months of doing nothing to learn

ANYthing about this stuff. rrrrr!!!

>

January 4, 2011

Caryn, thank you : ) My son's doctor also agreed to leave the hhv6 alone for now while starting the diet....which I feel more than comfortable with. Is it possible that could be the cause of the low D? My son gets oodles of sun exposure in the summer and we supplement over the winter (I had taken a break to see what his tests would yield w/o supps). Here's a kick in the bootie: his enzymes contain aspergillus niger. figures. lol. That's an easy enough fix.

To: mb12 valtrex Sent: Tue, January 4, 2011 8:18:41 AMSubject: Re: Bombardment of questions

Use a strep-free probiotic to avoid strep being a problem later, also must be GFCF. (we have used Custom Probiotic, Baby Biotic, Klaire's Detox)Avoid HFCS regardless if you use other forms of corn. Some believe it may raise mercury levels.IGE is current allergy or infection and IGG is immune response to past infection. I would be concerned of even IGG HHV6 and possibly treat with antivirals, but not while starting diet, etc.IGG to mold means past exposure. If you have not moved, consider that it is in your house or your child's school. You can read about mold in Ritchie Shoemaker's book, "Mold Warriors."Low vitamin D may mean chronic infection.Caryn>> > > Ok....here we

go....> met with the dan today to go over test results:> > With the exception of low vitamin d, all vites and minerals seem to be in good order.> > Negative for strep.> > Metabolic profile: everything looks great.> > Neurotransmitter metabolites:right smack dab in the middle of ref. range. beautiful.> > Mitochondrial function: fine> > DHPPA (anyone have a clue???): slightly elevated. (recommended 5-mthf)> > > Test shows antibodies to exposure to hhv-6. Doc said that indicates past exposure but not necessarily currently active (or something to that affect)> > Test also shows borderline low thyroid function. (significant family history - both sides). Because he doesn't present with symptoms, we've agreed to keep an eye on it for now and tackle other things first.> > Very low in good flora. (He did a round of

antibiotics a few months ago so that might make sense) Yeast turned up negative(thank God) and bad flora has not taken over. So we'll get back on the probiotics and start sach b.> > He did test positive for gluten and casein sensitivities (surprise surprise) --thank God I've spent some serious time learning all about the diet or I'd be completely overwhelmed. > > We talked about so much today that I'm having a hard time keeping everything straight.... > > Is IgG the immediate response to foods? and IgE shows later responses? Why would Aspergillus niger show up Negative on the IgE but show up as a 2 on the IgG? Isn't aspergillus black mold and wouldn't everybody have a sensitivity to it???? I quickly read something that said it's used in some medicines. what??? (All other molds turned out fine)> > He showed a 2 for oregano. That probably means no OoO? Or are those two completely different??>

> Corn was fine...does that mean I don't have to be so paranoid about high fructose corn syrup all the damn time?> > The doctor told me these were actually the best test results he's ever seen for a kid on the spectrum. which is awesome. However, I chose not to do the metals testing because it freaks me out. I don't want to be shaking anything up and stirring things around when all is well. Now I'm wondering if this could be the culprit and if it's a stone I need to turn. > > Also, because we are going gluten/dairy free....I'm almost positive I've read that I need to be careful choosing a probiotic. What strains do I need to avoid? And because strep tested negative, is it ok to have strep strains in the probiotic? > > Feel free to throw any thoughts, opinions, experiences or ideas out there. I'm game for anything.> > Thanks...so sorry looooooooooong post> > -Tammy>

> P.S. I love love love my dan.... Maybe another time we can talk about the husband's pissy-ass attitude towards him after months of doing nothing to learn ANYthing about this stuff. rrrrr!!!>

January 4, 2011

Caryn, thank you : ) My son's doctor also agreed to leave the hhv6 alone for now while starting the diet....which I feel more than comfortable with. Is it possible that could be the cause of the low D? My son gets oodles of sun exposure in the summer and we supplement over the winter (I had taken a break to see what his tests would yield w/o supps). Here's a kick in the bootie: his enzymes contain aspergillus niger. figures. lol. That's an easy enough fix.

To: mb12 valtrex Sent: Tue, January 4, 2011 8:18:41 AMSubject: Re: Bombardment of questions

Use a strep-free probiotic to avoid strep being a problem later, also must be GFCF. (we have used Custom Probiotic, Baby Biotic, Klaire's Detox)Avoid HFCS regardless if you use other forms of corn. Some believe it may raise mercury levels.IGE is current allergy or infection and IGG is immune response to past infection. I would be concerned of even IGG HHV6 and possibly treat with antivirals, but not while starting diet, etc.IGG to mold means past exposure. If you have not moved, consider that it is in your house or your child's school. You can read about mold in Ritchie Shoemaker's book, "Mold Warriors."Low vitamin D may mean chronic infection.Caryn>> > > Ok....here we

go....> met with the dan today to go over test results:> > With the exception of low vitamin d, all vites and minerals seem to be in good order.> > Negative for strep.> > Metabolic profile: everything looks great.> > Neurotransmitter metabolites:right smack dab in the middle of ref. range. beautiful.> > Mitochondrial function: fine> > DHPPA (anyone have a clue???): slightly elevated. (recommended 5-mthf)> > > Test shows antibodies to exposure to hhv-6. Doc said that indicates past exposure but not necessarily currently active (or something to that affect)> > Test also shows borderline low thyroid function. (significant family history - both sides). Because he doesn't present with symptoms, we've agreed to keep an eye on it for now and tackle other things first.> > Very low in good flora. (He did a round of

antibiotics a few months ago so that might make sense) Yeast turned up negative(thank God) and bad flora has not taken over. So we'll get back on the probiotics and start sach b.> > He did test positive for gluten and casein sensitivities (surprise surprise) --thank God I've spent some serious time learning all about the diet or I'd be completely overwhelmed. > > We talked about so much today that I'm having a hard time keeping everything straight.... > > Is IgG the immediate response to foods? and IgE shows later responses? Why would Aspergillus niger show up Negative on the IgE but show up as a 2 on the IgG? Isn't aspergillus black mold and wouldn't everybody have a sensitivity to it???? I quickly read something that said it's used in some medicines. what??? (All other molds turned out fine)> > He showed a 2 for oregano. That probably means no OoO? Or are those two completely different??>

> Corn was fine...does that mean I don't have to be so paranoid about high fructose corn syrup all the damn time?> > The doctor told me these were actually the best test results he's ever seen for a kid on the spectrum. which is awesome. However, I chose not to do the metals testing because it freaks me out. I don't want to be shaking anything up and stirring things around when all is well. Now I'm wondering if this could be the culprit and if it's a stone I need to turn. > > Also, because we are going gluten/dairy free....I'm almost positive I've read that I need to be careful choosing a probiotic. What strains do I need to avoid? And because strep tested negative, is it ok to have strep strains in the probiotic? > > Feel free to throw any thoughts, opinions, experiences or ideas out there. I'm game for anything.> > Thanks...so sorry looooooooooong post> > -Tammy>

> P.S. I love love love my dan.... Maybe another time we can talk about the husband's pissy-ass attitude towards him after months of doing nothing to learn ANYthing about this stuff. rrrrr!!!>

January 4, 2011

Tammy,You can test neg for strep and still have PANDAS. It is real hard to test for. Basically, if you are 100% convinced your kid has it, it is probably a good idea to try antibx and see if they respond. Well, that is just my opinion, not based on anything other than me reading about people spending a yr or longer just trying to get dx'd!

I would avoid strep strains in the probiotic. Yogurts always have strep in it, apparently if you are to be called " yoghurt " in the USA, you MUST have Strept Thermophilus. My kids show positive for HHV-6 on IGG, normal on the other one the doc recommended we test to show " current " flare.

OoO is causing a little response in your son. So maybe you can try another antimicrobial for now.Corn - we also do not show corn IGG *but* I would not let down your guard. I will tell you what I do. I buy frozen organic corn. I buy organic chips. If they are at a party and there are a choice of foods, I will allow Fritos plain and Cracker Jacks. Those are Feingold Stage 1 approved corn snacks that are GFCF. There is soy in the cracker jacks. They are most likely made with GMO corn and HFCS is certainly contaminated with GMO corn.

Now I used to not concern myself with GMO issues until I read this: http://www.csiro.au/files/files/pjtp.pdfThis paper was put out by a company developing a GMO product who decided that they would cease development due to allergic reactions to their GMO Field Peas.

Soy and Corn were never put thru these GMO trials here in the USA from what I understand!!! So it is all together possible that the reason for the rise in these allergens in people is due to the fact that GMO soy and GMO corn are in nearly every processed food.

Important quote from the article: " Mice fed alpha-amylase inhibitor GM-peas showedevidence of an immune response after two weeks,with the response increasing at four weeks. Thereaction in mice was inflammation in the lungs and

increased serum antibody levels. After eating the GMpeas, the pea alpha-amylase inhibitor protein primedthe mice to react to other food antigens. " SOOOOO I would continue to be diligent on day-to-day banishment of HFCS so that occasionally when you are in a bind, you can allow it. For instance, when we go to a restaurant, we can allow 7up or Sprite, because those are FG ST1 approved as well. BTW Sierra Mist Natural is available in some places and while I don't know if that is FG ST1 approved (because natural flavors can sometimes be not approved) it is colorless and without HFCS, so that is always an option to ask about.

You really do not want to overdo the corn or play with fire on that one because of all the allergens, that one seems to be the hardest to avoid, with soy a close second!!I have to remark about your DAN.... my DAN said the same thing about my son - that his blood work was probably the best he has seen in someone with these issues! LOL Do we have a pair of enigmas or what?!!! Twins separated by a year and hundreds of miles ;-)

OH! BTW, my son has parahypothyroid too... which is " borderline hypo. " He is just a little low on tone. And he grows slower than his sister... so I thought Hmm maybe this kid has thyroid issues... and I had put both of them on selenium. NOW out of the regular course of testing, my DAN had my daughter's thyroid antibodies tested and she came up high on the TPO ab. This mean Hashimotos or some other auto-immune disease.

(Recommended thyroid labs - http://www.stopthethyroidmadness.com/recommended-labwork/)Because of this, AND the HHV-6 ab, we are using LDN on them.

Tammy, let me end this email by saying, so far, the LDN has been incredible. Amazing. I want to tell the world about it, and I have been!

Ok....here we go....

met with the dan today to go over test results:

With the exception of low vitamin d, all vites and minerals seem to be in good order.

Negative for strep.

Metabolic profile: everything looks great.

Neurotransmitter metabolites:right smack dab in the middle of ref. range. beautiful.

Mitochondrial function: fine

DHPPA (anyone have a clue???): slightly elevated. (recommended 5-mthf)

Test shows antibodies to exposure to hhv-6. Doc said that indicates past exposure but not necessarily currently active (or something to that affect)

Test also shows borderline low thyroid function. (significant family history - both sides). Because he doesn't present with symptoms, we've agreed to keep an eye on it for now and tackle other things first.

Very low in good flora. (He did a round of antibiotics a few months ago so that might make sense) Yeast turned up negative(thank God) and bad flora has not taken over. So we'll get back on the probiotics and start sach b.

He did test positive for gluten and casein sensitivities (surprise surprise) --thank God I've spent some serious time learning all about the diet or I'd be completely overwhelmed.

We talked about so much today that I'm having a hard time keeping everything straight....

Is IgG the immediate response to foods? and IgE shows later responses? Why would Aspergillus niger show up Negative on the IgE but show up as a 2 on the IgG? Isn't aspergillus black mold and wouldn't everybody have a sensitivity to it???? I quickly read something that said it's used in some medicines. what??? (All other molds turned out fine)

He showed a 2 for oregano. That probably means no OoO? Or are those two completely different??

Corn was fine...does that mean I don't have to be so paranoid about high fructose corn syrup all the damn time?

The doctor told me these were actually the best test results he's ever seen for a kid on the spectrum. which is awesome. However, I chose not to do the metals testing because it freaks me out. I don't want to be shaking anything up and stirring things around when all is well. Now I'm wondering if this could be the culprit and if it's a stone I need to turn.

Also, because we are going gluten/dairy free....I'm almost positive I've read that I need to be careful choosing a probiotic. What strains do I need to avoid? And because strep tested negative, is it ok to have strep strains in the probiotic?

Feel free to throw any thoughts, opinions, experiences or ideas out there. I'm game for anything.

Thanks...so sorry looooooooooong post

-Tammy

P.S. I love love love my dan.... Maybe another time we can talk about the husband's pissy-ass attitude towards him after months of doing nothing to learn ANYthing about this stuff. rrrrr!!!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 4, 2011