Re: New and not quite sure where to start.

[Guest guest]

Has he been on any prescription anti-fungals? Some of our

kids have to stay on one at all times. Diflucan, Sporonox, etc

For tics and OCD you should rule out PANDAS.

Pamela

From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of Mischa

Sent: Wednesday, January 06, 2010 2:54 PM

To: mb12 valtrex

Subject: New and not quite sure where to start.

Hello. My name is and I have a 5 1/2

year old son named Cole who was diagnosed PDD shortly before his 4th birthday.

We have been following a biomedical treatment plan for the past year. We

started off on the GFCF diet and then when my son plateaued we placed him on

SCD with a lot of improvement. Now he seems to have stalled again and I would

like to look into the possibility of antiviral/antifungal therapy.

It all seems so overwhelming and I'm not sure where to begin. He had an Organic

Acids Test in December of 2008, which showed elevated levels of yeast, and we

have been battling that beast ever since. Supplementation includes:

SCD legal multivitamin

SCD legal antioxident

SCD legal zinc

Carlson Cod liver oil

Coconut oil

Probiotics in the form of SCD goat yogurt

Caprylic acid and Citrus seed extract, which we rotate weekly

Methyl B-12 injections every 3 days.

He has come a long way, however we have noticed a couple of tics that weren't

there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few

seconds when we reprimand him, I honestly don't think he can help it.

If anybody has any insight for me, I would most appreciative. Thank you.

[Guest guest]

Has he been on any prescription anti-fungals? Some of our

kids have to stay on one at all times. Diflucan, Sporonox, etc

For tics and OCD you should rule out PANDAS.

Pamela

From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of Mischa

Sent: Wednesday, January 06, 2010 2:54 PM

To: mb12 valtrex

Subject: New and not quite sure where to start.

Hello. My name is and I have a 5 1/2

year old son named Cole who was diagnosed PDD shortly before his 4th birthday.

We have been following a biomedical treatment plan for the past year. We

started off on the GFCF diet and then when my son plateaued we placed him on

SCD with a lot of improvement. Now he seems to have stalled again and I would

like to look into the possibility of antiviral/antifungal therapy.

It all seems so overwhelming and I'm not sure where to begin. He had an Organic

Acids Test in December of 2008, which showed elevated levels of yeast, and we

have been battling that beast ever since. Supplementation includes:

SCD legal multivitamin

SCD legal antioxident

SCD legal zinc

Carlson Cod liver oil

Coconut oil

Probiotics in the form of SCD goat yogurt

Caprylic acid and Citrus seed extract, which we rotate weekly

Methyl B-12 injections every 3 days.

He has come a long way, however we have noticed a couple of tics that weren't

there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few

seconds when we reprimand him, I honestly don't think he can help it.

If anybody has any insight for me, I would most appreciative. Thank you.

[Guest guest]

Has he been on any prescription anti-fungals? Some of our

kids have to stay on one at all times. Diflucan, Sporonox, etc

For tics and OCD you should rule out PANDAS.

Pamela

From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of Mischa

Sent: Wednesday, January 06, 2010 2:54 PM

To: mb12 valtrex

Subject: New and not quite sure where to start.

Hello. My name is and I have a 5 1/2

year old son named Cole who was diagnosed PDD shortly before his 4th birthday.

We have been following a biomedical treatment plan for the past year. We

started off on the GFCF diet and then when my son plateaued we placed him on

SCD with a lot of improvement. Now he seems to have stalled again and I would

like to look into the possibility of antiviral/antifungal therapy.

It all seems so overwhelming and I'm not sure where to begin. He had an Organic

Acids Test in December of 2008, which showed elevated levels of yeast, and we

have been battling that beast ever since. Supplementation includes:

SCD legal multivitamin

SCD legal antioxident

SCD legal zinc

Carlson Cod liver oil

Coconut oil

Probiotics in the form of SCD goat yogurt

Caprylic acid and Citrus seed extract, which we rotate weekly

Methyl B-12 injections every 3 days.

He has come a long way, however we have noticed a couple of tics that weren't

there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few

seconds when we reprimand him, I honestly don't think he can help it.

If anybody has any insight for me, I would most appreciative. Thank you.

[Guest guest]

Hi,Pam. Thank you for your response. Cole has not been on any prescription

antifungal but I would like to pursue that avenue. We had thought about PANDAS,

but from what I understand is that not a reaction to the streptococcus virus? He

hasn't been sick in months. Also, his symptoms are quite mild comparatively

speaking. From what I've read the symptoms associated with PANDAS are quite

profound. Do you think we should get him tested?

>

> Has he been on any prescription anti-fungals? Some of our kids have to stay

> on one at all times. Diflucan, Sporonox, etc

>

>

>

> For tics and OCD you should rule out PANDAS.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex [mailto:mb12 valtrex ] On

> Behalf Of Mischa

> Sent: Wednesday, January 06, 2010 2:54 PM

> To: mb12 valtrex

> Subject: New and not quite sure where to start.

>

>

>

>

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who

> was diagnosed PDD shortly before his 4th birthday. We have been following a

> biomedical treatment plan for the past year. We started off on the GFCF diet

> and then when my son plateaued we placed him on SCD with a lot of

> improvement. Now he seems to have stalled again and I would like to look

> into the possibility of antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

> Organic Acids Test in December of 2008, which showed elevated levels of

> yeast, and we have been battling that beast ever since. Supplementation

> includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that

> weren't there before. Among the occasional head jerk, he says the word

> " shut-up " all the time. And while he will sometimes stop for a few seconds

> when we reprimand him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

Have you had him tested for food allergies? My son stalled when he went

allergic to new foods. Is he on enzymes? www.houstonenzymes.com has a free DVD

FREEE!!! Very informative.

We were SCD for a while... now he is modified SCD as he needed more carbs. He

started getting stinky pits like an adult after SCD.

Good luck

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who was

diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that weren't

there before. Among the occasional head jerk, he says the word " shut-up " all

the time. And while he will sometimes stop for a few seconds when we reprimand

him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

Have you had him tested for food allergies? My son stalled when he went

allergic to new foods. Is he on enzymes? www.houstonenzymes.com has a free DVD

FREEE!!! Very informative.

We were SCD for a while... now he is modified SCD as he needed more carbs. He

started getting stinky pits like an adult after SCD.

Good luck

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who was

diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that weren't

there before. Among the occasional head jerk, he says the word " shut-up " all

the time. And while he will sometimes stop for a few seconds when we reprimand

him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

Have you had him tested for food allergies? My son stalled when he went

allergic to new foods. Is he on enzymes? www.houstonenzymes.com has a free DVD

FREEE!!! Very informative.

We were SCD for a while... now he is modified SCD as he needed more carbs. He

started getting stinky pits like an adult after SCD.

Good luck

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who was

diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that weren't

there before. Among the occasional head jerk, he says the word " shut-up " all

the time. And while he will sometimes stop for a few seconds when we reprimand

him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

You can have PANDAS without ever having strep illness. Also, my son has PANDAS

and has very mild symptoms, not like the ones you read about. This was the very

reason his doctor didn't do a blood test when I originally asked, because he

told me my son didn't have severe behavioral issues which are always one of the

symptoms of PANDAS. It took two more years and a different doctor to do a simple

blood test. My son presents with mild ODC behaviors and facial tics. Stubborn as

he can be but not violent or overwhelming. Have your son tested.

> >

> > Has he been on any prescription anti-fungals? Some of our kids have to stay

> > on one at all times. Diflucan, Sporonox, etc

> >

> >

> >

> > For tics and OCD you should rule out PANDAS.

> >

> >

> >

> > Pamela

> >

> >

> >

> > From: mb12 valtrex [mailto:mb12 valtrex ] On

> > Behalf Of Mischa

> > Sent: Wednesday, January 06, 2010 2:54 PM

> > To: mb12 valtrex

> > Subject: New and not quite sure where to start.

> >

> >

> >

> >

> >

> > Hello. My name is and I have a 5 1/2 year old son named Cole who

> > was diagnosed PDD shortly before his 4th birthday. We have been following a

> > biomedical treatment plan for the past year. We started off on the GFCF diet

> > and then when my son plateaued we placed him on SCD with a lot of

> > improvement. Now he seems to have stalled again and I would like to look

> > into the possibility of antiviral/antifungal therapy.

> >

> > It all seems so overwhelming and I'm not sure where to begin. He had an

> > Organic Acids Test in December of 2008, which showed elevated levels of

> > yeast, and we have been battling that beast ever since. Supplementation

> > includes:

> >

> > SCD legal multivitamin

> > SCD legal antioxident

> > SCD legal zinc

> > Carlson Cod liver oil

> > Coconut oil

> > Probiotics in the form of SCD goat yogurt

> > Caprylic acid and Citrus seed extract, which we rotate weekly

> > Methyl B-12 injections every 3 days.

> >

> > He has come a long way, however we have noticed a couple of tics that

> > weren't there before. Among the occasional head jerk, he says the word

> > " shut-up " all the time. And while he will sometimes stop for a few seconds

> > when we reprimand him, I honestly don't think he can help it.

> >

> > If anybody has any insight for me, I would most appreciative. Thank you.

> >

> >

> >

>

[Guest guest]

Thank you all for your input. This is unbelievably helpful! I do have some

questions about PANDAS. Can the symptoms present themselves as autistic-like?

The reason I'm asking is my son is definitely developmentally delayed and shows

many autistic symptoms such as delayed speech, echolalia, inappropriate

giggling, hyperactivity, stimming, etc. He is quite verbal (always has been,

really), but often his speech is difficult to understand and sometimes

inappropriate and out of context.

Also, can the symptoms of PANDAS come on gradually, or do they just show up one

day? Cole's regression was very gradual, i.e., instead of shutting off like a

switch he kind of faded like a dimmer, and he would fade in and out. It's the

reason he wasn't diagnosed until he was almost 4.

And one more question. He'd had a very bad stomach bug of some sort when he was

around 2 years old. Both he and his older sister were laid out for about 4 days

with vomiting and fever. I realized in retrospect (and after viewing old videos)

that he regressed noticeably after that, and he also started having massive

temper tantrums to the point that he was injuring himself (throwing himself up

against walls, banging his head on the floor, etc). Something that was

particularly bothersome to my husband and I was when he would start to cry over

something - didn't matter what - he would lose his breath and pass out. He's be

" out " for up to 15-20 seconds and slowly come around again. It was incredibly

scary. This lasted for several months. Everybody I've spoken with, including his

pediatrician and his DAN doctor, said they were normal breath holding incidents.

But it has always struck me as odd. Does anybody have thoughts on this?

Once again, I thank you so much and I do apologize for all the questions. I

have been working to get my son back for almost 2 years and we are making great

strides, but I can't help but feel we've got a ways to go yet.

Peace,

[Guest guest]

Thank you all for your input. This is unbelievably helpful! I do have some

questions about PANDAS. Can the symptoms present themselves as autistic-like?

The reason I'm asking is my son is definitely developmentally delayed and shows

many autistic symptoms such as delayed speech, echolalia, inappropriate

giggling, hyperactivity, stimming, etc. He is quite verbal (always has been,

really), but often his speech is difficult to understand and sometimes

inappropriate and out of context.

Also, can the symptoms of PANDAS come on gradually, or do they just show up one

day? Cole's regression was very gradual, i.e., instead of shutting off like a

switch he kind of faded like a dimmer, and he would fade in and out. It's the

reason he wasn't diagnosed until he was almost 4.

And one more question. He'd had a very bad stomach bug of some sort when he was

around 2 years old. Both he and his older sister were laid out for about 4 days

with vomiting and fever. I realized in retrospect (and after viewing old videos)

that he regressed noticeably after that, and he also started having massive

temper tantrums to the point that he was injuring himself (throwing himself up

against walls, banging his head on the floor, etc). Something that was

particularly bothersome to my husband and I was when he would start to cry over

something - didn't matter what - he would lose his breath and pass out. He's be

" out " for up to 15-20 seconds and slowly come around again. It was incredibly

scary. This lasted for several months. Everybody I've spoken with, including his

pediatrician and his DAN doctor, said they were normal breath holding incidents.

But it has always struck me as odd. Does anybody have thoughts on this?

Once again, I thank you so much and I do apologize for all the questions. I

have been working to get my son back for almost 2 years and we are making great

strides, but I can't help but feel we've got a ways to go yet.

Peace,

[Guest guest]

We have not had him tested for food allergies yet. Should I get this done

through his DAN doctor, or go through a different route? He was on enzymes but

they didn't seem to do anything for him. Thank you!

> >

> > Hello. My name is and I have a 5 1/2 year old son named Cole who

was diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

> >

> > It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

> >

> > SCD legal multivitamin

> > SCD legal antioxident

> > SCD legal zinc

> > Carlson Cod liver oil

> > Coconut oil

> > Probiotics in the form of SCD goat yogurt

> > Caprylic acid and Citrus seed extract, which we rotate weekly

> > Methyl B-12 injections every 3 days.

> >

> > He has come a long way, however we have noticed a couple of tics that

weren't there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few seconds when

we reprimand him, I honestly don't think he can help it.

> >

> > If anybody has any insight for me, I would most appreciative. Thank you.

> >

> >

> >

>

[Guest guest]

We have not had him tested for food allergies yet. Should I get this done

through his DAN doctor, or go through a different route? He was on enzymes but

they didn't seem to do anything for him. Thank you!

> >

> > Hello. My name is and I have a 5 1/2 year old son named Cole who

was diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

> >

> > It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

> >

> > SCD legal multivitamin

> > SCD legal antioxident

> > SCD legal zinc

> > Carlson Cod liver oil

> > Coconut oil

> > Probiotics in the form of SCD goat yogurt

> > Caprylic acid and Citrus seed extract, which we rotate weekly

> > Methyl B-12 injections every 3 days.

> >

> > He has come a long way, however we have noticed a couple of tics that

weren't there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few seconds when

we reprimand him, I honestly don't think he can help it.

> >

> > If anybody has any insight for me, I would most appreciative. Thank you.

> >

> >

> >

>

[Guest guest]

We have not had him tested for food allergies yet. Should I get this done

through his DAN doctor, or go through a different route? He was on enzymes but

they didn't seem to do anything for him. Thank you!

> >

> > Hello. My name is and I have a 5 1/2 year old son named Cole who

was diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

> >

> > It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

> >

> > SCD legal multivitamin

> > SCD legal antioxident

> > SCD legal zinc

> > Carlson Cod liver oil

> > Coconut oil

> > Probiotics in the form of SCD goat yogurt

> > Caprylic acid and Citrus seed extract, which we rotate weekly

> > Methyl B-12 injections every 3 days.

> >

> > He has come a long way, however we have noticed a couple of tics that

weren't there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few seconds when

we reprimand him, I honestly don't think he can help it.

> >

> > If anybody has any insight for me, I would most appreciative. Thank you.

> >

> >

> >

>

[Guest guest]

There is a vaccine against Strep too? What is the actual name of the strep

vaccine? Sorry to sound so clueless but I honestly wasn't even aware of that.

Mom to Cole, 5 1/2, PDD

> > >

> > > Has he been on any prescription anti-fungals? Some of our kids have to

stay

> > > on one at all times. Diflucan, Sporonox, etc

> > >

> > >

> > >

> > > For tics and OCD you should rule out PANDAS.

> > >

> > >

> > >

> > > Pamela

> > >

> > >

> > >

> > > From: mb12 valtrex [mailto:mb12 valtrex ]

On

> > > Behalf Of Mischa

> > > Sent: Wednesday, January 06, 2010 2:54 PM

> > > To: mb12 valtrex

> > > Subject: New and not quite sure where to start.

> > >

> > >

> > >

> > >

> > >

> > > Hello. My name is and I have a 5 1/2 year old son named Cole

who

> > > was diagnosed PDD shortly before his 4th birthday. We have been

following a

> > > biomedical treatment plan for the past year. We started off on the GFCF

diet

> > > and then when my son plateaued we placed him on SCD with a lot of

> > > improvement. Now he seems to have stalled again and I would like to look

> > > into the possibility of antiviral/antifungal therapy.

> > >

> > > It all seems so overwhelming and I'm not sure where to begin. He had an

> > > Organic Acids Test in December of 2008, which showed elevated levels of

> > > yeast, and we have been battling that beast ever since. Supplementation

> > > includes:

> > >

> > > SCD legal multivitamin

> > > SCD legal antioxident

> > > SCD legal zinc

> > > Carlson Cod liver oil

> > > Coconut oil

> > > Probiotics in the form of SCD goat yogurt

> > > Caprylic acid and Citrus seed extract, which we rotate weekly

> > > Methyl B-12 injections every 3 days.

> > >

> > > He has come a long way, however we have noticed a couple of tics that

> > > weren't there before. Among the occasional head jerk, he says the word

> > > " shut-up " all the time. And while he will sometimes stop for a few

seconds

> > > when we reprimand him, I honestly don't think he can help it.

> > >

> > > If anybody has any insight for me, I would most appreciative. Thank you.

> > >

> > >

> > >

> >

>

[Guest guest]

I thought I would reply b/c your son sounds so much like mine. In a way I would

say that with my son it was a gradual fade, but with many sudden dips and spikes

along the way (later to find out that the dips were PANDAS episodes). Much like

his recovery, we are having a gradual return to health but with many dips and

spikes along the way.

In my son's case I feel that he has always been a borderline kid in terms of

being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

Also, I wanted to comment on the stomach flu that your son had. Historically,

EVERY time my son tests positive for strep, he first has some type of stomach

flu/vomitting episode in the two weeks prior. Strep can definitely cause

vomitting/fever, etc. and even with no sore throat. No way to know without a

culture...

One other thing, sometimes gut bacteria can cause OCD, and viruses can cause

pandas-type reactions (called PITAND syndrome).

Hope some of this helped!

> > >

> > > Hello. My name is and I have a 5 1/2 year old son named Cole who

was diagnosed PDD shortly before his 4th birthday. We have been following a

biomedical treatment plan for the past year. We started off on the GFCF diet and

then when my son plateaued we placed him on SCD with a lot of improvement. Now

he seems to have stalled again and I would like to look into the possibility of

antiviral/antifungal therapy.

> > >

> > > It all seems so overwhelming and I'm not sure where to begin. He had an

Organic Acids Test in December of 2008, which showed elevated levels of yeast,

and we have been battling that beast ever since. Supplementation includes:

> > >

> > > SCD legal multivitamin

> > > SCD legal antioxident

> > > SCD legal zinc

> > > Carlson Cod liver oil

> > > Coconut oil

> > > Probiotics in the form of SCD goat yogurt

> > > Caprylic acid and Citrus seed extract, which we rotate weekly

> > > Methyl B-12 injections every 3 days.

> > >

> > > He has come a long way, however we have noticed a couple of tics that

weren't there before. Among the occasional head jerk, he says the word

" shut-up " all the time. And while he will sometimes stop for a few seconds when

we reprimand him, I honestly don't think he can help it.

> > >

> > > If anybody has any insight for me, I would most appreciative. Thank you.

> > >

> > >

> > >

> >

>

[Guest guest]

, that helped tremendously. Thank you! I was watching some old videos

of my son the other day and noticed as well that he would have days where he was

totally neurotypical followed by days where he seemed more " autistic " for lack

of a better word. His recovery has also been the same. Last week was horrible

for him at school, while this week his teacher is sending home glowing reports.

As far as Cole's autism goes I honestly don't know if he is borderline or not.

In many ways he is very high functioning but in other ways he is so noticeably

not, especially when it comes to his speech. He still has major problems with

his speech, ie., mixing pronouns, echolalia, etc. and often times it is very

difficult to understand him. This leads to a lot of frustration sometimes

because he is unable to express his wants properly.

Something interesting to note as well. We put him on a very restricted diet for

about 3 days, where all he was eating was grass-fed beef, lamb, chicken, grape

jello, homemade chicken stock, eggs and carrots. All of his tics stopped and he

was so calm. This afternoon my husband made him some juice (carrots, an apple,

some pear and some spinach) and within 30 minutes he was back to running around

the house, his cheeks became red and he started with the tics, except they have

become much worse. He was irritable and when we turned off his movie so we

could sit down to supper, he had a fit and kicked the wall so hard I thought he

would break his foot. I didn't think he could have such a reaction to food. Do

you think it was the apple? This is so frustrating!

I'm so hoping that we can find the answers. Thanks again for your response!

Mom to Cole, 5 1/2, PDD

>

> I thought I would reply b/c your son sounds so much like mine. In a way I

would say that with my son it was a gradual fade, but with many sudden dips and

spikes along the way (later to find out that the dips were PANDAS episodes).

Much like his recovery, we are having a gradual return to health but with many

dips and spikes along the way.

>

> In my son's case I feel that he has always been a borderline kid in terms of

being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

>

> Also, I wanted to comment on the stomach flu that your son had. Historically,

EVERY time my son tests positive for strep, he first has some type of stomach

flu/vomitting episode in the two weeks prior. Strep can definitely cause

vomitting/fever, etc. and even with no sore throat. No way to know without a

culture...

>

> One other thing, sometimes gut bacteria can cause OCD, and viruses can cause

pandas-type reactions (called PITAND syndrome).

>

> Hope some of this helped!

>

>

[Guest guest]

, that helped tremendously. Thank you! I was watching some old videos

of my son the other day and noticed as well that he would have days where he was

totally neurotypical followed by days where he seemed more " autistic " for lack

of a better word. His recovery has also been the same. Last week was horrible

for him at school, while this week his teacher is sending home glowing reports.

As far as Cole's autism goes I honestly don't know if he is borderline or not.

In many ways he is very high functioning but in other ways he is so noticeably

not, especially when it comes to his speech. He still has major problems with

his speech, ie., mixing pronouns, echolalia, etc. and often times it is very

difficult to understand him. This leads to a lot of frustration sometimes

because he is unable to express his wants properly.

Something interesting to note as well. We put him on a very restricted diet for

about 3 days, where all he was eating was grass-fed beef, lamb, chicken, grape

jello, homemade chicken stock, eggs and carrots. All of his tics stopped and he

was so calm. This afternoon my husband made him some juice (carrots, an apple,

some pear and some spinach) and within 30 minutes he was back to running around

the house, his cheeks became red and he started with the tics, except they have

become much worse. He was irritable and when we turned off his movie so we

could sit down to supper, he had a fit and kicked the wall so hard I thought he

would break his foot. I didn't think he could have such a reaction to food. Do

you think it was the apple? This is so frustrating!

I'm so hoping that we can find the answers. Thanks again for your response!

Mom to Cole, 5 1/2, PDD

>

> I thought I would reply b/c your son sounds so much like mine. In a way I

would say that with my son it was a gradual fade, but with many sudden dips and

spikes along the way (later to find out that the dips were PANDAS episodes).

Much like his recovery, we are having a gradual return to health but with many

dips and spikes along the way.

>

> In my son's case I feel that he has always been a borderline kid in terms of

being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

>

> Also, I wanted to comment on the stomach flu that your son had. Historically,

EVERY time my son tests positive for strep, he first has some type of stomach

flu/vomitting episode in the two weeks prior. Strep can definitely cause

vomitting/fever, etc. and even with no sore throat. No way to know without a

culture...

>

> One other thing, sometimes gut bacteria can cause OCD, and viruses can cause

pandas-type reactions (called PITAND syndrome).

>

> Hope some of this helped!

>

>

[Guest guest]

, that helped tremendously. Thank you! I was watching some old videos

of my son the other day and noticed as well that he would have days where he was

totally neurotypical followed by days where he seemed more " autistic " for lack

of a better word. His recovery has also been the same. Last week was horrible

for him at school, while this week his teacher is sending home glowing reports.

As far as Cole's autism goes I honestly don't know if he is borderline or not.

In many ways he is very high functioning but in other ways he is so noticeably

not, especially when it comes to his speech. He still has major problems with

his speech, ie., mixing pronouns, echolalia, etc. and often times it is very

difficult to understand him. This leads to a lot of frustration sometimes

because he is unable to express his wants properly.

Something interesting to note as well. We put him on a very restricted diet for

about 3 days, where all he was eating was grass-fed beef, lamb, chicken, grape

jello, homemade chicken stock, eggs and carrots. All of his tics stopped and he

was so calm. This afternoon my husband made him some juice (carrots, an apple,

some pear and some spinach) and within 30 minutes he was back to running around

the house, his cheeks became red and he started with the tics, except they have

become much worse. He was irritable and when we turned off his movie so we

could sit down to supper, he had a fit and kicked the wall so hard I thought he

would break his foot. I didn't think he could have such a reaction to food. Do

you think it was the apple? This is so frustrating!

I'm so hoping that we can find the answers. Thanks again for your response!

Mom to Cole, 5 1/2, PDD

>

> I thought I would reply b/c your son sounds so much like mine. In a way I

would say that with my son it was a gradual fade, but with many sudden dips and

spikes along the way (later to find out that the dips were PANDAS episodes).

Much like his recovery, we are having a gradual return to health but with many

dips and spikes along the way.

>

> In my son's case I feel that he has always been a borderline kid in terms of

being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

>

> Also, I wanted to comment on the stomach flu that your son had. Historically,

EVERY time my son tests positive for strep, he first has some type of stomach

flu/vomitting episode in the two weeks prior. Strep can definitely cause

vomitting/fever, etc. and even with no sore throat. No way to know without a

culture...

>

> One other thing, sometimes gut bacteria can cause OCD, and viruses can cause

pandas-type reactions (called PITAND syndrome).

>

> Hope some of this helped!

>

>

[Guest guest]

I agree with the phenols, some of those are also high oxalates as well. Look in

to the Low Oxalate Diet as well as the Feingold Diet. We do both and it has

helped a lot.

> >

> > I thought I would reply b/c your son sounds so much like mine. In a way I

would say that with my son it was a gradual fade, but with many sudden dips and

spikes along the way (later to find out that the dips were PANDAS episodes).

Much like his recovery, we are having a gradual return to health but with many

dips and spikes along the way.

> >

> > In my son's case I feel that he has always been a borderline kid in terms

of being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

> >

> > Also, I wanted to comment on the stomach flu that your son had.

Historically, EVERY time my son tests positive for strep, he first has some type

of stomach flu/vomitting episode in the two weeks prior. Strep can definitely

cause vomitting/fever, etc. and even with no sore throat. No way to know without

a culture...

> >

> > One other thing, sometimes gut bacteria can cause OCD, and viruses can

cause pandas-type reactions (called PITAND syndrome).

> >

> > Hope some of this helped!

> >

> >

>

[Guest guest]

I agree with the phenols, some of those are also high oxalates as well. Look in

to the Low Oxalate Diet as well as the Feingold Diet. We do both and it has

helped a lot.

> >

> > I thought I would reply b/c your son sounds so much like mine. In a way I

would say that with my son it was a gradual fade, but with many sudden dips and

spikes along the way (later to find out that the dips were PANDAS episodes).

Much like his recovery, we are having a gradual return to health but with many

dips and spikes along the way.

> >

> > In my son's case I feel that he has always been a borderline kid in terms

of being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

> >

> > Also, I wanted to comment on the stomach flu that your son had.

Historically, EVERY time my son tests positive for strep, he first has some type

of stomach flu/vomitting episode in the two weeks prior. Strep can definitely

cause vomitting/fever, etc. and even with no sore throat. No way to know without

a culture...

> >

> > One other thing, sometimes gut bacteria can cause OCD, and viruses can

cause pandas-type reactions (called PITAND syndrome).

> >

> > Hope some of this helped!

> >

> >

>

[Guest guest]

I agree with the phenols, some of those are also high oxalates as well. Look in

to the Low Oxalate Diet as well as the Feingold Diet. We do both and it has

helped a lot.

> >

> > I thought I would reply b/c your son sounds so much like mine. In a way I

would say that with my son it was a gradual fade, but with many sudden dips and

spikes along the way (later to find out that the dips were PANDAS episodes).

Much like his recovery, we are having a gradual return to health but with many

dips and spikes along the way.

> >

> > In my son's case I feel that he has always been a borderline kid in terms

of being on the spectrum. With that having been said, PANDAS seems to be what

brings him on and off the spectrum. Kind of like the straw that breaks the

camels back. I think that if we were to take away all pandas symptoms my kid

would still have spectrum quirks, along with yeasty behaviors, immune issues and

bowel issues. He also tends to be a very " sensitive " kid to any and all meds and

many foods. So, you asked if pandas can present itself with autistic features, I

would say yes, if he has other underlying issues that bring him closer to the

spectrum. I would think that if he were completely neurotypical and he develops

pandas it would not look like autism but more like plain old OCD/Tourette's.

> >

> > Also, I wanted to comment on the stomach flu that your son had.

Historically, EVERY time my son tests positive for strep, he first has some type

of stomach flu/vomitting episode in the two weeks prior. Strep can definitely

cause vomitting/fever, etc. and even with no sore throat. No way to know without

a culture...

> >

> > One other thing, sometimes gut bacteria can cause OCD, and viruses can

cause pandas-type reactions (called PITAND syndrome).

> >

> > Hope some of this helped!

> >

> >

>