Re: what exactly is die off?

[Guest guest]

I think most people will tell you to try the SCD diet, but I just

want to respond with my own experience. I was diagnosed with Crohn's

Disease, and have been to the hospital several times with relapses.

When my 21-month old son was born, I went off all dairy (I had been

drinking lactaid milk). I have been completely healthy since he was

born, with no relapses. I have no trouble digesting wheat, rice,

potatoes, etc., but I have to be extremely careful about dairy. In

order to go off all dairy, you have to read the labels on all foods

to make sure there is no casein, lactose, or whey. Even vitamins

contain lactose. If your daughter has a milk allergy, maybe it is

worth first trying the dairy removal before starting the SCD diet,

which is much more difficult. I have now just started SCD for my

son's sake because I am still nursing him and he needs to be on SCD.

It's doing wonders for him, but it's not any better for my stomach

personally. In fact, it's worse because I have trouble with nuts,

bananas, and other foods on the diet. It's entirely possible that

your daughter does need SCD, but I am just trying to save you a

tremendous about of trouble on the chance that she doesn't. I would

try complete dairy removal for a set time, and then switch to SCD if

she doesn't improve.

> My 2 year old has been dx with IBD. Her symptoms include loose,

> mucousy stools, usually 2 x day. She was initially dx with a milk

> allergy so we took her off all dairy products. We were very careful

> not to give her anything with dairy. We did the elimination diet

> twice, and both times her stools become looser and more frequent

with

> slight amounts of blood. I asked her ped GI and he just said that

her

> intestinal flora are used to the milk and they want milk! Seems

like

> kind of an odd explanation. Anyone know why she would worsen? I've

> heard people mention " die off " and I was just wondering what that

was

> and if there was any correlation.

>

> I've really been thinking about the scd diet but I'm a bit

> apprehensive because she's such a picky eater already! Any thoughts

> would be appreciated!

>

> Sue

[Guest guest]

I think most people will tell you to try the SCD diet, but I just

want to respond with my own experience. I was diagnosed with Crohn's

Disease, and have been to the hospital several times with relapses.

When my 21-month old son was born, I went off all dairy (I had been

drinking lactaid milk). I have been completely healthy since he was

born, with no relapses. I have no trouble digesting wheat, rice,

potatoes, etc., but I have to be extremely careful about dairy. In

order to go off all dairy, you have to read the labels on all foods

to make sure there is no casein, lactose, or whey. Even vitamins

contain lactose. If your daughter has a milk allergy, maybe it is

worth first trying the dairy removal before starting the SCD diet,

which is much more difficult. I have now just started SCD for my

son's sake because I am still nursing him and he needs to be on SCD.

It's doing wonders for him, but it's not any better for my stomach

personally. In fact, it's worse because I have trouble with nuts,

bananas, and other foods on the diet. It's entirely possible that

your daughter does need SCD, but I am just trying to save you a

tremendous about of trouble on the chance that she doesn't. I would

try complete dairy removal for a set time, and then switch to SCD if

she doesn't improve.

> My 2 year old has been dx with IBD. Her symptoms include loose,

> mucousy stools, usually 2 x day. She was initially dx with a milk

> allergy so we took her off all dairy products. We were very careful

> not to give her anything with dairy. We did the elimination diet

> twice, and both times her stools become looser and more frequent

with

> slight amounts of blood. I asked her ped GI and he just said that

her

> intestinal flora are used to the milk and they want milk! Seems

like

> kind of an odd explanation. Anyone know why she would worsen? I've

> heard people mention " die off " and I was just wondering what that

was

> and if there was any correlation.

>

> I've really been thinking about the scd diet but I'm a bit

> apprehensive because she's such a picky eater already! Any thoughts

> would be appreciated!

>

> Sue

[Guest guest]

Hi,

Just wanted to say that my 22mos.old/asd is an extremely picky eater.

He has been GFCF for 6 mos. and only ate about 6 different foods (no

fruits and no veggies). We implemented SCD a week ago. His repotoire

of foods is already surpassed that of previous months. He did eat

only the chicken pancakes day 1 and 2, and day 3 didn't eat at

all..but day 4-7 he is eating better than I have ever seen him!

Applesauce, pearsauce, banana pancakes, ground chicken, butternut

squash, pureed carrots..

If you asked me a week ago, I would have said no way, he won't eat

it! Not to mention, he had not eaten anything mushy off a spoon due

to what I thought were huge sensory issues, for the past 8 mos. That

of course, has completely ended with this diet also.. He is like a

bird waiting to be fed, and is even attempting self feeding for the

first ever with a utensil! Made a believer out of me!

and Ty

- In pecanbread , " sue_tomica " <sue.tomica@c...> wrote:

> My 2 year old has been dx with IBD. Her symptoms include loose,

> mucousy stools, usually 2 x day. She was initially dx with a milk

> allergy so we took her off all dairy products. We were very careful

> not to give her anything with dairy. We did the elimination diet

> twice, and both times her stools become looser and more frequent

with

> slight amounts of blood. I asked her ped GI and he just said that

her

> intestinal flora are used to the milk and they want milk! Seems

like

> kind of an odd explanation. Anyone know why she would worsen? I've

> heard people mention " die off " and I was just wondering what that

was

> and if there was any correlation.

>

> I've really been thinking about the scd diet but I'm a bit

> apprehensive because she's such a picky eater already! Any thoughts

> would be appreciated!

>

> Sue

[Guest guest]

Welcome to the list Sue,

Die-off refers to the dying of microbes in the body (bacteria and

yeast).

Die-off symptoms can include color change in stools (green, yellow

etc.), fatique, lethargy, increased behaviours. The good news is

that this is temporary.

Many have found that giving epsom salt baths or activated charcoal

help ease these symtoms until they are over the worst of it.

Your daughter may have had loose bloody stool is she was still

getting other forms of food (starches etc.) for the microbes when

you cut out lactose.

Here is a great section on our site for picky eaters

http://pecanbread.com/difficulties.html#picky and depending what

types of food she prefers (soft, crunchy etc.) there are lots of

great recipes to be found at http://pecanbread.com/recipes.html

If you are thinking of starting the diet please check out

http://pecanbread.com/foodprep.html#transition

http://pecanbread.com/foodprep.html#intro

http://pecanbread.com/foodprep.html#menu

Sheila UC, 20 years -- in remission after 39 mos SCD

mom of SCD 24 mos

> My 2 year old has been dx with IBD. Her symptoms include loose,

> mucousy stools, usually 2 x day. She was initially dx with a milk

> allergy so we took her off all dairy products. We were very

careful

> not to give her anything with dairy. We did the elimination diet

> twice, and both times her stools become looser and more frequent

with

> slight amounts of blood. I asked her ped GI and he just said that

her

> intestinal flora are used to the milk and they want milk! Seems

like

> kind of an odd explanation. Anyone know why she would worsen? I've

> heard people mention " die off " and I was just wondering what that

was

> and if there was any correlation.

>

> I've really been thinking about the scd diet but I'm a bit

> apprehensive because she's such a picky eater already! Any

thoughts

> would be appreciated!

>