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Re: Andy-Tics

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Not sure if this will apply here but magnesium defficiency can cause tics --

though usually more facial tics. I found that liquid magnesium chloride

would eliminate them pretty quickly.

Gaylen

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Ugh.

Try holding the chelation for a while and fill him up with tons and

tons of vitamin E, fish oil, flax oil, and magnesium. Also experiment

a bit with vitamin A.

This is also a good thing to get him in front of a physician and make

the doc explain what he thinks is going on, what part of the brain is

involved, what the different meds that help might be. You don't have

to use the meds but if you post what the doc says on the board it

might help us think of other things that would help.

Andy . .. . . . . . . . . . .

> After our son's last round 1/2/03 he developed a case of tics that

is

> still going on. Can you comment on this at all? Common, uncommon,

> pulling minerals, done chelating.

>

> Are there ANY, and we are desperate, avenues to eliminating this.

It's

> shoulder jerking, head twitching, and clapping. He is not a

stimmer.

>

> Please help in any way you can.

> Most gratefully,

> Jill G.

> He's 6 1/2, 40 lbs, 3 days on 11 days off, 25mg DMSA, 12.5 ALA. We

> started a

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Thanks for getting back so quickly.

" andrewhallcutler " wrote:

>

> Try holding the chelation for a while

Absolutely.

> and fill him up with tons and

> tons of vitamin E,

He's on 300 IU daily. Give more?

> fish oil

He takes 2500IU daily. Give more?

> , flax oil,

Will do.

> and magnesium.

He's on 500-1000 daily due to constipation.

> Also experiment

> a bit with vitamin A.

What form? I guess I thought he was getting it in the CLO.

We increased his calcium, he was getting next to zero. Do you think that

fact along w/ all the magnesium could have sent things haywire?

> This is also a good thing to get him in front of a physician and make

> the doc explain what he thinks is going on, what part of the brain is

> involved, what the different meds that help might be.

We explained it to his doctor that treats the ADHD (MD, pediatrician) and she

said 50% of boys w/ ADHD experience tics. There is a drug called catapress

(forgive my phonetic spelling) that initially was used for hypertension. She

only likes to prescribe this if the tics are ongoing 2-3 months.

She equated the tics as a neurological 'itch.'

> You don't have

> to use the meds but if you post what the doc says on the board it

> might help us think of other things that would help.

The MAJOR coincidence was that we had scheduled a 24 hr EEG, Digitrace (they

wear it all home) months ago and it coincided w/ this current tic problem.

At least we'll rule out seizures---hopefully.

It definitely, the tics, occurred right after his last round. We have had

VERY successful rounds since Feb. 02, and would not have changed a thing.

For most practical purposes our son is considered off the spectrum. Thanks

be to, well, you know......

At any rate, I'll be waiting to hear your ideas and thoughts.

Jill G.

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> > and fill him up with tons and

> > tons of vitamin E,

>

> He's on 300 IU daily. Give more?

Yes. Also make sure it is natural (d, not dl) and mixed tocopherols,

not only alpha tocopherol. 1,000 IU a day is good. It isn't toxic so

you can give him as much as you want.

>

> > fish oil

>

> He takes 2500IU daily. Give more?

Yes, try 25,000 IU a day of vitamin A. Use capsules so he doens't get

too much D with it.

>

> > , flax oil,

>

> Will do.

>

> > and magnesium.

>

> He's on 500-1000 daily due to constipation.

If that is in divided doses that should be enough.

>

> > Also experiment

> > a bit with vitamin A.

>

> What form? I guess I thought he was getting it in the CLO.

>

> We increased his calcium, he was getting next to zero. Do you think

that

> fact along w/ all the magnesium could have sent things haywire?

Maybe. Take it out for a few days and see if it helps. If not, put

it back in.

>

> > This is also a good thing to get him in front of a physician and

make

> > the doc explain what he thinks is going on, what part of the brain

is

> > involved, what the different meds that help might be.

>

> We explained it to his doctor that treats the ADHD (MD,

pediatrician) and she

> said 50% of boys w/ ADHD experience tics.

Try other doc's. Have them SEE him do it to decide if it is a big

deal or not, don't just do it on the phone.

> There is a drug called catapress

> (forgive my phonetic spelling) that initially was used for

hypertension. She

> only likes to prescribe this if the tics are ongoing 2-3 months.

Yes, this is clonidine. The kids on this act REALLY REALLY REALLY

wierd. Some people do better with it's relative guanfacine, which you

also don't have to give as often.

Things like clonidine and guanfacine are for hyperactive, impulsive,

aggressive children with ADHD. They cause weight gain, headaches and

depression.

He might get some relief if you feed him peanut oil (make sure it

isn't hydrogenated). It can be in peanut butter, as salad dressing,

or just in food.

>

> She equated the tics as a neurological 'itch.'

>

> > You don't have

> > to use the meds but if you post what the doc says on the board it

> > might help us think of other things that would help.

>

> The MAJOR coincidence was that we had scheduled a 24 hr EEG,

Digitrace (they

> wear it all home) months ago and it coincided w/ this current tic

problem.

> At least we'll rule out seizures---hopefully.

Yes, find out what is going on. . . . . .. .. . .

> It definitely, the tics, occurred right after his last round. We

have had

> VERY successful rounds since Feb. 02, and would not have changed a

thing.

> For most practical purposes our son is considered off the spectrum.

Thanks

> be to, well, you know......

>

> At any rate, I'll be waiting to hear your ideas an

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Sometimes a child who never had tics will develop them between the ages of

6-9 yrs of age. It happens more in boys. It may be that, as hard as it is

to hear.

but treat and try to do what you can and hope for the best.

My son developed a tic after 2 hep B shots.........I think the shots did

it........but I also have to face the fact that TS can start that way.

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> Andy,

> After our son's last round 1/2/03 he developed a case of tics that

is

> still going on. Can you comment on this at all? Common, uncommon,

> pulling minerals, done chelating.

>

> Are there ANY, and we are desperate, avenues to eliminating this.

It's

> shoulder jerking, head twitching, and clapping. He is not a

stimmer.

Sounds like maybe he has a yeast issue. Common with chelating

http://www.danasview.net/yeast.htm

Dana

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B1 and magnesium work well for tics.

mt

" andrewhallcutler " wrote:

> > > and fill him up with tons and

> > > tons of vitamin E,

> >

> > He's on 300 IU daily. Give more?

>

> Yes. Also make sure it is natural (d, not dl) and mixed tocopherols,

> not only alpha tocopherol. 1,000 IU a day is good. It isn't toxic so

> you can give him as much as you want.

> >

> > > fish oil

> >

> > He takes 2500IU daily. Give more?

>

> Yes, try 25,000 IU a day of vitamin A. Use capsules so he doens't get

> too much D with it.

> >

> > > , flax oil,

> >

> > Will do.

> >

> > > and magnesium.

> >

> > He's on 500-1000 daily due to constipation.

>

> If that is in divided doses that should be enough.

> >

> > > Also experiment

> > > a bit with vitamin A.

> >

> > What form? I guess I thought he was getting it in the CLO.

> >

> > We increased his calcium, he was getting next to zero. Do you think

> that

> > fact along w/ all the magnesium could have sent things haywire?

>

> Maybe. Take it out for a few days and see if it helps. If not, put

> it back in.

> >

> > > This is also a good thing to get him in front of a physician and

> make

> > > the doc explain what he thinks is going on, what part of the brain

> is

> > > involved, what the different meds that help might be.

> >

> > We explained it to his doctor that treats the ADHD (MD,

> pediatrician) and she

> > said 50% of boys w/ ADHD experience tics.

>

> Try other doc's. Have them SEE him do it to decide if it is a big

> deal or not, don't just do it on the phone.

>

> > There is a drug called catapress

> > (forgive my phonetic spelling) that initially was used for

> hypertension. She

> > only likes to prescribe this if the tics are ongoing 2-3 months.

>

> Yes, this is clonidine. The kids on this act REALLY REALLY REALLY

> wierd. Some people do better with it's relative guanfacine, which you

> also don't have to give as often.

>

> Things like clonidine and guanfacine are for hyperactive, impulsive,

> aggressive children with ADHD. They cause weight gain, headaches and

> depression.

>

> He might get some relief if you feed him peanut oil (make sure it

> isn't hydrogenated). It can be in peanut butter, as salad dressing,

> or just in food.

> >

> > She equated the tics as a neurological 'itch.'

> >

> > > You don't have

> > > to use the meds but if you post what the doc says on the board it

> > > might help us think of other things that would help.

> >

> > The MAJOR coincidence was that we had scheduled a 24 hr EEG,

> Digitrace (they

> > wear it all home) months ago and it coincided w/ this current tic

> problem.

> > At least we'll rule out seizures---hopefully.

>

> Yes, find out what is going on. . . . . .. .. . .

>

> > It definitely, the tics, occurred right after his last round. We

> have had

> > VERY successful rounds since Feb. 02, and would not have changed a

> thing.

> > For most practical purposes our son is considered off the spectrum.

> Thanks

> > be to, well, you know......

> >

> > At any rate, I'll be waiting to hear your ideas an

>

> =======================================================

>

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> B1 and magnesium work well for tics.

Possibly a legitimate use for allithiamine (which is a form of B-1).

Use about 10% of the usual dose of the stuff and that will raise his

thaimine levels a lot.

Andy. .. . . . . . ..

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> Sometimes a child who never had tics will develop them between the

ages of

> 6-9 yrs of age. It happens more in boys. It may be that, as hard

as it is

> to hear.

My 8yo developed vocal tics, like coughing and things like that. When

I treat him for yeast, his tics go away. So for him, it is yeast. He

has no official diagnoses altho he appears to be shadow-AS and ADD,

maybe some CAPD, but I am chelating him and his " issues " are

disappearing.

Dana

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In a message dated 1/24/2003 10:07:54 AM Central Standard Time,

danaatty@... writes:

> My 8yo developed vocal tics, like coughing and things like that. When

> I treat him for yeast, his tics go away. So for him, it is yeast. He

> has no official diagnoses altho he appears to be shadow-AS and ADD,

> maybe some CAPD, but I am chelating him and his " issues " are

> disappearing.

>

dana,

that gives me hope! We don't have the vocal, only the motor, but they

rotate.

keep me posted on how he improves!

claire

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