Re: Digest Number 489

[Guest guest]

Der GRoup,

My quality of life has improved, but I atill don't think I can work. It is my

opinion that until we find a virucide we will never get well. My symptoms are

much better by giving myself two injections per day of Heparin to thin my blood

that my immune system has caused to coagulate so the I at least can get oxygen

And most brain fog is gone. but I am still etird from the viral buggs that

infect my system.

Lyon

[Guest guest]

Hi ,

Have you tried to argument this with antibiotics (see

http://www.folkarts.com/idef/antibiotics.htm )? I went from 30% to 80% in

three days from aspirin (for blood thinning) - real lucky to have had heavy

palette activity... and then started antibiotics 2 weeks later, I feel that

I am up to 95+% at the moment... and more things are coming down the pipe

line to try pushing it that last 5% (Imuplus, breathing exercises, diet).

My philosophy is that we need to bush-whack CFS from as many angles as

we can tolerate... what seems to work (to significant degrees) are

diagrammed at http://www.folkarts.com/idef/treatment.htm

This is one illness we want to OVER-CURE... we want to do things in

PARALLEL (all at once) and not in series (one after the other ... we don't

want to give it a fighting chance!)

HTH,

Ken

Re: Digest Number 489

> From: " S. Lyon " <sslyon@...>

>

> Der GRoup,

>

> My quality of life has improved, but I atill don't think I can work. ...

two injections per day of Heparin to thin my blood

> that my immune system has caused to coagulate so the I at least can get

oxygen

>

> Lyon

>

[Guest guest]

Donna,

Hi. Regarding the AJAO conference. We just found out that we won a

scholarship to attend the conference. I am so excited. We will be coming all

the way from California, so it will be an expensive trip. I have heard that

the " national " conferences are wonderful. I look forward to meeting many new

people!!! )

Love, Diane

[Guest guest]

hi yall

when is this trip to orlando?

i know melissa was picked as a honoree

i signed some paper and they said i would be contacted again

i aint sure but who knows

Robbin

[Guest guest]

Diane - congratulations on the award. Have a great trip.

Ursula Holleman

Macey and 's mom

http://home.att.net/~maceyh

<<We just found out that we won a scholarship to attend the conference.

Diane>>

[Guest guest]

Thank you Kathleen, my thoughts exactly.

[Guest guest]

Sorry sent my inspire memo on Sunday seems it gets to you on Mondays

will send next one on Saturday so it can go on Sunday (I hope).....My

times are a day slow obviously.

Cat

[Guest guest]

In a message dated 9/18/2000 7:00:13 PM Pacific Daylight Time,

cat926@... writes:

<< Sorry sent my inspire memo on Sunday seems it gets to you on Mondays

will send next one on Saturday so it can go on Sunday (I hope).....My

times are a day slow obviously.

Cat >>

I did the samthing late on Sunday night.

Time zone thing

jenny

[Guest guest]

Leah,

I can honestly say that Risperdal has helped in SOOOOO many other ways. Good

luck on Friday with your upcoming IEP... goes in to the Pulmonary Doc

tomorrow to see what the next step is for the Sleep Apnea. The surgery

didn't take it away and he's still showing as airway obstructive???????????

Is it possible our kids just don't show normal sleep study's as compared to a

normal child????????????? Could there be a normal sleep apnea study used

with a child with DS as the comparison??? This is my next question. Maybe

he'll never have a normal sleep apnea study. Don't our kids have smaller

airways????

I'm so tired of putting him through all these tests and surgeries to correct

something that might be normal for him!!!

[Guest guest]

michelle,

thanks for iep support....i will need it..... good luck on billy's sleep

stuff, i was hoping the tanda would do it for him.....bless his heart......i

agree there comes a time when you wonder if all this testing, prodding,

needling and poking are necessary to live a healthy life...... i used to

wonder if ashton thought she was a lab rat and pin cushion versus a little

girl.......take care prayers adn luck coming your wya......... leah :-)

[Guest guest]

Hi All, just trying to catch up.

Diane, congratulations on your impending addition! Feel well, drink your

water and put those feet up (ha ha).

Dean, welcome. I have a 6 year old son, Logan, and 4 year old boy/girl

twins, Eli who has DS and Milo who doesn't. I'm not too active on the list

but I am glad to be a prt of it, you'll find lots of great people and great

advice/stories/understanding.

My Eli is a great kid -- as someone else so honestly put it, there's a lot of

joy and sorrow there but again, he's a great kid. He recently started

horseback riding with a group called Pegasus Therapeutic Riding, designed for

kids with special needs of all kinds. It's been awesome, on a number of

levels. He goes to the special ed pre-school classroom that's part of the

elementary school in our town, and so far we're very pleased. The therapists

are " more than adequate, " but his teacher is a SAINT!

Hope you had a good Halloween, and nice to meet you!

love debbi

[Guest guest]

In a message dated 11/02/2000 12:35:52 AM Central Standard Time,

MBrayley@... writes:

<< s it possible our kids just don't show normal sleep study's as compared to

a

normal child????????????? Could there be a normal sleep apnea study used

with a child with DS as the comparison??? This is my next question. Maybe

he'll never have a normal sleep apnea study. Don't our kids have smaller

airways???? >>

I'm with you, ! Gosh, I wish we had the answers to these questions.

I wish the " yardstick " had already been established. But, realistically, I

think our kids are the pioneers in this area and so many others regarding

DS-ASD, etc. and will be the ones to establish the " norms. " Frustrating,

isn't it? I can relate,

Maureen

[Guest guest]

i know during one of nathan's EEG's i asked how it was compared to usual

EEG's and the lady said its slower, which is due to his mental disablitlity.

I thought this rather interesting, that even his brain waves were slower.

shawna.

[Guest guest]

<cures for cancer >

From: " Ketan Soni " <ketan@...>

Date sent: Sun, 10 Jun 2001 18:06:49 +0100

Send reply to: cures for cancer

Subject: RE: Digest Number 489

> Hi,

>

> Is possible to use IV beta glucan and does anyone know where to get hold

> of the IV form. I understand that more is absorbed and it is more

> effective using this method. Would you agree with this assessment.

>

> Regards

>

> Ketan

Hi,

It is untrue that beta glucan needs to be injected to be absorbed. It

is

very well absorbed by the body and macrophages in the gut grab the glucan as it

is

passes into the blood.

But that is only the begining of the story. In order to move the

macrophages

need plenty of vitamin C to swim, if they dont get their Vit C, then they will

ot

move to where they are needed. Thats Important.

They also need Vit. C to make the tumor killing cytoines they make.

It is true that when Doctor Mansell injected beta glucan directly into

tumors the tumors were killed quickly. Thats becasue he put the glucan exactly

where

it was needed. Yet he did not even add Vitamin C to the injection because he did

not

know the synergistic relation ship between the two things. He did not inject

glucan

into a vein but into the tumor. But we know of several things (ozone, peroxide,

saline, ethanol, glucan) which, when injected into tumors, kills them quickly,

yet

doctors always refuse to use such proven, cheap, quick, safe therapy. Not quack

therapy, but clinically proven therapy.

Infact no one has included Vitamin C in beta glucan trials yet. Except

for a

prostate cancer study where this synergistic relationship was first discovered.

Eight fold magnification of the tumor killing effect of glucan, by addition of

Vitamin C.

moonbeam

[Guest guest]

Your child memorizing four songs is an accomplishement.So presents aren't his

thing something else is. Who cares what typical children do.My apraxic son

was in a Christmas play today and said the same line five times and he was

great! His speech was clearer then one of the other children who doesn't get

speech.Oh was I proud! And boy did my heart swell when he came out in his

angel custuma and everyone in the audience went " AHHHHHHH! " You know he was

no different then other children.Your's will find his niche and you will

swell with pride too.Good Luck and your child is very special.Merry

Christmas.Gretchen mother of who is 6 with apraxia.

[Guest guest]

Hi, Kat,

If your processor is working as it was before, I'm sure the shocker toy

did no damage. HOWEVER, depending on your financial situation, you may want

to sue the crap out of that station and recover damages! Think of what you

could do with the money! (tongue firmly planted in cheek). Hope all is well,

and stop picking up small toys on counters! LOL

) Jackie

[Guest guest]

Hi Hal!

Your post about your whistle really cracked me up. Thanks so much for

sharing your experience with me. I'm glad the CI surgery has made your balance

problems better for you. I would not wish balance issues on ayone! I have

improved since the surgery and I can usually two step my way through an

activity without falling over. But gosh since going back to swimming again

WHEW,

what a surprise it was to find that I was getting a seasick feeling when

swimming freestyle. I am hoping that my ENT is right and that it will

resolve

itself in time. In the meantime I am doing all I can to help it along.

Take care, Hal and thanks again for your kind words!

Velma

N24C 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

[Guest guest]

Expeller processed coconut oil is not really virgin coconut oil. It is made

from copra and very high heat is used to produce it. But if you can't afford

vco, then i guess epco is not too bad a substitute. Some epco go rancid after a

few months so just make sure it is not rancid when you take it. .

Re: hello

>

>

> I've tried several brands of virgin coconut oil and this is the very

> problem my daughter and I had with it. I now use the refined,

> bleached and deodorized oil for frying (there is no smell). Although

> many may disagree with this, I feel that this is better than giving

> up on it altogether. We just can't take the smell of the heated

> oil. I still use the virgin oil whenever I can, just not for frying

> or saute'.

>

> -Patty

>

>

>>

>> Hello,

>> I've just joined this group hoping to learn a bit more about

> Coconut

>> Oil and it's uses. It has been suggested I do any frying with it

>> however my child can not tolerate the smell of the type I

> purchased,

>> which is Virgin and it has been mentioned that I should look into

>> expeller processed as it has less offensive odor. I am also

>> interested in using it for weight loss, reving up the thyroid,

>> metabolism, etc. and would like suggestions how to mix it in foods,

>> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> how

>> to " hide " it in foods my children would be helpful also.

>> Thanks,

>> Michele

>

>

>

>

------------------------------------------------------------------------------

[Guest guest]

RBD oil oten goes through a long process to get to the mills where it is

produced into copra, I have seen photos of copra in Fiji out in the hot and

humid tropical air, covered in mould. This is part of the reason it has to

be Refined, Bleached and Deoderized. If you saw it in this form you would

think twice before eating it. Below is a description of the copra problem

from www.kokonutpacific.com.au. It not only describes what copra goes

through, but the affect it has had on Island communities.

The copra problem

Conventional coconut oil comes from dried coconut flesh, called copra. Copra

is dried in a wood-fuelled kiln, or in the sun, over a period of a few days.

It is time-consuming, dirty, lonely, arduous, fuel-intensive and low-paying

work. Many farmers consider it a form of slavery.

Copra is bulked up at an export port and shipped to a large industrial oil

mill - often in Europe or Asia. Unhygienic drying, humid tropical

conditions, bulk shipping and long distances, result in lengthy delays and

the growth of moulds on the copra. Sometimes this leads to aflatoxin

contamination.

Copra oil extraction requires large-scale, high-pressure, expensive,

energy-intensive equipment. Unhygienic copra means that the resultant oil is

normally of low quality with a Free Fatty Acid (FFA) level of 3% or more.

(FFA is one measure of rancidity of oil).

Thus copra oil requires refining, bleaching and deodorising (RBD) to create

a commercially acceptable product. The refining process uses hydrochloric

acid, solvents and steam to strip out the contamination. Some residual

solvents remain in the oil. The process also removes the natural volatiles

and anti-oxidants that give pure coconut oil its unique flavour and aroma.

The total process from farm to refined oil can take many months. The

residual copra-meal is only suitable as animal feed but, even here, care is

required because it can be contaminated with carcinogenic aflatoxins.

The tropical world has over one billion coconut palms, producing over 50

billion coconuts each year. And yet, because of the low income earned on the

world market from coconut products, many coconut groves are run down, with

nuts and old trees lying where they fall, encouraging plant disease and

insect pests.

With fluctuating copra prices, farmers only harvest their nuts when prices

are high or when they are in desperate need of cash. For many remote islands

with plenty of coconuts, copra is still a risky venture because of the

infrequency of shipping services

Something to think about,

Ian

> ________________________________________________________________________

>

> Message: 4

> Date: Sat, 29 Jan 2005 19:21:08 -0000

> From: " Patty T " <tri4home@...>

> Subject: Re: hello

>

>

> I've tried several brands of virgin coconut oil and this is the very

> problem my daughter and I had with it. I now use the refined,

> bleached and deodorized oil for frying (there is no smell). Although

> many may disagree with this, I feel that this is better than giving

> up on it altogether. We just can't take the smell of the heated

> oil. I still use the virgin oil whenever I can, just not for frying

> or saute'.

>

> -Patty

>

>

>>

>> Hello,

>> I've just joined this group hoping to learn a bit more about

> Coconut

>> Oil and it's uses. It has been suggested I do any frying with it

>> however my child can not tolerate the smell of the type I

> purchased,

>> which is Virgin and it has been mentioned that I should look into

>> expeller processed as it has less offensive odor. I am also

>> interested in using it for weight loss, reving up the thyroid,

>> metabolism, etc. and would like suggestions how to mix it in foods,

>> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> how

>> to " hide " it in foods my children would be helpful also.

>> Thanks,

>> Michele

>

>

>

>

[Guest guest]

Nina

It has been said that sesame oil (I personally love it) goes bad/rancid pretty

quickly specially after opening the bottle. Do you have any tip on how to

lengthen the " life " of this oil?

Re: Digest Number 489

So, Ian, what would you advise for those of us who want to use

coconut oil to replace the unhealthy polyunsaturated vegetable oils

we formerly used to saute' and fry with, yet cannot stand the odor

which is given off by the virgin coconut oil when heated?

-Patty

> >>

> >> Hello,

> >> I've just joined this group hoping to learn a bit more about

> > Coconut

> >> Oil and it's uses. It has been suggested I do any frying with it

> >> however my child can not tolerate the smell of the type I

> > purchased,

> >> which is Virgin and it has been mentioned that I should look into

> >> expeller processed as it has less offensive odor. I am also

> >> interested in using it for weight loss, reving up the thyroid,

> >> metabolism, etc. and would like suggestions how to mix it in

foods,

> >> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> > how

> >> to " hide " it in foods my children would be helpful also.

> >> Thanks,

> >> Michele

> >

> >

> >

> >

[Guest guest]

So, Ian, what would you advise for those of us who want to use

coconut oil to replace the unhealthy polyunsaturated vegetable oils

we formerly used to saute' and fry with, yet cannot stand the odor

which is given off by the virgin coconut oil when heated?

-Patty

> >>

> >> Hello,

> >> I've just joined this group hoping to learn a bit more about

> > Coconut

> >> Oil and it's uses. It has been suggested I do any frying with it

> >> however my child can not tolerate the smell of the type I

> > purchased,

> >> which is Virgin and it has been mentioned that I should look into

> >> expeller processed as it has less offensive odor. I am also

> >> interested in using it for weight loss, reving up the thyroid,

> >> metabolism, etc. and would like suggestions how to mix it in

foods,

> >> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> > how

> >> to " hide " it in foods my children would be helpful also.

> >> Thanks,

> >> Michele

> >

> >

> >

> >

[Guest guest]

Two stable vegetable oils for light saute-ing are olive oil and sesame oil (I

especially like toasted sesame oil, made by Eden). They don't have the benefits

of VCO, of course, but they are not unstable or unhealthful.

Rub the VCO into the skin where the skin is thin (e.g., inner thigh, breast),

drink coconut water, and eat fresh or good-quality (i.e., organic) dried

coconut.

Nina

Re: Digest Number 489

So, Ian, what would you advise for those of us who want to use

coconut oil to replace the unhealthy polyunsaturated vegetable oils

we formerly used to saute' and fry with, yet cannot stand the odor

which is given off by the virgin coconut oil when heated?

-Patty

> >>

> >> Hello,

> >> I've just joined this group hoping to learn a bit more about

> > Coconut

> >> Oil and it's uses. It has been suggested I do any frying with it

> >> however my child can not tolerate the smell of the type I

> > purchased,

> >> which is Virgin and it has been mentioned that I should look into

> >> expeller processed as it has less offensive odor. I am also

> >> interested in using it for weight loss, reving up the thyroid,

> >> metabolism, etc. and would like suggestions how to mix it in

foods,

> >> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> > how

> >> to " hide " it in foods my children would be helpful also.

> >> Thanks,

> >> Michele

> >

> >

> >

> >

[Guest guest]

Some brands don't bother me as much as others. I have found that mixing in some

butter into the coconut oil will kill the smell for me.

[Guest guest]

Ian and Martha,

Please check the Tropical Traditions site. You will not say that anymore. I

agree that some are not the best, but this one taste, look so good. The

best I have had and or course Expeller Processed Coconot Oil.

Diane

----Original Message Follows----

From: " Ian & Martha Gray " <imgray@...>

Reply-Coconut Oil

<Coconut Oil >

Subject: Re: Digest Number 489

Date: Mon, 31 Jan 2005 19:41:21 +1100

RBD oil oten goes through a long process to get to the mills where it is

produced into copra, I have seen photos of copra in Fiji out in the hot and

humid tropical air, covered in mould. This is part of the reason it has to

be Refined, Bleached and Deoderized. If you saw it in this form you would

think twice before eating it. Below is a description of the copra problem

from www.kokonutpacific.com.au. It not only describes what copra goes

through, but the affect it has had on Island communities.

The copra problem

Conventional coconut oil comes from dried coconut flesh, called copra. Copra

is dried in a wood-fuelled kiln, or in the sun, over a period of a few days.

It is time-consuming, dirty, lonely, arduous, fuel-intensive and low-paying

work. Many farmers consider it a form of slavery.

Copra is bulked up at an export port and shipped to a large industrial oil

mill - often in Europe or Asia. Unhygienic drying, humid tropical

conditions, bulk shipping and long distances, result in lengthy delays and

the growth of moulds on the copra. Sometimes this leads to aflatoxin

contamination.

Copra oil extraction requires large-scale, high-pressure, expensive,

energy-intensive equipment. Unhygienic copra means that the resultant oil is

normally of low quality with a Free Fatty Acid (FFA) level of 3% or more.

(FFA is one measure of rancidity of oil).

Thus copra oil requires refining, bleaching and deodorising (RBD) to create

a commercially acceptable product. The refining process uses hydrochloric

acid, solvents and steam to strip out the contamination. Some residual

solvents remain in the oil. The process also removes the natural volatiles

and anti-oxidants that give pure coconut oil its unique flavour and aroma.

The total process from farm to refined oil can take many months. The

residual copra-meal is only suitable as animal feed but, even here, care is

required because it can be contaminated with carcinogenic aflatoxins.

The tropical world has over one billion coconut palms, producing over 50

billion coconuts each year. And yet, because of the low income earned on the

world market from coconut products, many coconut groves are run down, with

nuts and old trees lying where they fall, encouraging plant disease and

insect pests.

With fluctuating copra prices, farmers only harvest their nuts when prices

are high or when they are in desperate need of cash. For many remote islands

with plenty of coconuts, copra is still a risky venture because of the

infrequency of shipping services

Something to think about,

Ian

> ________________________________________________________________________

>

> Message: 4

> Date: Sat, 29 Jan 2005 19:21:08 -0000

> From: " Patty T " <tri4home@...>

> Subject: Re: hello

>

>

> I've tried several brands of virgin coconut oil and this is the very

> problem my daughter and I had with it. I now use the refined,

> bleached and deodorized oil for frying (there is no smell). Although

> many may disagree with this, I feel that this is better than giving

> up on it altogether. We just can't take the smell of the heated

> oil. I still use the virgin oil whenever I can, just not for frying

> or saute'.

>

> -Patty

>

>

>>

>> Hello,

>> I've just joined this group hoping to learn a bit more about

> Coconut

>> Oil and it's uses. It has been suggested I do any frying with it

>> however my child can not tolerate the smell of the type I

> purchased,

>> which is Virgin and it has been mentioned that I should look into

>> expeller processed as it has less offensive odor. I am also

>> interested in using it for weight loss, reving up the thyroid,

>> metabolism, etc. and would like suggestions how to mix it in foods,

>> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> how

>> to " hide " it in foods my children would be helpful also.

>> Thanks,

>> Michele

>

>

>

>

[Guest guest]

Ian and Martha,

Please check the Tropical Traditions site. You will not say that anymore. I

agree that some are not the best, but this one taste, look so good. The

best I have had and or course Expeller Processed Coconot Oil.

Diane

----Original Message Follows----

From: " Ian & Martha Gray " <imgray@...>

Reply-Coconut Oil

<Coconut Oil >

Subject: Re: Digest Number 489

Date: Mon, 31 Jan 2005 19:41:21 +1100

RBD oil oten goes through a long process to get to the mills where it is

produced into copra, I have seen photos of copra in Fiji out in the hot and

humid tropical air, covered in mould. This is part of the reason it has to

be Refined, Bleached and Deoderized. If you saw it in this form you would

think twice before eating it. Below is a description of the copra problem

from www.kokonutpacific.com.au. It not only describes what copra goes

through, but the affect it has had on Island communities.

The copra problem

Conventional coconut oil comes from dried coconut flesh, called copra. Copra

is dried in a wood-fuelled kiln, or in the sun, over a period of a few days.

It is time-consuming, dirty, lonely, arduous, fuel-intensive and low-paying

work. Many farmers consider it a form of slavery.

Copra is bulked up at an export port and shipped to a large industrial oil

mill - often in Europe or Asia. Unhygienic drying, humid tropical

conditions, bulk shipping and long distances, result in lengthy delays and

the growth of moulds on the copra. Sometimes this leads to aflatoxin

contamination.

Copra oil extraction requires large-scale, high-pressure, expensive,

energy-intensive equipment. Unhygienic copra means that the resultant oil is

normally of low quality with a Free Fatty Acid (FFA) level of 3% or more.

(FFA is one measure of rancidity of oil).

Thus copra oil requires refining, bleaching and deodorising (RBD) to create

a commercially acceptable product. The refining process uses hydrochloric

acid, solvents and steam to strip out the contamination. Some residual

solvents remain in the oil. The process also removes the natural volatiles

and anti-oxidants that give pure coconut oil its unique flavour and aroma.

The total process from farm to refined oil can take many months. The

residual copra-meal is only suitable as animal feed but, even here, care is

required because it can be contaminated with carcinogenic aflatoxins.

The tropical world has over one billion coconut palms, producing over 50

billion coconuts each year. And yet, because of the low income earned on the

world market from coconut products, many coconut groves are run down, with

nuts and old trees lying where they fall, encouraging plant disease and

insect pests.

With fluctuating copra prices, farmers only harvest their nuts when prices

are high or when they are in desperate need of cash. For many remote islands

with plenty of coconuts, copra is still a risky venture because of the

infrequency of shipping services

Something to think about,

Ian

> ________________________________________________________________________

>

> Message: 4

> Date: Sat, 29 Jan 2005 19:21:08 -0000

> From: " Patty T " <tri4home@...>

> Subject: Re: hello

>

>

> I've tried several brands of virgin coconut oil and this is the very

> problem my daughter and I had with it. I now use the refined,

> bleached and deodorized oil for frying (there is no smell). Although

> many may disagree with this, I feel that this is better than giving

> up on it altogether. We just can't take the smell of the heated

> oil. I still use the virgin oil whenever I can, just not for frying

> or saute'.

>

> -Patty

>

>

>>

>> Hello,

>> I've just joined this group hoping to learn a bit more about

> Coconut

>> Oil and it's uses. It has been suggested I do any frying with it

>> however my child can not tolerate the smell of the type I

> purchased,

>> which is Virgin and it has been mentioned that I should look into

>> expeller processed as it has less offensive odor. I am also

>> interested in using it for weight loss, reving up the thyroid,

>> metabolism, etc. and would like suggestions how to mix it in foods,

>> smoothies, etc in order to get the 2-3T /day. Any suggestions on

> how

>> to " hide " it in foods my children would be helpful also.

>> Thanks,

>> Michele

>

>

>

>