RE: Re: New and not quite sure where to start.

[Guest guest]

SCD diet should help with Yeast. But, if you are still

having high yeast markers on Oat, it may be time for a prescription

anti-fungal.

PANDAS is not a reaction to Strep…… it's a latent

Strep infection that your body cannot rid itself of. It turns on itself

and attacks the brain. You don't necessarily need a recent infection to

have it. I would discuss the tics with your DAN and see if he or she

thinks a screen for PANDAS would be appropriate.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Thursday, January 07, 2010 10:31 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Hi,Pam. Thank you for your response. Cole has

not been on any prescription antifungal but I would like to pursue that avenue.

We had thought about PANDAS, but from what I understand is that not a reaction

to the streptococcus virus? He hasn't been sick in months. Also, his symptoms

are quite mild comparatively speaking. From what I've read the symptoms

associated with PANDAS are quite profound. Do you think we should get him

tested?

>

> Has he been on any prescription anti-fungals? Some of our kids have to

stay

> on one at all times. Diflucan, Sporonox, etc

>

>

>

> For tics and OCD you should rule out PANDAS.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex

[mailto:mb12 valtrex ]

On

> Behalf Of Mischa

> Sent: Wednesday, January 06, 2010 2:54 PM

> To: mb12 valtrex

> Subject: New and not quite sure where to start.

>

>

>

>

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who

> was diagnosed PDD shortly before his 4th birthday. We have been following

a

> biomedical treatment plan for the past year. We started off on the GFCF

diet

> and then when my son plateaued we placed him on SCD with a lot of

> improvement. Now he seems to have stalled again and I would like to look

> into the possibility of antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

> Organic Acids Test in December of 2008, which showed elevated levels of

> yeast, and we have been battling that beast ever since. Supplementation

> includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that

> weren't there before. Among the occasional head jerk, he says the word

> " shut-up " all the time. And while he will sometimes stop for a

few seconds

> when we reprimand him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

SCD diet should help with Yeast. But, if you are still

having high yeast markers on Oat, it may be time for a prescription

anti-fungal.

PANDAS is not a reaction to Strep…… it's a latent

Strep infection that your body cannot rid itself of. It turns on itself

and attacks the brain. You don't necessarily need a recent infection to

have it. I would discuss the tics with your DAN and see if he or she

thinks a screen for PANDAS would be appropriate.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Thursday, January 07, 2010 10:31 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Hi,Pam. Thank you for your response. Cole has

not been on any prescription antifungal but I would like to pursue that avenue.

We had thought about PANDAS, but from what I understand is that not a reaction

to the streptococcus virus? He hasn't been sick in months. Also, his symptoms

are quite mild comparatively speaking. From what I've read the symptoms

associated with PANDAS are quite profound. Do you think we should get him

tested?

>

> Has he been on any prescription anti-fungals? Some of our kids have to

stay

> on one at all times. Diflucan, Sporonox, etc

>

>

>

> For tics and OCD you should rule out PANDAS.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex

[mailto:mb12 valtrex ]

On

> Behalf Of Mischa

> Sent: Wednesday, January 06, 2010 2:54 PM

> To: mb12 valtrex

> Subject: New and not quite sure where to start.

>

>

>

>

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who

> was diagnosed PDD shortly before his 4th birthday. We have been following

a

> biomedical treatment plan for the past year. We started off on the GFCF

diet

> and then when my son plateaued we placed him on SCD with a lot of

> improvement. Now he seems to have stalled again and I would like to look

> into the possibility of antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

> Organic Acids Test in December of 2008, which showed elevated levels of

> yeast, and we have been battling that beast ever since. Supplementation

> includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that

> weren't there before. Among the occasional head jerk, he says the word

> " shut-up " all the time. And while he will sometimes stop for a

few seconds

> when we reprimand him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

no what you discribed is not PANDAS< that is autism. giggling and delayed speach and gradual fades would not be charactoristic of that,. the stimming depending on what it is the the echolalia can be.

Re: New and not quite sure where to start.

Thank you all for your input. This is unbelievably helpful! I do have some questions about PANDAS. Can the symptoms present themselves as autistic-like? The reason I'm asking is my son is definitely developmentally delayed and shows many autistic symptoms such as delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming, etc. He is quite verbal (always has been, really), but often his speech is difficult to understand and sometimes inappropriate and out of context.Also, can the symptoms of PANDAS come on gradually, or do they just show up one day? Cole's regression was very gradual, i.e., instead of shutting off like a switch he kind of faded like a dimmer, and he would fade in and out. It's the reason he wasn't diagnosed until he was almost 4.And one more question. He'd had a very bad stomach bug of some sort when he was around 2 years old. Both he and his older sister were laid out for about 4 days with vomiting and fever. I realized in retrospect (and after viewing old videos) that he regressed noticeably after that, and he also started having massive temper tantrums to the point that he was injuring himself (throwing himself up against walls, banging his head on the floor, etc). Something that was particularly bothersome to my husband and I was when he would start to cry over something - didn't matter what - he would lose his breath and pass out. He's be "out" for up to 15-20 seconds and slowly come around again. It was incredibly scary. This lasted for several months. Everybody I've spoken with, including his pediatrician and his DAN doctor, said they were normal breath holding incidents. But it has always struck me as odd. Does anybody have thoughts on this?Once again, I thank you so much and I do apologize for all the questions. I have been working to get my son back for almost 2 years and we are making great strides, but I can't help but feel we've got a ways to go yet.Peace,

[Guest guest]

no what you discribed is not PANDAS< that is autism. giggling and delayed speach and gradual fades would not be charactoristic of that,. the stimming depending on what it is the the echolalia can be.

Re: New and not quite sure where to start.

Thank you all for your input. This is unbelievably helpful! I do have some questions about PANDAS. Can the symptoms present themselves as autistic-like? The reason I'm asking is my son is definitely developmentally delayed and shows many autistic symptoms such as delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming, etc. He is quite verbal (always has been, really), but often his speech is difficult to understand and sometimes inappropriate and out of context.Also, can the symptoms of PANDAS come on gradually, or do they just show up one day? Cole's regression was very gradual, i.e., instead of shutting off like a switch he kind of faded like a dimmer, and he would fade in and out. It's the reason he wasn't diagnosed until he was almost 4.And one more question. He'd had a very bad stomach bug of some sort when he was around 2 years old. Both he and his older sister were laid out for about 4 days with vomiting and fever. I realized in retrospect (and after viewing old videos) that he regressed noticeably after that, and he also started having massive temper tantrums to the point that he was injuring himself (throwing himself up against walls, banging his head on the floor, etc). Something that was particularly bothersome to my husband and I was when he would start to cry over something - didn't matter what - he would lose his breath and pass out. He's be "out" for up to 15-20 seconds and slowly come around again. It was incredibly scary. This lasted for several months. Everybody I've spoken with, including his pediatrician and his DAN doctor, said they were normal breath holding incidents. But it has always struck me as odd. Does anybody have thoughts on this?Once again, I thank you so much and I do apologize for all the questions. I have been working to get my son back for almost 2 years and we are making great strides, but I can't help but feel we've got a ways to go yet.Peace,

[Guest guest]

no what you discribed is not PANDAS< that is autism. giggling and delayed speach and gradual fades would not be charactoristic of that,. the stimming depending on what it is the the echolalia can be.

Re: New and not quite sure where to start.

Thank you all for your input. This is unbelievably helpful! I do have some questions about PANDAS. Can the symptoms present themselves as autistic-like? The reason I'm asking is my son is definitely developmentally delayed and shows many autistic symptoms such as delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming, etc. He is quite verbal (always has been, really), but often his speech is difficult to understand and sometimes inappropriate and out of context.Also, can the symptoms of PANDAS come on gradually, or do they just show up one day? Cole's regression was very gradual, i.e., instead of shutting off like a switch he kind of faded like a dimmer, and he would fade in and out. It's the reason he wasn't diagnosed until he was almost 4.And one more question. He'd had a very bad stomach bug of some sort when he was around 2 years old. Both he and his older sister were laid out for about 4 days with vomiting and fever. I realized in retrospect (and after viewing old videos) that he regressed noticeably after that, and he also started having massive temper tantrums to the point that he was injuring himself (throwing himself up against walls, banging his head on the floor, etc). Something that was particularly bothersome to my husband and I was when he would start to cry over something - didn't matter what - he would lose his breath and pass out. He's be "out" for up to 15-20 seconds and slowly come around again. It was incredibly scary. This lasted for several months. Everybody I've spoken with, including his pediatrician and his DAN doctor, said they were normal breath holding incidents. But it has always struck me as odd. Does anybody have thoughts on this?Once again, I thank you so much and I do apologize for all the questions. I have been working to get my son back for almost 2 years and we are making great strides, but I can't help but feel we've got a ways to go yet.Peace,

[Guest guest]

the breathing thing to me sounds like possible seizers, I would talk to a ped about that

Re: New and not quite sure where to start.

Thank you all for your input. This is unbelievably helpful! I do have some questions about PANDAS. Can the symptoms present themselves as autistic-like? The reason I'm asking is my son is definitely developmentally delayed and shows many autistic symptoms such as delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming, etc. He is quite verbal (always has been, really), but often his speech is difficult to understand and sometimes inappropriate and out of context.Also, can the symptoms of PANDAS come on gradually, or do they just show up one day? Cole's regression was very gradual, i.e., instead of shutting off like a switch he kind of faded like a dimmer, and he would fade in and out. It's the reason he wasn't diagnosed until he was almost 4.And one more question. He'd had a very bad stomach bug of some sort when he was around 2 years old. Both he and his older sister were laid out for about 4 days with vomiting and fever. I realized in retrospect (and after viewing old videos) that he regressed noticeably after that, and he also started having massive temper tantrums to the point that he was injuring himself (throwing himself up against walls, banging his head on the floor, etc). Something that was particularly bothersome to my husband and I was when he would start to cry over something - didn't matter what - he would lose his breath and pass out. He's be "out" for up to 15-20 seconds and slowly come around again. It was incredibly scary. This lasted for several months. Everybody I've spoken with, including his pediatrician and his DAN doctor, said they were normal breath holding incidents. But it has always struck me as odd. Does anybody have thoughts on this?Once again, I thank you so much and I do apologize for all the questions. I have been working to get my son back for almost 2 years and we are making great strides, but I can't help but feel we've got a ways to go yet.Peace,

[Guest guest]

the breathing thing to me sounds like possible seizers, I would talk to a ped about that

Re: New and not quite sure where to start.

Thank you all for your input. This is unbelievably helpful! I do have some questions about PANDAS. Can the symptoms present themselves as autistic-like? The reason I'm asking is my son is definitely developmentally delayed and shows many autistic symptoms such as delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming, etc. He is quite verbal (always has been, really), but often his speech is difficult to understand and sometimes inappropriate and out of context.Also, can the symptoms of PANDAS come on gradually, or do they just show up one day? Cole's regression was very gradual, i.e., instead of shutting off like a switch he kind of faded like a dimmer, and he would fade in and out. It's the reason he wasn't diagnosed until he was almost 4.And one more question. He'd had a very bad stomach bug of some sort when he was around 2 years old. Both he and his older sister were laid out for about 4 days with vomiting and fever. I realized in retrospect (and after viewing old videos) that he regressed noticeably after that, and he also started having massive temper tantrums to the point that he was injuring himself (throwing himself up against walls, banging his head on the floor, etc). Something that was particularly bothersome to my husband and I was when he would start to cry over something - didn't matter what - he would lose his breath and pass out. He's be "out" for up to 15-20 seconds and slowly come around again. It was incredibly scary. This lasted for several months. Everybody I've spoken with, including his pediatrician and his DAN doctor, said they were normal breath holding incidents. But it has always struck me as odd. Does anybody have thoughts on this?Once again, I thank you so much and I do apologize for all the questions. I have been working to get my son back for almost 2 years and we are making great strides, but I can't help but feel we've got a ways to go yet.Peace,

[Guest guest]

My son carries a diagnosis of Autism and PANDAS. (And a

few others.)

Our OCD came on gradually until it completely ruled his

life. We treated PANDAS successfully with antibiotics.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Friday, January 08, 2010 8:38 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Thank you all for your input. This is

unbelievably helpful! I do have some questions about PANDAS. Can the symptoms

present themselves as autistic-like? The reason I'm asking is my son is

definitely developmentally delayed and shows many autistic symptoms such as

delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming,

etc. He is quite verbal (always has been, really), but often his speech is

difficult to understand and sometimes inappropriate and out of context.

Also, can the symptoms of PANDAS come on gradually, or do they just show up one

day? Cole's regression was very gradual, i.e., instead of shutting off like a

switch he kind of faded like a dimmer, and he would fade in and out. It's the

reason he wasn't diagnosed until he was almost 4.

And one more question. He'd had a very bad stomach bug of some sort when he was

around 2 years old. Both he and his older sister were laid out for about 4 days

with vomiting and fever. I realized in retrospect (and after viewing old

videos) that he regressed noticeably after that, and he also started having

massive temper tantrums to the point that he was injuring himself (throwing

himself up against walls, banging his head on the floor, etc). Something that

was particularly bothersome to my husband and I was when he would start to cry

over something - didn't matter what - he would lose his breath and pass out.

He's be " out " for up to 15-20 seconds and slowly come around again.

It was incredibly scary. This lasted for several months. Everybody I've spoken

with, including his pediatrician and his DAN doctor, said they were normal

breath holding incidents. But it has always struck me as odd. Does anybody have

thoughts on this?

Once again, I thank you so much and I do apologize for all the questions. I

have been working to get my son back for almost 2 years and we are making great

strides, but I can't help but feel we've got a ways to go yet.

Peace,

[Guest guest]

My son carries a diagnosis of Autism and PANDAS. (And a

few others.)

Our OCD came on gradually until it completely ruled his

life. We treated PANDAS successfully with antibiotics.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Friday, January 08, 2010 8:38 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Thank you all for your input. This is

unbelievably helpful! I do have some questions about PANDAS. Can the symptoms

present themselves as autistic-like? The reason I'm asking is my son is

definitely developmentally delayed and shows many autistic symptoms such as

delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming,

etc. He is quite verbal (always has been, really), but often his speech is

difficult to understand and sometimes inappropriate and out of context.

Also, can the symptoms of PANDAS come on gradually, or do they just show up one

day? Cole's regression was very gradual, i.e., instead of shutting off like a

switch he kind of faded like a dimmer, and he would fade in and out. It's the

reason he wasn't diagnosed until he was almost 4.

And one more question. He'd had a very bad stomach bug of some sort when he was

around 2 years old. Both he and his older sister were laid out for about 4 days

with vomiting and fever. I realized in retrospect (and after viewing old

videos) that he regressed noticeably after that, and he also started having

massive temper tantrums to the point that he was injuring himself (throwing

himself up against walls, banging his head on the floor, etc). Something that

was particularly bothersome to my husband and I was when he would start to cry

over something - didn't matter what - he would lose his breath and pass out.

He's be " out " for up to 15-20 seconds and slowly come around again.

It was incredibly scary. This lasted for several months. Everybody I've spoken

with, including his pediatrician and his DAN doctor, said they were normal

breath holding incidents. But it has always struck me as odd. Does anybody have

thoughts on this?

Once again, I thank you so much and I do apologize for all the questions. I

have been working to get my son back for almost 2 years and we are making great

strides, but I can't help but feel we've got a ways to go yet.

Peace,

[Guest guest]

My son carries a diagnosis of Autism and PANDAS. (And a

few others.)

Our OCD came on gradually until it completely ruled his

life. We treated PANDAS successfully with antibiotics.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Friday, January 08, 2010 8:38 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Thank you all for your input. This is

unbelievably helpful! I do have some questions about PANDAS. Can the symptoms

present themselves as autistic-like? The reason I'm asking is my son is

definitely developmentally delayed and shows many autistic symptoms such as

delayed speech, echolalia, inappropriate giggling, hyperactivity, stimming,

etc. He is quite verbal (always has been, really), but often his speech is

difficult to understand and sometimes inappropriate and out of context.

Also, can the symptoms of PANDAS come on gradually, or do they just show up one

day? Cole's regression was very gradual, i.e., instead of shutting off like a

switch he kind of faded like a dimmer, and he would fade in and out. It's the

reason he wasn't diagnosed until he was almost 4.

And one more question. He'd had a very bad stomach bug of some sort when he was

around 2 years old. Both he and his older sister were laid out for about 4 days

with vomiting and fever. I realized in retrospect (and after viewing old

videos) that he regressed noticeably after that, and he also started having

massive temper tantrums to the point that he was injuring himself (throwing

himself up against walls, banging his head on the floor, etc). Something that

was particularly bothersome to my husband and I was when he would start to cry

over something - didn't matter what - he would lose his breath and pass out.

He's be " out " for up to 15-20 seconds and slowly come around again.

It was incredibly scary. This lasted for several months. Everybody I've spoken

with, including his pediatrician and his DAN doctor, said they were normal

breath holding incidents. But it has always struck me as odd. Does anybody have

thoughts on this?

Once again, I thank you so much and I do apologize for all the questions. I

have been working to get my son back for almost 2 years and we are making great

strides, but I can't help but feel we've got a ways to go yet.

Peace,

[Guest guest]

actually that is not quiet accurate with the PANDAS info, it's not an infection you can't get rid of it, its an auto immune reaction to exposure of THOUGHT exposure, you can actually react and NOT have an active infection

New and not quite sure where to start.> > > > > > Hello. My name is and I have a 5 1/2 year old son named Cole who> was diagnosed PDD shortly before his 4th birthday. We have been following a> biomedical treatment plan for the past year. We started off on the GFCF diet> and then when my son plateaued we placed him on SCD with a lot of> improvement. Now he seems to have stalled again and I would like to look> into the possibility of antiviral/antifungal therapy.> > It all seems so overwhelming and I'm not sure where to begin. He had an> Organic Acids Test in December of 2008, which showed elevated levels of> yeast, and we have been battling that beast ever since. Supplementation> includes:> > SCD legal multivitamin> SCD legal antioxident> SCD legal zinc> Carlson Cod liver oil> Coconut oil> Probiotics in the form of SCD goat yogurt> Caprylic acid and Citrus seed extract, which we rotate weekly> Methyl B-12 injections every 3 days.> > He has come a long way, however we have noticed a couple of tics that> weren't there before. Among the occasional head jerk, he says the word> "shut-up" all the time. And while he will sometimes stop for a few seconds> when we reprimand him, I honestly don't think he can help it.> > If anybody has any insight for me, I would most appreciative. Thank you.> > >

[Guest guest]

actually that is not quiet accurate with the PANDAS info, it's not an infection you can't get rid of it, its an auto immune reaction to exposure of THOUGHT exposure, you can actually react and NOT have an active infection

New and not quite sure where to start.> > > > > > Hello. My name is and I have a 5 1/2 year old son named Cole who> was diagnosed PDD shortly before his 4th birthday. We have been following a> biomedical treatment plan for the past year. We started off on the GFCF diet> and then when my son plateaued we placed him on SCD with a lot of> improvement. Now he seems to have stalled again and I would like to look> into the possibility of antiviral/antifungal therapy.> > It all seems so overwhelming and I'm not sure where to begin. He had an> Organic Acids Test in December of 2008, which showed elevated levels of> yeast, and we have been battling that beast ever since. Supplementation> includes:> > SCD legal multivitamin> SCD legal antioxident> SCD legal zinc> Carlson Cod liver oil> Coconut oil> Probiotics in the form of SCD goat yogurt> Caprylic acid and Citrus seed extract, which we rotate weekly> Methyl B-12 injections every 3 days.> > He has come a long way, however we have noticed a couple of tics that> weren't there before. Among the occasional head jerk, he says the word> "shut-up" all the time. And while he will sometimes stop for a few seconds> when we reprimand him, I honestly don't think he can help it.> > If anybody has any insight for me, I would most appreciative. Thank you.> > >

[Guest guest]

actually that is not quiet accurate with the PANDAS info, it's not an infection you can't get rid of it, its an auto immune reaction to exposure of THOUGHT exposure, you can actually react and NOT have an active infection

New and not quite sure where to start.> > > > > > Hello. My name is and I have a 5 1/2 year old son named Cole who> was diagnosed PDD shortly before his 4th birthday. We have been following a> biomedical treatment plan for the past year. We started off on the GFCF diet> and then when my son plateaued we placed him on SCD with a lot of> improvement. Now he seems to have stalled again and I would like to look> into the possibility of antiviral/antifungal therapy.> > It all seems so overwhelming and I'm not sure where to begin. He had an> Organic Acids Test in December of 2008, which showed elevated levels of> yeast, and we have been battling that beast ever since. Supplementation> includes:> > SCD legal multivitamin> SCD legal antioxident> SCD legal zinc> Carlson Cod liver oil> Coconut oil> Probiotics in the form of SCD goat yogurt> Caprylic acid and Citrus seed extract, which we rotate weekly> Methyl B-12 injections every 3 days.> > He has come a long way, however we have noticed a couple of tics that> weren't there before. Among the occasional head jerk, he says the word> "shut-up" all the time. And while he will sometimes stop for a few seconds> when we reprimand him, I honestly don't think he can help it.> > If anybody has any insight for me, I would most appreciative. Thank you.> > >

[Guest guest]

well you have to have strep in the past to have PANDAS< you just may not have KNOWN he had strep. it's strep gone autoimmune that has to start with strep going haywire. it may have gone untreated and you didn't know which is why he has PANDAS now....our sad case to! also there is a strep vaccination that is given so you can have it triggered from that as well and have wondered if that is part of the issue with the increase

New and not quite sure where to start.> > > > > > > > > > > > Hello. My name is and I have a 5 1/2 year old son named Cole who> > was diagnosed PDD shortly before his 4th birthday. We have been following a> > biomedical treatment plan for the past year. We started off on the GFCF diet> > and then when my son plateaued we placed him on SCD with a lot of> > improvement. Now he seems to have stalled again and I would like to look> > into the possibility of antiviral/antifungal therapy.> > > > It all seems so overwhelming and I'm not sure where to begin. He had an> > Organic Acids Test in December of 2008, which showed elevated levels of> > yeast, and we have been battling that beast ever since. Supplementation> > includes:> > > > SCD legal multivitamin> > SCD legal antioxident> > SCD legal zinc> > Carlson Cod liver oil> > Coconut oil> > Probiotics in the form of SCD goat yogurt> > Caprylic acid and Citrus seed extract, which we rotate weekly> > Methyl B-12 injections every 3 days.> > > > He has come a long way, however we have noticed a couple of tics that> > weren't there before. Among the occasional head jerk, he says the word> > "shut-up" all the time. And while he will sometimes stop for a few seconds> > when we reprimand him, I honestly don't think he can help it.> > > > If anybody has any insight for me, I would most appreciative. Thank you.> > > > > >>

[Guest guest]

well you have to have strep in the past to have PANDAS< you just may not have KNOWN he had strep. it's strep gone autoimmune that has to start with strep going haywire. it may have gone untreated and you didn't know which is why he has PANDAS now....our sad case to! also there is a strep vaccination that is given so you can have it triggered from that as well and have wondered if that is part of the issue with the increase

New and not quite sure where to start.> > > > > > > > > > > > Hello. My name is and I have a 5 1/2 year old son named Cole who> > was diagnosed PDD shortly before his 4th birthday. We have been following a> > biomedical treatment plan for the past year. We started off on the GFCF diet> > and then when my son plateaued we placed him on SCD with a lot of> > improvement. Now he seems to have stalled again and I would like to look> > into the possibility of antiviral/antifungal therapy.> > > > It all seems so overwhelming and I'm not sure where to begin. He had an> > Organic Acids Test in December of 2008, which showed elevated levels of> > yeast, and we have been battling that beast ever since. Supplementation> > includes:> > > > SCD legal multivitamin> > SCD legal antioxident> > SCD legal zinc> > Carlson Cod liver oil> > Coconut oil> > Probiotics in the form of SCD goat yogurt> > Caprylic acid and Citrus seed extract, which we rotate weekly> > Methyl B-12 injections every 3 days.> > > > He has come a long way, however we have noticed a couple of tics that> > weren't there before. Among the occasional head jerk, he says the word> > "shut-up" all the time. And while he will sometimes stop for a few seconds> > when we reprimand him, I honestly don't think he can help it.> > > > If anybody has any insight for me, I would most appreciative. Thank you.> > > > > >>

[Guest guest]

well you have to have strep in the past to have PANDAS< you just may not have KNOWN he had strep. it's strep gone autoimmune that has to start with strep going haywire. it may have gone untreated and you didn't know which is why he has PANDAS now....our sad case to! also there is a strep vaccination that is given so you can have it triggered from that as well and have wondered if that is part of the issue with the increase

New and not quite sure where to start.> > > > > > > > > > > > Hello. My name is and I have a 5 1/2 year old son named Cole who> > was diagnosed PDD shortly before his 4th birthday. We have been following a> > biomedical treatment plan for the past year. We started off on the GFCF diet> > and then when my son plateaued we placed him on SCD with a lot of> > improvement. Now he seems to have stalled again and I would like to look> > into the possibility of antiviral/antifungal therapy.> > > > It all seems so overwhelming and I'm not sure where to begin. He had an> > Organic Acids Test in December of 2008, which showed elevated levels of> > yeast, and we have been battling that beast ever since. Supplementation> > includes:> > > > SCD legal multivitamin> > SCD legal antioxident> > SCD legal zinc> > Carlson Cod liver oil> > Coconut oil> > Probiotics in the form of SCD goat yogurt> > Caprylic acid and Citrus seed extract, which we rotate weekly> > Methyl B-12 injections every 3 days.> > > > He has come a long way, however we have noticed a couple of tics that> > weren't there before. Among the occasional head jerk, he says the word> > "shut-up" all the time. And while he will sometimes stop for a few seconds> > when we reprimand him, I honestly don't think he can help it.> > > > If anybody has any insight for me, I would most appreciative. Thank you.> > > > > >>

[Guest guest]

This is true. Should be more careful with my

wording.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Christel King

Sent: Tuesday, January 12, 2010 1:51 PM

To: mb12 valtrex

Subject: Re: Re: New and not quite sure where to start.

actually

that is not quiet accurate with the PANDAS info, it's not an infection

you can't get rid of it, its an auto immune reaction to exposure of THOUGHT

exposure, you can actually react and NOT have an active infection

-----

Original Message -----

From: Pamela P

To: mb12 valtrex

Sent: Thursday, January

07, 2010 7:30 PM

Subject: RE:

Re: New and not quite sure where to start.

SCD diet should help with Yeast.

But, if you are still having high yeast markers on Oat, it may be time for a

prescription anti-fungal.

PANDAS is not a reaction to

Strep…… it's a latent Strep infection that your body cannot rid

itself of. It turns on itself and attacks the brain. You don't

necessarily need a recent infection to have it. I would discuss the tics

with your DAN and see if he or she thinks a screen for PANDAS would be

appropriate.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Thursday, January 07, 2010 10:31 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Hi,Pam. Thank you for your response. Cole has not been on any prescription

antifungal but I would like to pursue that avenue. We had thought about PANDAS,

but from what I understand is that not a reaction to the streptococcus virus?

He hasn't been sick in months. Also, his symptoms are quite mild comparatively

speaking. From what I've read the symptoms associated with PANDAS are quite

profound. Do you think we should get him tested?

>

> Has he been on any prescription anti-fungals? Some of our kids have to

stay

> on one at all times. Diflucan, Sporonox, etc

>

>

>

> For tics and OCD you should rule out PANDAS.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex

[mailto:mb12 valtrex ]

On

> Behalf Of Mischa

> Sent: Wednesday, January 06, 2010 2:54 PM

> To: mb12 valtrex

> Subject: New and not quite sure where to start.

>

>

>

>

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who

> was diagnosed PDD shortly before his 4th birthday. We have been following

a

> biomedical treatment plan for the past year. We started off on the GFCF

diet

> and then when my son plateaued we placed him on SCD with a lot of

> improvement. Now he seems to have stalled again and I would like to look

> into the possibility of antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

> Organic Acids Test in December of 2008, which showed elevated levels of

> yeast, and we have been battling that beast ever since. Supplementation

> includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that

> weren't there before. Among the occasional head jerk, he says the word

> " shut-up " all the time. And while he will sometimes stop for a

few seconds

> when we reprimand him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

This is true. Should be more careful with my

wording.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Christel King

Sent: Tuesday, January 12, 2010 1:51 PM

To: mb12 valtrex

Subject: Re: Re: New and not quite sure where to start.

actually

that is not quiet accurate with the PANDAS info, it's not an infection

you can't get rid of it, its an auto immune reaction to exposure of THOUGHT

exposure, you can actually react and NOT have an active infection

-----

Original Message -----

From: Pamela P

To: mb12 valtrex

Sent: Thursday, January

07, 2010 7:30 PM

Subject: RE:

Re: New and not quite sure where to start.

SCD diet should help with Yeast.

But, if you are still having high yeast markers on Oat, it may be time for a

prescription anti-fungal.

PANDAS is not a reaction to

Strep…… it's a latent Strep infection that your body cannot rid

itself of. It turns on itself and attacks the brain. You don't

necessarily need a recent infection to have it. I would discuss the tics

with your DAN and see if he or she thinks a screen for PANDAS would be

appropriate.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Mischa

Sent: Thursday, January 07, 2010 10:31 AM

To: mb12 valtrex

Subject: Re: New and not quite sure where to start.

Hi,Pam. Thank you for your response. Cole has not been on any prescription

antifungal but I would like to pursue that avenue. We had thought about PANDAS,

but from what I understand is that not a reaction to the streptococcus virus?

He hasn't been sick in months. Also, his symptoms are quite mild comparatively

speaking. From what I've read the symptoms associated with PANDAS are quite

profound. Do you think we should get him tested?

>

> Has he been on any prescription anti-fungals? Some of our kids have to

stay

> on one at all times. Diflucan, Sporonox, etc

>

>

>

> For tics and OCD you should rule out PANDAS.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex

[mailto:mb12 valtrex ]

On

> Behalf Of Mischa

> Sent: Wednesday, January 06, 2010 2:54 PM

> To: mb12 valtrex

> Subject: New and not quite sure where to start.

>

>

>

>

>

> Hello. My name is and I have a 5 1/2 year old son named Cole who

> was diagnosed PDD shortly before his 4th birthday. We have been following

a

> biomedical treatment plan for the past year. We started off on the GFCF

diet

> and then when my son plateaued we placed him on SCD with a lot of

> improvement. Now he seems to have stalled again and I would like to look

> into the possibility of antiviral/antifungal therapy.

>

> It all seems so overwhelming and I'm not sure where to begin. He had an

> Organic Acids Test in December of 2008, which showed elevated levels of

> yeast, and we have been battling that beast ever since. Supplementation

> includes:

>

> SCD legal multivitamin

> SCD legal antioxident

> SCD legal zinc

> Carlson Cod liver oil

> Coconut oil

> Probiotics in the form of SCD goat yogurt

> Caprylic acid and Citrus seed extract, which we rotate weekly

> Methyl B-12 injections every 3 days.

>

> He has come a long way, however we have noticed a couple of tics that

> weren't there before. Among the occasional head jerk, he says the word

> " shut-up " all the time. And while he will sometimes stop for a

few seconds

> when we reprimand him, I honestly don't think he can help it.

>

> If anybody has any insight for me, I would most appreciative. Thank you.

>

>

>

[Guest guest]

those are some high phenol foods so you may have phenol issues

Re: New and not quite sure where to start.

, that helped tremendously. Thank you! I was watching some old videos of my son the other day and noticed as well that he would have days where he was totally neurotypical followed by days where he seemed more "autistic" for lack of a better word. His recovery has also been the same. Last week was horrible for him at school, while this week his teacher is sending home glowing reports.As far as Cole's autism goes I honestly don't know if he is borderline or not. In many ways he is very high functioning but in other ways he is so noticeably not, especially when it comes to his speech. He still has major problems with his speech, ie., mixing pronouns, echolalia, etc. and often times it is very difficult to understand him. This leads to a lot of frustration sometimes because he is unable to express his wants properly.Something interesting to note as well. We put him on a very restricted diet for about 3 days, where all he was eating was grass-fed beef, lamb, chicken, grape jello, homemade chicken stock, eggs and carrots. All of his tics stopped and he was so calm. This afternoon my husband made him some juice (carrots, an apple, some pear and some spinach) and within 30 minutes he was back to running around the house, his cheeks became red and he started with the tics, except they have become much worse. He was irritable and when we turned off his movie so we could sit down to supper, he had a fit and kicked the wall so hard I thought he would break his foot. I didn't think he could have such a reaction to food. Do you think it was the apple? This is so frustrating!I'm so hoping that we can find the answers. Thanks again for your response!Mom to Cole, 5 1/2, PDD>> I thought I would reply b/c your son sounds so much like mine. In a way I would say that with my son it was a gradual fade, but with many sudden dips and spikes along the way (later to find out that the dips were PANDAS episodes). Much like his recovery, we are having a gradual return to health but with many dips and spikes along the way. > > In my son's case I feel that he has always been a borderline kid in terms of being on the spectrum. With that having been said, PANDAS seems to be what brings him on and off the spectrum. Kind of like the straw that breaks the camels back. I think that if we were to take away all pandas symptoms my kid would still have spectrum quirks, along with yeasty behaviors, immune issues and bowel issues. He also tends to be a very "sensitive" kid to any and all meds and many foods. So, you asked if pandas can present itself with autistic features, I would say yes, if he has other underlying issues that bring him closer to the spectrum. I would think that if he were completely neurotypical and he develops pandas it would not look like autism but more like plain old OCD/Tourette's.> > Also, I wanted to comment on the stomach flu that your son had. Historically, EVERY time my son tests positive for strep, he first has some type of stomach flu/vomitting episode in the two weeks prior. Strep can definitely cause vomitting/fever, etc. and even with no sore throat. No way to know without a culture...> > One other thing, sometimes gut bacteria can cause OCD, and viruses can cause pandas-type reactions (called PITAND syndrome).> > Hope some of this helped!> >