Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Thanks Pierre for a great reply, your right of course I forgot about the transplant part of the equation, thanks again panic attack over I am due to go into hospital next week to have a peritoneal dialysis canula inserted, I believe there is a certain amount of choice as to where it is to be inserted in the stomach area, those people who have had it done what advice for placement would you give? " Pierre L (groups) " wrote: Dialysis is hard on the body, and even at the best of times, you're lucky if it replaces even 20% of kidney function. The 10 years is about right (and I don't think it refers only to India, but it's a general number). This is why the first thing you always hear from the nephrologist is that transplant is the best option. On the other hand, you have to take life expectancy numbers with some grain of salt, and not worry too much about them. For one thing, the numbers are badly skewed by the great numbers of very sick, older diabetics who are on dialysis, as opposed to us otherwise healthy IgAN youngsters. And for another, pre-dialysis care and care during dialysis is much better than it used to be, and it's getting better all the time, such that people who only have kidney failure stay generally healthy. The statistics may lag a bit behind this. So that has an influence on life expectancy. There are many long-timers now on dialysis. It's just like life expectancy numbers for people in general. It's just an average. So, I guess I like to look at it in the most positive way that I can. I prefer to think of it as a couple of years on dialysis and then many years with a kidney transplant, and then maybe dialysis again and another transplant sometime in the future. When I get a little bit down, I can easily think of all the other chances there are that something might happen in life. My risk from having kidney failure is there, but on a daily basis, I'm not sure the risk from just getting in my car and going out on the road isn't greater. Other times, I try to think if I would exchange my kidney failure for any other major disease, and my answer is always thanks but no thanks, I'll keep the kidney failure. Of course, most of time, I'm too busy worrying about how I'm going to pay the phone and power bills this month. Pierre --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Thanks Pierre for a great reply, your right of course I forgot about the transplant part of the equation, thanks again panic attack over I am due to go into hospital next week to have a peritoneal dialysis canula inserted, I believe there is a certain amount of choice as to where it is to be inserted in the stomach area, those people who have had it done what advice for placement would you give? " Pierre L (groups) " wrote: Dialysis is hard on the body, and even at the best of times, you're lucky if it replaces even 20% of kidney function. The 10 years is about right (and I don't think it refers only to India, but it's a general number). This is why the first thing you always hear from the nephrologist is that transplant is the best option. On the other hand, you have to take life expectancy numbers with some grain of salt, and not worry too much about them. For one thing, the numbers are badly skewed by the great numbers of very sick, older diabetics who are on dialysis, as opposed to us otherwise healthy IgAN youngsters. And for another, pre-dialysis care and care during dialysis is much better than it used to be, and it's getting better all the time, such that people who only have kidney failure stay generally healthy. The statistics may lag a bit behind this. So that has an influence on life expectancy. There are many long-timers now on dialysis. It's just like life expectancy numbers for people in general. It's just an average. So, I guess I like to look at it in the most positive way that I can. I prefer to think of it as a couple of years on dialysis and then many years with a kidney transplant, and then maybe dialysis again and another transplant sometime in the future. When I get a little bit down, I can easily think of all the other chances there are that something might happen in life. My risk from having kidney failure is there, but on a daily basis, I'm not sure the risk from just getting in my car and going out on the road isn't greater. Other times, I try to think if I would exchange my kidney failure for any other major disease, and my answer is always thanks but no thanks, I'll keep the kidney failure. Of course, most of time, I'm too busy worrying about how I'm going to pay the phone and power bills this month. Pierre --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Thanks Pierre for a great reply, your right of course I forgot about the transplant part of the equation, thanks again panic attack over I am due to go into hospital next week to have a peritoneal dialysis canula inserted, I believe there is a certain amount of choice as to where it is to be inserted in the stomach area, those people who have had it done what advice for placement would you give? " Pierre L (groups) " wrote: Dialysis is hard on the body, and even at the best of times, you're lucky if it replaces even 20% of kidney function. The 10 years is about right (and I don't think it refers only to India, but it's a general number). This is why the first thing you always hear from the nephrologist is that transplant is the best option. On the other hand, you have to take life expectancy numbers with some grain of salt, and not worry too much about them. For one thing, the numbers are badly skewed by the great numbers of very sick, older diabetics who are on dialysis, as opposed to us otherwise healthy IgAN youngsters. And for another, pre-dialysis care and care during dialysis is much better than it used to be, and it's getting better all the time, such that people who only have kidney failure stay generally healthy. The statistics may lag a bit behind this. So that has an influence on life expectancy. There are many long-timers now on dialysis. It's just like life expectancy numbers for people in general. It's just an average. So, I guess I like to look at it in the most positive way that I can. I prefer to think of it as a couple of years on dialysis and then many years with a kidney transplant, and then maybe dialysis again and another transplant sometime in the future. When I get a little bit down, I can easily think of all the other chances there are that something might happen in life. My risk from having kidney failure is there, but on a daily basis, I'm not sure the risk from just getting in my car and going out on the road isn't greater. Other times, I try to think if I would exchange my kidney failure for any other major disease, and my answer is always thanks but no thanks, I'll keep the kidney failure. Of course, most of time, I'm too busy worrying about how I'm going to pay the phone and power bills this month. Pierre --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 --- Hello Mark, I'm new to this group and not yet on dialysis. However, at my transplant evaluation visit, I asked whereabouts does the 'new' kidney fit in. When told the right side, I then asked about the best site for the canula and was told the left side. I expect the exact postion will depend on where it will least annoy you ?? I don't know if it will make any difference if you are left or right-handed...ie for ease of handling...or on what side you tend to sleep ??? All those questions ???? Good Luck with the decision ! Keep us posted. Maureen In iga-nephropathy , Mark Rowe <mrowe1962@y...> wrote: > Thanks Pierre for a great reply, your right of course I forgot about the transplant part of the equation, thanks again panic attack over > > I am due to go into hospital next week to have a peritoneal dialysis canula inserted, I believe there is a certain amount of choice as to where it is to be inserted in the stomach area, those people who have had it done what advice for placement would you give? > > " Pierre L (groups) " <pgl-groups@s...> wrote: > Dialysis is hard on the body, and even at the best of times, you're lucky if > it replaces even 20% of kidney function. The 10 years is about right (and I > don't think it refers only to India, but it's a general number). This is why > the first thing you always hear from the nephrologist is that transplant is > the best option. On the other hand, you have to take life expectancy numbers > with some grain of salt, and not worry too much about them. For one thing, > the numbers are badly skewed by the great numbers of very sick, older > diabetics who are on dialysis, as opposed to us otherwise healthy IgAN > youngsters. And for another, pre-dialysis care and care during dialysis is > much better than it used to be, and it's getting better all the time, such > that people who only have kidney failure stay generally healthy. The > statistics may lag a bit behind this. So that has an influence on life > expectancy. There are many long-timers now on dialysis. It's just like life > expectancy numbers for people in general. It's just an average. So, I guess > I like to look at it in the most positive way that I can. I prefer to think > of it as a couple of years on dialysis and then many years with a kidney > transplant, and then maybe dialysis again and another transplant sometime in > the future. > > When I get a little bit down, I can easily think of all the other chances > there are that something might happen in life. My risk from having kidney > failure is there, but on a daily basis, I'm not sure the risk from just > getting in my car and going out on the road isn't greater. Other times, I > try to think if I would exchange my kidney failure for any other major > disease, and my answer is always thanks but no thanks, I'll keep the kidney > failure. Of course, most of time, I'm too busy worrying about how I'm going > to pay the phone and power bills this month. > > Pierre > > > --------------------------------- > Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hi Mark, I was on PD for awhile, and I had my catheter placed into the left side of my belly, about 6 inches below my belly button. It was a managable place for it, and not hard to live with. The surgery was quite easy, only took about 15 minutes to do. Hardly any pain afterwards, just a tiny bit afterwards from the incision. Overall, an easy procedure. I hope everything goes well, please let us know how the surgery ends up going. > Dialysis is hard on the body, and even at the best of times, you're lucky if > it replaces even 20% of kidney function. The 10 years is about right (and I > don't think it refers only to India, but it's a general number). This is why > the first thing you always hear from the nephrologist is that transplant is > the best option. On the other hand, you have to take life expectancy numbers > with some grain of salt, and not worry too much about them. For one thing, > the numbers are badly skewed by the great numbers of very sick, older > diabetics who are on dialysis, as opposed to us otherwise healthy IgAN > youngsters. And for another, pre-dialysis care and care during dialysis is > much better than it used to be, and it's getting better all the time, such > that people who only have kidney failure stay generally healthy. The > statistics may lag a bit behind this. So that has an influence on life > expectancy. There are many long-timers now on dialysis. It's just like life > expectancy numbers for people in general. It's just an average. So, I guess > I like to look at it in the most positive way that I can. I prefer to think > of it as a couple of years on dialysis and then many years with a kidney > transplant, and then maybe dialysis again and another transplant sometime in > the future. > > When I get a little bit down, I can easily think of all the other chances > there are that something might happen in life. My risk from having kidney > failure is there, but on a daily basis, I'm not sure the risk from just > getting in my car and going out on the road isn't greater. Other times, I > try to think if I would exchange my kidney failure for any other major > disease, and my answer is always thanks but no thanks, I'll keep the kidney > failure. Of course, most of time, I'm too busy worrying about how I'm going > to pay the phone and power bills this month. > > Pierre > > > --------------------------------- > Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hi Mark, I was on PD for awhile, and I had my catheter placed into the left side of my belly, about 6 inches below my belly button. It was a managable place for it, and not hard to live with. The surgery was quite easy, only took about 15 minutes to do. Hardly any pain afterwards, just a tiny bit afterwards from the incision. Overall, an easy procedure. I hope everything goes well, please let us know how the surgery ends up going. > Dialysis is hard on the body, and even at the best of times, you're lucky if > it replaces even 20% of kidney function. The 10 years is about right (and I > don't think it refers only to India, but it's a general number). This is why > the first thing you always hear from the nephrologist is that transplant is > the best option. On the other hand, you have to take life expectancy numbers > with some grain of salt, and not worry too much about them. For one thing, > the numbers are badly skewed by the great numbers of very sick, older > diabetics who are on dialysis, as opposed to us otherwise healthy IgAN > youngsters. And for another, pre-dialysis care and care during dialysis is > much better than it used to be, and it's getting better all the time, such > that people who only have kidney failure stay generally healthy. The > statistics may lag a bit behind this. So that has an influence on life > expectancy. There are many long-timers now on dialysis. It's just like life > expectancy numbers for people in general. It's just an average. So, I guess > I like to look at it in the most positive way that I can. I prefer to think > of it as a couple of years on dialysis and then many years with a kidney > transplant, and then maybe dialysis again and another transplant sometime in > the future. > > When I get a little bit down, I can easily think of all the other chances > there are that something might happen in life. My risk from having kidney > failure is there, but on a daily basis, I'm not sure the risk from just > getting in my car and going out on the road isn't greater. Other times, I > try to think if I would exchange my kidney failure for any other major > disease, and my answer is always thanks but no thanks, I'll keep the kidney > failure. Of course, most of time, I'm too busy worrying about how I'm going > to pay the phone and power bills this month. > > Pierre > > > --------------------------------- > Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hi Mark, I was on PD for awhile, and I had my catheter placed into the left side of my belly, about 6 inches below my belly button. It was a managable place for it, and not hard to live with. The surgery was quite easy, only took about 15 minutes to do. Hardly any pain afterwards, just a tiny bit afterwards from the incision. Overall, an easy procedure. I hope everything goes well, please let us know how the surgery ends up going. > Dialysis is hard on the body, and even at the best of times, you're lucky if > it replaces even 20% of kidney function. The 10 years is about right (and I > don't think it refers only to India, but it's a general number). This is why > the first thing you always hear from the nephrologist is that transplant is > the best option. On the other hand, you have to take life expectancy numbers > with some grain of salt, and not worry too much about them. For one thing, > the numbers are badly skewed by the great numbers of very sick, older > diabetics who are on dialysis, as opposed to us otherwise healthy IgAN > youngsters. And for another, pre-dialysis care and care during dialysis is > much better than it used to be, and it's getting better all the time, such > that people who only have kidney failure stay generally healthy. The > statistics may lag a bit behind this. So that has an influence on life > expectancy. There are many long-timers now on dialysis. It's just like life > expectancy numbers for people in general. It's just an average. So, I guess > I like to look at it in the most positive way that I can. I prefer to think > of it as a couple of years on dialysis and then many years with a kidney > transplant, and then maybe dialysis again and another transplant sometime in > the future. > > When I get a little bit down, I can easily think of all the other chances > there are that something might happen in life. My risk from having kidney > failure is there, but on a daily basis, I'm not sure the risk from just > getting in my car and going out on the road isn't greater. Other times, I > try to think if I would exchange my kidney failure for any other major > disease, and my answer is always thanks but no thanks, I'll keep the kidney > failure. Of course, most of time, I'm too busy worrying about how I'm going > to pay the phone and power bills this month. > > Pierre > > > --------------------------------- > Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Thanks for the reply, its helpful knowing it won't hurt too much wrote:Hi Mark, I was on PD for awhile, and I had my catheter placed into the left side of my belly, about 6 inches below my belly button. It was a managable place for it, and not hard to live with. The surgery was quite easy, only took about 15 minutes to do. Hardly any pain afterwards, just a tiny bit afterwards from the incision. Overall, an easy procedure. I hope everything goes well, please let us know how the surgery ends up going. --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Thanks for the reply, its helpful knowing it won't hurt too much wrote:Hi Mark, I was on PD for awhile, and I had my catheter placed into the left side of my belly, about 6 inches below my belly button. It was a managable place for it, and not hard to live with. The surgery was quite easy, only took about 15 minutes to do. Hardly any pain afterwards, just a tiny bit afterwards from the incision. Overall, an easy procedure. I hope everything goes well, please let us know how the surgery ends up going. --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Thanks for the reply, its helpful knowing it won't hurt too much wrote:Hi Mark, I was on PD for awhile, and I had my catheter placed into the left side of my belly, about 6 inches below my belly button. It was a managable place for it, and not hard to live with. The surgery was quite easy, only took about 15 minutes to do. Hardly any pain afterwards, just a tiny bit afterwards from the incision. Overall, an easy procedure. I hope everything goes well, please let us know how the surgery ends up going. --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Well glad I could be of help--when are you planning on starting the PD? I know I started about 2 weeks after the surgery. Hi Mark, > I was on PD for awhile, and I had my catheter placed into the left > side of my belly, about 6 inches below my belly button. It was a > managable place for it, and not hard to live with. The surgery was > quite easy, only took about 15 minutes to do. Hardly any pain > afterwards, just a tiny bit afterwards from the incision. Overall, > an easy procedure. I hope everything goes well, please let us know > how the surgery ends up going. > > > > > > > --------------------------------- > Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Well glad I could be of help--when are you planning on starting the PD? I know I started about 2 weeks after the surgery. Hi Mark, > I was on PD for awhile, and I had my catheter placed into the left > side of my belly, about 6 inches below my belly button. It was a > managable place for it, and not hard to live with. The surgery was > quite easy, only took about 15 minutes to do. Hardly any pain > afterwards, just a tiny bit afterwards from the incision. Overall, > an easy procedure. I hope everything goes well, please let us know > how the surgery ends up going. > > > > > > > --------------------------------- > Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now > > Quote Link to comment Share on other sites More sharing options...
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