Anyone achieved complete recovery after chelation

[Guest guest]

Hi Bonnie

> I am pretty new here and have been lurking for a few weeks. This site

> has been so helpful in learning about treatments for my son.

> He has mercury toxicity that most definitely crossed the blood brain

> barrier. We want to chelate, but have heard that it can be damaging

> to the immune system. Can anyone comment on this?

> *****DMSA is described as having the rare side effect of Neutraphila/penia

(?SP?). I beleive the risk increases with dose. I think its listed for up to

10mg per Kilogram per dose, the doses Andy advises are 1/8 - 1/2 mg per

pound, so way smaller. You have to remember also that Mercury surely WILL

damage the immune system. So low frequent dosing is advised and you can

always check bloods for the above every 3-6 months or so. Using the

recommeded support supps helps and I think the ALA does too. Have you done

DDI hair elements test and checked it against the counting rules?

> I have read the love letter and other archives,but I want to know

> more. Have any of you had recovery after chelating? Is anyone done

> chelating? How is the health of your child now both during and after

> chelation? I appreciate any comments anyone is willing to share.

>

> ********Well we are far from finished, only 22 rounds in but I am seeing

small but sustained and incremental improvements for Sam 5.11yrs. We went to

holiday playscheme today with several other ASDer's we haven't seen since

August, 3 mums commented on the changes in Sam and we came back Dh says when

you sat on the side and observed all the kids Sam seemed the least Autistic

of all. Weird since most of them are verbal and Sam's not but its all the

other stuff - what we are seeing is normal facial expressions and body

posture, spontaneous and apppropraite laughter, great socialbility, much

improved receptive language, much more purposeful and confident. I want

words! (Repeat after me - this a marathon NOT a sprint!) He communcates very

well though with PECS and gestures, even taught him high 5's this week, I am

VERY pleased, I want more but its been worth it even with no more

improvements:)

HTH

Mandi in UK

[Guest guest]

I am pretty new here and have been lurking for a few weeks. This site

has been so helpful in learning about treatments for my son.

He has mercury toxicity that most definitely crossed the blood brain

barrier. We want to chelate, but have heard that it can be damaging

to the immune system. Can anyone comment on this?

I have read the love letter and other archives,but I want to know

more. Have any of you had recovery after chelating? Is anyone done

chelating? How is the health of your child now both during and after

chelation? I appreciate any comments anyone is willing to share.

Thank you in advance.

Bonnie

[Guest guest]

IMO, as long as you supplement adequately during and between

chelation, I don't think you are going to hurt the immune system. I

think MERCURY hurts the immune system even more than the potential of

chelation.

Ethan has done only 8 rounds of low dose, every four hour, dmsa

chelation. The changes have been pretty noticeable-- he got

dismissed from private OT because she " just doesn't see any sensory

issues anymore " ... he lost his school sped status for skills like

attending and focusing, and his school OT says that technically he

doesn't qualify anymore, but since he's on an IEP and he has a valid

handicapping condition, that she'd like to keep him on IEP one more

year to work on his gross motor skills so that he's ready for PE in

1st grade-- but she dropped all of her " sensory " objectives too.

About three rounds into chelation, his vision therapist reported

that " suddenly, he can DO this! " ... his eye contact

improved...grandparents could not get over the changes in him, and my

husband and I feel like we have more normal days than not-normal

anymore. His orig dx was SID-only but there were definitely nights

where I cried b/c I thought we were headed for several more dx's

namely OCD, ADHD, and Aspergers.

So is he completely recovered-- not yet. I still see low muscle tone

and gross motor coordination issues. He cannot run or climb or jump

as agilely as his peers. He still has some regulatory issues with

getting really overexcited or overfocused on something that he is

anticipating happening, such as a friend coming over to play. He

still has a lot of environmental allergies and asthma that I am

hoping to improve upon, too. But he is GREATLY improved. No one

suspects there is anything but a " typical " child here. Oh, and

constipation resolved around chelation round 4 or 5, too. Especially

the " mental " part of it-- being able to recognize that he had to go

and that he ought to go and not hold it in.

W

[Guest guest]

It's a little hard to answer your questions because some of us do a

variety of interventions, including chelation, and " recovery " isn't

defined except perhaps loosely to mean the loss of a pdd diagnosis

(which includes nos, autism and aspergers).

My son started with a dx of aspergers and in poor health. The gfcf

diet helped a lot - reduction in aspie tendencies and improvement in

health. He also took a variety of supplements. Five months later he

began chelation. More improvements, some very fast (loss of

aggressive/angry episodes the first month for example). During this

time, we also greatly reduced processed foods, environmental toxins,

etc.

He was chelating for 2 years with no significant adverse side

effects. Now his dx is dyslexia. I suspect some degree of APD

underlies it. However, he is indistinguishable from his peers,

earned a blue belt in karate in less than 1 1/2 years (couldn't

balance on one foot at all at the start of chelation), and

participates in all school activities without any accomodations. His

health is excellent except for minor allergy issues in the fall. So

far this year, he has missed 2 days of school. Previously, up to a

fourth of the school year was lost to illness.

I see minor blips in social skills and fine motor control, others

don't, and everything now affecting him falls in the realm of

dyslexia, not autism. However, I consider him to be on the fringe of

the spectrum, and we are starting up a trial period of further

chelation to see if the remaining issues can be resolved.

A point to consider - chelation does not restore lost years of normal

development. Extensive opportunities to redress social and learning

discrepancies will go a long way to assisting with recovery.

> I am pretty new here and have been lurking for a few weeks. This

site

> has been so helpful in learning about treatments for my son.

> He has mercury toxicity that most definitely crossed the blood

brain

> barrier. We want to chelate, but have heard that it can be damaging

> to the immune system. Can anyone comment on this?

>

> I have read the love letter and other archives,but I want to know

> more. Have any of you had recovery after chelating? Is anyone done

> chelating? How is the health of your child now both during and

after

> chelation? I appreciate any comments anyone is willing to share.

> Thank you in advance.

>

> Bonnie

[Guest guest]

Welcome to the list. Heavy metals are hard on the immune system. Make sure to

read the FAQs about proper dosing and dosing schedule. Motto here is " low and

slow " . We all want to get the metals out but trying to do it too fast can

overwhelm the detox pathways. SFrom: bonjill5 [mailto: bonjill@...]To:

@...: Thu, 02 Jan 2003 19:16:26 -0000Subject:

[ ] Anyone achieved complete recovery after chelationI am pretty

new here and have been lurking for a few weeks. This sitehas been so helpful in

learning about treatments for my son.He has mercury toxicity that most

definitely crossed the blood brain barrier. We want to chelate, but have heard

that it can be damaging to the immune system. Can anyone comment on this?I have

read the love letter and other archives,but I want to know more. Have any of you

had recovery after chelating? Is anyone done chelating? How is the health of

your child now both during and after chelation? I appreciate any comments anyone

is willing to share.Thank you in advance.Bonnie

[Guest guest]

>>We want to chelate, but have heard that it can be damaging

> to the immune system. Can anyone comment on this?

Today is day 1 of round 52 for my 4 kids, and if their immune systems

are being damaged, I sure have not seen it. They have not had a cold

for over a year now, that I can remember, and the last one they had,

lasted about 4 days.

>

> I have read the love letter and other archives,but I want to know

> more. Have any of you had recovery after chelating?

My son is no longer autistic, altho he is not yet age appropriate. I

don't know that you would consider him " recovered " , but he sure is not

autistic any longer.

His story here, if you are interested

http://www.danasview.net/myson.htm

>> Is anyone done

> chelating?

We are on round 52. Based on our experience so far, I think we might

be more than half finished, but still a long way to go.

>> How is the health of your child now both during and after

> chelation?

Before: average health, frequent rashes for one kid.

Now: very good, never sick.

Dana