Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Great thinking, Ann! At 07:31 PM 7/31/2004, you wrote: >Funny, I had sent the same article to the CHARGE DbI-network listserv >this am! Sometimes we use the term " over-connectivity " to apply in >CHARGE. I wonder if the brain imaging in CHARGE would show the >opposite, with " miss-fires " going in different directions, also >causing a lack of brain integration.(and appearing " autistic-like " ) >If we know some specific cases where they found nerves in the " wrong >place " , what about also brain neural connections!? Also, if this is >truly a " missing tissue disorder " which began when the neural crest >cells were formed, it could make some sense that some neural >connections are missing!? >Ann Gloyn >Canada > > > Hi everyone, > > > > While some people with CHARGE have autism or autism-like >characteristics, > > some do not. For the people who follow information related to >autism, you > > may find this article of interest. The term " underconnectivity " is >used > > and explained as a possible reason why some people with autism process > > information and language differently than people who are considered >to have > > " typical " processing. > > > > The explanation would seem to apply to some people who have CHARGE. >There > > is a brief mention of possible treatment approaches that may be >helpful in > > those who have processing difficulties. I always find it >encouraging to > > read about possible treatments or approaches that may improve >processing. > > > > > > > > > > >RESEARCH > > > > > >Scientists Discover Biological Basis for Autism > > > > > ><http://www.medicalnewstoday.com/medicalnews.php?newsid=11412>http://ww > w.medicalnewstoday.com/medicalnews.php?newsid=11412 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Ann & , Your post caught my eye because I recall after Mark's EEG his neurologist explained the results not seizures but mis firings taking place every now and then HMMMM. It is something to think about for sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 , Well, Mark is doing well. We are still trying to get a handle on the " bladder: issue. He is having Botox injected into the bladder wall Aug. 26 in an attempt to help with bladder spasms. Medication has not helped like we had hoped. Never a dull moment. He is now taller than I am and weighs more too YIKES! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 , Well, Mark is doing well. We are still trying to get a handle on the " bladder: issue. He is having Botox injected into the bladder wall Aug. 26 in an attempt to help with bladder spasms. Medication has not helped like we had hoped. Never a dull moment. He is now taller than I am and weighs more too YIKES! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 , Well, Mark is doing well. We are still trying to get a handle on the " bladder: issue. He is having Botox injected into the bladder wall Aug. 26 in an attempt to help with bladder spasms. Medication has not helped like we had hoped. Never a dull moment. He is now taller than I am and weighs more too YIKES! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Thanks, . I can recall other children having random firings as well but I'm not sure if I read it here on the CHARGE list or on one of the communication/language lists I am on. How is Mark doing now? It sounds like things are going better now? At 09:59 AM 8/1/2004, you wrote: >, > I can recall the term he used was " random firing " . I do not > have >a paper report. That was done when he was having severe behavioral problems. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 : I'd almost finished a post to you when it vanished. If it actually went through and this is a repeat, I apologize. You may recall that we've have issues of late-onset incontenence with , have gone through an MRI, CAT, etc. but have never found a reason. Please, please keep me posted about what happens with the botox. Thanks. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 : I'd almost finished a post to you when it vanished. If it actually went through and this is a repeat, I apologize. You may recall that we've have issues of late-onset incontenence with , have gone through an MRI, CAT, etc. but have never found a reason. Please, please keep me posted about what happens with the botox. Thanks. Martha Quote Link to comment Share on other sites More sharing options...
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