What gives w/ McCandless

December 13, 2010

Bel's Palsy is tied to Lyme, didn't know it was tied to herpes.

....I strongly suspect an issue with a herpes type virus, here. My husband and I have both had mono - myself as a young child, my husband as a young adult and his hit hard. He also has sporadic incidents of cold sores on his mouth. Shortly before I became pregnant, he woke up one morning with Bell's Palsy which (until recently I was not aware) can be the result of a herpes-type virus. Plus, I also bled one day at the beginning of my 4th month of pregnancy - which can also be a sign of herpes-type strains. Who knew?? So does this mean my sons are likely to pass that along to their children? I could certainly see how a mother could....but a male? I've never really stopped to consider that, I guess.

To: mb12 valtrex

Sent: Mon, December 13, 2010 1:29:02 PMSubject: Re: What gives w/ McCandless

Infections can be passed down through multiple generations and is a more likely explanation for prevalence in a family. Lyme, a herpes type virus or even antibiotic resistant strep is a more plausable explanation for an epidemic.

Caryn>>

> > Earlier today I was looking around searching for a message board about genetics. ( curious to know why spectrum conditions are so prevelant in my family and trying to make connections) Anyhow, I came across a board led by Dr. McCandless and was shocked to see that in order to join, one must purchase her book through her website. What gives?? This is the kind of crap that gives our main stream pedi's a good arguement. Now, I can understand that it would be easier if people

have read the book so they are able to keep up with conversations and not asked questions already answered in the book. But if that was the case, it would be simple enough to suggest reading the book. It seems to be a terrible way to treat people who may have already spent their money buying her book elsewhere. I hope I'm missing something here because it just seems like a crappy thing to do and quite honestly leaves me with the feeling that this woman does not have our children's best interest at heart. I could be and certainly hope I'm wrong. What gives with this lady? Anyone know anything about her?

> > Also, can anyone suggest any decent genetics websites or message boards? I'm a long way from being scientifically minded, so anything in plain, easy-to-understand English is my kind of place. Thanks!

>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

December 13, 2010

neither did I - then someone (I think right on this message board) mentioned it to me. I kept it in the back of my head all this time - then when I mentioned it to my son's dan, it grabbed his attention big time and that's what made him decide to go ahead and test for it. I also was not aware of CMV exposure to pregnant women working in child care facilities....take a wild guess at where I worked. Figures. lol.

To: mb12 valtrex Sent: Mon, December 13, 2010 11:14:13 PMSubject: Re: Re: What gives w/ McCandless

Bel's Palsy is tied to Lyme, didn't know it was tied to herpes.

....I strongly suspect an issue with a herpes type virus, here. My husband and I have both had mono - myself as a young child, my husband as a young adult and his hit hard. He also has sporadic incidents of cold sores on his mouth. Shortly before I became pregnant, he woke up one morning with Bell's Palsy which (until recently I was not aware) can be the result of a herpes-type virus. Plus, I also bled one day at the beginning of my 4th month of pregnancy - which can also be a sign of herpes-type strains. Who knew?? So does this mean my sons are likely to pass that along to their children? I could certainly see how a mother could....but a male? I've never really stopped to consider that, I guess.

To: mb12 valtrex Sent: Mon, December 13, 2010 1:29:02 PM Subject: Re: What gives w/ McCandless

Infections can be passed down through multiple generations and is a more likely explanation for prevalence in a family. Lyme, a herpes type virus or even antibiotic resistant strep is a more plausable explanation for an epidemic.

Caryn>> > > Earlier today I was looking around searching for a message board about genetics. ( curious to know why spectrum conditions are so prevelant in my family and trying to make connections) Anyhow, I came across a board led by Dr. McCandless and was shocked to see that in order to join, one must purchase her book through her website. What gives?? This is the kind of crap that gives our main stream pedi's a good arguement. Now, I can understand that it would be easier if people have read the book so they are able to keep up with conversations and not asked questions already answered in the book. But if that was the case, it would be simple enough to suggest reading the book. It seems to be a

terrible way to treat people who may have already spent their money buying her book elsewhere. I hope I'm missing something here because it just seems like a crappy thing to do and quite honestly leaves me with the feeling that this woman does not have our children's best interest at heart. I could be and certainly hope I'm wrong. What gives with this lady? Anyone know anything about her? > > Also, can anyone suggest any decent genetics websites or message boards? I'm a long way from being scientifically minded, so anything in plain, easy-to-understand English is my kind of place. Thanks!>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

December 13, 2010

Interesting.We are waiting on IGM results for Alek... he was positive for HHV-6 and HHV-3 which are varicella/chicken pox/herpes and roseola. He has had red dots befre presumably the roseolabut never a pock-mark. Except he was born with the most hideous " newborn acne " I have EVER seen, and as much as the hospital wanted to tell me it WAS acne and related to hormones,

I am not sure I believe them or ever will. They (the hospital) tell you a lot of things you can't believe,why should I believe them on this? He was covered probably by thousands of what would have been whiteheads. Not one or two little dots (which my daughter had) but thousands. I wish I had had a picture. His newborn photo does not have them showing up? I guess b/c most were on his trunk, back and legs. ???

neither did I - then someone (I think right on this message board) mentioned it to me. I kept it in the back of my head all this time - then when I mentioned it to my son's dan, it grabbed his attention big time and that's what made him decide to go ahead and test for it. I also was not aware of CMV exposure to pregnant women working in child care facilities....take a wild guess at where I worked. Figures. lol.

To: mb12 valtrex

Sent: Mon, December 13, 2010 11:14:13 PMSubject: Re: Re: What gives w/ McCandless

Bel's Palsy is tied to Lyme, didn't know it was tied to herpes.

....I strongly suspect an issue with a herpes type virus, here. My husband and I have both had mono - myself as a young child, my husband as a young adult and his hit hard. He also has sporadic incidents of cold sores on his mouth. Shortly before I became pregnant, he woke up one morning with Bell's Palsy which (until recently I was not aware) can be the result of a herpes-type virus. Plus, I also bled one day at the beginning of my 4th month of pregnancy - which can also be a sign of herpes-type strains. Who knew?? So does this mean my sons are likely to pass that along to their children? I could certainly see how a mother could....but a male? I've never really stopped to consider that, I guess.

To: mb12 valtrex

Sent: Mon, December 13, 2010 1:29:02 PM Subject: Re: What gives w/ McCandless

Infections can be passed down through multiple generations and is a more likely explanation for prevalence in a family. Lyme, a herpes type virus or even antibiotic resistant strep is a more plausable explanation for an epidemic.

Caryn>> >

> Earlier today I was looking around searching for a message board about genetics. ( curious to know why spectrum conditions are so prevelant in my family and trying to make connections) Anyhow, I came across a board led by Dr. McCandless and was shocked to see that in order to join, one must purchase her book through her website. What gives?? This is the kind of crap that gives our main stream pedi's a good arguement. Now, I can understand that it would be easier if people have read the book so they are able to keep up with conversations and not asked questions already answered in the book. But if that was the case, it would be simple enough to suggest reading the book. It seems to be a

terrible way to treat people who may have already spent their money buying her book elsewhere. I hope I'm missing something here because it just seems like a crappy thing to do and quite honestly leaves me with the feeling that this woman does not have our children's best interest at heart. I could be and certainly hope I'm wrong. What gives with this lady? Anyone know anything about her?

> > Also, can anyone suggest any decent genetics websites or message boards? I'm a long way from being scientifically minded, so anything in plain, easy-to-understand English is my kind of place. Thanks!

>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

December 13, 2010

Interesting side note about the bell's palsy: as you can imagine my husband was pretty desperate to learn how to "fix it" - (this was 9 years ago and our knowledge of anything biomedical was zilch) -- he happened to come across a website where some lady told him to go buy b-12. He went to a local health food store - the lady there explained she only had the cyano form and he would require the methyl form and sent him off to another place a little further away. And voila! It worked like a charm - two days of methyl b after weeks of a paralyzed face and he was fine. Who'd have known back then what a prominent role methyl b would end up playing in our son's life????