Re: Hip pain/dysplasia/replacement

[Guest guest]

In a message dated 9/4/00 10:55:14 AM, ebbwater@... writes:

<< my dr diagnosed bursitis, but i don't think that is the problem. >>

I've had bursitis in many of my busae, and it always comes and goes within a

few days. It never stays. Tendonitis may become chronic, but I didn't think

bursitis did.

Has he checked you for Piriformis Syndrome. It isn't often diagnosed, but it

isn't rare.

<A HREF= " http://www.chiro.cc/health_info/piriformis_syndrome.htm " >Piriformis

Syndrome</A>

http://www.chiro.cc/health_info/piriformis_syndrome.htm

http://riceinfo.rice.edu/~jenky/sports/piri.html

Kat

[Guest guest]

In a message dated 9/4/00 10:10:33 AM Central Daylight Time,

bionic@... writes:

<< I was just wondering how many more CMTers have had hip problems

and/or replacements. I teach

in an elementary school, so I'm on my feet a lot. BTW, I have found

that Birkenstock and

Haflinger shoes give me the best support and relief for my feet. I

don't currently use any orthotics

Thanks for any input you may have.

Kathy

>>

C here. I had a hip replacement 2 years ago at the age of 44. It was

very ironic that the day I came home from the hospital there was an article

about hip problems in CMT patients. It said that hip replacement was

indicated for a very large number of CMT patients. I also wear Birkenstocks

when I don't wear my AFOs.

[Guest guest]

Hi, Julee. Carolyn here.

I got distracted a few minutes ago in the process of sending a post

to you. Forgive me if I'm sending the same stuff again.

I too have hip pain, especially on the same side as where I have a

badly skewed knee also due to osteoarthritis. I think it's also

osteoarthritis, because it responds well to anti-inflammatory meds.

Also, both hips pop when I do flexibility leg lifts and bending. But

believe it does help to keep limber.

Just some thoughts,

Carolyn

> hi there-

> i also am experiencing hip pain. when i walk it feels my legs are

not

> connected in the socket properly. my dr diagnosed bursitis, but i

don't think

> that is the problem. am currently undergoing pt. anyone have

thoughts?

> thanks

> julee

[Guest guest]

To Kathy and from a shoe nut:

What type of Birkenstocks do you wear, and why?

Thanks, Carolyn

[Guest guest]

yes, i too am just finding out that hip pain is related. was there any

improvement after the replacement. how long was recovery?

take care

julee

[Guest guest]

hello. i am new to this group. in fact, i just joined tonight. i

am currently recovering from my second hip replacement. my right hip

was replaced when i was 39. it was at this time that i was diagnosed

with CMT1A. before that, i just assumed that i was clumsy. i am now

43.

i was rather surprised to see the number of replies to your letter.

i had the impression that hip dysplasia was just a coincidence in my

case. i do not know if this makes me feel better or worse.

galen

> Hi,

> I just joined this group after much urging by my family which has a

> very high occurence of CMT.

> I searched for other postings about hip dysplasia and hip

> replacement, but found only a few. I'm

> 39 and had my first hip replacement when I was 34. I had

> fallen--HARD--on a parking lot and

> experienced much pain in my left hip, even after two weeks. When I

> went to see my physician he

> sent me for x-rays and then to an orthopedic surgeon who told me my

> pain was from hip dysplasia

> which was a result of my CMT. After a few months of continuing

pain,

> I went to the nearby MDA

> clinic and was told by my surgeon (he did a tendon transfer when I

> was in high school) that hip

> dysplasia often accompanies CMT and he now looks for it in new CMT

> patients. He also said that

> they believe it is caused by the muscle imbalance pulling on the

> bones as they are still growing.

> Both of my hips had arthritis because of the head of the femur being

> out of alignment, and now

> the right hip is giving me twinges. I'm hoping I have a few years

> before that becomes unbearable.

> I was just wondering how many more CMTers have had hip problems

> and/or replacements. I teach

> in an elementary school, so I'm on my feet a lot. BTW, I have found

> that Birkenstock and

> Haflinger shoes give me the best support and relief for my feet. I

> don't currently use any orthotics.

> Thanks for any input you may have.

> Kathy

[Guest guest]

thanks galen,

i'm afraid i'll have to have my right one done also. worried about the

recovery time (missing work), but wish i could walk without pain.

julee

[Guest guest]

yes, there was major improvement after the replacement. nearly like

night and day. all of the pain was gone. not only in my hip, but

also in my back (my limp had begun to pull my back out of

alignment). it took several months to regain all of the strength in

the leg because of the trauma to the tendon that runs down the

inside. but all it required was walking and riding a bicyle.

in summary, i am very pleased with my new hip. my only regret was

tha i waited so long (fear) the first time. for the second, i had

the replacement as soon as the pain became continuous. so far, so

good on my recovery from the second.

galen