Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 Sure - Dr. Goldberg runs bloodwork looking for signs of immune dysfunction in our kids. This includes NK function, viral titers, ANA, CBC (low WBC or high Lymph count can signal viral infection), etc. We also ran a brain spect through Dr. Uszler while we were in LA. It showed moderate hypoperfusion of the temporal lobes(basically a lack of bloodflow to the temporal lobes). Despite all the HBOT, IVIG, B12, chelation, stem cell treatments and anti-seizures meds, Seth's bloodflow was still not regulated. So, to get the blood flowing, Dr. Goldberg put Seth on a low dose SSRI (Paxil) and within weeks of starting, he began to speak in sentences and began to have conversations with us. He also became opinionated and taught himself how to swim under water. This was huge (at least for us). He also put him on Famvir since his IGG titers were high for CMV, EBV and HHV6. He initally was very lethargic but then came out sharper. Just recently we introduced Imunovir (widely used in Europe for its immune modulating and anti-viral benefits) and this too has helped to regulate Seth's immune system. Initially, we had crazy die-off which caught me off guard. Bur now he is not stimming as much like he used to and is so much calmer. He is also on Diflucan to keep yeast in check. He also takes Immunoglobin G for low IGG numbers and Zyrtec for allergies. All of this has made a huge difference! Seth is not recovered yet. He is still very shy with others. But little by little he is coming around. Every day he keeps getting healthier and healthier with less and less of the autistic symptoms. So I will keep going until my boy is where he belongs.... jackie > > that is wonderful!! Congrats! Would you be willing to share some info about > the NIDS protocol. I have been to the main websites and we believe our son > defiantely shows the signs of immune dysfunction but I am wondering what the > protocol itself is like? > > > > > ________________________________ > > To: mb12 valtrex > Sent: Sat, November 27, 2010 1:25:43 PM > Subject: Took My Son to the Movies > >  > Just wanted to share that I took my 7 year old son to the movies two nights ago > to see Tangled and you could not pick him out from a crowd. I never thought this > would have been possible six months ago before starting NIDS. The Famvir, Paxil > and Imunovir are bringing my son back. Never give up... > > jackie (seth's mom) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Hi ju,I tried to text you last time but didn't get any response,could I call you tonight or maybe tomorrowJakartaSent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...!Sender: mb12 valtrex Date: Wed, 1 Dec 2010 07:55:39 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies Der List-mates, I would like to share with you my son's progress after 7 months period with Dr.G. He has huge progress, He learns how to sing 20 songs, suddenly reads many words, being able to handle and play on complicated obstacles at the playground, Can you believe it that he can even do Rock climbing, imitate and imagination play, dance and wrestle with us, looking at the camera when being taken pictures,learns things faster than before, is very alert, still has a lot more to list down..one more thing he is very opinionated now and has a normal child's reaction. I remembered 7 months ago, his psychiatrist has prognosis of him as a severe autistic. Yesterday, I got a report from his psychiatrist, believe it or not " the report wrote: Mild autistic". The best thing is his face is full of beautiful smiles and expression. I love him more and more each day. Although he is still far from finish line but seeing his improvement I am very sure One day there is a breakthrough, as long as I do not give up hope on him. Let us keep hoping for the best. Jed's mummyTo: mb12 valtrex Sent: Wed, December 1, 2010 1:01:45 PMSubject: Re: Re: Took My Son to the Movies hi,Honestly I was shocked read your post because we has seeing dr.Goldberg too from last june,we've been on famvir for 4 month without progress so he switched to zovirax (3rd weeks) and zoloft for ssri,nizoral. I noticed my son spelled some words but prompted but not clear either and it goes up and down and for stimming still have lots of it always having die off for few first week but after that not seeing much changes too.We already done chelation,hbot,b12,biomed.What I want to ask :How long have you been seeing dr.G?When you said first week started you saw progress after paxil,so is it mean his not go through die off for paxill?How old is your kid? Mine 6yo few days ago.I always waiting for something good come to us but still haven't come what I expected yet.Please kindly reply meThanks Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Mon, 29 Nov 2010 21:10:27 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Took My Son to the Movies Sure - Dr. Goldberg runs bloodwork looking for signs of immune dysfunction in our kids. This includes NK function, viral titers, ANA, CBC (low WBC or high Lymph count can signal viral infection), etc. We also ran a brain spect through Dr. Uszler while we were in LA. It showed moderate hypoperfusion of the temporal lobes(basically a lack of bloodflow to the temporal lobes). Despite all the HBOT, IVIG, B12, chelation, stem cell treatments and anti-seizures meds, Seth's bloodflow was still not regulated. So, to get the blood flowing, Dr. Goldberg put Seth on a low dose SSRI (Paxil) and within weeks of starting, he began to speak in sentences and began to have conversations with us. He also became opinionated and taught himself how to swim under water. This was huge (at least for us). He also put him on Famvir since his IGG titers were high for CMV, EBV and HHV6. He initally was very lethargic but then came out sharper. Just recently we introducedImunovir (widely used in Europe for its immune modulating and anti-viral benefits) and this too has helped to regulate Seth's immune system. Initially, we had crazy die-off which caught me off guard. Bur now he is not stimming as much like he used to and is so much calmer. He is also on Diflucan to keep yeast in check. He also takes Immunoglobin G for low IGG numbers and Zyrtec for allergies. All of this has made a huge difference! Seth is not recovered yet. He is still very shy with others. But little by little he is coming around. Every day he keeps getting healthier and healthier with less and less of the autistic symptoms. So I will keep going until my boy is where he belongs.... jackie>> that iswonderful!! Congrats! Would you be willing to share some info about > the NIDS protocol. I have been to the main websites and we believe our son > defiantely shows the signs of immune dysfunction but I am wondering what the > protocol itself is like?> > > > >________________________________> > To: mb12 valtrex > Sent: Sat, November 27, 2010 1:25:43 PM> Subject: Took My Son to the Movies> >  > Just wanted to share that I took my 7 year old son to the movies two nights ago > to see Tangled and you could not pick him out from a crowd. I never thought this > would have been possible six months ago before starting NIDS.The Famvir, Paxil > and Imunovir are bringing my son back. Never give up...> > jackie (seth's mom)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Ju,I was scared when I first sent you to Dr. Goldberg. What if he couldn’t help Jedi? You were coming all the way from Singapore and what if your son had too many problems with his immune system to be helped? But you were determined and convinced this was what you were going to do even though I tried to convince you to start with a doctor from Singapore to see if Jedi responded to treatment. Ju needs to take credit for all the hours she has worked teaching Jedi what he couldn’t learn before Dr G treated his immune issues. One of the reasons Ju has had so much success with Jedi is that she has taken things into her own hands. She fired all the therapists who didn’t believe Jedi could get better and started teaching him herself. At first the progress was slow and not an immediate, but Ju now understands that these kids pick up where they left off. Her son was two when he stopped progressing so he had to learn all the things two year olds learns. Jedi had outbursts like a two year old at first (which doesn’t look so good when a kid is five or six) but they need to go through all the developmental stages normal kids do. It is hard because they need to be taught what other kids just learn. Ju, you are an amazing mom and I’m so proud of what you have accomplished with Jedi in such a relatively short period of time. This is hard, not an immediate fix, and definitely not for sissies. You keep going girl. He will get better with a mom like you. To have results like Ju, moms have to be a bit obsessive and not give up when their children don’t look at them or respond to them. Our kids in the beginning don’t show us they are learning. We have to keep talking to them even though there is no indication our children get what you are saying. Only a dedicated stubborn mom like you can do that. You are truly amazing!!! Best and love always,Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Ju,I was scared when I first sent you to Dr. Goldberg. What if he couldn’t help Jedi? You were coming all the way from Singapore and what if your son had too many problems with his immune system to be helped? But you were determined and convinced this was what you were going to do even though I tried to convince you to start with a doctor from Singapore to see if Jedi responded to treatment. Ju needs to take credit for all the hours she has worked teaching Jedi what he couldn’t learn before Dr G treated his immune issues. One of the reasons Ju has had so much success with Jedi is that she has taken things into her own hands. She fired all the therapists who didn’t believe Jedi could get better and started teaching him herself. At first the progress was slow and not an immediate, but Ju now understands that these kids pick up where they left off. Her son was two when he stopped progressing so he had to learn all the things two year olds learns. Jedi had outbursts like a two year old at first (which doesn’t look so good when a kid is five or six) but they need to go through all the developmental stages normal kids do. It is hard because they need to be taught what other kids just learn. Ju, you are an amazing mom and I’m so proud of what you have accomplished with Jedi in such a relatively short period of time. This is hard, not an immediate fix, and definitely not for sissies. You keep going girl. He will get better with a mom like you. To have results like Ju, moms have to be a bit obsessive and not give up when their children don’t look at them or respond to them. Our kids in the beginning don’t show us they are learning. We have to keep talking to them even though there is no indication our children get what you are saying. Only a dedicated stubborn mom like you can do that. You are truly amazing!!! Best and love always,Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Ju,I was scared when I first sent you to Dr. Goldberg. What if he couldn’t help Jedi? You were coming all the way from Singapore and what if your son had too many problems with his immune system to be helped? But you were determined and convinced this was what you were going to do even though I tried to convince you to start with a doctor from Singapore to see if Jedi responded to treatment. Ju needs to take credit for all the hours she has worked teaching Jedi what he couldn’t learn before Dr G treated his immune issues. One of the reasons Ju has had so much success with Jedi is that she has taken things into her own hands. She fired all the therapists who didn’t believe Jedi could get better and started teaching him herself. At first the progress was slow and not an immediate, but Ju now understands that these kids pick up where they left off. Her son was two when he stopped progressing so he had to learn all the things two year olds learns. Jedi had outbursts like a two year old at first (which doesn’t look so good when a kid is five or six) but they need to go through all the developmental stages normal kids do. It is hard because they need to be taught what other kids just learn. Ju, you are an amazing mom and I’m so proud of what you have accomplished with Jedi in such a relatively short period of time. This is hard, not an immediate fix, and definitely not for sissies. You keep going girl. He will get better with a mom like you. To have results like Ju, moms have to be a bit obsessive and not give up when their children don’t look at them or respond to them. Our kids in the beginning don’t show us they are learning. We have to keep talking to them even though there is no indication our children get what you are saying. Only a dedicated stubborn mom like you can do that. You are truly amazing!!! Best and love always,Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 What's the best time for you to talk?Kath JktSent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...!Sender: mb12 valtrex Date: Wed, 1 Dec 2010 11:03:38 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies sure, I was travelling probably.To: mb12 valtrex Sent: Thu, December 2, 2010 12:08:32 AMSubject: Re: Re: Took My Son to the Movies Hi ju,I tried to text you last time but didn't get any response,could I call you tonight or maybe tomorrowJakarta Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Wed, 1 Dec 2010 07:55:39 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies Der List-mates, I would like to share with you my son's progress after 7 months period with Dr.G. He has huge progress, He learns how to sing 20 songs, suddenly reads many words, being able to handle and play on complicated obstacles at the playground, Can you believe it that he can even do Rock climbing, imitate and imagination play, dance and wrestle with us, looking at the camera when being taken pictures,learns things faster than before, is very alert, still has a lot more to list down..one more thing he is very opinionated now and has a normal child's reaction. I remembered 7 months ago, his psychiatrist has prognosis of him as a severe autistic. Yesterday, I got a report from his psychiatrist, believe it or not " the report wrote: Mild autistic". The best thing is his face is full of beautiful smiles and expression. I love him more and more each day. Although he is still far from finish line but seeing his improvement I am very sure One day there is a breakthrough, as long as I do not give up hope on him. Let us keep hoping for the best. Jed's mummyTo: mb12 valtrex Sent: Wed, December 1, 2010 1:01:45 PMSubject: Re: Re: Took My Son to the Movies hi,Honestly I was shocked read your post because we has seeing dr.Goldberg too from last june,we've been on famvir for 4 month without progress so he switched to zovirax (3rd weeks) and zoloft for ssri,nizoral. I noticed my son spelled some words but prompted but not clear either and it goes up and down and for stimming still have lots of it always having die off for few first week but after that not seeing much changes too.We already done chelation,hbot,b12,biomed.What I want to ask :How long have you been seeing dr.G?When you said first week started you saw progress after paxil,so is it mean his not go through die off for paxill?How old is your kid? Mine 6yo few days ago.I always waiting for something good come to us but still haven't come what I expected yet.Please kindly reply meThanks Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Mon, 29 Nov 2010 21:10:27 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Took My Son to the Movies Sure - Dr. Goldberg runs bloodwork looking for signs of immune dysfunction in our kids. This includes NK function, viral titers, ANA, CBC (low WBC or high Lymph count can signal viral infection), etc. We also ran a brain spect through Dr. Uszler while we were in LA. It showed moderate hypoperfusion of the temporal lobes(basically a lack of bloodflow to the temporal lobes). Despite all the HBOT, IVIG, B12, chelation, stem cell treatments and anti-seizures meds, Seth's bloodflow was still not regulated. So, to get the blood flowing, Dr. Goldberg put Seth on a low dose SSRI (Paxil) and within weeks of starting, he began to speak in sentences and began to have conversations with us. He also became opinionated and taught himself how to swim under water. This was huge (at least for us). He also put him on Famvir since his IGG titers were high for CMV, EBV and HHV6. He initally was very lethargic but then came out sharper. Just recently we introducedImunovir (widely used in Europe for its immune modulating and anti-viral benefits) and this too has helped to regulate Seth's immune system. Initially, we had crazy die-off which caught me off guard. Bur now he is not stimming as much like he used to and is so much calmer. He is also on Diflucan to keep yeast in check. He also takes Immunoglobin G for low IGG numbers and Zyrtec for allergies. All of this has made a huge difference! Seth is not recovered yet. He is still very shy with others. But little by little he is coming around. Every day he keeps getting healthier and healthier with less and less of the autistic symptoms. So I will keep going until my boy is where he belongs.... jackie>> that iswonderful!! Congrats! Would you be willing to share some info about > the NIDS protocol. I have been to the main websites and we believe our son > defiantely shows the signs of immune dysfunction but I am wondering what the > protocol itself is like?> > > > >________________________________> > To: mb12 valtrex > Sent: Sat, November 27, 2010 1:25:43 PM> Subject: Took My Son to the Movies> >  > Just wanted to share that I took my 7 year old son to the movies two nights ago > to see Tangled and you could not pick him out from a crowd. I never thought this > would have been possible six months ago before starting NIDS.The Famvir, Paxil > and Imunovir are bringing my son back. Never give up...> > jackie (seth's mom)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 What's the best time for you to talk?Kath JktSent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...!Sender: mb12 valtrex Date: Wed, 1 Dec 2010 11:03:38 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies sure, I was travelling probably.To: mb12 valtrex Sent: Thu, December 2, 2010 12:08:32 AMSubject: Re: Re: Took My Son to the Movies Hi ju,I tried to text you last time but didn't get any response,could I call you tonight or maybe tomorrowJakarta Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Wed, 1 Dec 2010 07:55:39 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies Der List-mates, I would like to share with you my son's progress after 7 months period with Dr.G. He has huge progress, He learns how to sing 20 songs, suddenly reads many words, being able to handle and play on complicated obstacles at the playground, Can you believe it that he can even do Rock climbing, imitate and imagination play, dance and wrestle with us, looking at the camera when being taken pictures,learns things faster than before, is very alert, still has a lot more to list down..one more thing he is very opinionated now and has a normal child's reaction. I remembered 7 months ago, his psychiatrist has prognosis of him as a severe autistic. Yesterday, I got a report from his psychiatrist, believe it or not " the report wrote: Mild autistic". The best thing is his face is full of beautiful smiles and expression. I love him more and more each day. Although he is still far from finish line but seeing his improvement I am very sure One day there is a breakthrough, as long as I do not give up hope on him. Let us keep hoping for the best. Jed's mummyTo: mb12 valtrex Sent: Wed, December 1, 2010 1:01:45 PMSubject: Re: Re: Took My Son to the Movies hi,Honestly I was shocked read your post because we has seeing dr.Goldberg too from last june,we've been on famvir for 4 month without progress so he switched to zovirax (3rd weeks) and zoloft for ssri,nizoral. I noticed my son spelled some words but prompted but not clear either and it goes up and down and for stimming still have lots of it always having die off for few first week but after that not seeing much changes too.We already done chelation,hbot,b12,biomed.What I want to ask :How long have you been seeing dr.G?When you said first week started you saw progress after paxil,so is it mean his not go through die off for paxill?How old is your kid? Mine 6yo few days ago.I always waiting for something good come to us but still haven't come what I expected yet.Please kindly reply meThanks Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Mon, 29 Nov 2010 21:10:27 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Took My Son to the Movies Sure - Dr. Goldberg runs bloodwork looking for signs of immune dysfunction in our kids. This includes NK function, viral titers, ANA, CBC (low WBC or high Lymph count can signal viral infection), etc. We also ran a brain spect through Dr. Uszler while we were in LA. It showed moderate hypoperfusion of the temporal lobes(basically a lack of bloodflow to the temporal lobes). Despite all the HBOT, IVIG, B12, chelation, stem cell treatments and anti-seizures meds, Seth's bloodflow was still not regulated. So, to get the blood flowing, Dr. Goldberg put Seth on a low dose SSRI (Paxil) and within weeks of starting, he began to speak in sentences and began to have conversations with us. He also became opinionated and taught himself how to swim under water. This was huge (at least for us). He also put him on Famvir since his IGG titers were high for CMV, EBV and HHV6. He initally was very lethargic but then came out sharper. Just recently we introducedImunovir (widely used in Europe for its immune modulating and anti-viral benefits) and this too has helped to regulate Seth's immune system. Initially, we had crazy die-off which caught me off guard. Bur now he is not stimming as much like he used to and is so much calmer. He is also on Diflucan to keep yeast in check. He also takes Immunoglobin G for low IGG numbers and Zyrtec for allergies. All of this has made a huge difference! Seth is not recovered yet. He is still very shy with others. But little by little he is coming around. Every day he keeps getting healthier and healthier with less and less of the autistic symptoms. So I will keep going until my boy is where he belongs.... jackie>> that iswonderful!! Congrats! Would you be willing to share some info about > the NIDS protocol. I have been to the main websites and we believe our son > defiantely shows the signs of immune dysfunction but I am wondering what the > protocol itself is like?> > > > >________________________________> > To: mb12 valtrex > Sent: Sat, November 27, 2010 1:25:43 PM> Subject: Took My Son to the Movies> >  > Just wanted to share that I took my 7 year old son to the movies two nights ago > to see Tangled and you could not pick him out from a crowd. I never thought this > would have been possible six months ago before starting NIDS.The Famvir, Paxil > and Imunovir are bringing my son back. Never give up...> > jackie (seth's mom)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 That's deal then. :)Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...!Sender: mb12 valtrex Date: Wed, 1 Dec 2010 11:31:39 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies Kath, Tomorrow will not be the best time. If you want to call me when Jed is in school on Friday around 2 to 5 Singapore time.To: mb12 valtrex Sent: Thu, December 2, 2010 3:11:09 AMSubject: Re: Re: Took My Son to the Movies What's the best time for you to talk?Kath Jkt Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Wed, 1 Dec 2010 11:03:38 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies sure, I was travelling probably.To: mb12 valtrex Sent: Thu, December 2, 2010 12:08:32 AMSubject: Re: Re: Took My Son to the Movies Hi ju,I tried to text you last time but didn't get any response,could I call you tonight or maybe tomorrowJakarta Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Wed, 1 Dec 2010 07:55:39 -0800 (PST)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Took My Son to the Movies Der List-mates, I would like to share with you my son's progress after 7 months period with Dr.G. He has huge progress, He learns how to sing 20 songs, suddenly reads many words, being able to handle and play on complicated obstacles at the playground, Can you believe it that he can even do Rock climbing, imitate and imagination play, dance and wrestle with us, looking at the camera when being taken pictures,learns things faster than before, is very alert, still has a lot more to list down..one more thing he is very opinionated now and has a normal child's reaction. I remembered 7 months ago, his psychiatrist has prognosis of him as a severe autistic. Yesterday, I got a report from his psychiatrist, believe it or not " the report wrote: Mild autistic". The best thing is his face is full of beautiful smiles and expression. I love him more and more each day. Although he is still far from finish line but seeing his improvement I am very sure One day there is a breakthrough, as long as I do not give up hope on him. Let us keep hoping for the best. Jed's mummyTo: mb12 valtrex Sent: Wed, December 1, 2010 1:01:45 PMSubject: Re: Re: Took My Son to the Movies hi,Honestly I was shocked read your post because we has seeing dr.Goldberg too from last june,we've been on famvir for 4 month without progress so he switched to zovirax (3rd weeks) and zoloft for ssri,nizoral. I noticed my son spelled some words but prompted but not clear either and it goes up and down and for stimming still have lots of it always having die off for few first week but after that not seeing much changes too.We already done chelation,hbot,b12,biomed.What I want to ask :How long have you been seeing dr.G?When you said first week started you saw progress after paxil,so is it mean his not go through die off for paxill?How old is your kid? Mine 6yo few days ago.I always waiting for something good come to us but still haven't come what I expected yet.Please kindly reply meThanks Sent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...! Sender: mb12 valtrex Date: Mon, 29 Nov 2010 21:10:27 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Took My Son to the Movies Sure - Dr. Goldberg runs bloodwork looking for signs of immune dysfunction in our kids. This includes NK function, viral titers, ANA, CBC (low WBC or high Lymph count can signal viral infection), etc. We also ran a brain spect through Dr. Uszler while we were in LA. It showed moderate hypoperfusion of the temporal lobes(basically a lack of bloodflow to the temporal lobes). Despite all the HBOT, IVIG, B12, chelation, stem cell treatments and anti-seizures meds, Seth's bloodflow was still not regulated. So, to get the blood flowing, Dr. Goldberg put Seth on a low dose SSRI (Paxil) and within weeks of starting, he began to speak in sentences and began to have conversations with us. He also became opinionated and taught himself how to swim under water. This was huge (at least for us). He also put him on Famvir since his IGG titers were high for CMV, EBV and HHV6. He initally was very lethargic but then came out sharper. Just recently we introducedImunovir (widely used in Europe for its immune modulating and anti-viral benefits) and this too has helped to regulate Seth's immune system. Initially, we had crazy die-off which caught me off guard. Bur now he is not stimming as much like he used to and is so much calmer. He is also on Diflucan to keep yeast in check. He also takes Immunoglobin G for low IGG numbers and Zyrtec for allergies. All of this has made a huge difference! Seth is not recovered yet. He is still very shy with others. But little by little he is coming around. Every day he keeps getting healthier and healthier with less and less of the autistic symptoms. So I will keep going until my boy is where he belongs.... jackie>> that iswonderful!! Congrats! Would you be willing to share some info about > the NIDS protocol. I have been to the main websites and we believe our son > defiantely shows the signs of immune dysfunction but I am wondering what the > protocol itself is like?> > > > >________________________________> > To: mb12 valtrex > Sent: Sat, November 27, 2010 1:25:43 PM> Subject: Took My Son to the Movies> >  > Just wanted to share that I took my 7 year old son to the movies two nights ago > to see Tangled and you could not pick him out from a crowd. I never thought this > would have been possible six months ago before starting NIDS.The Famvir, Paxil > and Imunovir are bringing my son back. Never give up...> > jackie (seth's mom)> Quote Link to comment Share on other sites More sharing options...
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