Re: Thoughts on my mind...

[Guest guest]

Chantelle,

The way to find out about seizures is by having an EEG. You lay down and

they glue tons of wires on to your scalp. Then they turn off the light, ask you

questions, have you take deep breaths and then flash a terribly annoying light

in front of your face. I have had these before. I actually love them

because I love my scalp being rubbed. My other daughter, a has had them

and

she hates it because she can't stand her scalp being rubbed. There are others

we have had which were more in depth but those were for different reasons.

About the voices, you know I always have a song in my head. I have to

control it or every once in a while I will hum or sing when it isn't appropriate

It is just who I am. When I was younger I used to get in to trouble for not

listening. It didn't matter, I was just enjoying the music! Are your voices

just thoughts? If not seeing a psychiatrist would be your best bet. Patty

has Tourettes, ADHD and OCD. She has had a psychiatrist for years. Even though

we are now in MA we have kept him so far. He understands. He has done

wonders in explaining to her who she is and why things happen. He has also

taught

her some relaxation techniques. Do you have a counselor on a psychiatrist you

can see? It really would help you in times of stress. Each of us in my

family have sought help now and then. That at times has been our saving grace.

Sometimes Patty just doesn't want to talk to us, and she shouldn't have to.

Still

though she has to talk to someone. I think you just might need someone to

lend an ear and not make opinions or judgments. And that person has to be

trained in deaf/blind or CHARGE issues. Don't just go to anyone.

You are a wonderful woman. Take some time to remember you are a gift to the

world.

Bonnie, mom to a 21, Patty CHARGE 19, and wife to

[Guest guest]

Hi Chantelle,

I have infrequent seizures. They did a test, the one where they put all that

stuff in your head, wire you up, and I didn't have a seizure during the test

so they didn't know what was causing it. However, I've never heard of

hearing voices from seizures, although I'm sure your doctor would know more

about that than I do.

Kay

Thoughts on my mind...

> Well I came up with the theory that perhaps my seizures are what are

> causing the " voices " I keep hearing. They are not nice things going

> on my head but I get them mostly when im under a lot of stress yet

> happen weather im in a good mood or in a bad mood. Also I have been

> getting the " shakes " more often. I guess I will head to my doctors.

> Ask her to get a mri AND an eeg. I want to though get any info from

> anyone wo has had seizures and how they were detected. I would like

> to bring this info to someone. Thanks

>

> Chantelle

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

Hi Chantelle,

I have infrequent seizures. They did a test, the one where they put all that

stuff in your head, wire you up, and I didn't have a seizure during the test

so they didn't know what was causing it. However, I've never heard of

hearing voices from seizures, although I'm sure your doctor would know more

about that than I do.

Kay

Thoughts on my mind...

> Well I came up with the theory that perhaps my seizures are what are

> causing the " voices " I keep hearing. They are not nice things going

> on my head but I get them mostly when im under a lot of stress yet

> happen weather im in a good mood or in a bad mood. Also I have been

> getting the " shakes " more often. I guess I will head to my doctors.

> Ask her to get a mri AND an eeg. I want to though get any info from

> anyone wo has had seizures and how they were detected. I would like

> to bring this info to someone. Thanks

>

> Chantelle

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

Thanks, ive actualy been noticeing them a lot more frequently. I get

them infrequent too. Hopefully they can find something.

Chantelle