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RE: FW: Welcome to CHARGE

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Welcome!

maria mom to timmy ChARGE 9 on 8/15, keegan 6, liam 31/2 wife to pat

RE: Welcome to CHARGE

>

>

> HI all, Sharon here from West Oz,

> I'm new to this list. As a teacher and Communication Specialist for

> children who are deafblind, I am currently seeing 2 gorgeous children

> with CHARGE and I look forward to learning more from you all.

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Hi Pam,

Thanks!

I've only just subscribed and have learned so much already...I am

shocked at the insurance hassles families have in the USA. We think

we have it bad here in Australia, but at least Medicare here takes

care of most costs and I am unaware of any family having to go

through the hoops that you do!

Looking forward to seeing all of you at the DBI World Conf here in

2007! We are hoping for a large CHARGE delegation.

Sharon

>Hey, Sharon!!

>Welcome to this lovely group!!

>Pam

>

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Hi Sharon: There are certainly many parents and individuals with

CHARGE to learn from, and new issues with CHARGE keep unfolding. As a

professional, you may in time find it easier to read from the yahoo

CHARGE listserv website instead of individual e-mail, usually the

topic area is highlighted accordingly so you can pick and choose, or

catch up on issues. If you haven't asked already, I shall encourage

you to join the professional DbI CHARGE network listserv as well, I

think is the moderator for that to sign into.

Ann Gloyn

Deafblind and Spec.Ed. Specialist

Canada

>

> Sharon, I've forwarded this to the charge list. To send mail direct

to the

> list and reach everyone, make sure your email is addressed to

> charge@y...

> -

> RE: Welcome to CHARGE

>

>

> HI all, Sharon here from West Oz,

> I'm new to this list. As a teacher and Communication Specialist for

> children who are deafblind, I am currently seeing 2 gorgeous children

> with CHARGE and I look forward to learning more from you all.

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Hi Sharon: There are certainly many parents and individuals with

CHARGE to learn from, and new issues with CHARGE keep unfolding. As a

professional, you may in time find it easier to read from the yahoo

CHARGE listserv website instead of individual e-mail, usually the

topic area is highlighted accordingly so you can pick and choose, or

catch up on issues. If you haven't asked already, I shall encourage

you to join the professional DbI CHARGE network listserv as well, I

think is the moderator for that to sign into.

Ann Gloyn

Deafblind and Spec.Ed. Specialist

Canada

>

> Sharon, I've forwarded this to the charge list. To send mail direct

to the

> list and reach everyone, make sure your email is addressed to

> charge@y...

> -

> RE: Welcome to CHARGE

>

>

> HI all, Sharon here from West Oz,

> I'm new to this list. As a teacher and Communication Specialist for

> children who are deafblind, I am currently seeing 2 gorgeous children

> with CHARGE and I look forward to learning more from you all.

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Dear Sharon,

I can't believe DBI will be in Australia--how cool is that!!

I am hoping to go--a bit nervous about the length of the trip, but should be

WELL worth it!!

I am now officially on vacation--we don't go back to school until Aug 30--I am a

happy girl!

take care and hope to see you --sooner than 2007--are you coming this way at

all?

pam

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Guest guest

Dear Sharon,

I can't believe DBI will be in Australia--how cool is that!!

I am hoping to go--a bit nervous about the length of the trip, but should be

WELL worth it!!

I am now officially on vacation--we don't go back to school until Aug 30--I am a

happy girl!

take care and hope to see you --sooner than 2007--are you coming this way at

all?

pam

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Guest guest

Enjoy that vacation. Summer's go all to quickly for those of us who teach.

Lynn

RE: FW: Welcome to CHARGE

Dear Sharon,

I can't believe DBI will be in Australia--how cool is that!!

I am hoping to go--a bit nervous about the length of the trip, but should be

WELL worth it!!

I am now officially on vacation--we don't go back to school until Aug 30--I am

a happy girl!

take care and hope to see you --sooner than 2007--are you coming this way at

all?

pam

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Guest guest

Enjoy that vacation. Summer's go all to quickly for those of us who teach.

Lynn

RE: FW: Welcome to CHARGE

Dear Sharon,

I can't believe DBI will be in Australia--how cool is that!!

I am hoping to go--a bit nervous about the length of the trip, but should be

WELL worth it!!

I am now officially on vacation--we don't go back to school until Aug 30--I am

a happy girl!

take care and hope to see you --sooner than 2007--are you coming this way at

all?

pam

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Guest guest

Enjoy that vacation. Summer's go all to quickly for those of us who teach.

Lynn

RE: FW: Welcome to CHARGE

Dear Sharon,

I can't believe DBI will be in Australia--how cool is that!!

I am hoping to go--a bit nervous about the length of the trip, but should be

WELL worth it!!

I am now officially on vacation--we don't go back to school until Aug 30--I am

a happy girl!

take care and hope to see you --sooner than 2007--are you coming this way at

all?

pam

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Guest guest

Thanks Ann,

I have tried to join the other list too, but have not been able to

connect for some reason...I'll contact privately for assistance.

Thanks.

Even in the few short days I've read from this list, I am overwhelmed

at the enormous strength of character of the children/young adults

and the depth of knowledge families have gained...yes, we have a lot

to learn from these kids and their parents! A great list. Thank you.

>Hi Sharon: There are certainly many parents and individuals with

>CHARGE to learn from, and new issues with CHARGE keep unfolding. As a

>professional, you may in time find it easier to read from the yahoo

>CHARGE listserv website instead of individual e-mail, usually the

>topic area is highlighted accordingly so you can pick and choose, or

>catch up on issues. If you haven't asked already, I shall encourage

>you to join the professional DbI CHARGE network listserv as well, I

>think is the moderator for that to sign into.

>Ann Gloyn

>Deafblind and Spec.Ed. Specialist

>Canada

>

>

>

>>

>> Sharon, I've forwarded this to the charge list. To send mail direct

>to the

>> list and reach everyone, make sure your email is addressed to

>> charge@y...

>> -

>> RE: Welcome to CHARGE

>>

>>

>> HI all, Sharon here from West Oz,

>> I'm new to this list. As a teacher and Communication Specialist for

>> children who are deafblind, I am currently seeing 2 gorgeous children

>> with CHARGE and I look forward to learning more from you all.

>

>

>

>

>Membership of this email support groups does not constitute

>membership in the CHARGE Syndrome Foundation.

>For information about the CHARGE Syndrome

>Foundation or to become a member (and get the newsletter)

>please contact marion@... or visit

>the CHARGE Syndrome Foundation web page

>at http://www.chargesyndrome.org

>7th International

>CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

>Information will be available at our website

>www.chargesyndrome.org or by calling 1-. In Canada, you

>may contact CHARGE Syndrome Canada at 1- (families),

>visit www.chargesyndrome.ca, or email info@.... Thank

>you!

>

>

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Guest guest

Thanks Ann,

I have tried to join the other list too, but have not been able to

connect for some reason...I'll contact privately for assistance.

Thanks.

Even in the few short days I've read from this list, I am overwhelmed

at the enormous strength of character of the children/young adults

and the depth of knowledge families have gained...yes, we have a lot

to learn from these kids and their parents! A great list. Thank you.

>Hi Sharon: There are certainly many parents and individuals with

>CHARGE to learn from, and new issues with CHARGE keep unfolding. As a

>professional, you may in time find it easier to read from the yahoo

>CHARGE listserv website instead of individual e-mail, usually the

>topic area is highlighted accordingly so you can pick and choose, or

>catch up on issues. If you haven't asked already, I shall encourage

>you to join the professional DbI CHARGE network listserv as well, I

>think is the moderator for that to sign into.

>Ann Gloyn

>Deafblind and Spec.Ed. Specialist

>Canada

>

>

>

>>

>> Sharon, I've forwarded this to the charge list. To send mail direct

>to the

>> list and reach everyone, make sure your email is addressed to

>> charge@y...

>> -

>> RE: Welcome to CHARGE

>>

>>

>> HI all, Sharon here from West Oz,

>> I'm new to this list. As a teacher and Communication Specialist for

>> children who are deafblind, I am currently seeing 2 gorgeous children

>> with CHARGE and I look forward to learning more from you all.

>

>

>

>

>Membership of this email support groups does not constitute

>membership in the CHARGE Syndrome Foundation.

>For information about the CHARGE Syndrome

>Foundation or to become a member (and get the newsletter)

>please contact marion@... or visit

>the CHARGE Syndrome Foundation web page

>at http://www.chargesyndrome.org

>7th International

>CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

>Information will be available at our website

>www.chargesyndrome.org or by calling 1-. In Canada, you

>may contact CHARGE Syndrome Canada at 1- (families),

>visit www.chargesyndrome.ca, or email info@.... Thank

>you!

>

>

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Guest guest

Thanks Ann,

I have tried to join the other list too, but have not been able to

connect for some reason...I'll contact privately for assistance.

Thanks.

Even in the few short days I've read from this list, I am overwhelmed

at the enormous strength of character of the children/young adults

and the depth of knowledge families have gained...yes, we have a lot

to learn from these kids and their parents! A great list. Thank you.

>Hi Sharon: There are certainly many parents and individuals with

>CHARGE to learn from, and new issues with CHARGE keep unfolding. As a

>professional, you may in time find it easier to read from the yahoo

>CHARGE listserv website instead of individual e-mail, usually the

>topic area is highlighted accordingly so you can pick and choose, or

>catch up on issues. If you haven't asked already, I shall encourage

>you to join the professional DbI CHARGE network listserv as well, I

>think is the moderator for that to sign into.

>Ann Gloyn

>Deafblind and Spec.Ed. Specialist

>Canada

>

>

>

>>

>> Sharon, I've forwarded this to the charge list. To send mail direct

>to the

>> list and reach everyone, make sure your email is addressed to

>> charge@y...

>> -

>> RE: Welcome to CHARGE

>>

>>

>> HI all, Sharon here from West Oz,

>> I'm new to this list. As a teacher and Communication Specialist for

>> children who are deafblind, I am currently seeing 2 gorgeous children

>> with CHARGE and I look forward to learning more from you all.

>

>

>

>

>Membership of this email support groups does not constitute

>membership in the CHARGE Syndrome Foundation.

>For information about the CHARGE Syndrome

>Foundation or to become a member (and get the newsletter)

>please contact marion@... or visit

>the CHARGE Syndrome Foundation web page

>at http://www.chargesyndrome.org

>7th International

>CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

>Information will be available at our website

>www.chargesyndrome.org or by calling 1-. In Canada, you

>may contact CHARGE Syndrome Canada at 1- (families),

>visit www.chargesyndrome.ca, or email info@.... Thank

>you!

>

>

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Hey Sharon welcome to the group..im a charger from Melbourne

Belinda

RE: FW: Welcome to CHARGE

> Hi Pam,

> Thanks!

> I've only just subscribed and have learned so much already...I am

> shocked at the insurance hassles families have in the USA. We think

> we have it bad here in Australia, but at least Medicare here takes

> care of most costs and I am unaware of any family having to go

> through the hoops that you do!

> Looking forward to seeing all of you at the DBI World Conf here in

> 2007! We are hoping for a large CHARGE delegation.

> Sharon

>

> >Hey, Sharon!!

> >Welcome to this lovely group!!

> >Pam

> >

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Guest guest

Hey Sharon welcome to the group..im a charger from Melbourne

Belinda

RE: FW: Welcome to CHARGE

> Hi Pam,

> Thanks!

> I've only just subscribed and have learned so much already...I am

> shocked at the insurance hassles families have in the USA. We think

> we have it bad here in Australia, but at least Medicare here takes

> care of most costs and I am unaware of any family having to go

> through the hoops that you do!

> Looking forward to seeing all of you at the DBI World Conf here in

> 2007! We are hoping for a large CHARGE delegation.

> Sharon

>

> >Hey, Sharon!!

> >Welcome to this lovely group!!

> >Pam

> >

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Guest guest

Hey Sharon welcome to the group..im a charger from Melbourne

Belinda

RE: FW: Welcome to CHARGE

> Hi Pam,

> Thanks!

> I've only just subscribed and have learned so much already...I am

> shocked at the insurance hassles families have in the USA. We think

> we have it bad here in Australia, but at least Medicare here takes

> care of most costs and I am unaware of any family having to go

> through the hoops that you do!

> Looking forward to seeing all of you at the DBI World Conf here in

> 2007! We are hoping for a large CHARGE delegation.

> Sharon

>

> >Hey, Sharon!!

> >Welcome to this lovely group!!

> >Pam

> >

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Hi Pam,

Not sure when I'll next be in the states...but thinking of sailing

the Caribbean next year, so could be then! The DBI conf here will be

a good one! Were you one of the 'red hand' group in Toronto? Sharon

>Dear Sharon,

>I can't believe DBI will be in Australia--how cool is that!!

>I am hoping to go--a bit nervous about the length of the trip, but

>should be WELL worth it!!

>I am now officially on vacation--we don't go back to school until

>Aug 30--I am a happy girl!

>

>take care and hope to see you --sooner than 2007--are you coming

>this way at all?

>

>pam

>

>

>

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Guest guest

Hi Pam,

Not sure when I'll next be in the states...but thinking of sailing

the Caribbean next year, so could be then! The DBI conf here will be

a good one! Were you one of the 'red hand' group in Toronto? Sharon

>Dear Sharon,

>I can't believe DBI will be in Australia--how cool is that!!

>I am hoping to go--a bit nervous about the length of the trip, but

>should be WELL worth it!!

>I am now officially on vacation--we don't go back to school until

>Aug 30--I am a happy girl!

>

>take care and hope to see you --sooner than 2007--are you coming

>this way at all?

>

>pam

>

>

>

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Guest guest

Thanks Belinda,

I have heard about the wonderful presentation you gave at the CHARGE

conf in Melb last year. One of the Mums from here thought you were

great. Hope to see you in Sydney at the CHARGE Conf in Oct. Sharon

>Hey Sharon welcome to the group..im a charger from Melbourne

>Belinda

> RE: FW: Welcome to CHARGE

>

>

>> Hi Pam,

>> Thanks!

>> I've only just subscribed and have learned so much already...I am

>> shocked at the insurance hassles families have in the USA. We think

>> we have it bad here in Australia, but at least Medicare here takes

>> care of most costs and I am unaware of any family having to go

>> through the hoops that you do!

>> Looking forward to seeing all of you at the DBI World Conf here in

>> 2007! We are hoping for a large CHARGE delegation.

>> Sharon

>>

>> >Hey, Sharon!!

>> >Welcome to this lovely group!!

>> >Pam

>> >

>>

>>

>>

>> Membership of this email support groups does not constitute membership in

>the CHARGE Syndrome Foundation.

>> For information about the CHARGE Syndrome

>> Foundation or to become a member (and get the newsletter)

>> please contact marion@... or visit

>> the CHARGE Syndrome Foundation web page

>> at http://www.chargesyndrome.org

>> 7th International

>> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

>Information will be available at our website

>> www.chargesyndrome.org or by calling 1-. In Canada, you may

>contact CHARGE Syndrome Canada at 1- (families), visit

>www.chargesyndrome.ca, or email info@.... Thank you!

>>

>>

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Guest guest

Thanks Belinda,

I have heard about the wonderful presentation you gave at the CHARGE

conf in Melb last year. One of the Mums from here thought you were

great. Hope to see you in Sydney at the CHARGE Conf in Oct. Sharon

>Hey Sharon welcome to the group..im a charger from Melbourne

>Belinda

> RE: FW: Welcome to CHARGE

>

>

>> Hi Pam,

>> Thanks!

>> I've only just subscribed and have learned so much already...I am

>> shocked at the insurance hassles families have in the USA. We think

>> we have it bad here in Australia, but at least Medicare here takes

>> care of most costs and I am unaware of any family having to go

>> through the hoops that you do!

>> Looking forward to seeing all of you at the DBI World Conf here in

>> 2007! We are hoping for a large CHARGE delegation.

>> Sharon

>>

>> >Hey, Sharon!!

>> >Welcome to this lovely group!!

>> >Pam

>> >

>>

>>

>>

>> Membership of this email support groups does not constitute membership in

>the CHARGE Syndrome Foundation.

>> For information about the CHARGE Syndrome

>> Foundation or to become a member (and get the newsletter)

>> please contact marion@... or visit

>> the CHARGE Syndrome Foundation web page

>> at http://www.chargesyndrome.org

>> 7th International

>> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

>Information will be available at our website

>> www.chargesyndrome.org or by calling 1-. In Canada, you may

>contact CHARGE Syndrome Canada at 1- (families), visit

>www.chargesyndrome.ca, or email info@.... Thank you!

>>

>>

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Guest guest

Sharon,

No, I did not go to DBI, because I had been to CHARGE (can't have everything!).

So, my name will be in the school " hat " for the next DBI and hopefully I will be

picked.

The Carribean--how lovely to think of that!! Have a blast and GO! Learn from the

Moms here who remind us all to take care of ourselves!!

I am going to Cape Cod next week and the visualization is getting me through the

fracas of the Democratic National Convention which is basically in my back yard

right now, as well as overhead with the helicopters and fighter jets protecting

the Fleet Center in Boston (less than 2 miles from my house, so I guess they are

protecting me, too!).

Cheers.

pam

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Guest guest

Sharon,

No, I did not go to DBI, because I had been to CHARGE (can't have everything!).

So, my name will be in the school " hat " for the next DBI and hopefully I will be

picked.

The Carribean--how lovely to think of that!! Have a blast and GO! Learn from the

Moms here who remind us all to take care of ourselves!!

I am going to Cape Cod next week and the visualization is getting me through the

fracas of the Democratic National Convention which is basically in my back yard

right now, as well as overhead with the helicopters and fighter jets protecting

the Fleet Center in Boston (less than 2 miles from my house, so I guess they are

protecting me, too!).

Cheers.

pam

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Pam,

Is Boston as " crazy " as the media makes it sound. I can't imagin being 2

miles from all that craziness. Can you get out and about or are you " house

bound " . Makes me glad to be out in the middle of no where on my dirt road and

farm. It's at least 10 miles to just about anywhere I need to go. I like that

way.

Hang in there and enjoy Cape Cod. I've never been there.

Lynn

RE: FW: Welcome to CHARGE

Sharon,

No, I did not go to DBI, because I had been to CHARGE (can't have

everything!). So, my name will be in the school " hat " for the next DBI and

hopefully I will be picked.

The Carribean--how lovely to think of that!! Have a blast and GO! Learn from

the Moms here who remind us all to take care of ourselves!!

I am going to Cape Cod next week and the visualization is getting me through

the fracas of the Democratic National Convention which is basically in my back

yard right now, as well as overhead with the helicopters and fighter jets

protecting the Fleet Center in Boston (less than 2 miles from my house, so I

guess they are protecting me, too!).

Cheers.

pam

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