Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 Pretty much that is why I gave up on the milk... I was allowing coconut milk but we were wasting so much b/c they were only using it for cereal, maybe one time per week.... and I had no way to determine when it went bad (also not happy about the carageenan in it) Mine are on Feingold, which eliminates a lot of foods that have been shown to increase hyperactivity. It's the old school ADHD diet from the 70s, where you cut out artificial dye, etc... some of the things they also have you temporarily eliminate are apples, oranges, grapes, etc... after a 4-6 weeks trial where you have seen the hyperactivity disappear, then you try to reintroduce an eliminated food and watch for reactions. With this diet we were able to discover that watermelons set my ASD child off. Watermelon is actually an allowable Feingold stage one food but because we were cleaning up their diets so much, we were able to isolate the watermelon reaction (otherwise we would have just thought SSDD same * different day) FINALLY got around to doing IGG blood draw for them today, so hoping this will be my last round of eliminations LOLCurrently they are LOD, GF, limited casein and FG!!! Thanks for the info! If I am giving them enough calcium (OJ and supps) and they are getting omega 3's and all of that, is there really even a reason to give milk at all? I may just cut it out all together. It seems like every time I think I have a handle on this diet, something changes. I had no idea almonds could be bad for you! Both of my girls have been out of their minds (SO hyperactive) - just acting like complete lunatics lately. They are having fun and it's amusing and all, but it's not like them. I wonder if this is all due to the switch in the milk. Thanks again for the info. - Kirk-To: mb12 valtrex From: bellbaby@...Date: Wed, 24 Nov 2010 15:17:33 -0500Subject: Re: milk substitute Almonds are high in phenol/salicylate and that could be causing the stimming and echolalia. Also, almonds are high oxalate, and oxalate can damage mitochondrial enzymes, which impairs detoxification.Because of the trouble finding a good milk sub, we have gone to goat's milk, and using enzymes (double dose with milk) I don't really recommend this for other people, but the milk thing was driving me crazy. We don't have a lot of milk anyway, mostly just a cheese snack here or there (raw goat's milk cheese) or a couple ounces on cereal. There is a potato milk but I think that might be medium to high oxalate as well. :-| Can someone recommend a good milk substitute that is gluten-free, dairy-free, soy-free? I found out that the rice milk I had given my girls had trace amounts of gluten. So we switched to a gluten-free brand. Then the DAN! took the girls off of soy. The new rice milk had soy. Then we finally found an almond milk that my daughters love that is GFCFSF. HOWEVER, my PDD daughter has recently started acting very odd, stimming has returned, echolalia, etc. So really this is two questions - could the almond milk be causing this behavior (it's the only thing diet-wise that I have changed recently), and if so, can someone recommend an alternative - preferably organic and fortified. This diet is not easy!!! - Kirk-To: mb12 valtrex From: bellbaby@... Date: Wed, 24 Nov 2010 13:15:17 -0500Subject: Re: Re: in despair, at a loss Almond is high phenol/salicylate and high oxalate. I stay away from them now (one of my fav foods!) Lucy, He actually started a mild cough before i switch to the almond. when he continue coughing after 2 days i stopped the almond and its been over a week now and he's still coughing. He's had an allergy test done and almond is class 1 compared to soy which was class 4. But he's really acting weird, I dont know if its the househelp that has this negative effect on him cos he wont let her do anything for him, which previously wasnt like that. or is he traumatised from too much medicine cos he's been medicated (herbal not drugs) for 2 weeks. I dont know the answer myself, i can only try my hardest to eliminate each possibility one at a time. But thank you very much for your kind advice. Rgrds, Fanny > > > > > > Help someone, I'm really at a loss at what to do for my son, considering my > > >location, the Dan in Singapore that I manage to contact is on leave indefinitely > > >which make it so difficult for discussion. Everytime I see Ethan's videos, i > > >will have tears running down, cos looking at the before videos, its like my son. > > >I wonder when that miracle will happen for my son. I wish I live in America or > > >Europe where I will have access to so many expert advice and help. Knowing that > > >there are so many alternatives available to try but having to stall and wait > > >just because everything is so incoveniently out of easy access. I wish I can go > > >into this without any expert advice but I know that I cannot be my own doctor. > > >It is really exasperating and I am dying inside with the passing of each day, > > >that I just let the days pass by 1 day at a time doing nothing for my son, whom > > >looking at Ethan, I know have the same chance of recovering fully from his mild > > >autism. We have went for the OAT, hair metal element test, the stool yeast > > >culture. And the Dan clinic have suggested these supplements: > > > - Doctor's Formula, Formula 1 (vitamins, minerals and amino acids) > > > - Similase > > > - Probiotics > > > - L-glutamine > > > - 5HTP > > > - CoQ10 > > > and after his stool yeast test, the Dan advise on Nystatin for 1 mth. in Stan's > > >article I've read about how Nystatin is not as effective as Nizoral or Diflucan > > >and so I asked if we can instead change the Nystatin for Nizoral or Diflucan. > > >And I've received a reply that they have used Nystatin so far and it had worked. > > >so I just pasted Stan's website and asked them to please consider. > > > I'm just at a loss here so if anyone can just please point me in the right > > >direction, cos I'm so alone here, we dont have lots of expert in this field > > >where I am here(indonesia). and I'm really doing all these reading for > > >information all alone, found the dan on my own. > > > > > > What we have done so far is only to go on the GFCF diet, but we're not > > >completely SF yet cos when I was going to change the soymilk to almond, he went > > >down with cough (which is a common sickness with him which happens on a very > > >regular basis) and maybe that was at the time when I ran out of the probiotics. > > >and we've started on the formula 1, so when the probiotics ran out, he started > > >to cough and increased hyperactivity and it seems that he's back to the old > > >autistic state. > > > Oh my God, I'm really ranting here, sorry but i really have no one to talk to, > > >not my parents not my husband, they just couldnt be bothered with the details, > > >they just wanna sit back and see the results. I have to find the way out, please > > >someone, can someone push me in the right direction. > > > > > > Thank you > > > Fanny > > > > > > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
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